Do shared care wards work?

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Do shared care wards work? Prof Rowan H. Harwood Nottingham University Hospitals NHS Trust & University of Nottingham rowan.harwood@nuh.nhs.uk This presentation is on independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research funding scheme (RP-PG-0407-10147). The views expressed in this presentation are those of the author and not necessarily those of the NHS, the NIHR or the Department of Health.

A Radical Suggestion David Nicholson, chief executive of the NHS Commissioning Board, asserts that Hospitals are very bad places for old, frail people and suggests alternatives must be found. Here is a radical suggestion make hospitals good places for older people. Marion ET McMurdo BMJ, 16 th Feb 2013

Comprehensive Geriatric Assessment Diagnosis Function Mental Health Social Environmental

Reports and policies Between two stools 2002 Who cares wins 2005 Everybody s business 2006 NICE guidelines 2007, 2010 National Dementia Strategy 2009 Acute Awareness 2010 Call to action 2012

Medical admissions over 70 9% delirium alone 19% delirium complicating dementia 23% dementia alone Total delirium 28% Total dementia 41% Previously diagnosed dementia 28% Whittamore et al, 2013

People with dementia in hospital are complex Presenting functional problems amongst patients over 70 with cognitive impairment admitted to a general hospital (n=53) Falls 34 (64%) Immobility 38 (73%) Pain 28 (54%) New incontinence 24 (46%) Breathlessness 12 (23%) Dehydration 11 (21%) Harwood et al, unpublished

People with dementia in hospital are dependent At least moderate severity prevalence amongst patients over 70 with cognitive impairment admitted to a general hospital (n=195) delusions 14% hallucinations 11% agitated 18% depressed 34% anxious 35% apathetic 38% disinhibited 10% sleep problems 34% help to transfer 65% (hoist 13%) help feeding 58% (unable 15%) incontinent of urine 67% Goldberg et al, 2012

Joint medical-psychiatric wards 2 justification and practicality 5 descriptive 6 evaluations, one pseudo-randomised trial Delirium and dementia, especially with behavioural problems and co-existent medical illnesses George J et al, Review, Age and Ageing 2011

Joint medical-psychiatric wards Dutch study 140 on special unit, vs 97 on general medical ward LOS 20 vs 25 days Readmission 14% vs 30% NH placement 18% vs 27% American delirium room study 148 patients on ACE unit, 44 with delirium LOS 6 vs 6 days ADL scores improved more in those with delirium Slaets Psychosomatic Med 1997 Flaherty J Gerontol 2010

NIHR MCOP programme Medical Crises in Older People Observational phase Follow up study Patient/carer interviews Workforce study Service development Service evaluation and economic study

How to build a Medical and Mental Health Unit Support from two Trusts, University and PCTs Multidisciplinary development group Literature review Visits to other units Discussion with experts Cohort and qualitative studies 18 months of learning from experience

New model of care Environment Specialist mental health staff Training in person centred dementia care Purposeful activity New approach to family carers www.nottingham.ac.uk/mcop

Spot the difference: Yellow bay Standard care MMHU

Person-centred care Value people with dementia and protect their rights Recognise and respect what makes each person unique Understand the perspective of the person with dementia Use relationships to reduce distress and enhance well-being DH Commissioning Framework for Dementia 2011

Clothes As our patients recover, it helps if they get up and dressed. Please ensure that your relative has something to wear, preferably labelled. Ask the nurse about arrangements for returning clothes for washing. Thanks, B47

NIHR TEAM Trial: outcomes at 90 days number of days spent at home or original care home: - length of stay, readmissions, deaths, new care home placements health status scales: - Quality of life, behaviour, disability - Carer satisfaction, strain, psychological wellbeing resource use and costs non-participant observer study interview study of carers

Baseline characteristics MMHU (n=310) Standard Care (n=290) Median age 84y 84y Care home resident 28% 21% Median MMSE 14/30 13/30 Delirium* 53% 62% Median Barthel ADL 9/20 8/20 Presented with fall 42% 44% Any hallucinations 37% 40% Any agitation 69% 64% Poor sleep 50% 57% Problems eating 57% 54% *p<0.05 Goldberg et al, submitted

Process differences, from casenotes MMHU (n=110) Standard care (N=95) Cognitive assessment (MMSE)** 52% 26% Delirium recorded 37% 28% Collateral cognitive history** 64% 33% Collateral function** 81% 42% OT** 83% 37% SLT** 18% 2% Clear medical diagnosis* 92% 77% Progress discussed with family* 86% 75% Antipsychotic drugs 14% 20% CMHT referral* 20% 9% *p<0.05, **p<0.001 Kearney, unpublished

Non-participant observation study Personal enhancers Personal detractors Goldberg et al, unpublished

NIHR TEAM Trial: carer very or mostly satisfied MMHU (n=234) Standard care (N=228) Overall* 91% 83% Admission arrangements 79% 77% Car parking 27% 28% Feeding and nutrition* 86% 77% Medical management 79% 71% Kept informed 77% 64% Dignity and respect* 94% 87% Needs of confused patient** 84% 71% Discharge arrangements* 78% 62% Prepared for discharge* 79% 70% Discharge about right time 73% 67% *p<0.05, **p<0.001 Bradshaw, unpublished

NIHR TEAM Trial: carer very dissatisfied MMHU (n=234) Standard care (N=228) Overall* 5% 10% Admission arrangements 6% 7% Car parking 20% 26% Feeding and nutrition* 6% 12% Medical management 8% 13% Kept informed 11% 17% Dignity and respect* 3% 8% Needs of confused patient** 5% 13% Discharge arrangements* 12% 19% Not prepared for discharge* 21% 30% Discharge too soon 17% 22% *p<0.05, **p<0.001 Goldberg, unpublished

NIHR TEAM Trial: outcomes at 90 days MMHU (n=309) Standard care (N=290) P (adjusted) Median days at home 51d 45d 0.3 Not returned home 26% 30% 0.5 Died 22% 25% 0.9 Median initial LOS 11d 11d 0.2 Readmission 32% 35% 0.8 Total LOS in 90d 16d 16d 0.8 Move to care home 20% 28% 0.3 Bradshaw, unpublished

NIHR TEAM Trial: summary Care was different on MMHU Patient experience better (mood, activity, staff interactions) Carer satisfaction better Health status unchanged Length of stay, readmissions, care home placement unchanged Bradshaw, unpublished

Can we fix it? Yes we can I am a registered nurse with over 20 years experience of working for the NHS, but not until I saw the tenderness and respect given to John did I realise what a fantastic service it provides they are a special bunch of people on the ward Patient and family feedback

Daily Mail 12 th Feb 2013

How would you evaluate a palliative care unit? Domain 1: Prevent premature death Domain 2: Quality of life in long-term conditions Domain 3: Recovery from illness or injury Domain 4: A positive experience of care Domain 5: Treatment and care in a safe environment and protection from harm

Summary Care on a specialist unit is different Specialist units are supported by other wards And can support liaison services A specialist unit can improve patient experience and carer satisfaction But probably not hard health status outcomes or resource use May represent an efficient way of managing the hardest cases

A Radical Suggestion David Nicholson, chief executive of the NHS Commissioning Board, asserts that Hospitals are very bad places for old, frail people and suggests alternatives must be found. Here is a radical suggestion make hospitals good places for older people. Marion ET McMurdo BMJ, 16 th Feb 2013