University of Groningen The role of the general practitioner during treatment and follow-up of patients with breast cancer Roorda-Lukkien, Carriene IMPORTANT NOTE: You are advised to consult the publisher's version (publisher's PDF) if you wish to cite from it. Please check the document version below. Document Version Publisher's PDF, also known as Version of record Publication date: 2015 Link to publication in University of Groningen/UMCG research database Citation for published version (APA): Roorda-Lukkien, C. (2015). The role of the general practitioner during treatment and follow-up of patients with breast cancer [S.l.]: [S.n.] Copyright Other than for strictly personal use, it is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license (like Creative Commons). Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. Download date: 11-02-2018
CARRIENE ROORDA-LUKKIEN The role of the general practitioner during treatment and follow-up of patients with breast cancer
The qualitative study described in this thesis was financially supported by: Stoffels-Hornstra Foundation, Coevorden, the Netherlands Publication of this thesis was financially supported by: The role of the general practitioner during treatment and follow-up of patients with breast cancer. Copyright 2015 C. Roorda-Lukkien, Hoogeveen, The Netherlands All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, without the permission of the author or, when appropriate, of the publishers of the publications. ISBN ISBN 978-90-367-7418-5 (printed version) 978-90-367-7417-8 (electronic version) Cover photo Ingeborg Lukkien, Zwolle, the Netherlands (www.ingeborglukkien.nl) Cover design & lay-out Jacob Reinsma, Peize, the Netherlands (jacobontwerpt.nl) Printed by CPI Wöhrmann Print Service, Zutphen, The Netherlands
The role of the general practitioner during treatment and follow-up of patients with breast cancer Proefschrift ter verkrijging van de graad van doctor aan de Rijksuniversiteit Groningen op gezag van de rector magnificus prof. dr. E. Sterken en volgens besluit van het College voor Promoties. De openbare verdediging zal plaatsvinden op woensdag 1 april 2015 om 12:45 uur door Carriene Lukkien geboren op 6 mei 1978 te Emmen
Promotores Prof. dr. G.H. de Bock Prof. dr. M.Y. Berger Copromotor Dr. A.J. Berendsen Beoordelingscommissie Prof. dr. J.W. Coebergh Prof. dr. J.A. Roukema Prof. dr. H.C.P.M. van Weert Paranimfen Drs. M.H. Stevens-Lukkien Drs. F. Groenhof
To all women with a history of breast cancer To all GPs and women who took part in our studies In remembrance of my grandmother Carrie Koster-Das who died from breast cancer in 1975 at 55 years of age
TABLE OF CONTENTS Chapter 1 General Introduction Part I Primary health care use during treatment and follow-up Chapter 2 Role of the general practitioner during the active breast cancer treatment phase: an analysis of health care use Chapter 3 Increased primary healthcare utilisation among women with a history of breast cancer 3.1 Do breast cancer survivors visit their general practitioner for psychological problems? Reply to: Heins et al.: For which health problems do cancer survivors visit their general practitioner? Part II Primary care-based follow-up: GPs experiences and perspectives Chapter 4 Discharge of breast cancer patients to primary care at the end of hospital follow-up: A cross-sectional survey Part III Primary care-based follow-up: patients perspectives Chapter 5 Patients' preferences for post-treatment breast cancer follow-up in primary care versus secondary care: a qualitative study Chapter 6 Patients' perceptions about the aims of breast cancer follow-up: a qualitative study Chapter 7 General discussion Appendices References Samenvatting Dankwoord Curriculum Vitae List of publications Research Institute SHARE p8 p16 p18 p38 p56 p60 p62 p78 p80 p112 p132 p132 p133 p156 p160 p164 p165 p167