North Dakota Cancer Coalition-(NDCC) In-Person Steering Committee Meeting Friday September 13, 2013 Meeting Notes

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Nrth Dakta Cancer Calitin-(NDCC) In-Persn Steering Cmmittee Meeting Friday September 13, 2013 Meeting Ntes Jamestwn Cllege Campus Unruh Sheldn Center Casual Dress - Including Jeans Members Name Present Name Present Deanna Askew-Plicy, Systems and Envirnmental Change (PSE) Crdinatr (Vacant) -NDDH Cmp. Cancer- Cmmunity Partnership Crdinatr Duglas Berglund-Past Chair MedCenter One Alna Jarmin Health Care Review Inc. (NDCC Secretary) Krista Fremming-NDH-Tbacc Preventin and Cntrl Phyllis Hward-NDDH Office t Eliminate Health Disparities Karalee Harper-Nrth Dakta Dept. f Health Nancy Klatt-Altru Cancer Center (NDDH)-Chrnic Disease Ken Dykes-Bismarck Cancer Center Deb Knuth-American Cancer Sciety (ACS) Jared Eagle-Elbwds Memrial Health Jhn Leitch-NDCC Chair-Sanfrd Health Center-New Twn Diabetes Prgram Jdie Fetsch-Custer Health (Lcal Public Health) Stefanie Meyer- NDSU MPH Prgram (NDCC Vice Chair) Cindy Ghner -BCBS Mary Sahl-Sanfrd Health-Treatment Susan Mrmann- NDDH- Prgram Directr fr the Cancer Divisin Jyce Sayler-NDDH-Prgram Crdinatr- Cancer Divisin Julie Garden-Rbinsn-NDSU Extensin (Statewide) Shelby Terstriep r (Kathy Smith)-Sanfrd Health-Survivrship Candace Getz-NDDH-Cmp. Cancer- Administrative Assistant Jesse Tran NDDH Cancer Divisin Prgram Evaluatr Geneal Rth-Health Care Review Inc. (NDCC Treasurer) Zheng, Yun (Lucy)-UND-ND Statewide Cancer Registry Karen Wrkman-CCC Prgram Directr fr the Great Plains Tribal Chairman s Health Bard Zhu, udng-und- ND Statewide Cancer Registry Meeting Agenda 9:00 t 4:30 pm (Lunch 11:30 am t 12:30 pm at the cllege cafeteria) 1. Rll Call and See abve Intrductins 2. Additins t the Agenda Nne 3. Review f April 26th, 2013 Meeting Ntes 4. Finalize 2014 NDCC Meeting Schedule 5. Reprt frm the NDCC Team Members Attending the Infrmatin frm meeting can be fund n the NDCC Website under the reprts N additins r crrectins. Susan Mrmann mved t apprve minutes, Dr. Leitch 2 nd it The February cancer calitin call falls n a hliday, the grup agreed t change the date t February 3 rd. Friday is still a gd day t meet fr majrity f the cmmittee members fr the in persn meetings. The fllwing dates were selected fr in-persn meetings fr 2014 April date still pending as f 10/25. Candy is wrking n finding a lcatin fr the meeting April 11 th first chice; April 25 th secnd chice fr Aprils in-persn meeting September 12 th is the date fr ur Fall in-persn meeting. We have a new lcatin. We will be meeting at the new hspital. Thanks t Cindy Ghner, ne f ur new steering cmmittee members, she give Candy a cntact at the hspital and we nw have a meeting rm at n-cst. Candy will send ut the 2014 NDCC Steering Cmmittee schedule when all dates are finalized Stefanie Meyer, Susan Mrmann, Jackie Rberts and Kathy Smith were ur calitin representatives fr a CDC spnsred Calitin Technical Assistance 1

Calitin Technical Assistance Training 6. Prgram Evaluatin by Jesse Tran (See pwer pint attachment) 7. State Funded Clrectal Cancer Screening Initiative Update training in Atlanta this past August. Stefanie and Kathy lead the discussin regarding highlights f what was discussed at the training. They shared a handut fcused n the Nine Habits f Successful Cmprehensive Cancer Cntrl Calitins. Cmmittee discussin fllwed: Actins we can take t supprt the 9 habits Member Recruitment/Retentin Define expectatins Stefanie Meyer, Mary Sahl and, Kathy Smith will wrk n this fr the next calitin call Pririty Selectin and Resurce Allcatin Discussed membership dues with n actin taken Ask partners if they wuld be able t partner with the calitin t write mre grants and have the partners manage the mney Dnatin Ideas Ask n tax return if they wuld like t dnate a certain amunt f mney t the cancer calitin Add n t the license plate fee Payrll deductin Add calitin t the United Way as an ptin t dnate t the calitin Cancer plan implementatin What will we use it fr We need t clearly identify needs with justificatin befre we begin lking fr ther resurces t supprt CCC effrts Remember we have a vlunteer treasurer We need t have a plan in place fr handling larger sums f mney as ur current system is designed fr smaller funds Wish list Prvide larger cmmunity grants Paid staff persn Bring in mre natinal speakers and resurces t supprt NDCC member educatin and increased capacity t implement evidence based interventins Effective Cmmunicatins Are we visible Wh is ur target audience Need t Fcus n CCC Effrts that are Value-Added Fcus n things that wuldn t happen therwise We shuld enhance, expand, and create-nt duplicate Take cancer plan t see if smene else is wrking n a same prject and partner with them Fcus cancer plan effrts n pririties and revise the plan t reflect this Have steering grup member be part f the wrkgrups t keep cnnectin Gal-have everyne s rganizatin ffer the same screening guidelines Affrdable Care Act - Hw d we wrk with thers Next steps Lk at state plan and burden f cancer Will need t incrprate PSE appraches t affect changes Use CDC as a resurce NDCC Annual Member Survey-(PSE fcus) 2012-20013 Evaluatin Reprt Reviewed 2013-2014 Evaluatin Plan Refer t handut Burden f Cancer Reprt Highlighted in the pwer pint what the finding shw and identificatin f pririty areas fr wrkgrups, sub-cntracts and independent wrk by NDCC members Refer t handut and this is als psted n the NDCC Website Refer t pwer pint handut 2

8. Grup discussin Regarding recmmendatin fr the NDCC & partners t increase clrectal cancer screening including general public and prvider interventins/educatin 9. Grup discussin regarding ways t share and disseminate NDCC subcntract prject abstracts and ther prducts develped by wrkgrups and NDCC members 10. NDCC Tpics Discussin (this item may be mved t the Nvember cnference call if time is limited) a. Mid cycle cancer plan review due t be cmpleted by June 2014 b. Review f the NDCC website c. Review f the NDCC Bylaws prir t the April 2014 d. Discussin regarding the need fr NDCC standing cmmittees Mre educatin n the prep Primary prviders need t suggest preventive screening Insurance cmpanies nt paying fr screening Check t see if the Medicaid ppulatin is included r excluded in the Medicaid expansin (we shuld have answers t this after a vendr is selected fr peple wh will be insured with this prgram) Encurage facilities t schedule patient s appintment General public, mid-levels, and all physicians awareness Prmpts in medical electrnic recrds Help set up primary prviders fr the patients Scial media is excellent t reach the public Ask insurance carriers t educate insured s abut their cverage The SECAP study regarding clrectal cancer screening capacity will be psted n the NDCC Website under Data and Reprts Prvide infrmatin fr cmmunity specific cancer rates Media cverage Advertising n inside f bathrm stall drs Sub grants supprt media campaign Fcus n what has wrked and prmte that relatinship Hw d we get the services t the peple wh dn t have access, prvide sme frm f transprtatin? Keep eyes and ears pen fr pprtunities t get the message acrss and let Jyce knw D mailings Shrt presentatins at cnferences G thrugh the state plan and identify partners and disseminate infrmatin t them and fllw up Parks and Recs, YMCA, Spirit f Eagles a. Mid Cycle Cancer Plan Review: Stefanie Meyer, Mary Sahl, Kathy Smith will wrk n this. If anyne else is interested, let Jyce knw b. Recmmendatins fr the NDCC website; t be mre usable fr NDCC members and partners Need t review what infrmatin d we need t add, delete r change? c. D we need defined rles and respnsibilities fr members/wrkgrups ther than what is in the NDCC By-laws? We began the discussin in this area and determined a small cmmittee will need t review the NDCC By-laws befre the 2014 annual meeting. d. The cmmittee reviewed the NDCC rganizatinal chart and fcused n the standing cmmittees n the chart. The Standing Cmmittees are currently nt peratinal. When the calitin went int implementatin mde, the members mved frm standing cmmittees t wrkgrups. We have nt had peratinal standing cmmittees fr ver three years. The questin was asked, d these cmmittees need t stay n the rganizatinal chart? It was discussed that, if remved by a vte f the membership, an ptin may be t cnsider any f these cmmittees t be added as needed as an Ad Hc cmmittee fr a specific time then disbanded when the need r task is cmpleted. It was decided t bring this discussin t the membership n the Nvember calitin call and see what reactin r discussin is received frm the members. If members are in favr f remving the standing cmmittees frm the rganizatinal chart, then a vte can be called t cnfirm the membership wishes n this. The fllwing standing cmmittees are under cnsideratin fr this change; membership/resurces, Cmmunicatins, Educatin/Training and Plicy. Discussed that the Data/Evaluatin Cmmittee culd get mved up in the rganizatinal chart as a wrkgrup 3

There is an utdated rles and respnsibilities dcument fcused n the standing cmmittees. Once the revisins n the rganizatinal chart are apprved by the calitin, we need t revise the dcument t fcus n the wrkgrup Rles and Respnsibilities and present at the annual meeting in 2014 11. Staff Updates Deanna Askew NDCC Sub-cntracts Refer t handut n list f 2013-2014 sub-cntract grantees Integratin f Physical Activity Wrkgrup with the Crdinated Chrnic Disease Gal tw wrkgrup als fcused n Plicy, Systems and Envirnmental change appraches Addresses the leading causes f death and disability Heart Disease Strke Diabetes Cancer Arthritis Funding ends March 28, 2014, but HD cmmitted t the crdinated prcess Helped set structure fr upcming CDC cperative agreement Plicy System and Envirnmental Change educatin pprtunities Shaping Plicy fr Health Farg, Octber 8-9 Bismarck, Nvember 13-14 Webinars ESA reginal trainings Implementatin f PSE in the current sub-cntracts prjects Barnes Cunty ON THE MOVE plicy examples n Health Cncessins Jyce Sayler Wrkgrup activities and special prjects update Affrdable Care Act Peple need t be aware f the health insurance exchanges Webinars can be sent ut Susan and Jyce will pst things n the website f pprtunities t train staff UV Prtectin Will be putting 13 tlkits tgether HPV Wrking n increasing vaccinatin rates Tbacc (Where shuld fcus be?) Prgram is well funded in ur state s wrkgrup really isn t needed Tbacc Prgram can put elevatr speeches tgether that can be sent ut t the calitin Physical Activity Des this wrkgrup mve t Gal tw (PSE) fr the Crdinated Chrnic Disease Partnership wrkgrup Other grups wrking n PSE Grup culd pssibly g away and wrk with ther wrkgrups Screening Early Detectin Wrking with Dr. Leitch t get messages ut abut screening cancers Treatment A lt f wrk still needs t be dne with the cancer survey Survivrship Kathy Smith will be chairing this wrkgrup A lt f wrk still needs t be dne with the cancer survey Susan Mrmann Staffing status Outreach Crdinatr psitin has been left vacant fr a perid f time while the Cmmunity Health Sectin prgrams were waiting t hear 4

12. Other Pints f Discussin (All) abut grant awards. We shuld get ntificatin regarding all prgram grant awards by the end f September Sme f ur prgrams didn t get funded at the levels they were requested r prgrams nt funded s there was sme Sectin staff psitins that have been mved arund. N changes have ccurred in the Cancer Divisin, but will need t wait t fill the Outreach Crdinatr psitin until we knw the result f all Sectin grant ntificatins. Tera Miller will prvide temprary part time supprt t Jyce until we find ut if her current psitin will be funded. Outreach Crdinatr psitin will be psted in the event Tera stays in her current psitin. Hping Nvember 1 st t have this psitin fr Outreach Crdinatr filled Ashley Schmidt will be the part-time admin assistant and will be prviding supprt mainly fr the Cmp Cancer Prgram Angie Ryan is ur new CDC prgram cnsultant fr the Cmp Cancer Prgram Funding status Submitted grant applicatins fr the Cancer Divisin in March Budgets had t be reduced by $95,000 Hping grant guidance in January 2014 will g back t riginal budget BRFSS was nt funded in rund 3 s Susan has spent a lt f time t find mney t fund this prgram thrugh 2014 Cmmittee members began the discussin as t wh r what rganizatins may be missing frm the steering cmmittee. We need mre cancer centers t be represented n this cmmittee as there are currently nly three cancer centers represented. Wuld als like t see a secnd persn represented frm ACS. Will cntinue the discussin in Nvember. 13. Next Steps Cntinue discussin during ur Nvember cnference call nt cmpleted during this meeting. 14. Next Calitin Jyce will send ut ntice and agenda fr the call Cnference Call is Mnday Nvember 4, 2013 at nn central time 15. Adjurnment Meeting was adjurned at 4:15 pm by Jyce Sayler 5