Cancer in Maine: Using Data to Direct Actions 2018 Challenge Cancer Conference May 1, 2018

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Cancer in Maine: Using Data to Direct Actions 2018 Challenge Cancer Conference May 1, 2018 Tim Cowan, MSPH Director, Data Reporting and Evaluation Center for Health Improvement MaineHealth

All Cancer Mortality Rates- 2013-2015 (Age-adjusted rates, using U.S. population in 2014 as standard population) 10 Peer States: Identified Using Five SES & Rurality Metrics Age- 65+ yr. olds % Population Live in Rural Communities Education Attainment Among 25+ yr. olds- % College (4 yrs.) or higher Living In Poverty- % <18 yr. olds Median Household Income

Health Behaviors That Can Reduce Risk of Cancers Sources: Maine Cancer Surveillance Report- 2009 (produced by the Maine Cancer Consortium); Updates via Maine Cancer Registry (Molly Schwenn)- April 2018 Avoid Tobacco Maintain Healthy Weight Be Physically Active Eat Healthy Diet Limit Alcohol Lung and Bronchus Colon and Rectum Breast (Females) (*=post menopause) * * Prostate (Males) Urinary Bladder Kidney & Renal Pelvis Pancreas Get Appropriate Screenings Oral Cavity and Pharynx Esophagus Liver/Intrahepatic Bile Duct Stomach Larynx Acute Myeloid Leukemia Cervix (Females) Uterus (Females) Gastric Cardia Gallbladder Multiple myeloma Ovary Meningioma Thyroid Melanoma Avoid Excessive UV Exposure

Leading Causes of Cancer Deaths in Maine (2016) Among Females (1,537 deaths) Among Males (1,738 deaths) 32% 27% 25% 29% 13% 19% 9% 10% 29% 7% Lung/bronchus* Colon/rectum* Other Tobacco-related* Breast All other cancers Lung/bronchus* Colon/Rectum* Other Tobacco-related* Prostate All other cancers * Tobacco use can cause these cancers. The Other Tobacco-related cancers include: liver, laryngeal, oral cavity/pharynx, esophageal, stomach, pancreatic, kidney/renal pelvis, urinary bladder, cervical and acute myeloid leukemia. Source: US Centers for Disease Control & Prevention, National Center for Health Statistics. CDC WONDER Online Database http://wonder.cdc.gov

Cancer Death Rates Compared Across Maine Counties

Mortality Due to All Types of Cancers Combined Lowest Age-adjusted Mortality Rates in 2014-2016 were in: Hancock County Cumberland County Hancock County s rate is statistically significantly lower than rates in: Somerset County Piscataquis County Washington County Cumberland County s rate is statistically significantly lower than rates in: Kennebec County Androscoggin County Oxford County Somerset County Piscataquis County Washington County Maine Statewide

Cancer Death Rates Compared Across Maine Counties

Cancer Death Rates Compared Across Maine Counties

Cancer Incidence and Mortality in Maine Lung & Other Tobacco-Related Cancers*: 3-Year Rolling Averages Age-Adjusted Rates per 100,000 Population 95 97 81 74 60 44 48 42 2000-2001 2002-2004 Lung and Bronchus - Incidence Lung and Bronchus - Mortality 2004-2006 2006-2008 2008-2010 2010-2012 2012-2014 2014-2016 Tobacco-Related (excluding colorectal) - Incidence Tobacco-Related (excluding colorectal) - Mortality *Tobacco Related Cancers -excludes Lung/bronchus and Colorectal cancers, includes cancers of the Oral Cavity/Pharynx, Esophagus, Stomach, Pancreas, Larynx, Cervix, Urinary Bladder, Kidney and Renal Pelvis, Acute Myeloid Leukemia, Liver, and Bladder

Tobacco-Related Cancers, by site- 2014 Source: Maine CDC Cancer Registry (April 2018- Data not yet published) Maine Rate Statistically Significantly Higher Than U.S. Maine Rate Statistically Significantly Lower Than U.S. Tobacco-Related Cancers By site Incidence Rate- 2014 (age-adjusted /100,000) U.S. Maine Whites Mortality Rate- 2014 (age-adjusted/100,000) U.S. Maine Whites Lung and Bronchus 72.1 59.5 47.7 43.0 Colon and Rectum 36.4 37.6 11.8 13.8 Urinary Bladder 29.0 21.0 6.1 4.6 Kidney and Renal Pelvis 17.2 16.4 4.3 3.9 Pancreas 13.2 12.3 9.6 10.9 Oral Cavity and Pharynx 12.3 12.0 2.5 2.5 Esophagus 7.1 4.7 6.3 4.2 Stomach 5.8 5.9 2.3 2.7 Liver and Intrahepatic Bile Duct 5.5 7.5 5.1 6.0 Acute Myeloid Leukemia 4.1 4.3 3.9 2.9 Larynx 3.9 3.2 1.0 1.0 Cervix 6.1 7.5 1.9 2.1

Cigarette Tax and Cigarette Use by High School Students Percent Who Smoked Cigarettes on 1 Day During 30 Days Prior to Survey 18% 16% 22%23% 20% 8% 39% 25% 21% 19% 16%15% 13%11% 13%15% 42%29%25% 28% 35%29% 14% 22% 36% 18% 19% 16% 11% 43% 38% 35% 35% $0.74 Maine U.S. Best State (Rhode Island) Worst State (West Virgina) $1.00 11% $0.55 State Tobacco Taxes as of 2015: RI- $3.75 ( 3 rd highest)- increased in 2015 ME- $2.00 (14 th )- Since 2005! WV- $0.55 (33 rd )- Since 2003! $1.00 $1.32 $1.71 $2.46 $2.00 $3.46 $3.50 19% 5% 9% 7% 1995 1997 1999 2001 2003 2005 2007 2009 2011 2013 2015 2017 1997: Maine had the 19 th lowest rate out of 24 states 2007: Maine had the 5 th lowest rate out of 40 states 2015: Maine had the 22nd lowest rate out of 37 states Tax data retrieved from https://www.tobaccofreekids.org/research/factsheets/pdf/0275.pdf Cigarette use from Youth Risk Behavior Surveillance System (2000-2017) estimated percent

Cigarette use among adults % of 18 + -year-olds who smoke daily or some days Behavioral Risk Factor Surveillance System (2012 2016) estimated percentage 28.2% 20.3% 19.6% 9.5% Worst state: W. Virginia Best state: Utah U.S. Maine 24.8% 19.8% 17.1% 10.6% 8.8% 2012 2014 2016 12 states significantly higher rates 16 states significantly lower rates 4 states significantly higher rates 24 states significantly lower rates

Smoking Status Among Adults in 50 States in 2016 Source: Behavioral Risk Factor Survey Other States Peer States Maine Never A Smoker EVER SMOKERS Former Smoker (Now Quit) Currently Smokes Some Days Currently Smokes Everyday 0 10 20 30 40 50 60 70 80 Percent

Adult Smokers by Gender in 50 States in 2016 Source: Behavioral Risk Factor Survey Other States Peer States Maine Male Female 0 10 20 30 40 50 Percent

Adult Smokers by Age Group Source: Behavioral Risk Factor Survey (2016) States Peer States Maine 65+ 55-64 45-54 35-44 25-34 18-24 0 10 20 30 40 50 Percent

Adult Smokers by Education in 50 States in 2016 Source: Behavioral Risk Factor Survey Other States Peer States Maine College Graduate Some post- High School High School or G.E.D. Less than High School 0 10 20 30 40 50 Percent

Adult Smokers by Income Source: Behavioral Risk Factor Survey (2016) States Peer States Maine $50k+ $35000-$49,999 $25,000-$34,999 $15,000-$24,999 < $15,000 0 10 20 30 40 50 Percent

Patterns of Prevalence and Quitting Not Same Adults Smoking Daily or Some Days MaineHealth Service Area- 2014-2016 All Adults (18+ y.o.) Female Male Made Quit Attempt in Past 12 Months MaineHealth Service Area- 2014-2016 All Adults (18+ y.o.) Female Male 18-34 35-44 45-54 55-64 65+ Less than $15,000 $15,000-24,999 $25,000-34,999 $35,000-49,999 $50,000-74,999 $75,000+ 18-34 35-44 45-54 55-64 65+ Less than $15,000 $15,000-24,999 $25,000-34,999 $35,000-49,999 $50,000+ $75,000+ Less than H.S. H.S. or G.E.D. Some post-h.s. College graduate 0% 10% 20% 30% 40% 50% Less than H.S. H.S. or G.E.D. Some post-h.s. College graduate 0% 20% 40% 60% 80% 100%

Patterns of Prevalence and Quitting Not Same = County Rate Significantly Higher than rates in Knox & Cumberland

Percent of Adults Who Are Obese in Maine Counties by Body Mass Index Categories Morbidly Obese- BMI 40.0+ Severely Obese BMI-35.0-39.9 Obese: BMI 30.0-34.9 40 35 30 25 Percent 20 15 10 5 0 Behavioral Risk Factor Surveillance System (2012-2014) estimated percent

Obesity Prevalence- Adults and High School Students

Breast Cancer Screening, Incidence, and Mortality The percentage of women 40+ years old who have been screened for breast cancer in the past 2 years: Maine: 75.8% US: 72.5% Rate of Newly Diagnosed Breast Cancer (2014) 140 Rate of Breast Cancer Deaths (2016) Rate per 100,000 people 140 120 100 80 60 40 20 127.9 123.9 Rate per 100,000 People 120 100 80 60 40 20 18.8 20.1 0 Maine US 0 Maine US Screening derived from Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health., BRFSS Prevalence & Trends Data [online]. 2015. [accessed Apr 24, 2018]. URL: https://www.cdc.gov/brfss/brfssprevalence/. Incidence and Mortality derived from the National Center for Health Statistics CDC WONDER online database.

Cancer Incidence and Mortality in Maine Prostate and Breast Cancers: 3-Year Rolling Averages Age-Adjusted Rates per 100,000 Population 182 137 125 87 30 25 20 19 2000-2001 2002-2004 2004-2006 2006-2008 2008-2010 2010-2012 2012-2014 2014-2016 Prostate (M)-Mortality Prostate (M)-Incidence Breast (F)-Incidence Breast (F)-Mortality

Five-year Relative Survival Rates, U.S. 2007-2013 Cancer Facts & Figures 2018 All Stages Local Regional Distant Lung/Bronchus* 18 56 29 5 Colon/Rectum 65 90 71 14 Breast-Female 90 99 85 27 Uterine Cervix 67 92 57 17 Prostate 99 >99 >99 30 * screening test available only for those with high-risk

Colorectal Cancer Screening- 2016 % aged 50-75 met U.S. Preventive Services Task Force recommendations Source: Behavioral Risk Factor Surveillance Survey 10 Peer States: Based on SES & Rurality

Colorectal Cancer Screening- 2016 Source: Behavioral Risk Factor Surveillance Survey % Adults 50-75 yrs old who had colonoscopy in past 10 years % Adults 50-75 yrs old who had blood stool test in past year All Adults (50-75 yrs old) Female Male All Adults (50-75 yrs old) Female Male 50-59 60-69 70-75 50-59 60-69 70-75 Less than $15,000 $15,000-24,999 $25,000-34,999 $35,000-49,999 $50,000+ Less than $15,000 $15,000-24,999 $25,000-34,999 $35,000-49,999 $50,000+ Less than H.S. H.S. or G.E.D. Some post-h.s. College graduate 0% 20% 40% 60% 80% 100% Less than H.S. H.S. or G.E.D. Some post-h.s. College graduate 0% 5% 10% 15% 20%

Cancer screening rates by county 2012-2014 Breast Cancer Colorectal Cancer 82.6% Source: Maine Behavioral Risk Factor Surveillance System (BRFSS), Maine Center for Disease Control 34

Cancer Incidence and Mortality in Maine Colorectal Cancer: 3-Year Rolling Averages Age-Adjusted Rates per 100,000 Population 60 37 23 14 2000-2001 2002-2004 2004-2006 2006-2008 2008-2010 2010-2012 2012-2014 2014-2016 Maine-Incidence Maine Mortality

Age-Adjusted Incidence Rates All Cancer Sites, by County 2009-2013 Where One Lives Matters Average Round-Trip Distance For All Cancer Related Care by Municipality Madden, P., Charles, J. Maine Cancer Foundation Transportation Needs Assessment Summary Report. 2017, Sept. Market Decisions

Minimum travel distance to receive chemotherapy treatment Where One Lives Matters Minimum travel distance to receive radiation treatment Madden, P., Charles, J. Maine Cancer Foundation Transportation Needs Assessment Summary Report. 2017, Sept. Market Decisions

Three-quarters of organizations use volunteer drivers to provide rides Services provided to cancer patients Volunteer Drivers Paid Staff Drivers Public Transportation (ex. bus Reimbursement for family Taxis Other 27% 23% 23% 18% 50% 77% While organizations provide many different types of services to patients, volunteer drivers make up the backbone of many transportation service providers in the state Reimbursement for patient 14% Gas Cards for patient 14% Gas Cards for patient family or 5% 40

Nearly half of the organizations surveyed could not meet the need in their area during the past year Could you help every cancer patient who contacted your program in the past 12 months? 47% Yes 53% No How are services advertised to patients Given the high need for transportation, some organizations do not need to advertise their services and find that word of mouth is sufficient. Provider offices and hospitals Community outreach and education Referrals Local advertising

Cancer & Financial Toxicity Having a cancer diagnosis is associated with a 2.65-times greater likelihood of declaring personal bankruptcy. A 2013 study found cancer patients who declared bankruptcy had a 79% greater mortality risk than those who had not. Zafar, SY J Natl Cancer Inst. 2015 Dec 11;108(5). pii: djv370. doi: 10.1093/jnci/djv370. Print 2016 May

What Data is Missing for Maine? What Data Points do You Wish You Knew?

Questions and comments? cowant@mainehealth.org Visit www.mainehealth.org/healthindexfeedback is welcome & encouraged