Product Makes Perfect

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Product Makes Perfect Human-Centered Design for HIV Self-Testing and Prevention USAID MINI-U // 03.04.16 // 2-3PM

Roadmap What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

HCD is a way of thinking that places the people you're trying to serve and other important stakeholders at the center of the design and implementation process

The HCD approach to problem solving is iterative, measurable and results driven Iterative Design Process Phase 1 Phase 2 Phase 3 Creating Design for user needs in a collaborative and participatory manner Multiple rounds of iteration Planning Learning Testing Scaling Understand opportunity area, organizational capacity and feasibility. Understand users existing behaviors, needs and expectations Rapidly test and iterate solutions at multiple levels (products, services, processes) Successful prototypes that have performed well over several cycles of iteration are able to be scaled Measuring Use data to inform a new cycle of creation and testing until you have a refined and validated solution that is ready to scale

Quantitative research Co-creation What does HCD look like? Qualitative research Messaging & communication Product & service design Ethnography How do we do this? Awareness & access Prototyping User testing Community engagement

What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

Human Centered Design for Microbicides Problem: Microbicide clinical trials faced user non-adherence rates of as high as 22%; moving forward, improving end user acceptability and adherence will be critical to the successful launch of this new class of product. Project KAROO (2014): First-ever in-depth human-centered design (HCD) study for Microbicides Snapshot (12-week) collaboration between CONRAD and global design studio IDEO with the goal of: 1) Encouraging women to adopt and make a habit of using microbicides 2) Creating excitement/desire for the product IDEO researched context, challenges and motivators to microbicide use and turned their insights into tangible, early design prototypes. Prototypes focused on illustrating design opportunities and not on demonstrating cost-effective design options for low-income settings. CONRAD and IDEO recognized need for more environment-appropriate, higher-fidelity prototypes to be developed through additional analyses.

HCD Research Methodology When interviewing women, an effort is made to get a breadth of perspectives; this means talking to women from different ends of the spectrum in terms of: - Rural vs urban - Less vs more educated - Single vs attached - Sex as survival vs sex as pleasure - Children vs no children - Sexually inexperienced vs sexually experienced It is also important to get the perspectives of and consider influencers/stakeholders, such as: - Male partners - Retail experiences - Healthcare providers - Media - Traditional healers - Friends & Family - Teachers Other important HCD research principles are as follows: - Interviews should be casual, conversational to elicit user stories - Interviews should take place in settings familiar and comfortable to users - Be literal when speaking, do not leave anything open to interpretation - Have tangible product prototypes present to elicit informed, candid responses - Record users insights in their own words

HCD converts User Insights into Design Principles Conversations with potential end-users Synthesized and categorized insights from users Applied insights to derive design principles Developed prototypes to exemplify design opportunities

Prototypes explored different messaging, form factors, and packaging For Couples Intimate Protection For You & Him Female Empowerment Just For Women Hygiene & Cleanliness Feminine Care with Flair

Second, more in-depth Microbicide HCD study underway Project KALAHARI (2015): In-depth Human-centered design (HCD) study leveraging KAROO pilot findings Prototype-driven study on a range of products - including Oral PrEP - across a diverse range of stakeholders, designed to: 1) Inform and increase user acceptability of early-stage products as they move through the research process 2) Optimize product form factors, packaging, and messaging for late-stage product introduction planning with goal of increasing user adherence Research tested and refined messages around 8 different drug delivery systems in early and late stage development; also included interactive co-creation Created new product prototypes, a portfolio umbrella brand, and purposeful packaging for both end users and providers

What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

Human Centered Design for HIV Self-Testing

Progress on HIV Testing First 90 We ve come a long way HIV testing uptake has increased dramatically in the last 10 years. In 2005, only 12% of people who wanted an HIV test were able & 10% of PLHIV in Africa knew their HIV status. Now In 2014 > 150 MM people in reporting low & middle income countries received HTS. UNAIDS estimates 51% of PLHIV in Africa now know their HIV status

But we still have a long way to go Despite progress in the global scale-up of HIV testing, significant gaps in access to universal HIV testing still remains.

To reach the 1st 90 by 2020, there will be a need for: 1) More testing that is both strategic and focused, 2) New and innovative approaches that overcome social, individual, structural and health system barriers and that are designed with linkage to prevention, care and treatment in mind, 3) Products developed using Human Centered Design. HIV Self-testing HIV self-testing is an emerging HIV testing strategy intended to address barriers to increasing access to preliminary knowledge of one s serostatus. HCD is a perfect design approach for selftest kits because the focus is on the end-user experience.

What is HIV self-testing? Reactive results need confirmation by a health provider.

Available Formally: and Informally

WHO/UNITAID landscape Costs range from: US$ 28-40 (sale in high-income countries) US$ 3.50 US$ 16 (for research low- & middle-income countries) US$ 4-10 (sale informally in low- and middle-income countries)

Current WHO guidance on HIVST Most current information available on http://www.hivst.org/

What do we know about HIV Self-Testing? Acceptability & Willingness

Conclusions Current HIV testing services are not enough to get to the first 90. Additional tool to create demand, it does not substitute HIV testing services. Potential to increase reach, frequency & efficiency HIVST is an innovation for implementation, could stimulate new technological advances, further optimization and can be empowering. WHO guidance is on the way Public health response lags behind public demand and we need to catch up. Think big. We need visionaries & champions; we need to stimulate technological advances, better tests & innovations in implementation Get going!

What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

Let s Design! What should the ideal HIV Self-Test look like? ASSURED Criteria: Affordable, Sensitive, Specific, User-friendly, Rapid and Robust, Equipment-free, Delivered to those who need it.

Meet the end-user for an HIV self-test kit: Kaya She s 25-years old or younger; She s HIV- and sexually active; She s modern and literate and always has her smartphone in hand; She lives in an area in Southern Africa where 1 in 4 of her peers has HIV.

Ask Away! Think like a human-centered designer How do you structure your interview so that you elicit the information you need to reveal the key insights into your interviewee s world? What kinds of questions would you ask Kaya?

How would you translate these insights into a test kit design? What are the key messages? What are important product design attributes?

What is Human-Center Design (HCD)? How can HCD be applied to HIV and AIDS? - Microbicides - Self-Testing Let s Design! Wrap Up

Let s check out a real world example to see how we did For Couples Intimate Protection For You & Him Female Empowerment Just For Women Hygiene & Cleanliness Feminine Care with Flair

MELINDA GATES When you let people participate in the design process, you find that they often have ingenious ideas about what would really help them. And it s not a onetime thing; it s an iterative process.

If we perfect products through human-centered design, will we achieve 90-90-90? - What obstacles remain?