Identifying local harm reduction priorities: involving drug users and professionals

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Identifying local harm reduction priorities: involving drug users and professionals September 24, 2015 Freya Vander Laenen t. f. +32 9 264 69 71

Background 2 Internationally, harm reduction interventions are considered evidence-based practices (EMCDDA, 2010; Strang et al., 2012) Part of the mainstream policy response to drug use Opioid substitution treatments, needle and syringe programmes, drug consumption rooms, heroin-assisted treatments, In order to be effective, policy and (HR) interventions should be tailored to the local setting and needs (EMCDDA, 2010, 2015) No universal, one size fits all solutions When identifying local needs, all relevant stakeholders should be actively involved (Lancaster et al., 2013; Ti et al., 2012) Multi-agency professionals and drug users

Background (2) 3 However, in practice, Particular focus on the views of professionals ( experts ) Drug users voices have largely been marginalized from policy debate Added value of user involvement in policy development Solely professional input is likely to be incomplete and one-sided Professionals perspectives do not always reflect those of drug users Drug users can identify gaps, limitations and strengths of policy (changes) starting point of our study

Methodology 4 Research setting: Ghent, Belgium Drug Policy Note (2013-2018) RQ: what range of HR-interventions meets the needs of local stakeholders? Two-phase, sequential mixed methods study Qualitative phase: exploratory needs assessment In-depth interviews with professionals (N=17) Focus group-discussions with drug users (N=25) Quantitative phase: identifying local priorities (Nominal Group Technique) Online survey for professionals (N=121) Written questionnaires for drug users (N=31) Scoring of needs, identified in phase one, in terms of perceived priority EQUS study (Uchtenhagen & Schaub, 2011): potential barriers with implementation Heterogeneous sample: various treatment settings and community services

Limitations 5 Sampling bias Dutch language: ethnic-cultural minorities? Only inclusion of drug users in contact with services (recruitment) Underrepresentation of hidden/hard-to-reach populations snowball sampling No direct communication between both groups Such interaction is a prerequisite of genuine involvement (Rance & Treloar, 2015) focus groups

Results 6 Needs assessment: 35 local needs on 4 broad categories Harm reduction, drug-related life domains, drug treatment, and policy Focus on priorities (NGT) 1a. In general, existing HR initiatives meet local needs Reduction of OST waiting lists (interim OST) OST in prison: continuity of care interagency partnerships especially identified by drug users 1b. Implementation of new HR programmes: divided opinions HAT and drug testing: emphasized by drug users, not by professionals Consensus about an (integrated) DCR

Results (2) 7 2. Importance of drug-related life domains Homelessness: night shelter (DU) and social housing (P) Opportunities for daily (structured) activities Low-threshold drop-in centre 3. Drug treatment: particularly professionals Outreach and case management (P >> DU) In-patient: capacity for dual diagnosis patients and aftercare 4. Policy Coordination between different services (HR and abstinence-oriented) User involvement in policy deliberation (P > DU)

Discussion 8 HR: broad interpretation, beyond classic health-related aspects Drug-related life domains quality of life Different focus on local priorities Drug users: interventions directly related to substance/medication Implementation (DCR, HAT, drug testing) and optimization (OST) Professionals: pursue/expand current practice Outreach and case management as overreaching methods Drug treatment: capacity of inpatient services and aftercare Policy-related aspects: user involvement and coordination Consensus: 5 local priorities (1) harm reduction programmes in correctional settings, (2) affordable social housing, (3) drug consumption room, (4) structured daytime activities and (5) a low threshold drop-in centre

Discussion (2) 9 User involvement Emphasized by professionals (focus on policy) > drug users Significant discrepancies between both groups different needs/priorities In fact: focus on direct personal needs Expected barriers for implementation (EQUS study) As could be expected: political (legal) obstacles for HAT and DCR Dominant = professional barriers (i.e., interagency cooperation)

Conclusion 10 As an essential complement to professionals perspectives, drug policy development can better be informed when systematically giving a voice to the community of drug users Lessons learned for future study Invest more in sampling hidden and hard-to-reach populations (e.g., ethnic-cultural minorities, no contact with services) Involve drug users throughout all phases of the study

Selected literature 11 EMCDDA (2010). Harm reduction: evidence, impacts and challenges. Luxembourg: EMCDDA. EMCDDA (2015). Drugs policy and the city in Europe. Luxembourg: EMCDDA. Favril, L., Vander Laenen, F., & Decorte, T. (2015). Schadebeperkende maatregelen voor de stad Gent. Een onderzoek naar de lokale noden en prioriteiten. Antwerpen: Maklu. Lancaster, K., Ritter, A., & Stafford, J. (2013). Public opinion and drug policy in Australia: Engaging the affected community. Drug and Alcohol Review, 32, 60-66. Ti, L., Tzemis, D., & Buxton, J.A. (2012). Engaging people who use drugs in policy and program development: A review of the literature. Substance Abuse Treatment, Prevention, and Policy, 7:47. Vander Laenen, F. (2015). Not just another focus group: Making the case for the nominal group technique in criminology. Crime Science, 4:5.

Contact prof. dr. Freya Vander Laenen Freya.VanderLaenen@UGent.be IRCP Universiteitstraat 4 Belgium 9000 Ghent