20th Annual RTC Conference Presented in Tampa, March 2007

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Children s and Adolescents Perceptions of Stigmatization and Treatment for Peers with,, and Presented at: The 20 th Annual Conference: A System of Care for Children s Mental Health: Expanding the Research Base March 5, 2007 Tampa, Florida Keep updated Keep updated on the progress of the work we re presenting today (and related news) through monthly rtcupdates. We do not share your information with anyone! Janet Walker, Barbara Friesen, Dan Coleman, Junghee Lee Under-explored topics Under-explored topics Young people s knowledge and attitudes about emotional and behavioral disorders and treatment How do knowledge and attitudes change as children move from elementary to middle school to high school years? Do knowledge and attitudes vary depending on the type of disorder? Do boys and girls, or children from different backgrounds, have different attitudes or different levels of knowledge? What factors might impact young people s attitudes about help-seeking Type of disorder Perceptions of treatability Perceptions about causation Familiarity with disorder What factors might impact young people s stigmatization of peers with disorders? A Collaboration with Harris Nationally representative sample of 1,318 children and adolescents aged 8-18 conducted in the summer of 2006. Survey administered online by the polling firm Harris opt in panel Panel members provide demographic info on entry into panel. Using this information, a stratified random sample drawn based on youth age, gender, race, and ethnicity. Invited by email Respondents determined eligible continued A Collaboration with Harris Data gathered in this manner is consistently comparable to data that has been obtained from random telephone samples when sampling is applied as described. Barrens, Bohara, et al., 2003 Bremer, Overmeyer, et al., 2000 Berrens, Bohara, Jenkins-Smith et al., 2004 Schonau, Sapert, et al., 2004 Research focuses on adults 1

Respondents by Age and Sex Respondents Racial Background Frequency Percent Valid Male 8-12 274 20.8 Male 13-17 343 26 Male 18-19 57 4.3 Female 8-12 309 23.4 Female 13-17 277 21 Female 18-19 58 4.4 Total 1318 100 Valid Frequency Percent White 779 59.1 Black 199 15.1 Asian or Pacific Islander 49 3.7 Native American or Alaskan native 5 0.4 Mixed racial background 32 2.4 Other race 20 1.5 Hispanic 234 17.8 Total 1318 100 Survey versions Three versions, focusing respectively on (433 respondents) (449 respondents) (control, 436 respondents) About Michael First part of the survey asked about a fictional Michael, a school peer and has the condition and Sees a doctor for the condition Has been hospitalized several times because of the condition Spends part of the school day in special classes Peers willingness to interact with Michael (social distance) Possible causes of Michael s condition Likelihood Michael has certain attributes (more creative, gets into trouble more) Treatability of Michael s condition Other questions Big picture Knowledge about condition (checklist of possible symptoms) Familiarity with condition (had they themselves or family or friends been diagnosed with condition) Family stigmatization of condition Possible coping/help-seeking measures Talk to parents, friends See a doctor, psychologist, take medication Look for information, change habits, pray, do nothing Stimulus Condition,, Personal Characteristics Age/Grade Sex Race Other Knowledge and Perceptions Accuracy of Knowledge Causation Attributions Treatability Type of Problem Contact Behavior Help Seeking Social Distance/ Stigmatization 2

Knowledge Respondents at "Mastery" Level Percent of respondents who think that, compared to average peer, Michael... is smarter Percent 100 80 60 40 20 Elementary Middle High has a better sense of humor is more caring is more creative 0 0 5 10 15 20 25 30 =.77 for 4-item scale of positive attributes Percent of respondents who think that, compared to average peer, Michael... is lazier is more violent gets into trouble more often 0 10 20 30 40 =.86 for 3-item scale of negative attributes Type of condition Percent of respondents who think condition is... a physical illness normal ups and downs a mental illness Logistic regression: Odds of endorsing various possible causes Percent of respondents endorsing possible causes for Michael's condition Michael's fault Bad parenting Drug/Alcohol use God's will Genetic/Inherited Physical differences brain/body Life stress Parents fault Physical (brain/ body) Genetic/ Inherited Use Drugs, Alcohol Not trying to get better Life Stress Depressi on* 10.4 7 4.7 2.6 * 3.4 2.4 African Amer.** Hispani c** 1.4 1.5 Grad e.95/ year 1.2/ year.94 Femal e*** Interaction(s) Dep. x Hisp 2.8 Dep x Fem x Grade.5 Dep. x Hisp 2.6 xhisp 2.3 Dep x grade 1.1 God s Will.3.9 2 1.4 One factor within causation: Parent s fault, Michael s fault, abuse drugs; =.75 as reference; **White as reference; ***Male as reference 3

Logistic regression: Michael is likely to improve if he Percentage of respondents who think it's very or extremely likely Michael will improve if he... Depress ADH ion* D* African Amer.** Hispa nic** Grad e Fema le*** Interaction(s) Does nothing Does Nothing 1.8 Takes medication Has regular visits with a psychologist Sees a psychologist Takes Medication 11.2.27 4.5.13 1.5.23.82 Dep x AfAm 2.8 x AfAm 31.5 x Grade 1.1 AfAm x Grade 1.2 x AfAm x Grade.7 as reference; **White as reference; ***Male as reference Help seeking Help seeking (continued) If you thought you had... would you... If you thought you had... would you... Talk to a counselor/therapist Talk to a doctor Talk to another adult Take medication Change habits Wait for it to go away Get information Try harder to act normal Talk to my parents Pray Talk to a friend 100 Percent saying "yes" Social Distance Percentage of respondents who think peers would... Say mean things to Michael or call him names (Y) Invite Michael to a party or outing (N) Sit with Michael to eat lunch at school (N) Agree to work closely with Michael on a school project (N) Make fun of Michael when he was not around (Y) =..74 for sum of social distance items Means for and > 0 10 20 30 40 50 Yes Probably/Yes Definitely OR No Probably/No Definitely Next steps Select some harder knowledge questions and look at those developmentally; look at knowledge by sex and race/ethnicity Look at questions on perceptions of family stigmatization; contact with people who have conditions Examine models for stigmatization/social distance and help-seeking Examine differences between respondents who are diagnosed with a condition/think they have a condition and those who do not Adult data do some parallel analyses and compare with child/adolescent findings 4

Funds to support this activity come from The Child, Adolescent and Family Branch, Center for Mental Health Services, Substance Abuse Mental Health Services Administration, U.S. Department of Health and Human Services; Portland, Oregon The National Institute on Disability and Rehabilitation Research, U.S. Department of Education; ORC Macro, Inc.; The Center for Medical and Medicaid Services; The Maryland Department of Juvenile Services and Governor s Office of Crime Control and Prevention; and The National Technical Assistance Partnership for Child and Family Mental Health. Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services National Institute on Disability and Rehabilitation Research, U.S. Department of Education 5