COLORADO STATEWIDE CHILD COUNT FOR CHILDREN AND YOUTH WITH COMBINED VISION AND HEARING LOSS (DEAF-BLINDNESS)

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COLORADO STATEWIDE CHILD COUNT FOR CHILDREN AND YOUTH WITH COMBINED VISION AND HEARING LOSS (DEAF-BLINDNESS) Colorado Department of Education / Exceptional Student Services Unit 1560 Broadway, Suite 1100, Denver, Colorado 80202 Please complete the information on this form and return it to Tanni Anthony at the above address. Please refer to the Explanation of Certain Codes handout to assist you with completing this form. If you have any questions about the content of the Census Form, please call (303) 866-6681 or email Tanni at Anthony_t@cde.state.co.us Program Information Name of Contact Person: DATE: Phone: Contact Person s Email Address: Contact Person s Address: Street: City: State: Zip: Name of School District: (Administrative Unit) School/Agency Address Where Student Attends: Street: City: State: Zip: Name of Student s Classroom Teacher Classroom Teacher Phone and Email address: Student s Personal Information Last Name: First & Middle Name: SASID #: (found on IEP) Date of Birth: MM DD YYYY Program or Grade: 0-2 Program: Preschool: Grade K-12 (note grade) Transition: CO Code (CDE will populate): Gender: (check one) Male = 00 Female = 01 What is the primary language spoken in the student s home: Race/Ethnicity: Circle ONE race / ethnicity code that best describes the student. Any child that has any portion of Hispanic /Latino ethnicity must be classified solely as Hispanic/Latino. 1. American Indian or Alaska Native 5. White 2. Asian 6. Native Hawaiian or Other Pacific Islander 3. Black or African American 7. Two or more races (no need to specify which races) 4. Hispanic / Latino Parent/Guardian Information: (Please ensure you have the most recent address information). Please complete two contact information fields, if the parents or legal guardians have two different last names. Parent Last Name: Parent Last Name: Address: First Name: First Name: City: State: Colorado Zip: County: Telephone: Email: 1

Primary Identified Etiology: Circle the ONE etiology code from the list below that best describes the primary diagnosis for the student s deaf-blindness. Specify other etiologies in the line beneath the chart. Hereditary/Chromosomal Syndromes and Disorders 101 Aicardi syndrome 130 Marshall syndrome 102 Alport syndrome 131 Maroteaux-Lamy syndrome (MPS VI) 103 Alstrom syndrome 132 Moebius syndrome 104 Apert syndrome (Acrocephalosyndactyly, Type 1) 133 Monosomy 10p 105 Bardet-Biedl syndrome (Laurence Moon-Biedl) 134 Morquio syndrome(mps IV-B) 106 Batten disease 135 NF1-Neurofibromatosis(von Recklinghausen disease) 107 CHARGE association 136 NF2-Bilateral Acoustic Neurofibromatosis 108 Chromosome 18, Ring 18 137 Norrie disease 109 Cockayne syndrome 138 Optico-Cochleo-Dentate Degeneration 110 Cogan syndrome 139 Pfieffer syndrome 111 Cornelia de Lange 140 Prader-Willi 112 Cri du chat syndrome(chromosome 5p-syndrome) 141 Pierre-Robin syndrome 113 Crigler-Najjar syndrome 142 Refsum syndrome 114 Crouzon syndrome(craniofacial Dysotosis) 143 Scheie syndrome (MPS I-S) 115 Dandy Walker syndrome 144 Smith-Lemli-Opitz (SLO) syndrome 116 Down syndrome(trisomy 21 syndrome) 145 Stickler syndrome 117 Goldenhar syndrome 146 Sturge-Weber syndrome 118 Hand-Schuller-Christian(Histiocytosis X) 147 Treacher Collins syndrome 119 Hallgren syndrome 148 Trisomy 13 (Trisomy 13-15, Patau syndrome) 120 Herpes-Zoster(or Hunt) 149 Trisomy 18 (Edwards syndrome) 121 Hunter syndrome (MPS II) 150 Turner syndrome 122 Hurler syndrome (MPS I-H) 151 Usher I syndrome 123 Kearns-Sayre syndrome 152 Usher II syndrome 124 Klippel-Feil sequence 153 Usher III syndrome 125 Klippel-Trenaunay-Weber syndrome 154 Vogt-Koyanagi-Harada syndrome 126 Kniest Dysplasia 155 Waardenburg syndrome 127 Leber congenital amaurosis 156 Wildervanck syndrome 128 Leigh Disease 157 Wolf-Hirschhorn syndrome(trisomy 4p) 129 Marfan syndrome 199 Other Pre-Natal/Congenital Complications Post-Natal/Non-Congenital Complications 201 Congenital Rubella 301 Asphyxia 202 Congenital Syphilis 302 Direct Trauma to the eye and/or ear 203 Congenital Toxoplasmosis 303 Encephalitis 204 Cytomegalovirus (CMV) 304 Infections 205 Fetal Alcohol syndrome 305 Meningitis 206 Hydrocephaly 306 Severe Head Injury 207 Maternal Drug Use 307 Stroke 208 Microcephaly 308 Tumors 209 Neonatal Herpes Simplex (HSV) 309 Chemically Induced 299 Other 399 Other Related to Prematurity Undiagnosed 401 Complications of Prematurity 501 No Determination of Etiology Other Cause of Deaf-Blindness (please be as specific as possible): 2

Information about the Student s Visual Impairment Please provide information on the student's most current Functional Vision Assessment, which is a non-clinical assessment conducted by a certified teacher of students with visual impairments using commonly accepted assessment tools, checklists and measures for the purpose of making educated judgments about the functional use of vision. Date of Functional Vision Assessment: MM YYYY By Whom (name): Does this student have a Learning Media Assessment Plan on file with his/her IEP? No = 0 Yes = 1 Primary Classification of Visual Impairment (Circle One that Best Describes the Student s Vision Impairment) 1. Low Vision (acuity of 20/70 to 20/200 in the better eye with correction.) 2. Legally Blind (acuity of 20/200 or less or field loss to 20 degrees or less in the better eye with correction.) 3. Light Perception Only 4. Totally Blind 6. Diagnosed Progressive Loss 7. Further Testing Needed to Determine Visual Impairment (can be selected for one year only) Note: Numbers 5, 8, and 9 from the federal form have been deleted since they do not apply in Colorado Does the child have a diagnosis of cortical/cerebral visual impairment? No = 0 Yes = 1 Unknown = 2 Information about the Student s Hearing Impairment Please provide information on the student's Functional Hearing Assessment, which is a non-clinical assessment conducted by a teacher certified in deafness using commonly accepted assessment tools, checklist and measures for the purpose of making educated judgment about the functional use of hearing. Date of Functional Hearing Assessment: MM YYYY By Whom (name): Does this student have a Communication Plan on file with his/her IEP? No = 0 Yes = 1 Primary Classification of Hearing Impairment (Circle One that Best Describes the Student s Hearing Loss) 1. Mild (26-40 db loss) 2. Moderate (41-55 db loss) 3. Moderately Severe (56-70 db loss) 4. Severe (71-90 db loss) 5. Profound (91+ db loss) 6. Diagnosed Progressive Loss 7. Further Testing Needed to Determine Hearing Impairment (can be selected for one year only) Note: #s 8 and 9 from the federal form have been deleted since they do not apply in Colorado Does the student have a central auditory processing disorder? Does the student have auditory neuropathy? Does the student have a cochlear implant? No = 0 Yes = 1 Unknown = 2 No = 0 Yes = 1 Unknown = 2 No = 0 Yes = 1 Unknown = 2 If the child has a cochlear implant(s), note the date(s) (month/year) of the implant(s): MM YYYY Other Disabilities or Health Needs: Check the disabilities, in addition to the individual s combined visual and hearing impairments, which have a significant impact on the individual s developmental or educational progress. Orthopedic Impairment No = 0 Yes = 1 Intellectual Disability No = 0 Yes = 1 Serious Emotional Disability No = 0 Yes = 1 Other Health Impaired No = 0 Yes = 1 Speech or Language Impairment No = 0 Yes = 1 Other Disabilities: No = 0 Yes = 1 Specify: 3

IDEA / Funding Category for Current Service Part C Category Code: CHOOSE ONE: IF CHILD IS OLDER THAN THREE YEARS, CHOOSE 888 Student is receiving Part C Services: Yes = 2 Not receiving Part C Services = 888 Circle the ONE Part B Category Code from the list that identifies the primary disability label on the student s IEP. Part B Category Code this is the primary label on the student s IEP: CHOOSE ONLY ONE 1. Intellectual Disability 10. Multiple Disabilities 2. Hearing Impairment, Including Deafness 11. Autism Spectrum Disorder 3. Speech or Language Impairment 12. Traumatic Brain Injury 4. Visual Impairment, Including Blindness 13. Developmental Delay (ages 3 through 8 years) 5. Serious Emotional Disability 888. Not Reported under Part B of IDEA 6. Orthopedic Impairment 7. Other Health Impaired 8. Specific Learning Disability 9. Deaf-Blindness Early Intervention or Educational Setting Circle the ONE educational setting code from the appropriate age subcategories that best describes the student s education setting. Please find the section that describes the learner s age and fill out only that section. Educational Setting Complete if Child is Ages Birth through Two Years Complete if Child is Ages Three to Five Years 1. Home 1. Attending a regular early childhood program at least 2. Community-based settings 80% of the time 3. Other settings (please name setting below) 2. Attending a regular early childhood program 40-79% of the time 3. Attending a regular early childhood program less than 40% of the time 4. Attending a separate class 5. Attending a separate school 6. Attending a residential facility 7. Service provider location 8. Home Complete if the Child is Ages Six to 21 Years 9. Inside the general education class 80% or more of day 10. Inside the general education class 40% to 79% of the day 11. Inside the general education class less than 40% of the day 12. Separate school 13. Residential facility 14. Homebound / Hospital 15. Correctional facilities 16. Parentally placed in private schools 888. Not receiving Part B Services (i.e. home school) 4

Participation in Statewide Assessments / Evidence of a READ Plan: Circle the number representing the student s participation in the state s assessment activities. 1. Regular grade-level State Assessment (CMAS Science/Social Studies at 4 th, 5 th, 7 th, 8 th, and 11 th and CMAS ELA/Math at 3 rd -8 th grades or the PSAT /SAT at 9 th /10 th /11 th grade) 2. Regular grade-level State Assessment (CMAS Science/Social Studies at 4 th, 5 th, 7 th, 8 th, and 11 th and CMAS ELA/Math 3 rd -8 th grades or the PSAT/SAT at 9 th /10 th /11 th grade) with accommodations 3. Alternate assessment (CoAlt Science/Social Studies at 4 th, 5 th, 7 th, 8 th, and 11 th and CoAlt DLM ELA/Math at 3 rd - 11 th grades (CoAlt DLM ELA and Math serve as the corresponding alternate to the CMAS ELA and Math and PSAT/SAT). 6. Not required at age or grade level (infants, toddlers, preschoolers, K-2, 12th grades) Note: # 4 and #5 from the federal form are not applicable with Colorado state assessments. If the child is in Kindergarten 3rd Grade, does he or she have a READ Plan for a Significant Reading Deficiency? No = 0 Yes = 1 Not Applicable (child is a different grade than Kindergarten-3 rd Grade) = 2 Part C Status or Exiting: This section is ONLY for children ages birth through two years. Please indicate the code that best describes the student s status on Dec. 1st. If the student is still in a Part C Early Intervention Program, circle 0. If they have exited from a Part C Early Intervention Program, please indicate the number that best describes the exit reason. Circle only one response for each Part C student. COMPLETE THIS SECTION ONLY IF THE CHILD IS AGES BIRTH TWO YEARS AS OF DEC 1 0. In a Part C Early Intervention Program (still receiving Part C services) 1. Completion of IFSP prior to reaching maximum age for Part C 2. Eligible for IDEA, Part B (transitioned into a school preschool program with an IEP) 3. Not eligible for Part B, exit with referrals to other programs 4. Not eligible for Part B, exit with no referrals 5. Part B eligibility not determined 6. Deceased 7. Moved out of state 8. Withdrawal by parent (or guardian) 9. Attempts to contact the parent and / or child were unsuccessful Part B Status or Exiting: For students in early childhood/special education (preschool) or school-aged special education (3-21 years) indicate the code that best describes the student s status on December 1 st of each school year. If the student is still in a Part B special education program, circle 0. If they have exited from Part B special education services, please indicate the number that best describes the exit reason. Circle only one response for each Part B student. COMPLETE THIS SECTION ONLY IF THE CHILD IS AGES THREE 21 YEARS AS OF DEC 1 0. In Early Childhood Special Education or school-aged special education program 1. Transferred to general education (no longer has an IEP) 2. Graduated with a regular diploma 3. Received a certificate 4. Reached maximum age 5. Deceased 6. Moved, known to be continuing 8. Dropped out Note: #7 is intentionally not used 5

Deaf-Blind Project Exiting Status: Circle which number applies to the current status of the student. If the student is still considered to be a learner with deaf-blind needs, circle 0. If the student is no longer considered to be deaf-blind, please circle #1. 0. Eligible to receive services from the State Deaf-Blind Project (student is deaf-blind) 1. No longer eligible to receive services from the State Deaf-Blind Project (no longer deaf-blind) Living Setting: Circle the living setting which the student resides the majority of the year. Circle only ONE choice. Living Setting Information 1. Home: With Parents 2. Home: Extended Family 3. Home: Foster Parents 4. State Residential Facility 5. Private Residential Facility 6. Group Home (less than 6 residents) 7. Group Home (6 or more residents) 8. Apartment (with non-family person(s) 9. Pediatric Nursing Home 555. Other (Specify) Information Specific to Equipment and Technology Specific to this Student Wears Corrective Lenses No = 0 Yes = 1 Unknown = 2 Uses Assistive Listening Devices No = 0 Yes = 1 Unknown = 2 Uses Additional Assistive Technology No = 0 Yes = 1 Unknown = 2 Please file a copy of this form in the student s file in your administrative unit / agency. The original should be mailed to: Dr. Tanni Anthony Colorado Department of Education Exceptional Student Services Unit 1560 Broadway, Suite 1100 Denver, CO 80202 If there are any questions about this form, please contact Dr. Anthony at (303) 866-6681 or Anthony_t@cde.state.co.us This form must be signed by a district / agency contact person Signature Date Title 6