South West Cancer Alliances Rapid Diagnostic Pathway for Lung Cancer Project Evaluation

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Somerset, Wiltshire, Avon and Gloucestershire Cancer Alliance Peninsula Cancer Alliance South West Cancer Alliances Rapid Diagnostic Pathway for Lung Cancer Project Evaluation Peninsula Thoracic-Oncology SSG 11.10.2018

Questions requiring answers The questions identified as key to demonstrating achievement against project aims are; Have providers delivered the pathway milestones as defined? Is there evidence of earlier diagnosis of lung cancer as a result of this pathway transformation? Has there been a reduction in time to lung cancer diagnosis during the duration of the project? Has there been a reduction in the percentage of lung cancers diagnosed following emergency presentation during the duration of the project? Has there been an improvement in Lung Cancer pathway performance across the SW Cancer Alliances during the duration of the project? Has patient experience improved for those referred for Chest X-ray by their GP? Are GP s experiencing improved clarity and consistency in Chest X-ray reports? Is the new pathway cost effective? Do we understand the impact on key staff groups workload including GP s, respiratory physicians, Clinical Nurse Specialists and Radiologist / Radiographer?

Somerset, Wiltshire, Avon and Gloucestershire Cancer Alliance Peninsula Cancer Alliance Lung Pathway Contact: Dr Amelia Randle (Clinical Lead): amelia.randle@nhs.net Patricia McLarnon (Programme Manager): patricia.mclarnon@nhs.net Nicola Gowen (Project Manager):nicolagowen@nhs.net SW Alliances Rapid Diagnostic Pathway for Lung Cancer The purpose of the evaluation proposed is to assess achievement of The SW Alliances Rapid Diagnostic Pathway for Lung Cancer aims of increasing the percentage of lung cancer staged 1&2 at diagnosis to improve outcomes for patients and reduce the numbers of patients diagnosed via emergency admission. Evaluation will scrutinise the implementation of streamlined diagnostic pathways, time to diagnosis, cost-effectiveness, the impact on cancer performance and our patients experience. The evaluation period is 2018/19. Evaluation item Sample Data source Collation / submission Analysis Reporting Information Governance Pathway implementation SW CA Providers Cancer Services Monthly provider highlight report Final Friday each month to Alliance administrators Monthly by SW Alliances project manager and quarterly by SW Lung Cancer Steering group Milestone Compliance report at provider level monthly as requested to stakeholder events and quarterly to SW Lung cancer Steering group Non required Demand/ Waits / Pathway activity / Diagnosis Data SW CA Providers Cancer Services Monthly provider data and route to diagnosis report Final Friday each month 3 months in arrears (draft submission 2 months in arrears) to Alliance administrators Monthly by SW Alliances project manager and quarterly by SW Lung Cancer Steering group Provider level quarterly evaluation report to SW Lung Cancer Steering Group and its subsidiary clinical advisory group No patient identifiable data shared Provider responsibility to challenge share with Alliance Alliance agreement required with providers to share amongst stakeholders Performance Data SW CA Providers Cancer Services Monthly provider data report, SWSCN Cancer Dashboard, National Cancer Report Final Friday each month 3 months in arrears (draft submission 2 months in arrears) to Alliance administrators Monthly by SW Alliances project manager and quarterly by SW Lung Cancer Steering group Provider level quarterly evaluation report to SW Lung Cancer Steering Group and Prevention and Early Diagnosis Group No patient identifiable data shared Provider responsibility to challenge share with Alliance Alliance agreement required with providers to share amongst stakeholders Patient experience All patients referred by GP for CXR Interviews Web based survey Paper survey CPES (post project evaluation period) Quarterly by Alliance administrators Monthly by SW Alliances PPE lead and quarterly by SW Lung Cancer Steering group Provider level quarterly evaluation report to SW Lung Cancer Steering Group and Prevention and Early Diagnosis Group Patient Identifiable Data Assessment required *For Evaluation detail see South West (SW) Alliances Rapid Diagnostic Pathway Evaluation Plan (Extended) available at; http://www.swscn.org.uk/networks/cancer/projects/

GP requested Chest Xrays detail units Total No. requested Demand All CXR's requested by GP's received in month no. Total No 2 ww referrals received All GP urgent referrals for suspected lung cancer received no. CX3 / CXR suspicious of malignancy Demand No's CXR reported as CX3 / CXR suspicious of malignancy All GP requested CXR's reported as CX3 or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway no. Waits wait between CXR perform to report All GP requested CXR's median no. days wait between CXR and CT wait for CT report For CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway no. days between CXR and CT median no. days wait for OPA For CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway no. days between CT performed and report median no. days For CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway no. days between CT performed and OPA median no. days

Pathway activity STT CT % Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT % of all CX3's or like (however if depending on pathway, % of those who went STT CT (this will inform either % of those e.g CT contraindicated or refused or if 0% as DA would like to use no. to aid safety netting no. is acceptable) pathway implemented DA CT % Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those who were referred back to GP with request for DA CT and attended % of all CX3's or like (however if would like to use no. to aid safety netting no. is acceptable) 2ww referral received(%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those were 2 ww received (if 2ww request part of the pathway would anticipate 100% where no 2 ww request to GP being made will inform re. GP practices requesting CXR when suspect Ca % of all CX3's or like (however if would like to use no. to aid safety netting no. is acceptable) Triage (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those who were triaged by respiratory or radiology post CT prior to decision re. OPA requirement % of all CX3's or like (however if would like to use no. to aid safety netting no. is acceptable) Normal CT / no further treatment required (%) / removed from cancer tracking Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those whos CT was normal and no further treatment was required % of all CX3's or like (however if would like to use no. to aid safety netting no. is acceptable) Lung Cancer OPA (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those who required a lung cancer clinic outpatient appointment % of all CX3's or like (however if would like to use no. to aid safety netting no. is acceptable)

Diagnosis SCLC (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those diagnosed with Small Cell Lung Cancer % of all CX3's or like NSCLC (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those diagnosed with Non Small Cell Lung Cancer % of all CX3's or like Diagnosis not yet known (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those not yet diagnosed % of all CX3's or like Stage 1&2 (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those diagnosed at stage 1 or 2 % of all CX3's or like Stage 3&4 (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those diagnosed at stage 3 or 4 % of all CX3's or like Other Respiratory Diagnosis incl. lung metastases (%) Off all CX3's or highly suspicious of malignancy initiating STT CT or DA CT depending on pathway, % of those diagnosed with alternative respiratory diagnosis incl. lung metastases % of all CX3's or like Performance Lung 2ww performance (SWSCN Cancer Dashboard)(%) As monthly submitted nationally % Lung 62 Day performance (National cancer report) (%) As monthly submitted nationally % % Lung Cancers Diagnosed at stage 1 or 2 New diagnosis review % all new diagnosis % Lung Cancers Diagnosed via Emergency Presentation New diagnosis review % all new diagnosis

Deliverable / milestone NDDH UHP RD&E TSD RCHFT Highlight / data report received All patients will have access to a same day walk-in chest X-ray service All patients will follow this diagnostic pathway being the start of the OLCP GP chest X-ray CT Outpatient appointment Systems will allow patients with a negative diagnosis to leave the pathway without the need for an outpatient appointment All GP Chest X-rays will be reported consistently, using the South West Chest X-ray Reporting Tool (or locally agreed alternative) Collect information on chest X-ray codes and related activity and outcomes X-ray and CT reporting backlogs will be cleared, facilitating a reduction in time between diagnostic activities and supporting either same day chest x-ray and CT Radiographers will be trained to report X-rays either CXR or others so as to enable same day reporting of CXRs Patient info BME accessible Risks (reported by providers)

Evaluation only as thorough as quality of information received enables

Lung Cancers Diagnosed Stage 1&2 30 UHP 31% Q1 2018/19 25 20 Peninsula Cancer Alliance 15 10 NHS Kernow CCG NHS Northern, Eastern and Western Devon CCG NHS South Devon and Torbay CCG 5 0 2012 2013 2014 2015 2016

Q1 2018/19 timed pathway steps 30 25 Wait for OPA Wait for CT report 20 Wait between CXR and CT 15 Wait between CXR perform to report 10 5 0 CDP NRDP NBT GLOS TST YDH SDH PHNT

Apr-16 May-16 Jun-16 Jul-16 Aug-16 Sep-16 Oct-16 Nov-16 Dec-16 Jan-17 Feb-17 Mar-17 Apr-17 May-17 Jun-17 Jul-17 Aug-17 Sep-17 Oct-17 Nov-17 Dec-17 Jan-18 Feb-18 Mar-18 Apr-18 May-18 Jun-18 Jul-18 62 Day performance - lung cancer 120 100 80 PLYMOUTH HOSPITALS NHS TRUST 60 ROYAL CORNWALL HOSPITALS NHS TRUST 40 TORBAY AND SOUTH DEVON NHS FOUNDATION TRUST 20 0

Apr-16 May-16 Jun-16 Jul-16 Aug-16 Sep-16 Oct-16 Nov-16 Dec-16 Jan-17 Feb-17 Mar-17 Apr-17 May-17 Jun-17 Jul-17 Aug-17 Sep-17 Oct-17 Nov-17 Dec-17 Jan-18 Feb-18 Mar-18 Apr-18 May-18 Jun-18 Jul-18 2ww Demand - lung 120 100 80 PLYMOUTH HOSPITALS NHS TRUST 60 ROYAL CORNWALL HOSPITALS NHS TRUST 40 TORBAY AND SOUTH DEVON NHS FOUNDATION TRUST 20 0

Apr-16 May-16 Jun-16 Jul-16 Aug-16 Sep-16 Oct-16 Nov-16 Dec-16 Jan-17 Feb-17 Mar-17 Apr-17 May-17 Jun-17 Jul-17 Aug-17 Sep-17 Oct-17 Nov-17 Dec-17 Jan-18 Feb-18 Mar-18 Apr-18 May-18 Jun-18 Jul-18 2ww Performance - Lung 120 100 80 PLYMOUTH HOSPITALS NHS TRUST 60 ROYAL CORNWALL HOSPITALS NHS TRUST 40 TORBAY AND SOUTH DEVON NHS FOUNDATION TRUST 20 0

Proportion of CXR CX3/ Highly suspicious SDH YDH TST NBT % Non CX3 % CX3 Total Non CX3 CX3 GLOS 0 500 1000 1500 2000 2500

CX3 / highly suspicious diagnosis breakdown* 250% 200% 150% 100% Other NSCLC SCLC No Cancer 50% 0% GLOS NBT UHB RUH TST YDH SDH PHNT *Further work required data quality

Summary Some good progress made across Peninsula Data reporting challenging CX3 diagnosis data quality improvement required NOLCP timelines challenging Q1 2018/19 findings do not answer all project questions Clinical Advisory Group 23 rd October to review Q1 evaluation report and make recommendations on next steps Route to diagnosis review required PPE work underway

Future CA support of Lung Pathway Transformation Proposals to be made, for proportion of PCA funding allocation ( 79,000), by providers via STP for delivery of next step transformation projects (National Rapid Diagnostic Pathway for Lung Cancer) To be reviewed and agreed by the South West Cancer Alliances Lung Pathway Steering Group 6 th November PCA Clinical Leadership and Project support ( 41,000)