Autism spectrum: Why so much stress & social mis-understanding? Is it a matter of poor ToM or stress support & delayed Object permanence?

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Dr. Wenn Lawson PhD CPsychol AFBPsS Inservice Malle 2015 Autism spectrum: Why so much stress & social mis-understanding? Is it a matter of poor ToM or stress support & delayed Object permanence? 1

Autism is: I like it here, please do let me stay. Autism is: I know it here, please don t take me away. If and when I leave this place to travel to another space, I need to know it right away. I need to know that I m OK. Transition is so fleeting, it leaves not time to stay. Will I have time to settle, or will I be whisked away? ASPoetry 24/09/2015 3 I know that change can happen. I know it can take time. But how can I know what this will mean? What this will mean for mine. Transition is about moving, to where or what one asks? ASPoetry 24/09/2015 4 2

This is my very question, from present or the past. Time for me is all the same, I know not of its future. I only know I trust in now tomorrow can come, I just need to know how. ASPoetry 24/09/2015 5 How do I know what how to... means? Can you please explain? What if others get the rules but I don t know the game? What s the best way to inform? And if that doesn t work, what s the norm? ASPoetry 24/09/2015 6 3

Communication in AS: What if AS individuals are so taken up with the now, forward thinking, object/schema permanence, and the like, fail to occur? It means stress will be high and learning unavailable! It means all my attention will be taken up with what stresses me! Need reasons for stress to be addressed! 7 Object Permanence video: Piaget's Stages of development 4

Has been said to be lacking or poorly formed It s not the ability that s lacking it s the difficulty picking up on the signs. This leads to an incomplete picture Would we say that because an individual is visually impaired they cannot get the picture? No, we would enable them via different means. 9 If attention is in many directions: need for executive functioning high, but low need to attend closely executive functioning comes relatively easily. Global map= multiple connections: shared interest systems open door to = object permanence? 10 5

Can only attend to one thing at any one time (unless within attention tunnel) Interests dictate Driven to organise and plan (but with poor EF; CC & access) Thinking ahead may only occur in connection to single focused interests. 11 School: Speaks out of turn. Misreads intention of others Attention misses the point Quickly tired Easily overloaded Rocking, humming, giggling. 12 6

not coping, not bad behaviour, but stress support needs = challenging behaviour Identify triggers to behaviour: - Noise - Close proximity to other students - Inability to understand work Object/schema permanence not established? This is NOT Poor Theory of mind (ToM). 13 If poor test results for ToM were really poorly developed OP? Then a whole new understanding of why autistic children show anxiety, stress, fear, aggression and so on. Lacking ToM = empathy lacks. Lacking OP = fear, confusion, mistrust & so on. The reasons for behaviour need addressing differently accordingly. 7

Object permanence (OP) (Schema generalised permanence)is an individual s ability to understand that objects/people/events still exist even when they can t be seen. 15 Anger, sadness, etc & various resultant behaviours are an expression of an individual's current emotion. This may not always be intentional behaviour but rather, a biological response to the neurochemical change in the brain due to a change in the environment. 16 8

(e.g. Adult tells individual they are going outside into the garden; Adult leaves to go outside; individual appears to be OK. adult returns after a short time in the garden to find individual upset/angry and saying where were you I couldn t see you; I thought you you had left me ). 17 Areas concerned with language in the brain: On the left, autism, on the right, typical. 9

The neurons present in the brain that connect the sensory and the motor neurons. Uni-sensory & Multi-sensory connections allow for different concepts/experience s/memories and will lead to different behavioural outcomes. OP is the result of: knowing that an object still exists, even if it is hidden. It requires the ability to form a mental representation (i.e. a schema) of the object (e.g. McLeod, S. A. (2010). Sensorimotor Stage. Retrieved from: http://www.simplypsychology.o rg/sensorimotor.html. 20 10

Tom aged 10yrs goes to stay with his grand-parents. Tom has autism. He is playing hide-go-seek with them. But, as soon as there were no visible signs they were around, Tom begins to shout and rock. He is utterly convinced his grandparents are gone. 21 The grandparents watched Tom repeat this experience over and over again. It was very upsetting for them and awful for Tom. However, this is not about IQ, but about Tom s learning style and cognitive adaptation to change. 22 11

Cognitive abilities develop naturally, but sometimes, not fully. There is so much variation. Some areas of the brain are more, or less developed, than others causing strengths and weakness in visual learning, auditory learning, or kinaesthetic learning. 23 Tom lives in the now. His past might not inform his present. He is not learning typically. He has delayed object permanence and is very literal. We need to accommodate his autistic disposition and use it as a learning medium. This means, we need to use his single focused attention to build the Concepts he is missing. 12

In regards to strategies, the picture system, visual schedule, etc. may be useful in providing accommodation for transition between activities. However, it might not change the individual's understanding as to why the change is happening. 25 In AS to change an individual's understanding is to intentionally change the brain. Create new connections through using attention/interest to capture attention and assist an individual to understand (this means building concepts in a fuller way using story in a format that works for them via Disney characters; Lego models; video games; comic strip stories e.g. super heroes; dinosaurs; role play and so on). 26 13

Excess GAMMA in ASC Anchored GAMMA in NT 14

15

If circumstances an individual finds themselves in present as overwhelming (all attack at once) and their brain works with processing things one at a time; the very mechanism for building understanding is immobilised. They succumb to the belief that they are not valuable, important, capable, loved etc. and negative behaviour follows. 31 32 16

I don t want anyone to change who I am but, just like you, I do want to be heard, understood and accommodated. Dismissing who I am or trying to see me as part of a tragic disaster, is not the way to go. As people with AS we have so much to give back to our communities. Lawson, W.B & Dombroski, B. (2015) Might we be calling problems seen in autism spectrum conditions, poor theory of mind, when actually they are related to non-generalised Object Permanence? Journal of Intellectual Disability Diagnosis and Treatment. 3 43-48 17

www.wennlawson.com www.jkp.com GOOGLE http://www.autismspectrum.org.au/ content/summary-findings-webelong-too http://www.autism.org.uk/workingwith/education/teacherform.aspx?gclid=cou1w5_0p8ucfs sewwodwqkaew RESOURCES http://raisingchildren.net.au/articles/auti sm_spectrum_disorder_attention.html Ross Green www.livesinthebalance.org https://www.youtube.com/watch?v=uox BFOZml80 http://www.questia.com/library/journal/ 1G1-331005412/teaching-objectpermanence-an-action-research-study 36 18