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PRELIMINARY PROGRAM (Version 2012-09-28) The 36 th Meeting of the Scandinavian Sarcoma Group Helsinki Date: October 9-11, 2013 Place: Hotel Crowne Plaza Mannerheimentie 50 Helsinki 00260 Finland Hotel Front Desk +358-9-2521 0000 Hotel Fax: +358-9-2521 3999

Map of conference venue 2

SSG Plenary Meeting Tuesday October 8, 2013 17.00 19.00 Board meeting 20.00 Dinner (board members only) Restaurant Töölönranta 3

SSG Plenary Meeting Wednesday October 9, 2013 12.00 17.00 Registration (outside meeting room Nordica 1, 2 & 3) Exhibition Stand (Winter garden) Poster Exhibition (Nordica 1&2) 13.00 14.00 Lunch (Hotel Restaurant Royal Hall) 14.00 Introduction and welcome C. Blomqvist, Helsinki, K. Sundby Hall, Oslo 14.15 16.45 Session I Rhabdomyosarcoma and Bone sarcomas Chairmen: S. Smeland, Oslo, A. Kivioja, Helsinki 14.15 Molecular/biochemical determinants and molecular pathways in Rhabdomyosarcoma L. Helman, Bethesda, USA 14.45 Surgery or radiotherapy for Ewing sarcoma O. Brosjö, Stockholm, Ø. Bruland, Oslo 15.15 Reconstructive surgery in pelvic sarcomas W. Winkelmann, Hamburg, Germany 15.45 16.15 Coffee break (Winter garden) 16.15 SSG Bone sarcoma trials K. Sundby Hall, S. Smeland, Oslo 16.45 17.15 SSG matters (members only) 18.00 Reception at Helsinki Music Hall 19.00 21.20 Concert, Helsinki Music Hall 4

SSG Plenary Meeting Thursday October 10, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 12.30 Session II Pediatric sarcoma Parallel program with nurses and physiotherapists Chairmen: U. Pihkala, Helsinki, C, Rechnitzer, Copenhagen 08.30 Oncological treatment of rhabdomyosarcoma and Ewing s sarcoma L. Helman, Bethesda, USA 09.15 Surgical treatment in pediatric bone sarcomas (including special surgical techniques for growing bones) M, Manfrini, Bologna, Italy 09.45 Radiotherapy of pediatric sarcoma I. Kristensen, Lund 10.00 Proton radiation of pediatric sarcomas K. Nilsson, Uppsala 10.15 10.45 Coffee break (Winter garden) 10.45 Soft tissue sarcomas in adults and children; therapeutic differences and similarities A. Ferrari, Bologna, Italy 11.30 Trabectedin, new data, adults and children TBC 12.00 12.30 Free presentations Chairmen: O. Brosjö, Stockholm, A. Krarup-Hansen, Herlev 5

12.00 GIST in children, presentation of a new protocol TBC 12.30 13.30 Lunch (Hotel Restaurant Royal Hall) 13.30 15.30 Session III Novel options in sarcomas Chairmen: M. Eriksson, Lund, B. Bjerkehagen, Oslo 13.30 Novel biomarkers in sarcoma F. Mertens, Lund 14.00 GIST The break-through H. Joensuu, Helsinki 14.30 Novel systemic treatment in sarcomas I. Judson, London, UK 15.00 Muramyl Tripeptide in osteosarcoma S. Bielack, Stuttgart, Germany 15.30 16.00 Coffee break (Winter garden) 16.00 17.00 Session IV Giant Cell Tumour (GCT) Chairmen: E. Tukiainen, Helsinki, O. Zaikova, Oslo 16.00 Pathophysiology and biomarkers in GCT S. Knuutila, Helsinki 16.10 GCT Surgery A. Kivioja, Helsinki 16.30 Radiotherapy of GCT C. Blomqvist, Helsinki 16.45 Medical treatment of GCT J. Engellau, Lund 17.00-18.00 Free presentations cont. Chairmen: F. Vult von Steyern, Lund, P. Lindholm, Turku 6

19.30 Gala Dinner at Hotel Restaurang Royal Hall 7

SSG Plenary Meeting Friday October 11, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 15.10 Session V Soft Tissue Sarcoma (STS) Joint session with doctors, scientists, nurses and physiotherapists Chairmen: C. Blomqvist, Helsinki, C. Trovik, Bergen 08.30 New pathological entities M. Miettinen, Helsinki 09.30 10.00 Coffee break (Winter garden) 10.00 Cancer related fatigue what do we know and how do we help our patients? R. Gjessing Borgheim, Oslo 10.30 It s a stroke of genius network focused care and young people with cancer P. Riis Olsen, Århus 11.00 Exercise Oncology a strategy for improving cancer patients wellbeing during and after treatment M. Quist, K. Blomquist, Copenhagen 11.30 Reconstructive surgery in STS E. Tukiainen, Helsinki 12.00 13.00 Lunch (Hotel Restaurant Royal Hall) 13.00 SSG Soft tissue sarcoma trials M. Eriksson, Lund 8

13.30-15.00 Session VI - Poster presentations Chairmen: C. Blomqvist, Helsinki, P. Bergh, Gothenburg, O. Myklebost, Oslo 15.00-15.10 Closing remarks Coffee (Winter garden) 9

Program for SSG nurses and physiotherapists Wednesday October 9, 2013 12.00 17.00 Registration (outside meeting room Nordica 1, 2 & 3) Exhibition Stand (Winter garden) Poster Exhibition (Nordica 1&2) 13.00 14.00 Lunch (Hotel Restaurant Royal Hall) (Board meeting for Nurses & physiotherapists Room: Nordica 12 ) 14.00 Introduction and welcome C. Blomqvist, Helsinki, K. Sundby Hall, Oslo 14.15 16.45 Session I Rhabdomyosarcoma and Bone sarcomas Chairmen: S. Smeland, Oslo, A. Kivioja, Helsinki 14.15 Molecular/biochemical determinants and molecular pathways in Rhabdomyosarcoma L. Helman, Bethesda, USA 14.45 Surgery or radiotherapy for Ewing sarcoma O. Brosjö, Stockholm, Ø. Bruland, Oslo 15.15 Reconstructive surgery in pelvic sarcomas W. Winkelmann, Hamburg, Germany 15.45 16.15 Coffee break (Winter garden) 16.15 SSG Bone sarcoma trials K. Sundby Hall, S. Smeland, Oslo 16.45 17.15 SSG matters (members only) 18.00 Reception at Helsinki Music Hall 10

19.00 21.20 Concert, Helsinki Music Hall 11

Program for SSG nurses and physiotherapists Thursday October 10, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 18.00 Nurses and physiotherapists session Room: Nordica 3 08.30 08.40 Welcome! 08.40-10.30 Session I Children with sarcoma Chairmen: S. Granlien, Oslo, I. Johansson, Umeå 08.40 RESPECT (Rehabilitation including social, physical activity and education in children and teenagers with cancer) H. Baekgaard, Copenhagen 09.00 Hospice for children A. Edner, Stockholm, Speaker TBC 09.25 Siblings support, Speaker TBC 09.55 Low Level Laser Therapy in the treatment of chemotherapyinduced oral mucositis. The experiences of the Pediatric Oncology Unit at University Hospital Ghent V. Van de Velde, Ghent 10.20 10.45 Coffee break (Winter garden) 10.45-12.30 Session II - Protheses Chairmen: A-L Salbu, Bergen, R. Uhre Hansen, Herlev 10.45 Protheses, what s new? G. Prestbakmoen, Oslo 11.00 To cope with life with a prothese B. Hedegård, Århus 12

11.20 When to use tumorprotheses C. Trovik, Bergen 12.30 13.30 Lunch (Hotel Restaurant Royal Hall) 13.30-15.30 Session III Coping during and after treatment Chairmen: A. Lekven, Stavern, C. Persson, Lund 13.30 Working as a sarcoma nurse in plastic surgery ward K. Olenius, Helsinki 13.50 Network meetings how to N. Hove, Århus 14.10 Rehabilitation of one sarcoma patient H. Gustafsson, Helsinki 14.30 Activity week challenge yourself K. Heiberg Rasch, M. Evertsen, Stavern 15.00 Patient story 15.30 16.00 Coffee break (Winter garden) 16.00 17.00 Annual meeting 19.30 Gala Dinner at Restaurant Royal at Crowne Plaza 13

Program for SSG nurses and physiotherapists Friday October 11, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 15.10 Session V Soft Tissue Sarcoma (STS) Joint session with doctors, scientists, nurses and physiotherapists Chairmen: C. Blomqvist, Helsinki, C. Trovik, Bergen 08.30 New pathological entities M. Miettinen, Helsinki 09.30 10.00 Coffee break (Winter garden) 10.00 Cancer related fatigue what do we know and how do we help our patients? R. Gjessing Borgheim, Oslo 10.30 It s a stroke of genius network focused care and young people with cancer P. Riis Olsen, Århus 11.00 Exercise Oncology a strategy for improving cancer patients wellbeing during and after treatment M. Quist, K. Blomquist, Copenhagen 11.30 Reconstructive surgery in STS E. Tukiainen, Helsinki 12.00 13.00 Lunch (Hotel Restaurant Royal Hall) 13.00 SSG Soft tissue sarcoma trials M. Eriksson, Lund 14

13.30-15.00 Session VI - Poster presentations Chairmen: C. Blomqvist, Helsinki, P. Bergh, Gothenburg, O. Myklebost, Oslo 15.00-15.10 Closing remarks Coffee (Winter garden) 15