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FINAL PROGRAM The 36 th Meeting of the Scandinavian Sarcoma Group Helsinki Date: October 9-11, 2013 Place: Hotel Crowne Plaza Mannerheimentie 50 Helsinki 00260 Finland Hotel Front Desk +358-9-2521 0000 Hotel Fax: +358-9-2521 3999

Map of conference venue To view the meeting rooms, public areas and hotel rooms click on the picture below and follow the link. 2

Tuesday October 8, 2013 SSG Plenary Meeting 17.00 19.00 Board meeting Room: Meeting room 12 20.00 Dinner (board members only) Restaurant Töölönranta 3

SSG Plenary Meeting Wednesday October 9, 2013 12.00 17.00 Registration (outside meeting room Nordica 1, 2 & 3) Exhibition Stand (Winter Garden) Poster Exhibition 13.00 14.00 Lunch (Hotel Restaurant Royal Sali) 14.00 Introduction and welcome C. Blomqvist, Helsinki, K. Sundby Hall, Oslo 14.15 16.45 Session I Rhabdomyosarcoma and Bone sarcomas Joint session with doctors, scientists, nurses and physiotherapists Chairmen: S. Smeland, Oslo, A. Kivioja, Helsinki, T. Alvegård,Lund 14.15 L1 Molecular/biochemical determinants and molecular pathways in Rhabdomyosarcoma L. Helman, Bethesda, USA 14.45 L2 a+b Surgery or radiotherapy for Ewing sarcoma O. Brosjö, Stockholm, Ø. Bruland, Oslo 15.15 L3 Reconstructive surgery in pelvic sarcomas W. Winkelmann, Hamburg 15.45 16.15 Coffee break (Winter Garden) 16.15 L4 SSG Bone sarcoma trials K. Sundby Hall, S. Smeland, Oslo 16.45 17.15 SSG matters (members only) 4

SSG Plenary Meeting Thursday October 10, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 12.30 Session II Paediatric sarcoma Chairmen: U. Pihkala, Helsinki, C. Rechnitzer, Copenhagen 08.30 L5 Oncological treatment of rhabdomyosarcoma and Ewing s sarcoma L. Helman, Bethesda, USA 09.15 L6 Surgical treatment in pediatric bone sarcomas (including special surgical techniques for growing bones) M. Manfrini, Bologna 09.45 L7 Radiotherapy of pediatric sarcoma I. Kristensen, Lund 10.00 L8 Proton radiation of pediatric sarcomas K. Nilsson, Uppsala 10.15 10.45 Coffee break (Winter Garden) Chairmen: A. Krarup-Hansen, Herlev, J. Karlén, Stockholm 10.45 L9 Soft tissue sarcomas in adults and children; therapeutic differences and similarities A. Ferrari, Milan, Italy 11.15 L10 A paediatric cancer registry in southern Sweden for clinical follow-up and research on late complications in long-term survivors after childhood cancer: BORISS T. Wiebe, L. Hjorth, I. Øra, S. Garwicz, Lund 5

11.45-12.15 Special session Chairman: M. Eriksson, Lund 11.45 L11 Trabectedin Standard use and novel results J-Y. Blay, Lyon, France 12.15 12.30 Discussion 12.30 13.30 Lunch (Hotel Restaurant Royal Sali) 13.30 15.30 Session III Novel options in sarcomas Chairmen: M. Eriksson, Lund, B. Bjerkehagen, Oslo 13.30 L12 Novel biomarkers in sarcoma F. Mertens, Lund 14.00 L13 GIST The break-through H. Joensuu, Helsinki 14.30 L14 Novel systemic treatment in sarcomas I. Judson, London 15.00 L15 Current developments in osteosarcoma S. Bielack, Stuttgart 15.30 16.00 Coffee break (Winter Garden) 16.00 17.00 Session IV Giant Cell Tumour (GCT) Chairmen: E. Tukiainen, Helsinki, O. Zaikova, Oslo 16.00 L16 Pathophysiology and biomarkers in GCT T. Böhling, Helsinki 16.10 L17 GCT Surgery A. Kivioja, Helsinki 16.30 L18 Radiotherapy of GCT C. Blomqvist, Helsinki 6

16.45 L19 Medical treatment of GCT J. Engellau, Lund 17.00-18.00 Free presentations Chairmen: F. Vult von Steyern, Lund, P. Lindholm, Turku 17.00 L20 Multinational Collaboration: A Long-Term Surveillance Program for Osteosarcoma and Potential Exposure to Teriparatide A. W. Gilsenan, RTI Health Solutions, Research Triangle Park, NC, United States 17.10 L21 Improvements in the diagnostic process of sarcomas. Effects of a national implemented cancer pathway J. Keller, Aarhus, Denmark 17.20 L22 Bone sarcomas in the Scandinavian Sarcoma Group Central Register 25-years experience O. Zaikova, Oslo 17.30 L23 Postirradiation sarcoma following treatment of breast cancer: a nationwide, population-based analysis S. Salminen, Helsinki 17.40 L24 Patterns of local recurrence and dose fractionation of adjuvant radiotherapy in 462 patients with soft tissue sarcoma of extremity and trunk wall. A Scandinavian Sarcoma Group study N.L. Jebsen, Bergen 17.50 L25 Radiation-associated angiosarcoma after breast cancer: improved survival by excision of all irradiated soft tissue of the thoracic wall? E. Styring, Lund 7

SSG Plenary Meeting Friday October 11, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 15.10 Session V Soft Tissue Sarcoma (STS) Joint session with doctors, scientists, nurses and physiotherapists Chairmen: C. Blomqvist, Helsinki, C. Trovik, Bergen 08.30 L26 New pathological entities M. Miettinen, NCI, Bethesda, Maryland, USA 09.30 10.00 Coffee break (Winter Garden) 10.00 L27 Cancer related fatigue what do we know and how do we help our patients? R. Gjessing Borgheim, Oslo 10.30 L28 It s a stroke of genius network focused care and young people with cancer P. Riis Olsen, Århus 11.00 L29 Exercise Oncology a strategy for improving cancer patients wellbeing during and after treatment K. Blomquist, Copenhagen 11.30 L30 Reconstructive surgery in STS E. Tukiainen, Helsinki 12.00 13.00 Lunch (Hotel Restaurant Royal Sali) 13.00 L31 SSG Soft tissue sarcoma trials M. Eriksson, Lund 8

13.30-15.00 Session VI - Poster presentations Chairmen: C. Blomqvist, Helsinki, P. Bergh, Gothenburg, B. Brodin, Stockholm 15.00-15.10 Closing remarks C. Blomqvist, Helsinki, K. Sundby Hall, Oslo Coffee (Winter Garden) 9

Program for SSG nurses and physiotherapists Wednesday October 9, 2013 12.00 17.00 Registration (outside meeting room Nordica 1, 2 & 3) Exhibition Stand (Winter Garden) Poster Exhibition 13.00 14.00 Lunch (Hotel Restaurant Royal Sali) (Board meeting for Nurses & physiotherapists Room: Nordica 12 ) 14.00 Introduction and welcome C. Blomqvist, Helsinki, K. Sundby Hall, Oslo 14.15 16.45 Session I Rhabdomyosarcoma and Bone sarcomas Joint session with doctors, scientists, nurses and physiotherapists Chairmen: S. Smeland, Oslo, A. Kivioja, Helsinki, T. Alvegård, Lund 14.15 L1 Molecular/biochemical determinants and molecular pathways in Rhabdomyosarcoma L. Helman, Bethesda, USA 14.45 L2 a+b Surgery or radiotherapy for Ewing sarcoma O. Brosjö, Stockholm, Ø. Bruland, Oslo 15.15 L3 Reconstructive surgery in pelvic sarcomas W. Winkelmann, Hamburg 15.45 16.15 Coffee break (Winter Garden) 16.15 L4 SSG Bone sarcoma trials K. Sundby Hall, S. Smeland, Oslo 16.45 17.15 SSG matters (members only) 10

Program for SSG nurses and physiotherapists Thursday October 10, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 18.00 Nurses and physiotherapists session Room: Nordica 3 08.30 08.40 Welcome! 08.40-10.20 Session I Children with sarcoma Chairmen: S. Granlien, Oslo, I. Johansson, Umeå 08.40 L32 RESPECT (Rehabilitation including social, physical activity and education in children and teenagers with cancer) H. Baekgaard, Copenhagen 09.00 L33 Nursing challenges working with children with sarcoma P. Kettler, Oslo 09.20 L34 Low Level Laser Therapy in the treatment of chemotherapyinduced oral mucositis. The experiences of the Pediatric Oncology Unit at University Hospital Ghent V. Van de Velde, Ghent 09.40 10.20 Discussion 10.20 10.45 Coffee break (Winter Garden) 10.45-12.30 Session II - Protheses Chairmen: A-L Salbu, Bergen, R. Uhre Hansen, Herlev 10.45 L35 Protheses, what s new? G. Prestbakmoen, Oslo 11.00 L36 To cope with life with a prothese B. Hedegård, Århus 11

11.20 L37 When to use tumorprotheses C. Trovik, Bergen 11.40 L38 Armprotheses an offer E. Rasmussen, Copenhagen 12.00 L39 Working as a sarcoma nurse in plastic surgery ward K. Olenius, Helsinki 12.30 13.30 Lunch (Hotel Restaurant Royal Sali) 13.30-15.30 Session III Coping during and after treatment Chairmen: A. Lekven, Stavern, C. Persson, Lund 13.30 L40 Sarcoma patients improving their welfare F. Homb, Oslo 13.50 L41 Nutrifriend 1100 in cancer Protecter of good and killer of evil? T.K. Nystrøm, Oslo 14.10 L42 Rehabilitation of one sarcoma patient H. Gustafsson, Helsinki 14.30 L43 Activity week challenge yourself K. Heiberg Rasch, M. Evertsen, Stavern 15.00 L44 Patient story 15.30 16.00 Coffee break (Winter Garden) 16.00 17.00 Annual meeting 17.00 Free presentations Chairmen: F. Vult von Steyern, Lund, P. Lindholm, Turku 12

17.00 L20 Multinational Collaboration: A Long-Term Surveillance Program for Osteosarcoma and Potential Exposure to Teriparatide A. W. Gilsenan, RTI Health Solutions, Research Triangle Park, NC, United States 17.10 L21 Improvements in the diagnostic process of sarcomas. Effects of a national implemented cancer pathway J. Keller, Aarhus, Denmark 17.20 L22 Bone sarcomas in the Scandinavian Sarcoma Group Central Register 25-years experience O. Zaikova, Oslo 17.30 L23 Postirradiation sarcoma following treatment of breast cancer: a nationwide, population-based analysis S. Salminen, Helsinki 17.40 L24 Patterns of local recurrence and dose fractionation of adjuvant radiotherapy in 462 patients with soft tissue sarcoma of extremity and trunk wall. A Scandinavian Sarcoma Group study N.L. Jebsen, Bergen 17.50 L25 Radiation-associated angiosarcoma after breast cancer: improved survival by excision of all irradiated soft tissue of the thoracic wall? E. Styring, Lund 13

Program for SSG nurses and physiotherapists Friday October 11, 2013 07.00 08.30 Breakfast 07.45 08.30 Registration (outside meeting room Nordica 1, 2 & 3) 08.30 15.10 Session V Soft Tissue Sarcoma (STS) Joint session with doctors, scientists, nurses and physiotherapists Chairmen: C. Blomqvist, Helsinki, C. Trovik, Bergen 08.30 L26 New pathological entities M. Miettinen, NCI, Bethesda, Maryland, USA 09.30 10.00 Coffee break (Winter Garden) 10.00 L27 Cancer related fatigue what do we know and how do we help our patients? R. Gjessing Borgheim, Oslo 10.30 L28 Network focused nursing in teenagers and young adults with cancer and their parents P. Riis Olsen, Århus 11.00 L29 Exercise Oncology a strategy for improving cancer patients wellbeing during and after treatment K. Blomquist, Copenhagen 11.30 L30 Reconstructive surgery in STS E. Tukiainen, Helsinki 12.00 13.00 Lunch (Hotel Restaurant Royal Sali) 13.00 L31 SSG Soft tissue sarcoma trials M. Eriksson, Lund 14

13.30-15.00 Session VI - Poster presentations Chairmen: C. Blomqvist, Helsinki, P. Bergh, Gothenburg, B. Brodin, Stockholm 15.00-15.10 Closing remarks C. Blomqvist, Helsinki, K. Sundby Hall, Oslo Coffee (Winter Garden) 15

SOCIAL PROGRAM Wednesday October 9, 2013 18.00 Reception at Helsinki Music Hall 19.00 21.20 Concert, Helsinki Music Hall Thursday October 10, 2013 19.30 Gala Dinner at restaurant Royal Sali, Hotel Crowne Plaza Participation in the social program is not included in the registration fee. Price 600 SEK. To be booked in advance on the registration form Helsinki Music Hall 16