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Table Of Content Coordinating a European initiative among national organizations for organ transplantation... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Pauls Stradins Clinical University Hospital, Latvian Transplantation Centre - PSCUH... 5 Fundeni Clinical Istitute- FCI... 5 Polish Transplant Coordinating Centre - POLTRANSPLANT... 5 Agence de la biomedecine - ABM... 5 Paraskevaidion Surgical and Transplant Center of Cyprus - PSTC (until 31/12/2010)... 5 Koordinaní stedisko transplantací - KST... 5 Gesundheit Österreich GmbH ÖBIG (until 15/11/2010)... 5 Univerzitna Nemocnica Martin - UNM... 5 Eurotransplant International Foundation - ETI... 5 Országos Vérellátó Szolgálat - HNBTS... 5 Lithuanian National Transplantation Bureau - NTB... 5 Medical University Of Warsaw - MUW... 5 Outputs... 8 D02-03 - Newsletter October 2010 (EN)... 8 D10 - Layman's Brochure (EN)... 8 D01 - Interim technical and financial reports (EN)... 8 D02-01 - Coorenor website (EN)... 8 D02-02 - Dissemination Plan (EN)... 8 D03 - Project evaluation report (EN)... 8 D04-01 - Organ Transplant Systems in the EU- A selected overview (EN)... 8 D04-02 - Organ Transplant Systems in the EU- A selected overview - Country profiles COORENOR-ABM (EN)... 8 D05 - Results of survey on cadaveric organ donation and public campaigns (EN)... 8 D06 - Common strategy for enhancing living kidney donation (EN)... 8 D07 - Study protocol on crossborder organ exchanges (EN)... 8 D08 - Final report on crossborder organ exchanges (EN)... 8 D09 - Final technical and financial reports (EN)... 8 Final Report (EN)... 8 Internal Assessment (EN)... 8 Page 1/11

Coordinating a European initiative among national organizations for organ transplantation JA2015 - GPSD [705038] START DATE: 25/06/2010 END DATE: 25/12/2012 DURATION: 30 month(s) CURRENT STATUS: Finalised PROGRAMME TITLE: Second Programme of Community action in the Field of Health 2008-2013 PROGRAMME PRIORITY: - CALL: Improve Citizen''S Health Security (Hs-2009) TOPIC: IMPROVE CITIZEN'S HEALTH SECURITY (HS-2009) EC CONTRIBUTION: 799145.08 EUR KEYWORDS: Organ Transplantation, Tissue, cell and organ transplants, Twinning visits PORTFOLIO: Organ Transplantation Page 2/11

SUMMARY General objectives The objective is to establish a coordinated network between national programmes existing in the participating European Member States in the field of organ transplantation. It will coordinate the efforts of countries from Eastern and Western Europe, all having different approaches and programmes to tackle the issues of organ procurement and transplantation. A first step of benchmarking and analysis of the state of art in EU will be followed by the coordination of some selected joint activities. In countries in which organ transplantation is already a well established and organised activity, the identification of best possible strategies will have a positive effect on quality and coordination, whereas for those where some programmes are not yet fully developed we aim at the project serving as a catalyser of existing positive energies. The project will be of considerable value to countries in which Organ Transplantation is presently developing with a special attention to the communication issue that has proved to be of pivotal importance for overcoming organ shortage. Strategic relevance and contribution to the public health programme All project activities will foster coordination of efforts of countries from Eastern and Western Europe, all having different approaches and programmes to tackle the issues of organ procurement and transplantation. Such approach is in line with what is presently debated at European level and is meant to couple with present and future institutional proposed solutions. 2009 Workplan foresees in its priorities both the reduction of health inequalities and the improvement of health security together with the development of good practices. COORENOR meets all these demands. Methods and means COORENOR will take full advantage of a consolidated and tested methodology, acquired through several experiences got from most partners. The analyses will be performed through questionnaires (national/regional transplant programmes, cadaveric donation, living donation, ongoing organ exchanges and terms of exchange). After stating the art of the examined processes,when the case, common recommendations or best practices will be either issued or identified for the specific field. Sinergies between WPs will be properly ensured through the organization of common meetings. A core workpackage (WP7) will be focused on a study protocol to explore the feasibility of cross-border organ exchanges and identify the necessary features and characteristics of an international IT tool designed to manage organ exchanges Page 3/11

between countries. This will include an analysis of national rules in this specific field, an overview of any existing cooperation agreements already in place and a pilot trial through a dedicated web portal model designed to support the activities of organ exchange. Expected outcomes period The expected outcome is harmonization and coordination in defining the best common practices and guidelines. One of the main outputs that can have a relevant impact at the EU level is a study protocol where cross border ongoing organ exchanges will be analyzed and an overview of the legal basis upon which such exchanges are carried out will be performed. A special attention will be here devoted to the needs of special patients` categories, such as urgent patients, hypersensitized or pediatrics. All requirements for ensure recipient safety and high quality of the treatment as well as running models for quality assurance will be considered and transferred to the EU institutions. Moreover, the design of a common model of reference on the organizational structure of the transplant system at national and local level might become a pivotal tool. The work on living donation could bring to a more active promotion of this practice in Europe and to a mutual exchange of know-how to improve the performance of countries where living donation is not well developed. Page 4/11

COORDINATOR, LEADER CONTACT AND PARTNERS COORDINATOR () Viale Regina Elena 299 00161 Rome Italy Project leader contact Name: Nanni Costa Alessandro Email: centronazionale.trapianti@iss.it Phone: +39 06 49 90 40 40 PARTNERS Pauls Stradins Clinical University Hospital, Latvian Transplantation Centre - PSCUH Street: Dzirciema iela 16 City: 1007 LV Riga Country: Latvia Fundeni Clinical Istitute- FCI Street: FUNDENI STRET 258 City: 022328 Bucarest Country: Romania Polish Transplant Coordinating Centre - POLTRANSPLANT Street: Al. Jerozolimskie 87 City: 02-001 Warszawa Country: Poland Page 5/11

Agence de la biomedecine - ABM Street: Avenue du Stade de France, 1 City: 93212 Saint Denis La Plaine Cedex Country: France Paraskevaidion Surgical and Transplant Center of Cyprus - PSTC (until 31/12/2010) Street: Charalambos Mouskos street 4A City: 1102 Cyprus Country: Cyprus Koordinaní stedisko transplantací - KST Street: Ruská 85 City: 100 05 Praha 10 Country: Czech Republic Gesundheit Österreich GmbH ÖBIG (until 15/11/2010) Street: Stubenring 6 City: 1010 Wien Country: Austria Univerzitna Nemocnica Martin - UNM Street: Zaborskeho 2 City: 03645 Martin Country: Slovakia Eurotransplant International Foundation - ETI Street: P.O. box 2304Plesmanlaan 100 City: 2301 CH Leiden Country: Netherlands Page 6/11

Országos Vérellátó Szolgálat - HNBTS Street: Karolina u.19-21 City: -H-1113 Budapest Country: Hungary Lithuanian National Transplantation Bureau - NTB Street: Santariškių g. 2 City: 08661 Vilnius Country: Lithuania Medical University Of Warsaw - MUW Street: Zwirki i Wigury 61 City: 02-091 Warsaw Country: Poland Page 7/11

OUTPUTS D02-03 - Newsletter October 2010 (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d02-03_n wl-01_en_ps.pdf D10 - Layman's Brochure (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d10_lay_ en_ps.pdf D01 - Interim technical and financial reports (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d01_en_i s1.pdf D02-01 - Coorenor website (EN) http://www.coorenor.eu/ D02-02 - Dissemination Plan (EN) Page 8/11

http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d02-02_o th_en_is.pdf D03 - Project evaluation report (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d03-01_e n_is.pdf D04-01 - Organ Transplant Systems in the EU- A selected overview (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d04-01_e n_ps.pdf D04-02 - Organ Transplant Systems in the EU- A selected overview - Country profiles COORENOR-ABM (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d04-02_e n_ps.pdf D05 - Results of survey on cadaveric organ donation and public campaigns (EN) Page 9/11

http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d05_en_p s.pdf D06 - Common strategy for enhancing living kidney donation (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d06_en_p s.pdf D07 - Study protocol on crossborder organ exchanges (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d07_oth_ en_is.pdf D08 - Final report on crossborder organ exchanges (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d08_en_i s.pdf D09 - Final technical and financial reports (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_d09_01_e Page 10/11

Powered by TCPDF (www.tcpdf.org) n_is.pdf Final Report (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_ffr_en_is. pdf Internal Assessment (EN) http://azorina.cc.cec.eu.int:8082/publications/20091103/20091103_iar_en_is. pdf Page 11/11