Prevention and management of cancer in primary care. Presentation + interactive discussion with DoHA 11am Wednesday November 7 th 2012

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Prevention and management of cancer in primary care Presentation + interactive discussion with DoHA 11am Wednesday November 7 th 2012 David Weller University of Edinburgh Visiting Fellow, Australian Primary Health Care Research Institute

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Primary care some key features directly accessible, first contact care for unselected health problems offers preventive, diagnostic, curative, rehabilitative and palliative services holistic approach key role in management of multi-morbidity emphasises co-ordination and continuity of care

International Cancer Benchmarking partnership: Survival data

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Primary prevention and GPs Australians visit a GP five times per year Patients expect to receive information and assistance regarding preventive health issues from their primary care providers Yet few primary care encounters in Australia involve risk-factor assessment and intervention. In 2005 06: 34.6% of general practice encounters were with overweight patients (22.2% being obese) 25.9% with those who drank alcohol at risky levels 17.1% with daily smokers less than one in five patients are routinely asked about their drinking two-thirds are asked about their smoking only up to a third are asked about exercise and physical activity about 15-30% of patients get some form of dietary advice Centre for Primary Health Care and Equity, UNSW

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Engagement of primary care in cancer screening Direct involvement identification and recruitment provision of testing co-ordination of follow-up Complementary roles, with centralised programme sharing of tasks endorsement of screening invitations

Improving CRC screening uptake: potential roles for primary care Some evidence that primary care can improve uptake largely from North America Endorsement of invitations Local Champion role More extensive feedback on their patients participation Primary care-based facilitators Practice-based promotion of FOBT screening

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

National Awareness and Early Diagnosis Initiative key elements Achieving early diagnosis by public and patients Raising awareness of cancer, symptoms, importance of early presentation Reducing barriers to early presentation (fear, difficulty accessing GP) Reducing barriers to screening Optimising clinical practice and systems Raising awareness of cancer symptoms amongst GPs and other health workers Promoting optimal referral by GPs Optimal screening services Improving GP access to diagnostics eg ultrasound, MRI, colonoscopy Research, evaluation and monitoring

Barriers to symptomatic presentation % 40 35 30 25 20 15 10 5 0 Worried about wasting the doctor's time Worried about what the doctor might find Too busy Too embarrassed Unpublished findings from ICBP Module 2: Data for England only 13

Supporting primary care Practice visits supported by GP practice profile discussions Use of Risk Assessment Tools (7 networks; 165 practices; over 600 GPs) Significant Event Audit Improved access to diagnostics 14

GP Practice Profiles

Cancer Risk Assessment Tools

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Follow up - why? detect cancer recurrence treatment side effects, new cancers other co-morbid health conditions incorporate on-going therapy (eg endocrine treatments) quality of life issues psychosocial issues empowerment/self management

Involvement of primary care in cancer followup: potential benefits evidence that strong primary care can lead to better health outcomes in chronic disease management cancer patients have multiple health needs, and require holistic, co-ordinated care many primary care practitioners want to have a greater role many patients want their family doctor to be involved potentially: promotes better-integrated care more cost-effective

Involvement of primary care in cancer followup: caveats many cancer patients prefer to stay closely linked to hospitals/specialist services many problems experienced by cancer patients require specialised skills primary care practitioners often reluctant to take on these kinds of responsibilities may not have sufficient access to services needed quality of primary care varies widely

Cancer Survivorship in Australia

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Overview Cancer control: why consider primary care? Primary prevention Screening Early diagnosis Management and survivorship Cancer policy Conclusions

Primary care: why a limited role in cancer? Recognised role in: assessing symptoms and diagnosis delivery of some screening programmes palliative care Some noteworthy models of primary care involvement, but typically excluded in conventional models of cancer care Reasons for limited role in many aspects of cancer journey: perception that management of cancer is high technology and hospital-based territorial issues, perceived lack of necessary skills amongst PCPs lack of integration between primary and secondary care services training, education and workforce issues

Why should primary care have a greater role in cancer prevention? Broad-based contribution: education/awareness raising of cancer symptoms promotion and delivery of screening co-ordinating care for complex needs of individuals with cancer primary prevention management of co-morbidities advocacy re poor housing, poor nutrition, inadequate water supplies Affordability in low-resource settings

Integrating primary care into cancer control National cancer plans need to recognise the potential of primary care in cancer control This recognition needs to translate into practical strategies in areas including: primary prevention screening early diagnosis Strategies need to address: financial, organisational and attitudinal constraints significant gaps in research and evidence

Acknowledgements.. my collaborators NCRI PC4 Cancer Australia UNSW Australian Primary Health Care Research Institute

Thanks for your attention! David Weller david.weller@ed.ac.uk