PROJECT AXSHYA COMMUNITY ENGAGEMENT in TB CARE

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PROJECT AXSHYA COMMUNITY ENGAGEMENT in TB CARE An NGO-consortium initiative by World Vision India & Partners 4 th Dec 15

CSOs TB Project supported by The GFATM Round 9 grant PR: World Vision India SRs: ADRA, CARE, GLRA, LEPRA, SHIS, TB Alert SSRs: Local NGO partners, around 40 Started: Apr 10; Aligned with SSF Grant: Oct 12; Completed phase 1: Mar 13; Phase 2 of the project started: Apr 13; Phase 2 of the project ended: Sept 15 Shifted from broad-based ACSM Strategy of Phase 1 to more focussed Community Engagement Strategy in Phase 2 of the Project

AFFECTED TB pts. on treatment Defaulted/Lost-to-FU Cured TB pts. The Community in Project Axshya VULNERABLE Socially: Difficult-toreach (islands, hills, forests, tribes), slums, prisons Clinically: PLHIV, TI projects, Occupational Lung Diseases COMMUNITY CARE- PROVIDERS SHGs, CBOs, Volunteers, Quacks, RMPs, Traditional Healers, School-children, PRI, ASHA Community Engagement Activities of Project Axshya Expected outcomes of Community Engagement Community has knowledge on TB & RNTCP-services Community able to self-screen TB-symptoms Community refer Presumptive TB Cases to DMCs for testing and Follow-up Community help in retrieval of TB-defaulters/lost-to-follow up Community develop TB Action Plan for implementation with their own sources Community participate in project planning, monitoring, advocacy, service provision (Community DOT Provider)

Key interventions Project Axshya 1) Train community & its care providers on TB care and control (following RNTCP guidelines & involving RNTCP-staff) RMPs, Quacks, Community Volunteers, PLHIV networks, TI projects, school-children, SHGs, cured TB pts, etc. 2) Link them to RNTCP for service utilization & advocacy Referral of Presumptive TB cases (including sputum collection & transportation) to the DMCs & FU Defaulter retrieval in collaboration with ASHA, STS & LT Provision of DOT (Community DOT Provider) TB Forum (Advocacy & awareness generation on TB) TB action plans of the community-groups Home based care & support to MDR-TB patients in AP and TS Patient-provider meetings supported in WB School TB OR (completion of base-line survey) 3) Strengthen Health Systems Soft-skill/communication training of RNTCP and health-staff

Project Axshya achievement PHASE 1 (Apr10 Mar13) 36m No of presumptive TB cases referred by the project: 97,314 No of referrers who were tested in the Designated Microscopy Centres (DMCs): 73,994 No of TB positive cases detected: 8038 No of TB positive cases put on DOT within 7 days of diagnosis: 7346 PHASE 2 (Apr 13 Sept15) 30m No of presumptive TB cases referred by the project: 143,660 No of referrers who were tested in the Designated Microscopy Centres (DMCs): 119,791 No of TB positive cases detected: 12690 No of TB positive cases put on DOT within 7 days of diagnosis: 11829 Most of these cases, total 20728 were NSP. Most of these cases detected through community referral, few through active case search

Lessons learnt so far from project: Focused intervention with socially & clinically vulnerable community groups helps in TB case detection. TB outreach activities can be brought to difficult-to-reach and marginalized population through local NGO/CBOs involvement. Community care-givers (CBOs, SHGs, Community Volunteers etc.) can be potential resources for TB case detection and defaulter retrieval. The unqualified healthcare providers or RHCPs (RMP, quacks) can be mobilized effectively for TB case detection through referrals and follow-up Soft-skill training of the RNTCP and general health staff can improve their health communication skill and enhance positive attitude. Community people including school children can be mobilized as effective TB advocate through sensitization and motivation.

Brief on NFM Project

Transition from SSF Phase 2 to NFM SSF Phase 2 Key focus: Community engagement in TB care & control Target community: Key Affected Population; No fixed denominator Urban component: Negligible TB case detection: Depends only indirect-kind community referral Private sector engagement: Only unqualified sector MDR-TB Counselling: Home-based counselling: AP & TGS Recording & reporting: Manual NFM Key focus: TB case notification on the platform of community engagement Target community: Key Affected Population; Fixed Denominator Urban component: Major focus TB case detection: Depends on intensified door-to-door active case search Private sector engagement: Both qualified & unqualified sector MDR-TB Counselling Homebased counselling replicated across 8 states Recoding & reporting: Digital technology will be utilized

NFM project goal, objectives Project Goal: Universal Access to quality TB diagnosis & treatment in 70 districts of 8 states of India by 2017. Project Objectives: Sustain high-yield interventions of Axshya that have given highest returns on investment in terms of number of cases detected under RNTCP in 70 districts, in order to consolidate and advance the gains made. Implement a high-yield package of interventions for urban TB control for improving timely detection and effective management of TB cases in 100 selected 2 tier and 3 tier cities in the 70 targeted districts Project Duration: Oct 15 Dec 17 Current Status: Funds disbursed to partners. Volunteer training in progress.

Target Groups of the Project Urban: Slums, people living with HIV & AIDS and their networks, HIV high risk groups currently being covered under Targeted Intervention projects of NACP (National AIDS Control Program), homeless, migrants, prisons, other co-morbidities (Diabetes, occupational lung diseases), refugees/idp (Internally Displaced Population), unorganized job sectors, schools. Private sector: Qualified private physicians: Allopath Other qualified private providers: AYUSH Unqualified: UHCP (Urban unqualified Health Care Provider), RHCP (Rural unqualified Health Care Provider), traditional healers Institutions: Corporate hospitals, labs, pharmacists Rural: Tribal villages, villages located to difficult-to-reach areas leading to poor access to TB services, villages not reported TB cases in the last 3-5 years.

Active case search in slums & HRGs in urban by the trained CVs of the project Active case search in targeted villages by the trained CVs of the project Accompanied referrals, Sputum C & T Community referrals by community level caregivers who were mobilized by the project Referral Help the newly diagnosed TB cases to know their HIV status Detection of Presumptive TB cases and testing in RNTCP-affiliated labs Additional tests like CXR, CBNAAT to enhance case detection TB case detection and notification Contact -tracing Assist private qualified doctors and corporate hospitals to notify TB cases to RNTCP

Activities - Brief City-mapping External Agency KAP-interventions Community Volunteers Active Case Search & TB case detection from KAP (through accompanied referral/sct) ICTC-referral and HIV C & T of the TB cases detected by the project Contact tracing & testing of Presumptive TB cases who are detected INH prophylaxis initiation of children-contacts of the detected TB cases Enhance community referral & Follow Up Home-based counselling of MDR TB patients Hired counsellors, DCs Private sector engagement Notification Executives, DCs, PCs Training of private doctors & institutions on National Guideline of TB-case Notification TB case notification from private sector Operational Research to track treatment outcome of privately treated TB patients

Project target at a glance Sr No Name of the activity Urban Sources of targets (all urban targets types) 1Active case search KAP of 100 17913 (geographic area-centric) cities of 70 districts Rural targets (all types) 18143 Sources of rural targets Total Timeline 21000 villages of 70 districts; 36056 2 years Each village should have population of around 1500 on an average 2Community Referrals (Community care-giver centric) Referral from 7677community care-givers of 100 cities Referral from 7776community caregivers of 70 districts 15453 2 years Total 25590 25519 51509 2 years 3Private sector engagement (PP centric) Total 35000 7 notification per PP X 5000 PPs of 100 cities 35000 2 years 86509 2 years

Targets with timeline 60000 50000 46056 51509 40000 30000 32420 33600 35000 KAP TB-case notification 20000 17511 19600 10000 0 6299 7350 2100 Mar'16 Sept'16 Mar'17 Sept'17 Dec'17

Reporting Indicators GFATM Module 1: TB care & Prevention - Indicators: 1. DOTS-6: Number of TB cases (all forms) notified among key affected populations/high risk groups 2. DOTS-7a: Percentage of notified TB cases, all forms, contributed by non-ntp providers - private/non-governmental facilities 3. DOTS-5: Number of children <5 in contact with TB patients who began IPT 4. DOTS-7c: Percentage of notified TB cases, all forms, contributed by non-ntp providers - community referrals 5. Number of unqualified private healthcare providers (both in urban and rural set-ups) who were engaged with RNTCP by the efforts of the project (customized) 6. Number of TB presumptive cases detected after contact tracing and tested at DMC by the project (customized) 7. Number of TB presumptive cases with negative sputum results who were supported by the project for getting tested through CXR (Chest X-ray) as per RNTCP protocol (customized)

Reporting Indicators GFATM Module 2: TB/HIV Indicator: 1. TB/HIV-1: Percentage of TB patients who had an HIV test result recorded in the TB register GFATM Module 3: MDR-TB Indicator: 1. Total number of DR TB patients who received counselling services from the project (customized) Total Reporting Indicators: 9 GFATM Indicators: 5 Customized Indicators: 4

Project Staff At a glance Total Project Staff Positions: 101 PMU-members (World Vision India): 14 SR-PMs: 08 SR-FMs: 06 PCs: 13 DCs: 37 FAOs: 23 Total: 101 PMU-members: Project Director, Technical Consultant, Finance Manager, M/E Managers (2), Data Officer, Advocacy & Documentation Officer, Finance Officers (3), State Consultants (04 AP, OR, TGS, WB)

Project Budget Total budget: US$ 6,904,827

Thank You for your attention 2015 World Vision India worldvision.in worldvision.in/blog fb.com/worldvisionindia twitter.com/wvindia