Applying Joint Development Strategies to Meet Unique Community Needs: The Pacific Island Experience

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Applying Joint Development Strategies to Meet Unique Community Needs: The Pacific Island Experience Amanda Bryant, MPH Public Health Analyst National Center for Immunization and Respiratory Diseases Immunization Services Division Immunization Information Systems Support Branch Augustus Elias IIS Coordinator Department of Health & Social Affairs Federated States of Micronesia National Government National Center for Immunization & Respiratory Diseases Immunization Information Systems Support Branch

Applying Joint Development Strategies to Meet Unique Community Needs: The Pacific Island Experience Par t 1: The Pacific Island region Unique attributes and challenges in the Pacific Island programs History of IIS development and the unified Maintenance/Support agreement User Group formation, governance, values Development cycle Par t 2: Impact of joint maintenance/support agreement and joint development activities on PI programs Short-term and long-term goals for Pacific Island programs Short-term and long-term goals for Pacific Island IIS community

Par t I: Pacific Island Region, Programs, User Group & Joint Development Approach

Honolulu, HI to: Majuro, RMI 2,273 mi Pago Pago, AS 2,580 mi

Pacific Island Region Compared to U.S.

Pertussis (2006) 2 Measles (2002-4, 2013) 6 Mumps (2006, 2009-11) 5 Pertussis (2001-6, 2009-10) 2 Measles (2003) 3 Pertussis (2009) 2 Measles (2003) 4 Measles (2014) 7 Mumps (2009) 3 Pertussis (2007) 2 Pertussis (2001, 2005) 4

Measles (2001-5, 2008-10, 2013-14) 1,4 Pertussis (2001-2010) 4 Measles (2001-5, 2008-10) 4 Pertussis (2001-2010) 4 Measles (2001-5, 2008-10, 2013-14) 4 Range: 38,159-131,441 Mumps (2004-5, 2008-10) 4 Range: 226,819-310,826 Pertussis (2001-2010) 4 Range: 858-6,407)

Pacific Island Immunization Programs Public health delivers most of the immunization services in their jurisdictions Immunization coverage estimates difficult using customary methods Lack of electronic vital records systems Children enrolled in IIS by birthing hospital, immunization program staff Varying immunization schedules Bacillus Calmette-Guerin (BCG), Varicella, HPV

Pacific Island Immunization Programs Widespread populations create access issues Frequency of campaigns targeted to isolated islands/populations is less than ideal Photographs were taken with permission but are not intended for any use other than by CDC/ NCIRD/ ISD/ IISSB.

Pacific Island Immunization Programs VFC implemented in 3 of 6 Pacific Island programs International partners WHO, UNICEF Unique reporting requirements WHO Joint Reporting Form, Compact Impact Report Infrastructure & capacity challenges Power, Internet IT support

History of IIS Development in the Pacific Islands Initial deployment in 2007 of Envision s WebIZ product Joint M/S agreement for one year, after which each jurisdiction maintained own M/S agreement contract Different periods of performance across Islands Less than ideal renewal timelines Routine upgrade schedules fell out of synch Disparate software versions implemented across the Islands Maintenance and support increasingly difficult to provide Common enhancements difficult to implement Unified M/S agreement implemented September 2014 Envision s business model supports joint development

Pacific Islands User Group Charter Adopted January 2015 Mission: improve collective knowledge and expertise of WebIZ and optimize it for each Pacific Island jurisdiction by: Establishing a community forum for open communication and exchange among each Pacific Island jurisdiction and CDC, Implementing the same WebIZ version universally Developing standardized immunization and WebIZ policies and procedures, and Pooling collective resources and leveraging them for WebIZ activities This coordinated approach will support the sharing of best practices and lessons learned, help us achieve data-driven outcomes and consequently improve our immunization ser vices.

How Will the User Group Measure Success? A fully functioning IIS in each jurisdiction that supports its immunization program activities and provides accurate data for use in program activities, such as targeted immunization interventions Successful implementation of cross-jurisdictional User Access Agreements and data lookup

Pacific Islands IIS User Group Governance Pacific Islands Immunization Program & IIS Goals Identification of system requirements, individual & collective Voting Prioritization CDC/ ISD Facilitation Planning Consensus Building Iz Program & IIS Exp er t ise Funding GSA Contract Management Envision Maintenance & Technical Support Product Development & Rollout Training Usability Best Practices Transparency Communication Collaboration

Pacific Islands IIS Joint Development Cycle

Current Development Status 1 st group training March 2015 Identification of first list of enhancement requests 5 of 6 Islands on a common version of WebIZ 1 st group of enhancements selected by User Group are in development, pending v16.4 release this summer Reporting filters and output Compact Impact Report Securit y School module enrollment Group training v16.4 July 2016

Translating Challenges Into Requirements Coverage analysis Match all local immunization program recommendations Support appropriate population segmentation to evaluate coverage (i.e., outer islands vs. more populated areas) Program-specific reports for partners, data quality Remote, asynchronous data capture Cross-jurisdictional data lookup Inter- and intra-jurisdictional interoperability

Part II: Impact of Joint Development Activities, Short & Long Term Goals

Pacific Island Community Experience Impact of Joint Development Improved performance Supports justification for equipment, upgrades Increase in pace of IIS development Increased efficiency Reduced cost, less waste paying for development of an enhancement that someone else was also doing GSA contract provides stability, reduces contract management t asks wit hin program Affords opportunity to perform UAT as a group, reducing time

Pacific Island Community Experience Impact of Joint Development Increased knowledge of IIS development and operations More regular and frequent contact with IISSB, Envision More current information from IISSB, AIRA workgroups Provides reality checks what is realistic, what is not Joint training in Guam enabled higher number of participants Strengthening partnerships Better understanding of needs/status of other jurisdictions and their IIS Finding common ground, developing group identity Building trust across jurisdictions, supports data sharing

Pacific Island IIS Community Short-Term Goals Complete upgrades to common version Data quality Implement cross-jurisdictional data sharing Pacific Island Health Officer s Association (PIHOA) has charged the User Group to implement Use IIS data as source for immunization coverage assessments Implement electronic vital records, electronic birth cer tificates Interoperability assessments

Pacific Island IIS Community Long-Term Goals Inter-jurisdictional data exchange As User Group matures, take on facilitation, planning, and consensus-building roles Local IIS Coordinator Support user group Document requirements Help identify qualified staff for open positions

References 1. Jaymalin, M. (2014). DOH: Measles Outbreak in MM. The Philippine Star. Accessed April 25, 2014. http://www.philstar.com/headlines/2014/01/06/1275567/dohmeasles-outbreak-mm 2. World Health Organization. "Global Health Observatory Data Repository (Western Pacific Region)." Selected infectious diseases: Pertussis data by country. http://apps.who.int/gho/data/node.main-wpro.whs3_43?lang=en/ 3. Hyde, T. B., et al. (2006). "Measles outbreak in the Republic of the Marshall Islands, 2003." Int J Epidemiol 35(2): 299-306. http://www.ncbi.nlm.nih.gov/pubmed/16299123/ 4. World Health Organization. "Health Information and Intelligence Platform (HIIP)." Selected Indicator by country and years. http://hiip.wpro.who.int/portal/dataanalytics/ 5. Nelson, G. E., et al. (2013). "Epidemiology of a mumps outbreak in a highly vaccinated island population and use of a third dose of measles-mumps-rubella vaccine for outbreak control--guam 2009 to 2010." Pediatr Infect Dis J 32(4): 374-380. http://www.ncbi.nlm.nih.gov/pubmed/23099425/ 6. Pacific Daily News. Public Health confirms a cases of measles on Guam. March 28, 2014. http://www.guampdn.com/article/20140328/news01/140328005/public- Health-confirms-case-measles-Guam/ 7. CDC (2015). Measles Outbreak Associated with Vaccine Failure in Adults Federated States of Micronesia, February August 2014. Morbidity and Mortality Weekly Report, October 2, 2015 / 64(38);1088-1093.

Thank You! Amanda Bryant, zmr1@cdc.gov Augustus Elias, aelias@fsmhealth.fm For more information please contact Centers for Disease Control and Prevention 1600 Clifton Road NE, Atlanta, GA 30333 Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348 E-mail: cdcinfo@cdc.gov Web: www.cdc.gov The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. National Center for Immunization and Respiratory Diseases Immunization Services Division