MINUTES - NM Cancer Cuncil Meeting Date: March 20, 2013 Lcatin: United Way f Central NM Albuquerque AGENDA ITEMS I. WELCOME AND INTRODUCTIONS BLAIRE LARSON Blaire Larsn welcmed everyne and asked that they briefly intrduce themselves and share updates r annuncements abut their rganizatin. II. REVIEW MINUTES OF NOVEMBER MEETING AND FOLLOW UP FROM RETREAT CANCER PLAN EVALUATION INFORMATION BLAIRE LARSON BETH PINKERTON Blaire suggested that all Cuncil members review the minutes frm the Nvember meeting and asked if anyne had any questins, changes r thughts n them. Since there were n suggested changes, the minutes were apprved. Fllw up frm retreat: The Cancer Plan was presented at the retreat and if members did nt receive a Plan, extra cpies were made available at the March meeting. The develpment f the Strategic Framewrk was discussed at the retreat and has since infrmed discussins f the Executive Cmmittee (EC). The fur pririties unveiled at the retreat cntinue t be a main fcus f the Cuncil. The legislative letter develped by Paul Sanchez was used during the legislative sessin. The data grup prvided a fact sheet n cancer data fr the legislative sessin. Beth discussed the Cancer Plan and hw prgress and implementatin f the plan will be tracked ver the next five years. Cuncil members are invited t attend a Cancer Plan evaluatin fcusing meeting which will be facilitated by an evaluatr t discuss hw we want t structure the evaluatin f the Plan. A sign-up sheet t participate in the evaluatin meeting was distributed t Cuncil members. The evaluatr will fllw up with thse interested in participating. III. LEGISLATIVE SESSION UPDATE SANDRA ADONDAKIS Sandra prvided a handut n cancer related bills and gave a summary f a few f them. General Apprpriatin Act: cancer related and tbacc cntrl prgrams received level funding fr FY14 as they did in FY13. The ttal cancer related apprpriatin was ver $7 millin this is fr preventin and treatment funding. Huse Bill 428 Tbacc Prducts Tax: the gal was t change the tax rate n nn-cigarette tbacc prducts. Prducts such as, chewing tbacc, rll yur wn tbacc, pipe tbacc, and cigars have never had an increase in the tax rate since the tax was implemented in the mid-1980 s. Many individuals will just switch t these cheaper prducts since the cigarette tax increases. The bill passed ne cmmittee and did nt pass by a ne vte difference in the secnd cmmittee. This bill made significant prgress during the legislative sessin. 1
Tbacc Settlement Fund Reversins: made cmprmises t ensure tbacc prgramming receives funds. The cmprmises are as fllws: $10 millin t the lttery schlarship fund fr ne year, instead f indefinitely, $10 millin t early childhd fr ne year instead f five years. In exchange, $50 millin will be taken frm the State s general fund perating reserve and put int the tbacc settlement permanent fund savings accunt. The interest frm this accunt will fund many cancer preventin cntrl and treatment prgrams. The bill passed bth huses with gd bipartisan supprt and the Gvernr is in a gd psitin t sign the bill. Tw identical bills were intrduced abut pain management medicatin and hw it is prescribed. Sme individuals are cncerned abut verdsing and sme are cncerned abut having access t the medicatins withut having t g thrugh a lengthy prcess t get the prescriptin. Because the prcess in btaining the prescriptins is such a lengthy prcess and restrictive, the American Cancer Sciety (ACS) Cancer Actin Netwrk (CAN) and ther partners wrked t get these tw bills tabled. These bills will mst likely be intrduced every year and ACS CAN will cntinue t wrk twards a cmprmise in the future. One health insurance exchange bill passed, but there is debate abut cnsumer prtectins whether r nt there is enugh prtectin. Sme individuals wanted t amend the bill t add in prtectin fr the cnsumers, thers wanted smething that culd easily pass and be signed by the Gvernr. Tw bills abut cnsumer prtectin: 1) frmulary changes t prescriptin medicatins this bill requires a standard prcedure fr prir authrizatins fr medicatins, any prvider will use the same frm fr a prir authrizatin with any f the insurance cmpanies, and the secnd part is the insurance cmpany will be required t infrm the client/patient within three days acknwledging receipt f the requested authrizatin frm and infrming them f the status f that authrizatin, and 2) insurance cmpany s ability t change an individual s ut f pcket cst fr an n-ging prescriptin this bill wuld require a 60-day advance ntice by an insurance cmpany if the c-pay is ging t be raised. Additinally, they are limited t raising cpays three times a year as ppsed t ding this anytime they wish. A questin was brught up abut the divisive issue f abuse f prescriptin drugs and allwing the drugs t be prescribed t patients that need the medicatin fr pain management, and hw the Cuncil can be supprtive t ACS and ther rganizatins that are wrking tward the issue f prviding mre than ne slutin when these specific bills are intrduced. There are multiple slutins such as, better drug dispsal ptins t avid unused drugs pssibly ending up in the hands f an individual wh is nt being prescribed the medicatin. Other slutins are lck bxes. The Cuncil can assist by discussing the range and cmprmise f slutins fr this issue. IV. NEW MEXICO SHARED STRATEGIC PLAN LAUREL MCCLOSKEY Develpment f the New Mexic Shared Strategic Plan (SSP) fr preventin and cntrl f chrnic disease began in 2010 and encmpassed three chrnic disease tpics/issues: tbacc, diabetes, and heart disease and strke. The NM Department f Health Crdinated Chrnic Disease Prgram was funded in 2012 and additinal prgrams were included in the SSP; cancer, arthritis, and besity. The fcus is n implementatin and hw t imprve health f individuals with 2
multiple chrnic cnditins and hw t identify shared risk factrs. Each prgram/chrnic disease has their wn sectin and pririties in the SSP, including cancer which includes gals/bjectives that came directly ut f the Cancer Plan. Als addressed in the SSP is healthy equity and scial determinants f health. The Centers fr Disease Cntrl and Preventin (CDC) develped fur dmains fr hw t apprach chrnic diseases with crdinatin. The SSP is structured based n the fur dmains which include: Strategies that supprt and reinfrce healthful behavirs Cmmunity clinical linkages enhancement Health systems interventins Epidemilgy and surveillance The Chrnic Disease Preventin Cuncil (CDPC) is facilitating the implementatin f the SSP and began in 1997 with a grup f experts frm a variety f areas wh wanted t reduce chrnic disease in NM. The CDPC was funded in 2012 thrugh CDC and they are mving in the directin f a 501 (c) 3. The SSP was created externally and it was just lgical fr CDPC t mve the SSP frward and be the bdy that facilitates it. The CDPC is lking t build a diverse membership and statewide partnerships (these include traditinal partnerships with nn-prfits, medical rganizatins, etc., and nntraditinal partners as well). The SSP will be implemented 2012 thrugh 2016 and the CDPC will track the prgress f plan, and thrugh quarterly meetings they will highlight member s wrk thrugh the plan, successes frm the plan and hw it relates back t the plan in a crdinated effrt. The Cancer Cuncil has pririties and bjectives in the SSP taken frm the Cancer Plan. V. 2013 CANCER COUNCIL PRIORITIES BLAIRE LARSON Blaire prvided a handut f the fur pririties and a list f questins fr each grup t answer during the breakut. During the retreat in Nvember, the fur pririties were intrduced and each wrk grup was given time during the meeting t wrk n the pririties. The Fur pririties chsen include: Quality f Life: develp and prmte talking pints t help peple with cancer address quality f life issues with health care prviders Data: develp and disseminate data n cancer health disparities Tbacc Cntrl: seek pprtunities t practively supprt tbacc cntrl effrts Access: imprve access t cancer related services thrugh expansin f cmmunity based patient navigatin services & Federally Qualified Health Center advcate services The data and tbacc cntrl wrk grup cmbined fr the breakut t decide if they can frm ne grup t wrk n activities supprting the pririties, r if they shuld stay separate. Blaire discussed the wrk grups perating up until the new pririties were intrduced: Plicy and Advcacy, Native American, Public Relatins, Survivrship, Rural, Albuquerque Cancer Calitin, and Clrectal. The EC has had discussins regarding the wrk grups and feels there shuld be standing wrk grups since they are ding n-ging wrk regardless f the current pririties. The EC requested infrmatin frm each wrk grup t find ut if their current wrk supprts the fur pririties. The EC felt that fur wrk grups prvide n-ging wrk and will stay intact: Plicy and Advcacy, Public 3
Relatins, Native American, and the Albuquerque Cancer Calitin. The Survivrship and Clrectal wrk grups wrked n prir pririties f the Cuncil. The Rural wrk grup has had turn ver and has nt quite cme tgether. The thught is t include Survivrship in the Quality f Life pririty. Bth Clrectal and Rural wrk grup feedback frm the requested infrmatin sent ut frm the EC indicated bth are interested in Access issues. Additinally, Elba Saavedra s Patient Navigatin grup may fit in with the Access pririty and during the breakut they discussed whether r nt they wuld be a gd fit. Each grup was prvided with the ntes frm the last breakut during the March meeting t help guide their discussin and t assist in answering the questins Blaire prvided. VI. BREAKOUT GROUPS TO IMPLEMENT CANCER COUNCIL PRIORITIES BLAIRE LARSON Each grup was asked t designate a facilitatr, a persn t take ntes, and have at least ne EC member in the grup. VII. EDUCATIONAL PRESENTATIONS Sally M. Davis, Ph.D, frm the University f New Mexic Preventin Research Center (PRC) presented n physical activity and cancer preventin, and a prject in Cuba, NM which has implemented guidelines frm The Cmmunity Guide t increase physical activity in their cmmunity thrugh the walking prject, Step Int Cuba. Dr. Davis presented data n physical activity, what is recmmended fr children and adults, and the link with cancer. The Step Int Cuba prject was implemented in Cuba, NM in an effrt t prmte walking in a small, rural, under resurced cmmunity faced with a grwing ppulatin f cmmunity members dealing with varius chrnic diseases. Because the prject has been a success, ther twns and cities have been interested in adapting this prgram fr their cmmunities. Five fact sheets and shrt vides have been prduced t be utilized by the public, and DVD s are available by cntacting Dr. Davis. Tw f the five vides were shwn t the Cuncil abut the develpment f the Step Int Cuba prject. These vides are tld by cmmunity members f Cuba in their wn wrds t tell the stry f hw they are becming mre physically active, what they did and hw they did it. The PRC is cnducting wrkshps fr cmmunities t assist them in an assessment f their wn cmmunity fr walk ability. The secnd educatinal presentatin included infrmatin frm Benjamin Jacquez, Prgram Manager and Jennie Lee, Cessatin Specialist frm the NM Department f Health Tbacc Use Preventin and Cntrl Prgram (TUPAC) n what a cmprehensive tbacc cntrl prgram lks like and what services are available t individuals, including cancer survivrs. TUPAC has fur specific gals: Prevent tbacc use initiatin amng yuth and yung adults. Prmte quitting amng adults and yuth. Eliminating expsure t secnd hand smke. Identify and eliminate tbacc-related disparities amng ppulatin grups. TUPAC s wrk is based n Centers fr Disease Cntrl and Preventin (CDC) 4
best practices frm 2007 fcusing n state and cmmunity interventins. There is an integrated apprach in using cmprehensive prgrams t address tbacc issues. There is a fcus n using cmmunity resurces t prevent tbacc use and assist individuals wh are quitting tbacc. TUPAC highlighted the successes in the state as a result f the clean utdr act, an increase in tbacc tax, and clean indr air reslutins in public buildings in Native American cmmunities. TUPAC has been wrking with WIC n a pilt prgram t target pregnant wmen, wmen wh have recently given birth, r where yung children are in the hme and there is a smker. The pilt prgram fcuses n training prfessinals and prviding referrals fr cessatin services t wmen using tbacc during pregnancy r pst pregnancy. Cessatin Specialist, Jennie Lee discussed available TUPAC cessatin resurces. In 2005, a phne line cessatin service was available in NM n a very limited budget, including being able t prvide sme nictine replacement aids. Over time, the budget has increased and additinal phne line and nictine replacement resurces have becme available. Cancer has been added t the drp dwn list f chrnic cnditins a persn using the quit line services can answer when cmpleting the registratin frm t use quit services. TUPAC added cancer t the list 6 mnths ag, s there is 6 mnths f data available n individuals wh list cancer as a chrnic disease. There are varius cessatin services available thrugh the TUPAC prgram, including, phne based services (1-800-Quit Nw and a new prtal and specific number fr Spanish services) including up t 5 caching calls r mre if the individual needs additinal caching, eight weeks f free nictine replacement therapy and peple with chrnic diseases receive 12 weeks. Als available are web based services, including text message supprt. A new nline training aimed at health prfessinals n hw t deliver brief interventins n tbacc and health issues is nw available n the TUPAC website: http://nmtupac.cm/ (click n the Health Care Prfessinals tab and Brief Tbacc Interventin Training). A cmmercial and radi versin f quit nw media campaigns were played fr the Cuncil. These new campaigns were redesigned t be mre encuraging and uplifting. VIII. RECONVENE: REPORT OUT, SHARE, NEXT STEPS LEGISLATIVE LETTER ALL After the breakut, each grup reprted n their discussins. Quality f Life: will explre what Quality f Life means fr newly diagnsed patients; actively receiving treatment; pst treatment; and finally during palliative care/end f life and their caregivers. They plan t create a survey explring what the needs are at varius stages f the cancer care cntinuum fr New Mexicans. The next meeting is scheduled fr June 6. Data and Tbacc Cntrl: the cmbined grup decided it is best t stay separate. Tbacc discussed putting tgether a fact sheet fr the need f cessatin services fr cancer survivrs and wrking with cllabratrs t get cmmitments frm them t educate lawmakers abut restring funding t the Tbacc Use Preventin and Cntrl Prgram. N future meeting date has been scheduled, but they appinted a lead persn t rganize future meetings. The data grup will be meeting sn and plan t take the legislative fact sheet t the next level fr the next legislative sessin. 5
Access: Elba Saavedra invited members f the Access wrk grup t attend a Patient Navigatin meeting in April t further discuss hw they might wrk tgether n specific pririty activities. ADJOURNMENT Susan Simns adjurned the meeting at 12:30 pm. Next meeting: July 17, 8:30 AM 12:30 PM at United Way f Central NM, Albuquerque. 6