Monday, September 24, 2018 Preakness Hills Country Club Wayne, NJ
PRF s History The concept for PRF began in 1998 when Sam Berns, the son of two Massachusetts physicians, Drs. Leslie Gordon and Scott Berns, was diagnosed with Progeria. At that time there was no knowledge of its cause, no funding for Progeria research, no treatments and no organization advocating for the children. Unwilling to accept that nothing could be done, Sam s parents gathered family, friends and colleagues and established PRF in 1999. Dr. Gordon serves as Medical Director and Dr. Berns is Board Chair. Since then, thousands of international experts, dedicated volunteers and others have joined to help advance PRF s mission and provide hope for the children and their families. PRF is making progress at a phenomenal pace. In just 18 years we have gone from complete obscurity to worldwide public awareness, seen a 310+% increase in the number of known children with Progeria, and completed the first-ever Progeria clinical drug trial that led to a treatment that is giving these special children stronger hearts and longer lives. However, there is still much work to do to cure them. Sam left a legacy of inspiration with his HBO film Life According to Sam and his wildly popular TEDx talk, My Philosophy for a Happy Life. PRF continues the quest for the cure in his honor. Sam Berns Thank you for your support. PRF IS A 501(C)3 NON-PROFIT CORPORATION ID# 04-3460220
Schedule 10:00 am Registration and Brunch Driving Range Open 12:00 pm Shotgun 5:30 pm Cocktail Reception, Hors D Oeuvres, Dinner and Awards Golf Entry Fee Includes Breakfast 18 holes of golf Carts and caddies Refreshments on course Cocktail reception Guest Speaker (for you and your guest) PHCC s sumptuous buffet dinner Awards Prizes and Raffle (for you and your guest) Zoey REGISTER ONLINE @: www.teamzoeygolf.org About Progeria Progeria is a fatal, rapid-aging condition that afflicts children. Without the discovery of new treatments, children with Progeria die of the same heart disease affecting millions of normal aging adults, but at an average age of just 14 years. PRF s mission is to discover treatments and the cure for Progeria and its aging-related disorders including heart disease; it is the only organization in the world solely dedicated to this undertaking. Because of Progeria s biological connection to heart disease and aging, finding the cure may also help millions of adults with heart disease, as well as the entire aging population.
CHAIRMAN John Marozzi EVENT CO-CHAIRS Bob Chestnov Mark Rosen Lee Solomon GOLF COMMITTEE Norman Axelrod Ben Goldstein Marlene Marozzi Estelle Solomon Andrew Silverman George Wolfson Doug Buch TeamZoey Barbara Batesko Megan Luciano Beth Bellucci Karan Carolonza Laura Penny Zoey Penny is the granddaughter of John & Marlene Marozzi. She was born with Progeria, a rare and fatal disease. Caused by a mutation in the LMNA gene, these children will die of heart disease at an average age of fourteen and a half years! All of the proceeds generated will go to the Progeria Research Foundation, to fund research for developing treatments and finding a cure. Thank You www.teamzoey.com Audrey Gordon, Esq. Executive Director Hope Starts Here
R e s e r vat i o n Informat i o n Name: Company: Address: Phone: Email: Golfers 45 & Older # $1,500.00 each $ Golfers Under 45 # $750.00 each $ (Includes: Golf, lunch, cocktail reception, dinner with 1 guest) Cocktail reception & dinner (only) # $150.00 each $ Golfer, Name(s): 1. 2. 3. 4. Winner s Choice Raffle Tickets # Book of 5 $100.00 each $ Sponsorship Total From Other Side... $ I/We cannot join you. However, I/we would like to support the event with a donation of $ Payment Information o Check to the Progeria Research Foundation o Visa o Master Card o Amex Name on Card: Signature: Card No.: Security Code Exp Date: Total amount enclosed $ Mail this reservation form with payment in the enclosed envelope to: TeamZoey, PO BOX 102, Pine Brook, NJ 07058 Questions? Call John Marozzi @ 973-712-0401
S p o n s o r s h i p Op p o r t u n i t i e s There are many ways you can support TeamZoey & PRF o Cocktail Hour Sponsor... $500 o Putting Green Sponsor... $500 o Golf Carts Sponsor... $750 o Front Nine or Back Nine Sponsor... $1,000 o Hole in One Sponsor... $1,500 Sponsorship includes signage at event and listings in the event program Return this registration card in the pre-addressed envelope or Register Online @ www.teamzoeygolf.org Tax I.D. #: 04-3460220 In Support of the Progeria Research Foundation