A & O: Support Services for Older Adults is a notfor-profit

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This Full House

Mission A & O: Support Services for Older Adults is a notfor-profit social service agency that offers lifeenhancing programs and services to older adults 55+ living in the province of Manitoba. A & O s programs and services support and enhance the physical, intellectual, emotional, social and spiritual lives of older persons and actively promote participation in all aspects of community life. 2

Vision A & O: Support Services for Older Adults strives to be a recognized community partner in the development and delivery of innovative services that empower older adults to lead healthy, vibrant lives. 3

The Agency A not-for-profit organization that provides programs and services to older adults 55+ Established in 1957 in response to the need from older adults and their caregivers Governed by a Board of Directors 4

3 Pillars of Innovative Programs & Services: Safety & Security Social Engagement Counselling 5

Overview Hoarding Disorder This Full House How to Help 6

Case Study: The Collyer Brothers 7

Case Study: The Collyer Brothers 8

Case Study: The Collyer Brothers 9

Compulsive Hoarding The acquisition of, and failure to discard a large number of possessions that appear to be of useless or of limited value; Living spaces sufficiently cluttered so as to preclude activities for which the spaces were designed; and Significant distress or impairment caused by the hoarding. (Frost & Hartl, 1996) 10

Hoarding Disorder Diagnostic criteria for DSM-5 (Obsessive-Compulsive & Related Disorders category): A. Persistent difficulty discarding or parting with possessions B. Due to strong urges to save items and/or distress associated with discarding C. Accumulation of a large number of possessions that fill up and clutter active living areas so that their intended use is no longer possible D. The symptoms cause clinically significant distress or impairment E. The hoarding symptoms are not due to a general medical condition (e.g. brain injury, cerebrovascular disease). 11

Collecting vs. Hoarding Collecting: Hoarding: Organization Mint condition Kept in specific areas Quality of life not compromised Pride Usually disorganized Takes over areas of home Cause of distress Risk to health Safety concerns 12

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What Items Do People Hoard? Clothes Books/newspapers/paper materials Food Craft items Containers Trash 15

Who is Affected by Hoarding Disorder? Often begins in adolescence, severity increases with age Average age for seeking help: 50 Often single individuals Range of education and income levels Women seek treatment more than men Might occur alongside other conditions (i.e. depression, anxiety) 16

Possible Causes for Hoarding Disorder Family History of Hoarding Genetics, environment Beliefs about Possessions Sentimental value, utility, beauty Cognitive Deficits Differences in brain function and thought processes Avoidance (C. Ayers, 2012) 17

Reasons to Save Object has emotional significance Losing important information Wasting useful objects Object is beautiful or unique It doesn t feel right to get rid of it (C. Ayers, 2012) 18

Possible Effects of Hoarding Physical Health & Safety Falls, tripping over clutter Unable to use bed, eat at table, navigate stairs Food poisoning Infestations Services may not be available (i.e. plumbing, electrical, Home Care) 19

Possible Effects of Hoarding Emotional/Social Shame, embarrassment Anxiety Depression Feel overwhelmed Family/marital discord Reluctant to have visitors Stress from family, landlords, etc. 20

Possible Effects of Hoarding Financial Cost of accumulating belongings Moving due to eviction Complying with City orders Fines Damage to home/property Losing bills/important documents 21

This Full House 22

This Full House Voluntary program for older adults (55+) that addresses hoarding and squalor Client participation is essential Uses cognitive rehabilitation and exposure therapy with the goal of harm-reduction Involves counseling, sorting/cleaning services, follow-up, and referral 23

Squalor 24

Squalor The state of living in unsanitary conditions which may include human or animal feces, rotting food, and infestations of rodents/insects May or not involve hoarding behaviors Like hoarding, squalor can pose a myriad of health and safety concerns This Full House can assist with cleaning services and connecting individuals to appropriate resources 25

Demographics (2012 2013) Gender: Age: Female: 74.6% 55-64: 40.5% Male: 24.2% 65-74: 30.4% Couple: 1.2% 75-84: 19.6% 85+: 9.5% Varied levels of education, income Diverse ethnic and religious backgrounds 26

Getting Help Referrals come from a variety of sources: Self-referrals Family/Other Supports Community/Government Agencies Housing Contact A & O and request to speak with intake *In order for referral to be made, consent must be given 27

What Does This Full House Do? Assessment: Background information Are appliances working? Where do you sit/sleep/eat? Where do you keep important documents? Is it hard to use your home because of clutter? What are your goals for your home? 28

Social Work Support: Coping with difficult life situations Identifying who can help Working towards goals Focus on developing skills Memory and Planning Attention Problem Solving 29

Social Work Support: Work with individuals to make decisions about their belongings Categorize items: discard, keep, donate Commitment to homework/lifestyle change 15 minutes per day, 1 hour per day, etc. Over time, decisions get easier and distress decreases 30

Harm Reduction Approach: Create safer living conditions by working on one goal at a time (i.e. pathway to front door) Reduce collecting i.e. 1 item/week Address dangers (fire, falls, infestations) Focus on key areas 31

Team Approach: Work with Fire Department, Public Health, health and mental health professionals Liaise with landlords, Residential Tenancies Branch Agency volunteers/paid professional services Follow-up services Referrals to appropriate resources Home care, transportation, meals, financial assistance 32

This Full House: Outcomes Prevent homelessness Access to resources/supports i.e. home care, mental health services, social supports Improve quality of life Facilitate lasting change 33

Program Statistics (2012 2013) 181 new referrals in the past year Over 1160 service hours Social workers have worked with over 1000 clients carried over from previous years 34

Challenges Lack of trust Past attempts Physical barriers Mental health concerns Dementia Lack of motivation Time/Deadlines 35

How to Help: Strategies Establish trust and respect Share concerns about safety Curiosity over criticism ask questions Respect each individual s process Allow the individual to take control Provide resources Respect decision(s) Encourage any progress Be patient Family take a step back 36

Avoid: Judgmental language Touching/removing items Forced clean ups Arguing Overwhelming demands/unrealistic goals Manipulation 37

Helpful Questions: How many of these do I have? Does this item have a home? Does this item work/fit/fulfill a purpose? Can I afford this? Will I use this within the next week/month/year? Can I keep this item safely? Will this item help me reach my goal? 38

Ideas & Approaches Be patient, progress takes time Work on one area at a time Categorize items Preparation is key (supplies, filing system, storage) Shred documents with personal information Help is available! 39

A & O Services Safety & Security Social Engagement Counselling Elder Abuse Prevention Services Safe Suite Program Older Victim Services SafetyAid This Full House Senior Centre Without Walls Connect Program Entry Program for Older Adult Immigrants Centres/Meals Programs Information & Referral Intake Counselling Housing Legal Clinics 40

Funders United Way of Winnipeg 41

Contact info: Thank you! A & O: Support Services for Older Adults 200-280 Smith St. Winnipeg, MB R3C 1K2 Phone: 204-956-6440 Toll-free: 1-888-333-3121 Fax: 204-946-5667 e-mail: info@ageopportunity.mb.ca 42