Cancer Survivorship Care

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07/10/2013 Focus on Rare Diseases: Cancer Survivorship Care Bergamo (Italy), November 14 th - 16 th, 2013 Organized by CLINICAL RESEARCH FOUNDATION, BERGAMO HOSPITAL (FROM) AZIENDA OSPEDALIERA PAPA GIOVANNI XXIII - BERGAMO and FONDAZIONE INTERNAZIONALE MENARINI PROGRAM Centro Congressi Giovanni XXIII Viale Papa Giovanni XXIII, 106

======================================================================== During the past three decades, the development of effective screening and treatment strategies for many cancers has resulted in an enormous population of long-term cancer survivors. Cancer survivors are at increased risk for long-term morbidity and premature mortality, related directly to the cancer itself, to preexisting comorbidities, and to exposure to therapy. In particular, secondary cancers, psycosocial needs, information about fertility planning for patients of reproductive age, the monitoring program and other relevant issues deserve to be updated in order to develop survivorship care plans. Aim of this meeting is to review the main questions on morbidity and mortality in children and adults with hematologic and solid tumors to provide homogeneous and shared guidelines on the management of these patients. Tiziano Barbui Co-President of the Meeting ========================================================================

MONITORING AND IMPROVING THE QUALITY OF SURVIVORSHIP CMONITORING AND IMPROVING THE QUALITY OF Co-Presidents of the Meeting Tiziano Barbui FROM Clinical Research Foundation, Bergamo Hospital Bergamo (Italy) Carlo Nicora General Director Ospedale Papa Giovanni XXIII Bergamo (Italy) Scientific Committee Tiziano Barbui FROM Clinical Research Foundation, Bergamo Hospital (Italy) Alessandro Rambaldi Hematology and Bone Marrow Transplant Unit Carlo A. Tondini and Roberto Labianca Clinical Oncology and Hematology Department Azienda Ospedaliera Papa Giovanni XXIII Bergamo (Italy) Organizing Secretariat Fondazione Internazionale Menarini Via W. Tobagi, 8 I-20068 Peschiera Borromeo (Milan, Italy) Phone: +39 02 55308110 Fax: +39 02 55305739 E-mail: milan@fondazione-menarini.it Http:\\ www.fondazione-menarini.it

Thursday, November 14 th, 2013 Afternoon Sala Oggioni 17.30 19.30 Round Table on Sopravvivere" (al cancro) o riprendere a vivere? Chairman: Giuseppe Remuzzi (Bergamo, I) Con la partecipazione di: Elena Cattaneo Laura Chiappa Francesco De Lorenzo Carlo Nicora (Ricercatrice, Senatrice a vita) (Direttore Sanitario, Ospedale Papa Giovanni XXIII) (Presidente della Favo - Federazione Italiana delle Associazioni di Volontariato in Oncologia) (Presidente FROM, Direttore Generale, Ospedale Papa Giovanni XXIII) Interverranno: A. Annunziata (oncologa), C. Bignamini (psicologa), E. Bondi (psichiatra), S. Cesa (Professioni sanitarie), R. Labianca (oncologo), S. Manzoni (Associazione P. Belli), A. Minetti (Associazione Cure Palliative), E. Pozzi (Ordine dei Medici), A. Rambaldi (ematologo), M. Spina (oncologo), U. Tirelli (oncologo), C.A. Tondini (oncologo) Vi parteciperanno medici, infermieri e associazioni di pazienti

Friday, November 15 th, 2013 Morning Sala Alabastro 08.00 Registration 08.15 Opening ceremony Meeting presentation and Welcome addresses Tiziano Barbui,Alessandro Rambaldi e Carlo Nicora (Bergamo, I) 08.30 John Radford (Cambridge, UK) Presentation of the meeting Session I: Secondary malignancies Chairpersons: Tariq Mughal (London, UK) Fabrizio Pane (Naples, I) 08.45 Special Lecture Melissa M. Hudson (Memphis, USA) Achieving high-quality cancer survivorship care 09.15 Susanne Saussele (Heidelberg, D) In CML 09.35 Bjorkholm Magnus (Stockholm, S) In MPN 09.55 Corrado Tarella (Turin, I) In NHL 10.15 Luca Gianni (Milan, I) In breast cancer 10.35 Discussion Session II: Nonmalignant late effects Chairpersons: Enrica Morra (Milan, I) Enrico M. Pogliani (Monza, I) 11.20 André Tichelli (Basel, CH) Monitoring 11.40 Stefano Fagiuoli (Bergamo, I) Late liver complications 12.00 Flora E. van Leeuwen (Amsterdam, NL) Premature menopause 12.20 Eric Low (Edimburgh, UK) Information and support to patients 12.40 Discussion 13.00 Lunch

Friday, November 15 th, 2013 Afternoon Sala Alabastro Session III: Quality of life in survivors Chairpersons: Diana Greenfield (Sheffield, UK) John Radford (Cambridge, UK) 14.00 Riccardo Torta (Turin, I) Screening for distress in cancer patients: A multicenter, nationwide study in Italy 14.30 Fabio Efficace (Rome, I) Long-term quality of life in patients with acute and chronic leukemia: what do we know? 14.50 Diana Greenfield (Sheffield, UK) Sexual and reproductive health: issues at the bedside 15.10 Sophia Smith (Durham, USA) Quality of life among long-term survivors of Non Hodgkin lymphoma: a follow up study 15.30 Elisabetta Iannelli (Rome, I) Employment discrimination 15.50! Stefano Magrini (Brescia, I) Late effects from radiation therapy 16.10 Discussion 16.30 Coffee break 16.45 Special Lecture Chairman: Alessandro Rambaldi (Bergamo, I) Alois Gratwohl (Basel, CH) Hematopoietic stem cell transplantation - Why long term follow up matters 17.15 18.15 Round table Chairman: Shaun McCann (Dublin, IR) Participants: Gunnar Birgegård (Uppsala, S) Paul Greaves (London, UK) Roberto Labianca (Bergamo, I) Alessandro Rambaldi (Bergamo, I) Michele Spina (Aviano PN, I) Carlo A. Tondini (Bergamo, I)

Saturday, November 16 th, 2013 Morning Sala Alabastro Session IV: Perspectives in cancer survivors research 8.30 Special Lecture Chairman: Roberto Labianca (Bergamo) Shaun McCann (Dublin, IR) Quality of Life in hematology: European Hematology Association theme of the year and years to come Chairpersons: Lorenzo D Antiga (Bergamo, I) Carlo A. Tondini (Bergamo, I 09.00 Andrea Biondi (Monza, I) Overview in children 9.30 Flora E. van Leeuwen!(Amsterdam, NL) Risk of cardiovascular disease after Hodgkin lymphoma 10.00 Discussion 10.30 Coffee break 10.45 Riccardo Haupt (Genoa, I) The survivorship passport for childhood cancer survivors, and guidelines for long term follow-up 11.15 Hamish Wallace (Edimburgh, UK) Long term follow-up of survivors of childhood cancer: summary of update SIGN guidance 11.45 Discussion 12. 15 Conclusions Tiziano Barbui, Alessandro Rambaldi 12.30 Lunch

GENERAL INFORMATION Meeting venue The venue for the Meeting will be Giovanni XXIII Congress Center, Viale Papa Giovanni XXIII, 106 Bergamo (Italy). Secretariat during the Meeting The Secretariat will be open at the following times: Friday, November 15 th, from 08.00 a.m. to 06.30 p.m. Saturday, November 16 th, from 08.15 a.m. to 12.30 a.m. Official language The official language of the Meeting will be English. Registration The Meeting is free to attend. Please confirm the participation to (Fondazione Internazionale Menarini Phone: +39 02 55308110 Fax: +39 02 55305739 - E-mail: milan@fondazione-menarini.it). European CME credits (ECMEC s) European CME credits have been applied for from the European Accreditation Council for Continuing Medical Education (EACCME). Technical facilities Facilities will be available for computer presentations and overhead projections. A business center with PC (Powerpoint for Windows) will be available for check and preview of presentations. It is essential that speakers take their presentation to the technicians at least one hour before the session starts. The center will be open at the following times: Friday, November 15 th, from 08.00 a.m. to 06.30 p.m. Saturday, November 16 th, from 08.15 a.m. to 12.30 a.m. Lunches and coffee breaks Lunches and coffee breaks will be served in the Meeting area. Abstracts book Participants will receive the Abstracts book at the Meeting. Certificate of attendance The certificate of attendance will be available on request at the end of the Meeting at the Secretariat.

Focus on Rare Diseases: Cancer Survivorship Care Bergamo (Italy), November 14 th - 16 th, 2013 REGISTRATION FORM Family name First name Title Institute/Organization Mailing address Postal code City Country Phone Fax E-mail Meeting attendance is free of charge. Please return the Registration form to: Fondazione Internazionale Menarini Phone: +39 02 55308110 Fax: +39 02 55305739 E-mail: milan@fondazione-menarini.it. Date

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