April 11, Yoga and Non-Cardio Exercise: Allies in Managing MS Symptoms and Improving Overall Health. Presented by:

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Yoga and Non-Cardio Exercise: Allies in Managing MS Symptoms and Improving Overall Health April 11, 2017 Presented by: Genentech Teva Pharmaceuticals Acorda Therapeutics

How to Ask Questions During the Webinar: Type in your questions using the Questions/Chat box If box is closed, click + to expand Go-To-Webinar Attendee Support Line: (877) 582-7011

Sue Kushner PT, MS Physical Therapist / Clinical Education Coordinator Slippery Rock University Pittsburgh, Pennsylvania

Lynn Stazzone, RN, NP MS Nurse Practitioner Partners MS Center Boston, Massachusetts

Yoga and Non-Cardio Exercise: Allies in Managing MS Symptoms and Improving Overall Health April 11, 2017 Presented by: Genentech Teva Pharmaceuticals Acorda Therapeutics

What, no CARDIO?!?! Cardiac exercises ARE important components of an exercise program and overall wellness. BUT other factors are equally important! You may not be able to participate in cardiac activities for a number of reasons. Whether you can or cannot, your wellness program must include areas that are commonly emphasized with MS.

Aspects of an exercise program (non cardio): Keep in mind you have probably heard these before. ALL are important! Strength training Flexibility(stretching, range of motion) Balance and Coordination Stress reducers

Let s practice!! Right here, right now Pelvic tilt Ear to shoulder Unweighting each SIT bone Shoulder rolls/shrugs Quad sets/glut sets Ankle pumps COAST Rehab

How do you feel now?

Barriers to Exercise especially with MS Fatigue Depression Sleep Altered sensation Pain Spasticity/Weakness Stress Previously sedentary/priorities Endurance Mobility/Transport Accessibility Fear Heat Denial Self Image/Peer Pressure Cognitive changes

Why Choose to Exercise When You Have Multiple Sclerosis? Exercise and Brain Health: Exercise may have a neuroprotective effect Insulin-like growth factor-1 appears to act as a neuroprotective agent and studies indicate that exercise could promote this factor in MS Brain-derived neurotrophic factor (BDNF) increases in the hippocampus with physical activity, which may help lessen the decline in cognitive function in MS Cardiac risk factors lowered with yoga White, LJ, Castellano V, Exercise and Brain Health implications for MS Part 1-neuronoal growth factors 2008

Symptom Management Another way to control MS beyond disease-modifying treatments Activities in your individual exercise program should address symptoms: Spasticity/Ataxia/Tremors Fatigue Weakness Balance and coordination deficits Pain Depression

Symptom Management - Exercising Fatigue Increases stamina & endurance Pain Posture Contractures Depression Decreases stress Social interaction Bodi Empowerment

Symptom Management - Exercising Weakness Improves posture Bladder Pelvic floor strengthening Bowels Encourages bowel peristalsis or movement wikihow

Symptom Management - Medications Fatigue Amantadine Provigil Pain Neuroleptics Depression SSRI s Counseling

Symptom Management - Medications Weakness Amapyra Bladder Anticholengics Bowels Fiber Stool softner

Exercise and Activity WE ARE MADE TO MOVE!! If normal patterns of movement are compromised, modifications must be made. Everyone can do something. Incorporate your choices into your daily life. Be creative! Have fun! Be social!

Your Care Team Coordination between all members is vitally important

WHAT to do? Who can help me?!?! VERY important to find excellent team members for your healthy program. YOU are the driver and must instruct the others what you want out of your program & what works for you. You may need to explore options that are totally new to you and outside of your wheelhouse and comfort zone. Look at this as an OPPORTUNITY!!! Find support - groups/programs through NMSS/ churches/ gyms/ymca/ywca, community centers IF you don t find what you like or need, YOU can be the catalyst to start something in your area!!

WHAT to do? (con t.) Some activities may incorporate all or some of the areas previously mentioned (strengthening, balance and coordination, flexibility) Strengthening Yoga Tai Chi Pilates Aquatic exercises

Weakness We lose strength and muscle mass as we age. Inactivity = greater loss of strength + muscle atrophy May be due to decreased neurotransmission May be secondary to fatigue or spasticity Identify cause 123RF

Strengthening VERY important part of your program, even if you had never done any before!! May improve areas of weakness & muscle imbalances. Can even improve posture, gait, respiratory function, & balance. The best part: MUSCLE BURNS MORE CALORIES AT REST!!!!

Types of Strengthening: Free weights - excellent but be careful keep safety in mind! Ankle/wrist weights Theraband/exercise bands Swiss Ball Aquatic exercises-water acts as resistance! YOU DO NOT NEED TO BE A SWIMMER to gain benefits of aquatics and enjoy it! (be aware of water temperature) Weight machines Kettle balls/weighted balls

More on Strengthening: Progression should be monitored Emphasize areas that are identified as weak, but you need an overall strengthening program: Upper extremities, lower extremities, trunk (core) Vary activities to prevent overuse injuries LISTEN to your body! In general, 2-3x/week

Flexibility (stretching, range of motion-rom) Lack of ROM can cause pain/discomfort and possibly eventual permanent loss of full range (contractures) Lack of ROM can lead to secondary problems such as orthopedic problems, gait deviations, frozen shoulder, kyphosis, plantar fascitis, bed sores

Flexibility (stretching, range of motion-rom) VERY important part of a program Direct link to balance and coordination Can help fight spasticity when done properly Like all exercise, safety first

Types of Flexibility exercises: Yoga Tai Chi Pilates Daily stretches that incorporate all of the body Swiss Ball Use of bands ALL ACTIVITIES CAN BE MODIFIED AS NEEDED!!

More on Flexibility: Can be done at any functional level May need help of a support partner, PT, OT, etc Can be done in seated, supine, prone, standing, etc. Should be one daily Make sure you are getting all areas of the body-daily! Look for classes..nmss, etc that will do the modifications for you. Keep safety in mind!! Are any braces, supports needed? Professional assessment!

Medications Spasms Baclofen Benzodiazepine Acupuncture Cold or hot packs TENS Yoga

Balance and Coordination (B and C) Strength and ROM contribute to B and C!!! (along with other factors, i.e. fatigue, spasticity, pain, etc.) VERY important to be properly assessed for B and C. Safety is paramount!!! Assistive devices or braces Can be done on land, in water, on Swiss Ball, etc. Be aware of dizziness, vertigo, visual deficits, decreased sensation in feet and legs where things are in space Like most symptoms related to MS, may vary daily

Types of Balance and Coordination Activities Aquatics: classes, walking/marching forwards, backwards, and sideways Harnessed walking: find a PT clinic that offers thisexcellent for balance and confidence! Swiss Ball-numerous B and C activities on the ball. May use a peanut shape for increased balance. May need a spotter or support partner, PT for safety on ball. Can be very fun!! Use kitchen counter, variety of floor surfaces, or outdoors (again SAFETY IS PARAMOUNT!) Caution with shoes, carpets, throw rugs, slopes, weather, pets, toys, uneven surfaces, transitions

Yoga Extremely beneficial! Works on all areas covered and reduces stress! MANY types of yoga. Something for everyone Flow, mat only, wheelchair, mix of poses/positions Can be rigorous or very light Try various types and instructors till you find what is best for you DVDs, TV programs, MS-focused classes, NMSS sponsored classes http://www.nationalmssociety.org/living-well-with-ms/health-wellness/exercise/yoga

Tai Chi Works on balance, mindfulness, concentration, positioning of body in space Can be done at all levels Look for classes, DVDs, TV shows Positions can be modified Again, safety 1 st!!! Cool environment http://www.nationalmssociety.org/living-well-with-ms/health-wellness/exercise/adaptive-tai-chi

Pilates Large variety of Pilates exercises. Work on lengthening of muscles versus building bulk. Increase in strength and flexibility are noted Mat exercises-strengthening, stretching, B and C Reformer tables-more expensive Look for classes, DVDs, TV shows Seek classes that may target persons with MS

So let s take control Stay on medications that control the disease Symptom Management Exercise - We can all do 1% better Be kind to yourself and hope for the future

Other beneficial areas that are NON-CARDIO: Stress reduction!!! Relaxation!!! Mindful meditation!!! Activities that are FUN!!! Be social!!!

Questions/Comments Sue Kushner PT, MS Lynn Stazzone, RN, NP If you are enjoying tonight s presentation, please consider donating to our programs: Text to donate: 970-626-6232 https://www.mscando.org/get-involved

Can Do MS Resources Find these resources at www.mscando.org.

National MS Society Resources Exercise as Part of Everyday Life Stretching for People with MS Exercise & Physical Activity with MS Yoga and Tai Chi for MS Yoga & MS Tai Chi & MS Exercise or not in Water Yoga Programming for People with MS Click on these links and access more resources at nationalmssociety.org

Keeping an Eye on MS May 9, 2017 Presented by: Genentech Teva Pharmaceuticals Acorda Therapeutics