Professionals at the University of San Francisco in San Francisco, CA. The author reports no

Similar documents
Living My Best Life. Today, after more than 30 years of struggling just to survive, Lynn is in a very different space.

3. Which word is an antonym

Preface of the special issue: Recent CMV Research

Understanding Homelessness

How to Work with the Patterns That Sustain Depression

KILLED ME AND THIS IS HOW

Under the Supervision of: Prof. Judy Freedman Fask, College of the Holy Cross

Participant Information Sheet

Dissociative Experiences Scale-II (DES-II) DIRECTIONS

Student with Hearing Loss Inspiring Story

EasyRead guide to the PowerPoint slides. This is an EasyRead guide to the slides you will see on the screen.

ENABLE Scotland. Edinburgh ACE. Annual Report 2017

Self Advocates United as 1 News for You!

What is delirium? not know they are in hospital. think they can see animals who are about to attack them. think they have been kidnapped

Letter to the teachers

Your Personal Guide to Fundraising

Understanding dementia. people with learning disabilities finding out and raising awareness together

Take a tour through a fictional online fundraising campaign. And you ll be ready to put your campaign online and start fundraising

take no for an answer? What can you do in those situations? do? If you think you need new friends, where can you find them?

A patient s journey. Can you describe your struggle with addiction? Nathan Patient, US

Beattie Learning Disabilities Continued Part 2 - Transcript

Interviewer: Tell us about the workshops you taught on Self-Determination.

Chapter 14 Support for parents and caregivers

Getting It Right For Young People In Education

CA: Hi, my name is Camille, and I will be interviewing you today. Would you please introduce yourself?

Early Intervention: The Importance of Newborn Screening

It still is, but in a different way since dementia joined our family.

Dream in Gold. If you had the opportunity to meet the one person who inspires you most; what would you say?

Level 5-6 What Katy Did

Autism, my sibling, and me

Jennie s Example. The Origin Scene. Mr. Anderson was the first person I ever knew who died, and the thing I didn t

London. London. Last year, as Speaking Up and Advocacy Partners, we:

Subliminal Programming

EXAMEN DE INGRESO 2017 TEST DE COMPROBACIÓN DE INGLÉS

Overseen by: Prof. Judy Freedman Fask, College of the Holy Cross

2. Based on the passage, the reader can tell that The Heartland Institute is probably

Karl White, a perfect fit to hold the Emma Eccles Jones Endowed Chair in Early Childhood Education. Photo by Jared Thayne.

Class #5: THOUGHTS AND MY MOOD

Patient story. One young person s experience of CAMHS.

Who Exactly Is This Book For?

Johnny s School Year. Johnny was an average teenage boy who played football and went to high school just like

An Update on BioMarin Clinical Research and Studies in the PKU Community

Chapter 1. Dysfunctional Behavioral Cycles

Building A World-Class WELLNESS PROGRAM

Meeting a Kid with Autism

The Advocacy Charter Action for Advocacy

Lesson 1: Gaining Influence and Respect

My Name is Olivia Hargroder I am 17 years old and I live in Brisbane, Australia. I am in my last year of High School and I work part time at Coles

THE IMPACT OF OUR PRESS, MEDIA AND INFORMATION AND ADVICE

Susan Erin Susan Erin

maintaining gains and relapse prevention

severe croup university of alberta capital health stollery children s hospital

Cecile Nunley Breast Cancer Survivor Story

Interviews with Volunteers from Immigrant Communities Regarding Volunteering for a City. Process. Insights Learned from Volunteers

Cervical cancer screening event summary

Oh no snow and beauty

Finding (or Developing) Telehealth Champions

Down s syndrome. Your Questions Answered. A Down s Syndrome Association Publication

Let s talk. Scotland. Rona. I want Scotland to lead the way in making sure all women know about ovarian cancer and can spot the symptoms.

It has often been said that there is no greater crime than the waste CATALYTIC CONVERTER

Co-Diagnosis is changing dentistry

Your Personal Guide to Fundraising

He walks too quickly through malls.

paralyzed*, and he had to learn to walk with crutches*. That same year, the

Teen Sexual Health Survey

Your Fundraising Toolkit

Habitat for Humanity: the Gift of Hope. Vanya Choumanova Professor Ford Contextual Analysis November 14, 2001

Table of Contents. YouthLight, Inc.

Early Intervention -Infant Development Program. Baby Group. From Fragile Beginnings to Strong Futures

Oliver Figgat A Birth Story

STAGES OF ADDICTION. Materials Needed: Stages of Addiction cards, Stages of Addiction handout.

This American Life Transcript. Prologue. Broadcast June 25, Episode #411: First Contact. So, Scott, you were born without hearing, right?

Options in HIV Prevention A Participant-Centered Counseling Approach

Stories of depression

What IPF Really Means: Discussions with Caregivers, Patients, & Healthcare Providers

Helping your Child with ASD Adjust to New Siblings. Af ter the baby s birth

QUESTIONS ANSWERED BY

Problem Situation Form for Parents

The Wellbeing Course. Resource: Mental Skills. The Wellbeing Course was written by Professor Nick Titov and Dr Blake Dear

Autism: Growing challenge 'It's time that people learn about it' mother. Sunday, February 8, By KIM BARTO - Bulletin Staff Writer

CHAPTER 9: MY RHYTHM OF LIFE Lisa

Dealing with Depression Feature Article July 2008

What Tomorrow May Hold

IT S YOUR WORLD. Teacher s Message. CLEAN UP BEGINS! Below is a list of

INTERVIEWING TECHNIQUES

100 TOEIC GRAMMAR QUESTIONS. by Jeffrey Hill

Put Yourself in Another Person s Place

How to Work with the Patterns That Sustain Depression

A Timely Decision A STORY ABOUT FACING BARRIERS IN ORDERTO PREVENT CERVICAL CANCER

Testimony of Elaine Genise Williams. before the. Committee on Health, Education, Labor and Pensions United States Senate. U.S.

If Only He Could Talk! Communication Strategies for Children with Visual Impairments by Amber Bobnar

FINAL TOPLINE. Diabetes Group. Qualities That Matter: Public Perceptions of Quality in Diabetes Care, Joint Replacement and Maternity Care

Can I tell you about Autism?

An Ethical Approach to Health Journalism in the Netherlands

Why Is It That Men Can t Say What They Mean, Or Do What They Say? - An In Depth Explanation

Gricelda Olvera ELI 31 Final Portfolio Rosie Speck Fall 2013 I M FROM MEXICO AND MY NAME IS. Gricelda Olvera.

The Parent's Perspectives on Autism Spectrum Disorder

Family Man. a prime example of change. My dads past was riddled with chaos and bad decisions. My dad

Recommendations from the Report of the Government Inquiry into:

Kids Booklet 5 & on Autism. Create an autism awareness ribbon! Tips for parents & teachers. Activities puzzles

Transcription:

Reflections What Keeps You Awake at Night? Candace (Candy) Campbell Candace (Candy) Campbell, DNP, is an assistant professor in the School of Nursing and Health Professionals at the University of San Francisco in San Francisco, CA. The author reports no conflicts of interest or relevant financial relationships. Address correspondence to: candy@candycampbell.com. http://dx.doi.org/10.1016/j.nwh.2016.12.006 2017, AWHONN Have you ever thought you might like to do some research on a particular topic, but you don t have a graduate degree, so you think it is no use? I hope that after you read my story you will think again. It all began in 1989. On my first day working as a NICU nurse, my preceptor and I were en route to a cesarean birth. She grabbed a scale; if the poor little preemie didn t top 950 g, we could only offer lifesaving comfort care (i.e., a warmed isolette and warm blankets). Period.

But as the years passed, technology caught up pretty quickly, and by 1995 we were able to save preemies of 500 g! But something kept me awake at night. One day, there was an article in a syndicated newspaper that had parents really upset. It told of a study about the long-term outcomes for premature newborns. The study group included children born in the 1980s, and the news wasn t pretty. It said that those children usually didn t finish high school and that many were severely disabled, and it asked questions about the public health efficacy and ethics of offering any services to newborns weighing less than approximately 2,000 g at birth. Of course, in the NICU, we knew that the study was not a fair comparison to the results we were seeing in 1995. Still, we all were wondering: What really happens after these micropreemies go home? I remembered my high school journalism teacher, Mr. Mohne, and what he always taught us: Follow the question and see where it leads. His voice echoed in my mind as I pondered. I had this dream that if I could just convince one of my film producer friends to take the project, it would make a nifty documentary. One by one, they refused and told me, If this is your baby, then you should raise it. Well, that was not what I had in mind. It would mean going back to school to study film. I had all kinds of reasons why that was a ridiculous notion: I was working in the NICU full-time,

acting and writing on the side, and I was also a divorced mom and sole support of three children. There was NO WAY. But I couldn t shake Mr. Mohne s words. First, I searched the literature, but there wasn t much written yet on outcomes for extremely-lowbirth-weight infants. Then one day I attended a Western Regional AWHONN conference and met Dr. Robert Piecuch from the University of California San Francisco (UCSF). He was the director of developmental research and the pediatric follow-up clinic at UCSF, and his presentation was a real turning point for me. As we talked, he asked me why, since I already had a degree in communication and theater and was a writer, was I hesitant to go to film school. He thought it would be a natural next step. (Again, not what I wanted to hear.) But I bit the bullet and enrolled in film studies at the local college. After a semester, I realized I would soon need some equipment for which I had no money. Providentially, I was complaining about this to my coworker, Steve, who listened to my tale of woe and asked, Did you just tell me this because I have all the equipment you need, plus an editing suite? Eureka! Steve became my director of photography, and the actual project process began. Of course, there were many challenges I couldn t foresee. Steve had camera equipment, but he didn t have a professional-quality microphone. I landed a commercial acting gig, which provided the cash for a really good one. My project was too large for Steve s computer. Sigh. I needed an editing suite.

Providentially, again, I met a producer of PBS films. He remembered me because he also produced a series of films that I acted in for Lippincott. He cosigned on the project as my mentor, which qualified me for a Bay Area Video Coalition (BAVC) sponsorship and equipment grant, and put the project under their (501)3c nonprofit umbrella. Now, anyone who wanted to help fund the project would get a tax-deductible receipt. Sweet! I used my credit card, in faith, to purchase the editing suite, but had no money to pay it off. I showed some of the rough footage to a few friends and a representative from MedImmune (makers of palivizumab, which is used to treat extremely-low-birth-weight infants), and they wrote two grants to help fund it. As a computer novice, I struggled to learn the editing software. I didn t know what I didn't know! It took me over a year to create the 2-minute trailer. All the rough footage and the final film project had to be professionally transcribed (another expense I could not meet). Luckily, my distant cousin, a professional transcriptionist, revealed that she would complete it for free! I was getting the feeling that somebody up there wanted this film to be made. When the fine cut was (finally) finished, I began applying to film festivals. No luck. While reporting on the Cinequest film festival, I met a lady from the International Medical Media Film Competition, who encouraged me to enter in the category of Children s Health that year. Amazing. My first film won a prestigious award!

Award in hand, I thought securing distribution would be a piece of cake. Wrong again. I applied to every educational distributor I could find. Nothing but rejection. When Aquarius Media called, I expected to hear another rejection. Instead, I heard myself replying, What? You want a contract? And it will be distributed on four continents? I could hardly believe it. Maybe it was a good thing that my naiveté preceded my thought process, because following the question took 5 years. As a single mom with three teens, if someone had told me, This is going to cost you all your free time and money for about 5 years, I would have let the idea slide. People still ask if the film was my master s thesis. Nope. My master s thesis was the next question I followed. Now it s your turn: What question keeps you awake at night?