Day 1 24 th September (Saturday) Time Spina Bifida International Forum Speakers 0830-1030 Registration 0830-1015 Breakfast MedArt Photo exhibition and Slideshow Session 1: Opening Ceremony Moderator: Dr. Eddie Cheung (Co-Chairman, SBIF) 1030-1040 Welcome Address Dr. Hon. CH Leong GBM GBS OBE JP (International Advisor, SBIF) 1040-1050 Opening Address by Guest of Honour Dr. Hon. Ko Wing-Man BBS JP (Hong Kong SAR Government, Hong Kong) 1050-1100 Opening Address by Guest of Honour Associate Director, National Health and Family Planning Department of Suzhou 1100-1110 Opening Address Prof. Gabriel Leung, GBS JP (University of Hong Kong, Hong Kong) 1110-1120 Opening Address Prof. Francis Chan, (Chinese University of Hong Kong (CUHK), Hong Kong) 1120-1125 Vote of Thanks Dr. John Ngan (Board Chairman, MedArt, Hong Kong) 1125-1240 Ribbon cutting, Photo and Souvenir presentation Prof. Wen JianGuo, Prof. Gabriel Leung, Prof. David McLone, Dr. Hon. Ko Wing- Man, Dr. John Ngan, Dr. Hon. CH Leong, Prof. Wang Jian, Prof. Francis Chan, Prof. Timothy Brei Session 2: Public Session A Moderators: Prof. Gabriel Leung BBS JP (Hong Kong University, Hong Kong), Prof. Wang XiaoDong (Suzhou), Dr. Mark Chan 1140-1210 Keynote Lecture: Spina Bifida an overview 1210-1230 MedArt Lecture: Not Forgotten Prof. David McLone Dr. John Ngan 1230-1330 Lunch MedArt Outreach Introduction Mr. Benedict Ng (MedArt, Hong Kong) Session 3: Public Session B Moderators: Prof. Francis Chan (CUHK), Prof. Wang Jian (Suzhou), Dr. Christopher Yu
1330-1355 The Road to Independence Prof. Timothy Brei, (University of Washington & Spina Bifida Association, USA) 1355-1400 Q&A 1400-1425 Promising Frontiers in Molecular Research in Spina Bifida Dr. Chandra Shekhar Mayanil 1425-1430 Q&A 1430-1500 Tea Break Session 4: Combined Scientific Session - the need for multidisciplinary approach Moderators: Prof. David McLone (USA) Prof. Zhou Yun (Suzhou), Prof. Wen JianGuo (Zhengzhou), Dr John Ngan (Hong Kong) 1430-1500 Management of Children with Spina Bifida from Infancy to Adulthood Dr. Robin Bowman, 1500-1520 Myelomeningocele Closure MedArt Experience Dr. Wang Hangzhou 1520-1600 Tethered Spinal Cord Multi-disciplinary Evaluation and Diagnosis 1600-1610 Q&A Dr. Elizabeth Yerkes, Dr. Robin Bowman & Dr. Luciano Dias, 1610-1630 Tea Break 1630-1700 Role of an Orthopaedic Surgeon in Follow-Up and Preservation Functions: An Introduction Dr. Luciano Dias, 1700-1720 Detection of Neurologic Complication by Regular Neurology Charting Ms. Nicole Hroma, 1720-1750 The Multidisciplinary Spina Bifida Clinic Dr. Timothy Brei, (University of Washington & Spina Bifida Association, USA) 1750-1800 Discussion and Round-up for Day 1 1900 Gala Dinner
Day 2 25 th September (Sunday) Time Spina Bifida International Forum Speakers 0830-1045 Concurrent Breakout Sessions Concurrent Session 5: Paediatric Surgery and Urology Breakout Session Moderators: Dr. Ho Lap Yin (HK Urological Association, Hong Kong), Prof. Wang Jian (Paediatric Surgery, Suzhou), Dr. Michael Leung (Hong Kong) 0830-0845 The High Risk Bladder Dr Elizabeth Yerkes, 0845-0905 Diagnosis and Treatment of Neurogenic Bladder due to Spina Bifida: Zhengzhou Experience 0905-0920 An Audit of Urologic Management of Spina Bifida Clinic in Suzhou 0920-0935 Bowel management for social fecal continence in spina bifida patients Prof. Wen JianGuo, (First Affiliated Hospital of Zhengzhou University, Zhengzhou) Dr. Xia Hong Liang, (Soochow University Affiliated Children s Hospital, Suzhou) Dr. Jayant Radhakrishnan (St Matthew Lutheran Home, Illinois, USA) 0935-1015 Management of Incontinence Dr Elizabeth Yerkes, 1015-1030 Management of the adult spin bifida patient Dr. Ho Lap Yin (Hong Kong) 1000-1045 Round Table Discussion Case Presenters: Dr. Xia Hong Liang, Dr. Peter Yip Discussants: Dr Elizabeth Yerkes, Dr. Jayant Radhakrishnan, Prof. Wen JianGuo, Dr. Michael Leung, Dr. Lawrence Lan, Dr. Peter Yip, Prof. Zhou Yun Moderator: Dr. John Ngan Concurrent Session 6: Neurosurgery Breakout Session Moderators: Dr. Chen Min (Neurosurgery, Suzhou), Dr. YC Po (HK Society of Neurological Surgery, Hong Kong) 0830-0915 To Shunt or Not to Shunt? Dr. Robin Bowman, 0915-1000 Topic to be confirmed Dr. Chandra Shekhar
1000-1030 Local data HKNS Concurrent Session 7: Physiotherapy Workshop Moderators: Mr. Samson Kwong Mayanil, 0830-0930 Role of Physiotherapists Ms. Nicole Hroma, 0930-1030 Muscle Group Charting Ms. Nicole Hroma, Concurrent Session 8: Orthopaedic Breakout Session Moderators: Prof. Wang Xiao Dong (Orthopaedics, Suzhou), Dr. Evelyn Kuong, Dr. Fong Chi Ming (Paediatric Orthopaedic Chapter of the Hong Kong Orthopaedic Association) 0830-1030 1. General talk about functional levels, gait analysis and braces (30 min) 2. The orthopedic approach to hip subluxation and dislocation (20 min) 3. Crouch gait and rotation deformities (30 min) 4. Foot deformities (30 min) 5. Adult Spina Bifida (10 min) Dr. Luciano Dias, Concurrent Session 9: Paediatric Breakout Session Moderators: Dr. Sam Yeung (Senior Council Member and Convenor, Child Neurology Conference, Hong Kong), Prof. Li Xiazhong (Chief of paediatric nephrology, Suzhou), Dr. Eddie Cheung 0830-0900 A teenaged spina bifida case with psychological issue Dr. Jasper Chin-pang Chow (HKCNDP) 0900-1030 Round Table: Role of pediatricians in caring spina bifida children Moderator: Dr. Eddie Cheung (MedArt) Prof. Li Xiazhong (Suzhou), Dr. Sam Yeung, Dr. Chow Chin Pang, Dr. Mark Chan (MedArt), Concurrent Session 10: Habilitation Breakout Session Moderators: Prof. David McLone 0830-0900 Growing up with spina bifida: a parent perspective HK Spina Bifida Association 0900-0930 The Spina Bifida Association: a support group for patients, families and healthcare workers HK Spina Bifida Association 0930-1000 Spina Bifida in China: Perspective of field workers International China Concern 1000-1030 Camp Independence: American perspective Prof. David McLone
1045-1100 Tea Break Concurrent Session 11: Bring Home Message Moderators: Dr. John Ngan, Prof. David McLone (Northwestern University, 1100-1110 Choir 1110-1115 Convocation: Prayer for the Children and the Healer 1115-1120 Welcome Back/Announcements Dr. John Ngan 1120-1130 Paediatric Dr. Sam Chak-Ming Yeung (The Hong Kong Society of Child Neurology and Developmental Paediatrics) 1130-1140 Neurosurgery Dr. Chen Min (Suzhou) 1140-1150 Urology Prof. Zhou Yun (Paediatric Urology, Suzhou) 1150-1200 Paediatric Surgery Dr. Michael Leung (Queen Elizabeth Hospital) 1200-1210 Orthopaedic Dr. Evelyn Kuong 1210-1220 Physiotherapy Mr. Samson Kwong 1220-1230 Habilitation Mr. Alan Young (Spina Bifida Association, Hong Kong) 1230-1240 Closing (Presentation of Souvenir & Group Photo) Day 3 26 th September (Monday) Travel to Suzhou Day 4 27 th September (Tuesday) Time Spina Bifida International Forum Speakers Session 13: Suzhou Forum (conducted in Chinese and English) Moderators: To be confirmed 0820-0830 Welcome Soochow Universoty Affiliated Children s Hospital 0930-0900 Spina Bifida (Prognosis-From Neurosurgery, Health Policy to Camp Prof. David McLone
Independence) 0900-0930 Management of Children with Spina Bifida from Infancy to Adulthood 0930-1030 Tethered Spinal Cord Multi-disciplinary Evaluation and Diagnosis Dr. Robin Bowman, Dr. Elizabeth Yerkes, Dr. Robin Bowman, Dr. Luciano Dias, 1030-1045 Tea Break 1045-1115 The Multidisciplinary Spina Bifida Clinic Prof. Timothy Brei (University of Washington & Spina Bifida Association, USA) 1115-1145 Management of Urinary Incontinence in Spina Bifida Children Dr. Elizabeth Yerkes, 1145-1215 Role of an Orthopaedic Surgeon in Follow-Up and Preservation Functions: An Introduction Dr. Luciano Dias, 1215-1245 Dr. Chandra Shekhar Mayanil 1245-1400 Lunch Session 14: Simulated Spina Bifida Clinic (conducted in Chinese and English) Moderators: Prof. Zhou Yun, Dr. John Ngan, Dr. Eddie Cheung Panel Discussants: Dr. Robin Bowman, Dr. Elizabeth Yerkes, Dr. Luciano Dias, Prof. Timothy Brei (University of Washington & Spina Bifida Association, USA) & Ms. Nicole Hroma 1400-1500 Patient Review (Paediatric, Neurosurgery, Orthopaedic, Urology & Physiotherapy) 1500-1530 Case Discussion 1 1530-1600 Case Discussion 2 1600-1630 Case Discussion 3 1630-1700 Case Discussion 4 1700-1715 Agreement Signing Ceremony