Contents: Approval of the Epilepsy Resolution Annual Symposium: Save the date Regional visits Challenges Please support our Tax Appeal Purple Ball - Date claimer What's On... Are you a financial member? Entertainment Books are here Farewell team members Approval of the Epilepsy Resolution by the World Health Assembly: A Historical Landmark Tuesday 26 May 2015, will be remembered as a historical date for all of us. On that date, the World Health Assembly approved the World Health Organization Resolution on the Global Burden of Epilepsy, which calls for member states to: strengthen effective leadership and governance to address the specific needs of people with epilepsy, and make resources available as necessary to implement evidence-based plans and actions; introduce and implement national health care plans of action for epilepsy management, aiming to overcome inequalities and inequities in health, social 1
What's On.... and other related services; Understanding Epilepsy Workshops - Brisbane 16 July 20 August 10 September 22 October 26 November integrate epilepsy management into primary health care where appropriate to reduce the treatment gap, by training non-specialist health care providers and by empowering people with epilepsy and their caregivers for greater use of specified self and home care programmes; Understanding Epilepsy Workshops - Gold Coast 5 August 14 October 25 November Regional Visits Cairns - 22 July Rockhampton - 6 August Townsville - 4 September Ballina - 8 October improve accessibility to and promote affordability of safe, effective and quality-assured antiepileptic medicines; ensure public awareness of and education about epilepsy, in particular in primary and secondary schools, to help to reduce the misconceptions, stigmatization and discrimination regarding people with epilepsy and their families; Brisbane Adult Support Group 15 August 28 November promote actions to prevent causes of epilepsy, using evidence-based interventions; Northside Brisbane Support Group 26 August 18 November improve investment in epilepsy research and increase research capacity; Parents/Carers of Children with Uncontrolled Epilepsy Support Group 21 August 27 November For further information, please contact Epilepsy Queensland on 07 3435 5000. engage with civil society and other partners in these actions. For further information: http://www.ilae.org/visitors/policy/who-epilepsy.cfm Epilepsy Queensland will continue to work towards and advocate for wider adoption of these critical strategies for the benefit of people with epilepsy and their families. Your tax deductible donation will make a difference! Click here to donate online securely. Save the date Our annual Out of the Box symposium is on again with the date set for Friday 20 November. This year we are very fortunate to have international keynote speaker Professor Helen Cross OBE. 2
Helen will be addressing improving outcomes in early onset epilepsy. She will be joined by a host of local and interstate speakers as we examine the theme of epilepsy through the lifespan. Are you a financial member of Epilepsy Queensland? Avoid disappointment, click here to register early or phone 07 3435 5000 or 1300 852 853 (Regional Queensland). Do you receive a copy of our quarterly flame magazine? Want to read the latest epilepsy news and hear what s happening? If you are a financial member, you have the choice of it being mailed or emailed to you. Just one of the many benefits of being an Epilepsy Queensland member! Our members are very important to us as they add their voices to others to strengthen our efforts to educate the community and advocate for people with epilepsy. Visiting a town near you Together we can make a difference! To join or re-new your membership, please click here to download a membership form. To check that you are a current financial member and for more information, please email member@epilepsyqueensland.com.au or phone 07 3435 5000 or 1300 852 853 (Regional Queensland). Epilepsy Queensland took their Understanding Epilepsy and Administration of Midazolam to Roma this month. School teachers, parents of children with epilepsy, nurses, as well as some allied health professionals all found the training beneficial. The services team from EQI was delighted to be in Roma again, meeting up with some members and also enjoying the hospitality of the Maranoa region. We will be visiting Cairns, Rockhampton, and Townsville in the coming months. Don t miss out on attending a workshop, click a button below to download your registration form now... Please click here for more information on upcoming EQI events across Queensland. Up for a challenge? Recently a number of people went the extra mile literally 3
to support Epilepsy Queensland. Through the City2South Run in Brisbane and the Ironman Cairns, we were honoured to be the beneficiary of their fundraising endeavours leading up to their events. A huge thank you to Angela who travelled to Cairns to compete in a half Ironman Triathlon. The proud Toowoomba Mum of 8 year old Meg not only finished a 1.9km swim, 90km bike ride and 21.1km run, but also managed to smash her goal of raising $10,000 through her everyday hero fundraising page. Did you know that most events like the Bridge to Brisbane, City2South, Gabba Stampede, Colour Run etc, allow you to choose the charity you want to fundraise for? It s a fantastic way to help Epilepsy Queensland and raise awareness of epilepsy. So if you can walk 5kms or really want to challenge yourself keep Epilepsy Queensland in mind when you register. We are happy to provide you with some helpful hints and advice on how to maximum your fundraising endeavours too! Here is the link to register for the 2015 Bridge to Brisbane to be held on Sunday 30 August hint hint hint! Epilepsy Queensland has a team in this year and we would love for you to join us Epilepsy Queensland Team #42894. You can also easily create your own fundraising page under our Epilepsy Queensland B2B 2015 Team. Please support our annual Tax Appeal It s tax time! Please keep Epilepsy Queensland in mind if you are making end of financial year tax deductible donations. There are a number of easy ways to donate: Phone 07 3435 5000 with your credit card details We would also like to sincerely thank 12 year old Bryanon s Mum and Aunt for joining the epilepsy-bee-gone City2South team. Wearing purple ribbons and antennas, they certainly brought attention to epilepsy awareness on the day! To electronically transfer funds please phone or email to obtain our bank account details, or click here to donate online securely Post a cheque (made payable to Epilepsy Queensland) to P O Box 1457 Coorparoo BC QLD 4151. 4
The NEW Entertainment Books are here! The new Memberships are available now and packed with thousands of up to 50% off and 2- for-1 offers. For just $65, you'll receive over $20,000 worth of valuable offers. From every Entertainment Book and Entertainment Digital Membership we sell, $13 goes towards helping us reach out to more people and families living with epilepsy! The more Memberships we sell, the more people we help - so please forward this email to your family and friends. Click here TO ORDER ONLINE NOW! Date Claimer Purple Ball 2016 After the wonderful success of Epilepsy Queensland s inaugural Brisbane Purple Ball earlier this year, it is with great excitement that we can announce the date for 2016. Please mark your diary on Saturday 27 February 2016 to join us on a remarkable night out, raising not only much needed funds but also awareness about epilepsy and Epilepsy Queensland. For reservations and sponsorship enquiries please contact Leigh at lgilbert@epilepsyqueensland.com.au. Farewell and thank you Epilepsy Queensland services team sadly says farewell to both Charlene Mundy and Lois Trudinger. We wish them both well in their new positions and will miss them greatly. P 07 3435 5000 or 1300 852 853 (outside Brisbane) F 07 3435 5025 E enews@epilepsyqueensland.com.au W www.epilepsyqueensland.com.au Postal address Epilepsy Queensland PO Box 1457, Coorparoo BC Q 4151 ABN 42 025 269 961 To ensure our newsletter always reaches your Inbox, please add enews@epilepsyqueensland.com.au to your address book. If you prefer not to receive electronic news from Epilepsy Queensland in the future, you 5