in+care Campaign: Improving Retention in HIV Care

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in+care Campaign: Improving Retention in HIV Care Michael Hager, MPH, MA Manager of Technical Assistance National Quality Center of the New York State Department of Health AIDS Institute Office of the Medical Director

Disclosures None of the authors has any conflicts of interest related to the content of this presentation. 2

3 The in+care Campaign is designed to facilitate local, regional and state-level efforts to retain more HIV patients in care and to prevent HIV patients falling out of care while building and sustaining a community of learners among Ryan White providers.

Methods Prospective analysis of participant-submitted sequential cross-sectional data of the measures Entry into online database with instantaneous benchmarking capability Enhanced reports generated by NQC staff once data are validated. Analysis by organizational caseload size Analysis by organizational type Analysis by consistency of submission And much, much more! 4

Limitations All data are reported by participating sites Data collections and methods vary by reporting entity and RW Part Data were not complete from all facilities due to missing info Patient counts are not unduplicated This analysis includes RW grantee, sub-grantee and non-grantee participants data 5

Creating in+care Campaign Measures Developed by a Technical Working Group chaired by Drs. Bruce Agins and Laura Cheever Diverse educational, professional, experiential backgrounds All are viewed as experts in HIV retention Measures have received national recognition since their design Three were endorsed by Dr. Kathleen Sebelius for HHS universal reporting of HIV services Three were endorsed by NQF and have become HAB core measures 6

in+care Campaign Performance Measures Viral Load Suppression HIV Medical Visit Frequency Gap in HIV Medical Visits Percentage of patients, over the age of 24 months, with a diagnosis of HIV/AIDS with a viral load less than 200 copies/ml at last viral load test during the measurement year Percentage of patients, over the age of 24 months, with a diagnosis of HIV/AIDS who had at least one medical visit with a provider with prescribing privileges in each 6 month period of the 24 month measurement period with a minimum of 60 days between medical visits Percentage of patients, over the age of 24 months, with a diagnosis of HIV/AIDS who did not have a medical visit with a provider with prescribing privileges in the last 180 days of the measurement year Patients Newly Enrolled in Medical Care 7 Percentage of patients, over the age of 24 months, with a diagnosis of HIV/AIDS who were newly enrolled with a medical provider with prescribing privileges who had a medical visit in each of the 4 month periods in the measurement year

Percent Mean Performance Over Time 80 70 60 50 40 30 20 10 0 Measure 1: Gap Measure* Measure 2: Medical Visit Frequency Measure 3: Newly Enrolled Patient Retention Measure 4: Viral Load Suppression *inverse measure where low scores are better scores 8

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Campaign Data Submissions through 12/13 Total Number of Organizations Submitting Data Average Number of Submissions per Organization (SD) Gap Measure 273 8.7 (4.2) Visit Frequency 244 8.5 (4.1) New Patient 258 8.8 (4.0) Viral Suppression 272 8.7 (4.2) 13

Discussion Partnerships around data systems Participant-to-participant HAB and other data system managers Improvement in all measures More improvement over time seen in lowest quartile at baseline than highest quartile CHC had higher levels of performance than hospitals or health departments Medium caseload had higher performance than low or high caseload organizations 14

Future Directions Campaign transition from active to sustaining phase Aims for continued performance measurement Streamline and automate data validation process Improve database for more user-friendly data entry Enhanced benchmarking ability for Campaign participants Analyze other measures for intermediary outcome evaluation Aims for continued improvement strategy collection New Sharelab application to better tie the intervention and performance measurement data 15

16 References

Acknowledgements National Quality Center Michael Hager Clemens Steinbock Hazel Lever Kevin Garrett Lori DeLorenzo John Snow, Inc. Karen Schneider Wendy Chow NYS AIDS Institute Bruce Agins Matthew Wetherell Alvin Thalappillil HRSA HIV/AIDS Bureau Marlene Matosky Tracy Matthews 17

18 Question & Answer

Michael Hager, MPH MA National Quality Center 212-417-4730 NationalQualityCenter.org Michael@NationalQualityCenter.org 19