Using routine data to estimate numbers of women with female genital mutilation / cutting in European countries

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Using routine data to estimate numbers of women with female genital mutilation / cutting in European countries Alison Macfarlane Division of Midwifery and Radiography, City University London Efua Dorkenoo Programme Director, End FGM/C Social Change Campaign, Equality Now and City University London and the Europeristat Group Project leader, Jennifer Zeitlin

Efua Dorkenoo 1949-2014

Definition Female Genital Mutilation / Cutting (FGM / C comprises all procedures that involve partial or total removal of the female external genitalia and/or injury to the female genital organs for cultural or non-any other non-therapeutic reasons (WHO 1995).

Female genital mutilation Undertaken in girls aged under 15 and mostly before the age of five. Adverse obstetric, gynaecological, psychosexual and psychosocial consequences An estimated over 25 million women affected in 29 practising countries. Also practised in migrant communities and increasingly found in western countries. Most practising countries and many western countries have legislation against it but this is difficult to enforce. Data about prevalence in European countries needed: To plan care for affected women To plan protection for girls born in practising communities and attempts to enforce legislation

Source: UNICEF: Female Genital Mutilation/Cutting: A statistical overview and exploration of the dynamics of change. 2013

WHO 1995 classification of FGM types I Excision of the prepuce, with or without excision of part of the clitoris II Excision of the clitoris with partial or total removal of the labia minora III Excision of part or all of the external genitalia and stitching/narrowing of the vaginal opening (infibulation) IV Practices including piercing, pricking and incising of the clitoris and/or labia, cauterisation by burning of the clitoris and surrounding vaginal orifice (angurya cuts) or cutting of the vagina to cause bleeding or for the purposes of tightening or narrowing it.

FGM country groups 1.1 Almost universal FGM, over 30% WHO Type III 1.2 High national prevalence of FGM, WHO Types I and II 2 Moderate national prevalence of FGM, WHO Types I and II 3 Low national prevalence of FGM, WHO Types FGM I and II Sudan (north), Somalia, Eritrea, Djibouti Egypt, Ethiopia, Mali, Burkina Faso, Gambia, Guinea, Sierra Leone Central African Republic, Chad, Cote D Ivoire, Guinea Bissau, Iraq (Kurdistan), Kenya, Liberia, Mauritania, Nigeria, Senegal, Togo Benin, Cameroon, Ghana, Niger, (Democratic Republic of Congo), United Republic of Tanzania, Togo, Uganda, Yemen

Indirect estimates of prevalence of FGM Use data on age specific prevalence from surveys in FGM practising countries: Demographic and Health Surveys (DHS) implemented by Macro International for USAID. Multiple Cluster Indicator Surveys (MCIS) undertaken by governments with help from UNICEF or other UN agencies. Apply to demographic data for countries to which women migrate: Population prevalence: Use data from population censuses or registers Prevalence at delivery and numbers of girls at risk: Use data from birth registration or birth registers.

Euro-Peristat Indicator R11 Mother s country of birth Data available Number of countries Mother s country of birth 19 Detailed 17 Grouped 2 Nationality 6 Ethnicity 3 Other 1 None 5

Updated estimates Used EuroPeristat data for 2010 More recent survey data from FGM practising countries Practice of FGM declining in some countries

Limitations Method assumes women who migrate are typical of population as a whole Unlikely, for example high proportion of graduates among migrants Migration of South Asians from Uganda, Tanzania and Kenya. Secondary migration: women of Somali ethnicity from Kenya, Eritrea, Netherlands and Nordic countries

Prevalence in practising countries varies by region Source: UNICEF: Female Genital Mutilation/Cutting: A statistical overview and exploration of the dynamics of change. 2013

Daughters of migrants Attitudes to FGM may change on migration, especially as practise is illegal and concerted efforts are being made to stop FGM Qualitative studies are likely to selectively recruit people whose attitudes have changed Some studies attempt to estimate risk to daughters. Study commissioned by European Institure for Gender Equality out soon estimates risk to girls.

Conclusions Directly collected data are needed to assess prevalence in the second generation but not easy to collect as the practice is illegal in most countries. Despite their limitations, these estimates suggest that the numbers of women living in some migrant communities with FGM are substantial. Action is needed to improve services for women who have undergone FGM to prevent FGM in the younger generation

Next steps Work with Euro-Peristat collaborators to improve estimates and obtain data to extend them to other countries