Nutrition and Living with Neuroendocrine Tumors:

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Nutrition and Living with Neuroendocrine Tumors: Leigh Anne Burns MS, LDN, RD Nutritionist LSUHSC New Orleans Ochsner Kenner Neuroendocrine Tumor Clinic

Objectives Identify recommendations for American including Cancer Survivors Identify problems and symptoms affecting the nutritional status of among patients living with NETs Provide information to improve the symptoms and complications related to foods and beverages consumed.

American Cancer Society (ACS) Guidelines on Nutrition and Physical Activity for Cancer Prevention Consume a healthy diet, with emphasis on plant sources If you drink alcoholic beverages, limit consumption Maintain a healthy weight throughout life Adopt a physically active lifestyle

Consume A Healthy Diet Choose foods and beverages in amounts that help achieve and maintain a healthy weight Eat 5 or more servings of fruits and vegetables Choose whole grains in preference to processed grains Limit consumption of processed and red meats

Consume A Healthy Diet Choose foods and beverages that help maintain a healthy weight When eating away from home, choose food low in fat, calories, and sugar and avoid large portions Eat smaller portions of high-calorie foods Substitute vegetables, fruits, and other low-calorie foods for calorie-dense foods

2 nd Expert report: Food, Nutrition, Physical Activity, and the prevention of cancer Recommendations Weight Management Diet Physical Activity Source: American Institute for Cancer Research @ www.aicr.org

American Institute of Cancer Research Recommendations for Cancer Surviviors

Keep An Eye On Portions

Anatomy of My Pyramid One Size Doesn t Fit All Activity Gradual Improvement Moderation Variety Personalization Proportionality

Nutritional problems Among Carcinoid Cancer patients Involuntary Weight loss Muscle mass reduced / Protein loss Reduction in amounts consumed and absorption of nutrients Decreases in patients immune system Decrease in control of bowel movements Reduction in QOL

Symptoms requiring dietary adjustments Carcinoid syndrome Flushing Fatigue Nausea Vomiting Diarrhea/ Steatorrhea Gas

Dietary intervention High protein High Calorie dense diet Dumping syndrome diet Altered fiber diet Low fat diet Diarrhea reducing diet Lactose free/ Gluten free Low tyramine diet FODMAP Diet ( Gassy Foods)

Reduce The Fat Instead of... Mayonnaise Butter, Oil in baking Eggs Fruit flavored yogurt Regular salad dressing Whole milk Substitute with... Reduced-calorie mayonnaise Applesauce Egg Whites Plain yogurt with fresh fruit Fat-free or reduced calorie dressing Reduced-fat or fatfree milk

Alterations to improve tolerances to foods Chew foods completely Chop or mash before eating Increase calorie and protein density Avoid foods associated with problems Eat smaller portions but increase frequency 6 small feedings daily Liquids adjust to meet tolerances but don t avoid

Adjust diet related to symptoms If diarrhea or gas Diet for diarrhea Rapid transit Post gastrectomy/dumping diet FODMAP diet (gassy foods) If nauseated Avoid red meats and fatty foods avoid smells and color in foods Use Low fat diet If constipated add insoluble fiber and fluids * Reference cooking with cancer Dr. Louis Pineda

Food Labels Look For... Serving Size Calories Fat Sodium Carbohydrates Dietary Fiber

Enteral Supplements Only replace when needed related to intake and absorption Standard Carnation instant breakfast, Ensure, boost, breeze Modular Juven, benecal, beneprotein, Medium Chain Triglycerides Specialty Partially elemental -Peptemen, elemental High protein vital, Stress, immune suppression, Maltodextrin/ Glucerna

Supplementing Vitamins, Minerals and other Multivitamin 100% Water Soluble Vitamins C and b complex Fat soluble vitamins Magnesium Calcium Herbal Not FDA approved

Medication for diarrhea symptoms Medication relax smooth muscle in small bowel and colon to decrease motility and increase time allowed for water reabsorption Lomotil Tincture of opiate Medication action increase water absorption by binding water Attupugite Kaopectate, donnagel, Polycarbophols, equadectin, konsyl fiber, polycarb

Monitoring Symptom relief Stabilized weight Normal protein markers Increase fat soluble nutrients Increase in food selection Increase in Quality of life

Activity 30 to 45 minutes daily Eat high protein foods low in fat sources when building muscle Adjust times of activity away from meals if diarrhea/ steatorrhea Increase activity if constipated

Nutrition: Making best choices considering symptoms If normal GI tract no symptoms follow AICR Cancer Survivor recommendations If symptomatic due to condition adjust diet to best fit your situation Remember everyone is different and may need special nutritional considerations

Identify Reliable Resources American Institute of Cancer Research National Cancer Institute American Cancer Society USDA Choose my Plate

Recipes resources Cooking with Cancer Dr. Pineda Betty Crocker Living With Cancer Food for the Fight ACIR Eating Well With Cancer

Tilapia with Curry and Orange Rice Makes 4 servings. Per serving: 375 calories, 12 g total fat (<1 g saturated fat), 39 g carbohydrate, 29 g protein, 3 g dietary fiber, 514 mg sodium. 3/4 cup long-grain brown rice 3/4 cup orange juice 1 cup water 3/4 tsp. salt, divided 1/4 cup sliced almonds, preferably toasted 2-4 tsp. mild curry powder 4 tsp. canola oil 4 (4-oz.) tilapia filets 1 navel orange 1/2 cup chopped scallions, green and white parts Freshly ground black pepper Directions Place rice and orange juice in medium saucepan. Add water and 1/4 teaspoon salt. Bring to boil over medium-high heat, cover tightly, reduce heat to simmer and cook until rice is tender, 45-50 minutes. Off the heat, let rice sit, covered, for 10 minutes. Fluff with fork, and set aside. While rice cooks, preheat oven to 400 degrees F. If almonds are not toasted, spread on baking sheet and bake for 5 minutes, or until golden, watching carefully as they will burn easily. Immediately transfer nuts to a plate and cool to room temperature. If nuts are already toasted, skip this step. In small bowl, mix together curry powder, oil and 1/2 teaspoon salt to make a paste. With brush, spread one-fourth of paste over each filet, coating lightly, and arrange seasoned filets on baking sheet in one layer. To peel orange, use paring knife to remove a thin slice from top and bottom. Standing fruit on a work surface, work knife blade along the curve of the fruit, removing peel and pith in strips. Cut orange horizontally into 8 slices. Arrange 2 slices on top of each filet. Bake fish for 7-10 minutes, or until it is white and flakes easily at thickest part. To serve, place one fish filet on each of 4 dinner plates. Mix almonds and scallions into Orange Rice, and season to taste with salt and pepper. Spoon one-fourth of rice onto each plate. If desired, add steamed broccoli raab or spinach, drizzled with a bit of extra virgin olive oil. Serve immediately.