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NIS Teen 2008 (The NIS is a list-assisted random-digit-dialing telephone survey followed by a mailed survey to children s immunization providers that began data collection in April 1994 to monitor childhood immunization coverage. Parents answer questions about children s vaccination histories) HPV RELATED QUESTIONS TIS_AHPV Have you ever heard of Human Papillomavirus or HPV? This is different from Human Immunodeficiency virus or HIV, which you may have heard of. YES... 1 TIS_AHPV_KNOWLEDGE NO.... 2 GO TO TIS_AHPV_KNOWLEDGE DON T KNOW... 77 TIS_AHPV_KNOWLEDGE REFUSED... 99 TIS_AHPV_KNOWLEDGE HPV VACCINE RELATED QUESTIONS TIS_AHPV_KNOWLEDGE The human papillomavirus is a common virus known to cause genital warts and some cancers, such as cervical cancer in women. A vaccine to prevent HPV infection is available and is called the cervical cancer vaccine, HPV shot, or GARDASIL. Before today, have you NSFG (Child-related questions asked to parents about their children) from document NSFG_2006-2008_Y3_FemaleH_CRQ [PDF - 92 KB] NHIS 2010 Child Survey Questionnaires (One sample child for each selected household is used. Individuals under 17 years of age cannot respond for themselves, a family member must do this.) CHP.010_00.000 QuestionText: Two vaccines, or shots, to prevent HPV infection are available in the United States. Both vaccines prevent cervical cancer and one also prevents genital warts. The two HPV vaccines are sometimes called CERVARIX or NSCH 2007 (The interviewer begins by asking how many children live in the household and the age of each person under 18 years old living in the household. After the initial screening is completed, a single child is randomly selected from households with one or more children, ages 0-17.) CHAMP 2010 NC-specific ~ 2000 RESPONDENTS Human papillomavirus (Human Pap uh loh muh Virus) or HPV can cause genital warts or certain cancers in both males and females. Two vaccines to prevent HPV infection are now available that some people call HPV shots, GARDASIL or Cervarix. I'll call it the HPV vaccine. HINTS (2007 Mail Instrument) *HINTS is a biennial, cross-sectional sample of American adults. It is conducted by phone and in 2007, additionally by mail. I8. Have you ever heard of HPV? HPV stands for Human Papillomavirus. It is not HIV, HSV, or herpes. Yes No Go to Question I12 **more knowledge questions shown on adult survey list I7. A vaccine to prevent HPV infection is available and is called the cervical cancer vaccine or HPV shot. Before today, have you ever heard of the cervical cancer vaccine or HPV shot? Yes No

ever heard of the cervical cancer vaccine, HPV shot, or Gardasil? YES... 1 NO... 2 DON T KNOW... 77 REFUSED... 99 GARDASIL. Before this survey, have you ever heard of HPV vaccines or shots? 7 Refused 9 Don't know K08Q01. Have you ever heard of the HPV vaccine? [ K08Q05] 7 Don t know/not sure [GO TO K08Q05] 9 Refused [ K08Q05] TIS_AHPV2 Looking at the shot record, please tell me how many times [TEEN] has received HPV shots? Shots... GO TO TIS_AHPV_DATE_X NONE... 0 TIS_AHPV_RECALL DON T KNOW... 77 TIS_AHPV_RECALL REFUSED... 99 DAUGHTVAC HF-6. Now I have a few questions about your (youngest) daughter who is currently between the ages of 9 and 18. Has she received the cervical cancer vaccine, also known as the HPV shot or Gardasil? w CODE [1] if R volunteers that she has had any of the 3 shots that comprise HPV vaccination. Yes...1 No...5 CHP.020_00.000 QuestionText: Did [fill: SC name]ever received an HPV shot or vaccine? 7 Refused 9 Don't know CHP.030_00.000 QuestionText: How many HPV shots did [fill: SC name] receive? *Enter '96' for all shots 01-50 1-50 shots 96 All shots 97 Refused 99 Don't know 18. The human papillomavirus is a common virus known to cause genital warts and some cancers, such as cervical cancer in women. A vaccine to prevent HPV infection is available and is called the cervical cancer vaccine. Has [CHILD S NAME] ever received any HPV shots? (K2Q83) (females ages 12-17 years) - Please tell me how many HPV shots [CHILD S NAME] has received. (K2Q84) (females ages 12-17 years) K08Q02. Did you hear about the HPV vaccine through (CHILD) s school? 7 Don t know/not Sure 9 Refused K08Q03. Has (CHILD) had any shots of the HPV vaccine? [ K08Q05] 7 Don t know/not sure [GO TO K08Q05] 9 Refused [ K08Q05] I12. A vaccine to prevent the human papillomavirus or HPV infection is recommended for girls aged 11-12 and is called the cervical cancer vaccine, HPV shot, or GARDASIL. If you had a daughter that age, would you have her get it? Yes Go to Question I13 No Not sure/it depends **hypothetical child

TIS_AHPV_RECALL CHP.035_00.000 QuestionText: How old was [fill: SC name] when she received her first HPV shot? 08-17 8-17 years 97 Refused 99 Don t know TIS_AHPV_DATE_X What is the date (on the record) for the [FILL VAR: (First/Second/...)] HPV shot? MONTH DAY YEAR DATE... / / DON T KNOW... REFUSED (1) IF FEWER THAN 2 DATES (INCLUDING DON'T KNOW OR REFUSED) PROVIDED SKIP TO TIS_AHPV_RECALL (2) ELSE SKIP TO TIS_AHPV_RECALL Did [TEEN] ever receive an HPV shot that is not on the shot record? YES... 1 TIS_AHPV_DOSE NO... 2 TIS_AHPV_INTENT DON T KNOW... 77 GO TO TIS_ AHPV_INTENT REFUSED......99 TIS_ AHPV_INTENT TIS_AHPV_DOSE How many HPV shots did [TEEN] receive that are not on the shot record?

Shots... All Shots... 50 DON T KNOW... 77 REFUSED... 99 GO TO TIS_AHPV_INTENT How likely is it that [TEEN] will receive HPV shots in the next 12 months? Very Likely... 1 Somewhat Likely... 2 GO TO Not too likely... 3 GO TO TIS_AHPV_REASON Not likely at all... 4 TIS_AHPV_REASON Not Sure/ Don t Know... 77 TIS_AHPV_REASON RefusedTIS_AHPV_REASO N DAUGHTPRB HF-7. How likely is it that she will receive the HPV shot in the next 12 months? Very likely...1 Somewhat likely...2 Not too likely...3 Not likely at all...4 Has a doctor or other health care professional ever recommended that [TEEN] receive HPV shots? YES... 1 NO... 2 DON T KNOW... 77 REFUSED... 99

CHP.040_00.000 QuestionText: If [fill SC name] s doctor recommended the HPV vaccine, would you have her get it? 7 Refused 9 Don't know TIS_AHPV_REASON What is the MAIN reason [TEEN] will not receive HPV shots in the next 12 months? [MULTIPLE RESPONSES ARE ALLOWED] Provider did not Recommend... 1 Vaccine is not needed or not necessary... 2 Knowledge Did not know much about HPV or HPV vaccine... 3 Not Sexually Active... 5 Child not appropriate age..6 Other: specify... 9 Don t Know... Refused... 99 (1) IF Response includes 9 THEN TIS_AHPV_OTHER (2) ELSE IF Response includes 1 THEN (3) ELSE (Response does not include 1 and/or 9) THEN 27 Appendix B TIS_AHPV_OTHER Other Reason: DAUGHTWHY HF-8. Please look at Card 74c. What is the main reason your (youngest) daughter who is currently 9 to 18 years old is not likely to get the HPV shot in the next 12 months? [SHOW CARD 74c] [HELP AVAILABLE] I don t know enough about HPV...1 I don t know enough about the HPV vaccine...2 My provider has not recommended it for her...3 She is not at risk for HPV and doesn t need the vaccine...4 She is too young for the vaccine...5 I am concerned about safety or side-effects...6 The vaccine is not effective...7 The vaccine costs too much/is not covered by insurance...8 The vaccine is not available in my provider s office...9 I am concerned about the HPV vaccine leading to CHP.050_00.000 QuestionText: What is the MAIN reason you would NOT want to get the vaccine? UniverseText: All female sample adults age 8+ who would not get the HPV vaccine if her doctor recommended it or who said don t know to this information. 1 Does not need vaccine t sexually active 3 Too expensive 4 Too young for vaccine 5 Doctor didn t recommend it 6 Worried about safety of vaccine 7 Don t know where to get vaccine 8 My spouse/family member is against it 9 Don t know enough about the vaccine 10 Already has HPV 11 Other 12 Refused 13 Don t know K08Q04. What is the MAIN reason (CHILD) has NOT received the HPV vaccine? [NOTE: If needed, say: The main reason is the most important reason. ] [Read 1-11 only if necessary.] 1 Haven t been to the doctor recently 2 Health care provider did not recommend / didn t know child needed it 3 Vaccine not available in provider s office 4 Provider said child should not get the vaccine 5 Vaccine costs too much or is not covered by insurance 6 Concerns about vaccine safety or side effects 7 Don t believe child needs the vaccine 8 Don t know enough/need more information 9 Health care provider recommended a medical exemption (medical reason for not getting shot) 10 Because of religious reasons 11 Child too young I12a. What is the main reason you would not have her get it? Mark only one. She doesn't need the vaccine or shot My child is not sexually active It is too expensive She is too old for the vaccine My child's doctor has not recommended it I am worried about the safety of the vaccine I don't know where to get it My spouse/family member is against it I don't know enough about the vaccine She already has HPV Other Please specify below: *hypothetical child

(1) IF TIS_AHPV_REASON includes 1 THEN (2) ELSE IF TIS_AHPV_REASON does not include 1 THEN sexual activity...10 Other specify...20 CHP.070_00.000 QuestionText: The cost of the vaccine may be about $360-$500. Would you have [fill: SC name] get the HPV vaccine if you had to pay this amount? 7 Refused 9 Don't know NAF.229_03.000 QuestionText: If [fill: SC name] could get the HPV vaccine free or at a much lower cost, would you have her get it? 7 Refused 9 Don't know 12 Other (Specify: K08Q04ot) 77 Don t know/not sure 99 Refused NC Proposed add-ons for 2011: 3. How likely are you to get the HPV vaccine for [CHILD] in the next 12 months? Would you say you definitely won't, probably won't, probably will, or definitely will? 1 Definitely won t [SKIP TO Q10] 2 Probably won t 3 Probably will

4 Definitely will 7 Don t know, not sure 9 Refused 4. If you and (CHILD) HPV vaccine, how comfortable would you be with (him/her) getting it at (his/her) school if they offered it in a nurse's office? Would you say very comfortable, somewhat comfortable, not sure, somewhat uncomfortable or very uncomfortable? 1 Very comfortable 2 Somewhat comfortable 3 Not sure 4 Somewhat uncomfortable 5 Very uncomfortable 7 Don t know/not sure 9 Refused 5. If you and (CHILD) HPV vaccine, how comfortable would you be with (him/her) getting it at a local pharmacy or drug store? Would you say very comfortable, somewhat comfortable, not sure, somewhat uncomfortable or very uncomfortable? 1 Very comfortable 2 Somewhat comfortable 3 Not sure 4 Somewhat uncomfortable 5 Very uncomfortable 7 Don t know/ not sure 9 Refused 6. If you and (CHILD)

HPV vaccine, what concerns would you have about him/her getting it at (his/her) school? [Check all that apply. Read 1-10 only if necessary.] 1 Insurance might not cover it 2 Staff might not be good at giving shots 3 It's not safe to get shots there 4 The wrong people at the school might get access to his medical records 5 Schools should not provide vaccines 6 I want my child s doctor to keep track of their shots and other health history 7 I'd want to be there when my child got it 8 Getting it there would embarrass my child 9 Other students might find out that my child got it 10 No concerns 11 Other, please specify: 77 Don t know/ not sure 99 Refused 7. If you and (CHILD) HPV vaccine, what concerns would you have about (him/her) getting it at a local pharmacy or drug store? [Check all that apply. Read 1-10 only if necessary.] 1 Insurance might not cover it 2 Staff might not be good at giving shots 3 It's not safe to get shots

there 4 It's not the school's business to worry about health issues 5 Schools should not provide vaccines 6 I want my child s doctor to keep track of their shots and other health history 7 I'd want to be there when my child got it 8 Getting it there would embarrass my child 9 Other students might find out that my child got it 10 No concerns 11 Other, please specify: 77 Don t know/ not sure 99 Refused 8. If you and (CHILD) HPV vaccine, what benefits do you see of (him/her) getting it at (his/her) school? Check all that apply. 1 = It would be convenient / I wouldn't have to make a special trip 2 = It would be less expensive 3 = It's safe to get shots there 4 = Staff would be good at giving shots 5 = I would know the people giving my child the vaccine 6 = My child would be comfortable getting it there 7 = My child could go with their friends to get it 8 = All students would have the chance to get the vaccine 9 = No benefits 10 = Other, please specify:

9. If you and (CHILD) HPV vaccine, what benefits do you see of (him/her) getting it at a local pharmacy or drug store? Check all that apply. 1 = It would be convenient / I wouldn't have to make a special trip 2 = It would be less expensive 3 = It's safe to get shots there 4 = Staff would be good at giving shots 5 = I would know the people giving my child the vaccine 6 = My child would be comfortable getting it there 7= My child could go with their friends to get it 8 = A lot of people would have the chance to get the vaccine 9 = No benefits 10 = Other, please specify: 10. State lawmakers are considering a law that would let people get most vaccines at properly licensed pharmacies. How much would you support North Carolina passing such a law? Would you say not at all, a little, a moderate amount, or a lot? 1 Not at all 2 A little 3 A moderate amount 4 A lot 7 Don t know for sure 9 Refused