Membership of Dementia Guideline Committee The Committee will operate as an advisory Committee to NICE s Board, developing a clinical guideline on Dementia The terms of reference and standing orders for the Committee can be found in appendix D of Developing NICE guidelines: the manual. The Committee has 19 members, to include 16 core members and 3 topic expert members. The sub group 7 members. 1
Agreed Constituency Chair Name Job Title, Organisation Chair Damien Longson Liaison Psychiatrist, Greater Manchester Mental Health Core members / Members Geriatrician Psychologist Mental Health Nurse Occupational Therapist Lay member Allan Linda Clare Richard Clibbens Carol Duff Paul Dunnery Resigned November 2016 Geriatrician, Nurse, Wakefield Memory Service, South West Yorkshire Partnership NHS Occupational Therapist, Older Adults Specialist Mental Health Services, Lincolnshire Partnership NHS Lay member, organisation (Alzheimer s Society) Comment 2
Psychiatrist Commissioner Commissioner Admiral Nurse Speech and Language Therapist Sandra Evans Wayne Goddard From March 2017 Kim Grosvenor From March 2017 Karen Harrison Dening Hannah Luff Psychiatrist and Lecturer in Psychiatry, St Bartholomew s Hospital, London Head of Strategy and Delivery Integrated Dementia Lead, Doncaster CCG Senior Manager Dementia Transformation, HWLH CCG Head of Research & Publications, Admiral Nurse, Dementia UK Lead Speech & Language Therapist, South London and Maudsley NHS Lay member Kevin Minier Lay member carer for a person with dementia Psychiatrist Care Home Manager John O Brien Ruth O Dea Old Age Psychiatry, Care Home Manager, Somerset Redstone Lay member Chris Roberts Lay member person with dementia GP Primary Care and 3
Ageing, Social Worker Tracy Wright (Social Worker) Directorate Manager HMR Integrated Teams, Pennine Acute Co-opted Committee Members Palliative Care Neurologist Commissioner Community Matron Commissioner Joanne Brady Jeremy Isaacs Kate Mitchell Resigned November 2016 Sarah Partington Catherine Pascoe Resigned October 2016 in Palliative Medicine, Royal Free London NHS and North London Hospice Neurologist and Dementia Lead, St George s Hospitals NHS Commissioner and Programme Lead for Long Term Conditions, NHS Kernow Community matron, ANP complex care, Bradford District Care NHS Commissioning Manager Adult Services, Hampshire County Council Social Care sub group (from November 2016) Chair Tracy Wright (Social Worker) Directorate 4
Home care provider Belinda Black Manager HMR Integrated Teams, Pennine Acute Chief Executive, Sheffcare Practice Manager Sally English Practice Manager, East Sussex County Council Lay member Maggie Murdoch Lay member carer for a person with dementia Care Home Manager Social care provider Independent Mental Capacity Advocate Ruth O'Dea Pauline Shaw Ben Williams Date last reviewed: 18/10/2017 Care Home Manager, Somerset Redstone Director of Care & Service Development, The Royal Star & Garter Homes, West Midlands Practice Excellence Advisor, Genesis Housing Association 5
Declaration of Interests The effective management of conflicts of interests is an essential element in the development of the guidance and advice that NICE publishes. Please refer to the NICE website for the Policy on Conflicts of Interest. Name Damien Longson Chair Damien Longson Chair Allan Joanne Brady Linda Clare Job title, organisation Liaison Psychiatrist, Greater Manchester Mental Health Liaison Psychiatrist, Greater Manchester Mental Health Geriatrician, in Palliative Medicine, Royal Free London NHS and North London Hospice Declarations of Interest, date declared July 2015 Director of R&I for Manchester Mental Health & Social Care Family member of NICE employee Chair of British Psychological Society advisory group on dementia 6 Type of interest [,,, Decision taken
Linda Clare Linda Clare Linda Clare October 2015 IDEAL study lead. A longitudinal cohort study of the experiences of people with dementia and carers. Funded by ESRC and NIHR. Study commenced 2014. October 2015 The NIHR HTA funded GREAT trial lead. A multi-centre RCT, of individual goal-oriented cognitive rehabilitation for people with earlystage Alzheimer s, vascular or mixed dementia. Funded by NIHR HTA. Pilot published 2010. Study commenced in 2013. October 2015 Received royalties for a book, Neuropsychological Rehabilitation for People with Dementia published in 2008.,,. To note that the book in question is a manual of a range of neurophsychological rehabilitation techniques for people with dementia and as such does not promote any individual technique or approach. Linda Clare October 2015 Participating in the International Federation on Aging Global Think Tank (October 2015) and Global Summit (April 2016) on the theme of reablement and. Non 7
Linda Clare Linda Clare Linda Clare Linda Clare rehabilitation for people living with dementia. Expenses only paid. July 2017 The SMART study, a pilot RCT of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings. Published 2016. Trial funded by National Institute for Social Care and Health Research Wales. July 2017 RCT, on the effect of cognitivelystimulating activities for the symptom management of delirium superimposed on dementia. Published 2016. Study led by Penn State, organization received funding from the study. July 2017 AwareCare: a pilot RCT of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings. Published 2013. Funded by MRC October 2017 Grant received from Alzheimer s Society 8,,,, non-
Linda Clare Richard Clibbens Belinda Black Carol Duff Nurse, Wakefield Memory Service, South West Yorkshire Partnership NHS Chief Executive, Sheffcare Occupational Therapist, Older Adults Specialist Mental Health Services, Lincolnshire Partnership NHS for research project schedule to commence January 2018, on maintaining independence through goal-oriented cognitive rehabilitation: GREAT into Practice (GREAT-iP). No direct payment received. October 2017 Grant from Alzheimer s Society, research project, Improving the experience of dementia and enhancing active life: a longitudinal perspective on living well with dementia (the IDEAL-2 study). To start January 2018. No direct payment received. 9,
Paul Dunnery Resigned November 2016 Sally English Sandra Evans Sandra Evans Wayne Goddard (From March 2017) Wayne Goddard (From March 2017) Lay member, organisation (Alzheimer s Society) Practice Manager, East Sussex County Council Psychiatrist and Lecturer in Psychiatry, St Bartholomew s Hospital, London Psychiatrist and Lecturer in Psychiatry, St Bartholomew s Hospital, London Head of Strategy and Delivery Integrated Dementia Lead, Doncaster CCG Head of Strategy and Delivery Integrated Dementia Lead, Doncaster CCG Employed as Operations Director with the Alzheimer s Society October 2015 Author of several articles on the psychoanalytic aspects of dementia October 2015 Financial involvement in a lavender farm that produces essential oils. January 2017 ee of local Dementia Charity DonMentia September 2017 Commissioned by Life Story Network to review and refresh the Lets Respect and Do You See Me resource. This resource aims to raise the awareness and understanding of dementia, delirium and depression in the older adult. The new resource 10,, Specific, Declare & but excluded from any future meetings considering use of essential oils Declare &. The resource provides generic advice and support based on best practice across the care home sector and does not promote or endorse any particular intervention.
will refer to NICE CG and QS regarding the three areas of focus. 11
Kim Grosvenor (From March 2017) Senior Manager Dementia Transformation, HWLH CCG March 2017 Brighton and Sussex Medical School Dementia Fellowship member (September 2016 February 2017) non Kim Grosvenor (From March 2017) Senior Manager Dementia Transformation, HWLH CCG March 2017 Developed a new model of Dementia care HWLH CCG including a lead role in any commissioning of the model. Any decision around commissioning is made by the CCG s Governing Body and will be held in public. non Kim Grosvenor (From March 2017) Senior Manager Dementia Transformation, HWLH CCG Prime Minister s Rural Dementia Task and Finish Group contributor and in particular, the recommendations associated with the PM s Charter. non Karen Harrison Dening Head of Research & Publications, Admiral Nurse, Dementia UK Twice yearly dementia & end of life care lecturer for NAPP Education. Honorarium paid. These lectures are educational and based on current practice/guidance. Funding is provided by NAPP a noncommercial, patient partnership organisation supported by the RC DH amongst others. Jeremy Isaacs (Co-opted member) Neurologist and Dementia Lead, St George s Hospitals NHS Principle investigator on a clinical trial of a new Alzheimer s disease drug (Lupin Pharmaceuticals). Funding paid directly to employing hospital in-line with standard non 12
Jeremy Isaacs Jeremy Isaacs Jeremy Isaacs Jeremy Isaacs Neurologist and Dementia Lead, St George s Hospitals NHS Neurologist and Dementia Lead, St George s Hospitals NHS Neurologist and Dementia Lead, St George s Hospitals NHS Neurologist and Dementia Lead, St George s Hospitals NHS NHS R&D template. October 2015 Remunerated ly market research interview (with GfK Market Access) on future, currently unlicensed, treatments for Alzheimer s Disease and Dementia with Lewy Bodies. For the purposes of the market research participants were blinded from knowing which pharmaceutical company produced the unlicensed drugs. October 2015 An unpaid member of a committee that advises Young Dementia UK s Young Dementia Network on prediagnosis, diagnosis & post diagnostic support December 2016 Travel expenses and hospitality from Alzheimer s South Africa for lectures on general dementia January 2017 Principal Investigator for the CREAD clinical trial of Crenezumab versus placebo for prodromal and mild Alzheimer s disease. Commercial study sponsored by Roche. 13 non,,
Jeremy Isaacs Hannah Luff 1 * Kate Mitchell Resigned November 2016 Neurologist and Dementia Lead, St George s Hospitals NHS Lead Speech & Language Therapist, South London and Maudsley NHS Commissioner and Programme Lead for Long Term Conditions, NHS Kernow Received no remuneration. April 2017 Principal Investigator (from March 2017) for a clinical trial, on the treatment of insomnia in Alzheimer s disease, testing the drug Suvorexant. The trial is sponsored by Merck. St Georges NHS s receives funding for the trial. No direct payment received. Wrote a chapter of a book on speech therapy and the Mental Capacity Act. No payment received (published) September 2015 Paid consultancy work for Point of Care (POCF) to undertake scoping work focused on training needs for people with dementia and their carers Apr-sept 2014. This was followed up with further consultancy work to support development of peer engagement and support, plus training packages, for people with dementia and their carers Apr15 through into 2017.,,, 1 Resigned from the, Dementia and their carers (update) Guideline, subgroup, May 2017 14
Kevin Minier Maggie Murdock John O Brien John O Brien John O Brien John O Brien John O Brien Lay member carer for a person with dementia Lay member carer for a person with dementia Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Symposia speaker (GE Healthcare) Paid consultancy work (Lilly) relating predominantly to Amyloid imaging technology used in dementia. Data safety & Monitoring Board Member (both Axona and TauRx). Remuneration is paid to the. Active research grant from Lilly, paid directly to, for the AMPLE study. Research co-funded and led by NIHR. September 2015 Membership of the British Association of Psychopharmacology (BAP) Guidelines Group for antidementia drugs, with the exception of where evidence relating to Amyloid imaging is discussed and / or associated recommendations drafted. John September 2015 15
O Brien John O Brien John O Brien John O Brien John O Brien Ruth O Dea Sarah Partington Catherine Pascoe Resigned October Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Old Age Psychiatry, Care Home Manager, Somerset Redstone Community matron, ANP complex care, Bradford District Care NHS Commissioning Manager Adult Services, Hampshire Alzheimer s Research UK Scientific Board Member September 2015 Alzheimer s society Research Executive member September 2015 Lewy Body Society Medical Scientific board member September 2015 Alzheimer s disease international medical panel member July 2016 Co-authorship of a document submitted as evidence. SADD (Study of antidepressants in the depression of dementia). Coapplicant for a HTA award to support the work, paid to the institution. Sept 2015 Produced report on improving domiciliary care whilst working 16,
2016 County Council for the DoH south/west (no direct payment for this work) Chris Roberts Lay member person with dementia Paid member of Government Office: science foresight ageing expert review group Lead author for Future health care for older people review Professorship with NIHR (funding paid to employing ) (Published 2016) September 2015 Ageing Project for authorship of Future health care for older people review Personal payment from Government Office for Science Foresight September 2015 NIHR Professorship 2012-2017 5 year research fellowship paid to January 2017 NIHR HS&DR Project 14/70/96. 2016-2018. Co- Investigator. Dementia undetected or undiagnosed in primary care: the prevalence, causes and consequences. non non Non-, Non- non non 17
January 2017 NIHR HTA Project 13/78/02. 2015-2018. Co-investigator. Is it possible to develop a complex intervention to improve the outcome of fallrelated injuries in people with dementia? January 2017 NIHR Programme grant. 2013-2018. Principal Investigator. Supporting excellence in end of life care in dementia (SEED programme). January 2017 NIHR. 2012-2017. Principal Investigator. Evaluating the effectiveness and cost effectiveness of Dementia Care Mapping (DCM) to enable Person Centred Care training (PCCT) for people with dementia and staff: A UK cluster randomised controlled trial in care homes (DCM EPIC trial). NIHR Translational Professorship Award. Living with dementia; towards better quality community care. January 2017 HS&DR - 2012-2015. Co-investigator. Comorbidity and dementia: improving healthcare for people with dementia. (CoDem). NIHR Service Delivery and 18
Organisation. Developing an evidence-based intervention to improve health care for, and prevent avoidable hospital admission of, older care home residents with frailty or dementia. January 2017 NIHR HTA. 2011-13. Joint Principal Investigator. A pragmatic randomised controlled trial to evaluate the effectiveness and cost effectiveness of Collaborative Care for people with Dementia in primary care (CARE-DEM trial). January 2017 Research for Patient Benefit. PB-PG- 0808-16124. 2010 2012. Co- Investigator. An exploration of patient experiences around diagnosis and treatment of dementia; implications for service development January 2017 NIHR Research for Patient Benefit. 2009-11. Advance Care Planning; developing a person centred approach for people with dementia. Principal Investigator. 19 Pauline Director of
Shaw Care & Service Development, The Royal Star & Garter Homes, West Midlands Ben Williams Practice Excellence Advisor, Genesis Housing Association Tracy Wright * (Social Worker) Directorate Manager HMR Integrated Teams, Pennine Acute September 2015 Memory Services National Accreditation Programme occasional reviewer for Memory Services throughout England and Wales. In doing this I am able to claim back travel expenses. Yolanda Martinez (from March 2017) Technical Analyst, NICE Family member is researcher at The Manchester. Collaborates in research about quality of care for people with dementia. The research projects are about hospital care and sensory assessment of hearing and vision problems in people with dementia. Date last reviewed: 06/12/2017 20