OCD Massachusetts, Inc. (Obsessive Compulsive Foundation Inc.) General Information OCDI 115 Mill Street Belmont, MA 2478 164 (781) 775-1127 Website www.ocdmassachusetts.org Organization Contact Jennifer Alosso info@ocdmassachusetts.org Year of Incorporation 1995 1
Statements & Search Criteria Mission Statement The mission and goals of OCD Massachusetts are to: Educate the public and professionals about obsessive compulsive disorder (OCD) in order to raise awareness and improve the quality of treatment provided in the commonwealth of Massachusetts Improve access to resources for those with OCD and their families in the commonwealth of Massachusetts Advocate and lobby for the OCD community in the commonwealth of Massachusetts. Background Statement OCD Massachusetts is a non-profit affiliate of the International Obsessive Compulsive Disorder Foundation (IOCDF). We are a locally based group made up of people with Obsessive Compulsive Disorder (OCD) and related disorders, as well as their families, friends, professionals and others. IOCDF, our parent organization, was founded in 1986 by a small group of individuals with OCD and now reaches out to people with OCD, their families and mental health professionals worldwide. IOCDF holds an annual conference that offers education and support for people of all ages that may be suffering from OCD, as well as treatment strategies and cutting edge research for treatment providers. They also publish a quarterly newsletter with articles of interest to the OCD community. OCD Massachusetts was started in 1995 by Denise Egan Stack, current president of IOCDF and past president of OCD Massachusetts. At that time, OCD Massachusetts ran one lecture per month at McLean Hospital in Belmont, MA. The lectures were designed to educate the public regarding OCD and OCD treatment, and they were given by local experts in the field. OCD Massachusetts has grown to offer monthly lectures at two additional locations, UMASS Medical School in Worcester and Smith College in rthampton. Support groups are also run before and after each talk. Our services have always been offered at no cost and have been well attended through the years. 2
Impact Statement OCD MA's main accomplishments for 214 are: 1) Continued delivery of monthly lecture series statewide on a broad range of topics relating to OCD. These lectures feature local and nationally known experts, and take place at McLean Hospital in Belmont, at UMass Medical School in Worcester, and at Smith College in rthampton. (The Smith College series is newly added in 214.) The lectures cover treatment options, the latest research, and many other topics relevant to those affected by OCD, and are free and open to the public, with peer-led support groups following each talk. 2) Organizational development, including growth of board of directors, initiation of revision of bylaws, revision of entity's branding and logo, engagement of outside advisors, and improvement of internal processes. 3) Initiation of community outreach lecture series, to bring information about OCD to organizations and institutions in the broader community. In October, 214, OCD MA delivered its first lecture, to an educational outreach organization in northern Massachusetts, to educate educators and parents about the science underpinning OCD, as well as current treatment approaches. Patient perspectives were included. OCD MA plans to extend this program in coming months. OCD MA's main goals for 215 are: 1) Develop new funding sources, to allow for increased programming growth. 2) Continue to deliver existing programming, including the three locations for the monthly lectures, and expand to fourth and fifth locations, with rth Shore and Western MA as targeted areas. 3) Expand community outreach via delivery of frequent informational programs/lectures to community organizations. Needs Statement 1) OCD Massachusetts is in need of more effective outreach strategies. Although we have regular attendance at our three monthly lectures, there are many more people in the state that are suffering, or has a loved one that is suffering from OCD and are looking for resources. 2) OCD Massachusetts is in need of educational and promotional materials. Pamphlets, postcards, etc will help us in educating the public about OCD as well as promote the free services that we offer. 3) OCD Massachusetts is in need of volunteers to serve as expert speakers in our monthly lecture series. 4) OCD Massachusetts is in need of translators to help us reach out to more diverse communities within the commonwealth through our lectures and our educational materials 5) OCD Massachusetts is in need of building its board of directors with members that have specific skills that will help move our organization forward. Board members with experience in fundraising, technology and graphic design would be particularly helpful in allowing OCD Massachusetts to reach out to more people in need of services. Service Categories 3
Mental Health Disorders Geographic Areas Served Please review online profile for full list of selected areas served. 4
Programs OCD Massachusetts Lecture Series Description OCD Massachusetts offers educational lectures that are open to the public. Lectures are held monthly during the academic year at McLean Hospital in Belmont, UMASS Medical School in Worcester and Smith College in rthampton, MA. Budget Category Population Served Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success Mental Health, Substance Abuse Programs, General/other Mental Health, Substance Abuse Programs, General/other Children and Youth ( - 19 years), Adults, Families In the short term, OCD Massachusetts hopes to raise OCD awareness and offer a place for people to receive accurate information about OCD and be able to ask questions regarding OCD and OCD treatment. OCD Massachusetts aims to reach 1% of Massachusetts residents touched by obsessive compulsive disorder whether personally or professionally. Ideally, all individuals suffering from OCD will have a proper diagnosis and reasonable access to treatment, all family members of sufferers will have the education necessary to help their loved one, and all mental health professionals will be able to accurately diagnose OCD and treat OCD with evidence based treatment methods. OCD Massachusetts is currently only capable of measuring the success of our programs by observing the attendance at each of our lectures. The most important examples of the success of our lecture series comes in the feedback we get from our attendees. Many people use our lectures to motivate them to finally take that first step in seeking treatment, or they are already in treatment and they use our lectures to stay on top of the latest research. Another exciting example of our success is our growth within Massachusetts. t only are we expanding with lectures in different parts of the state, but we are starting to partner with other organizations (ex: The rth Shore Education Consortium and Charles River Community Health) to host talks in addition to our regular lecture series and reach more residents. 5
Management CEO/Executive Director Executive Director Dr. Jennifer Alosso Term Start Sept 215 Email Jen@DrJenAlosso.com Experience Jennifer Alosso, PsyD is a clinical psychologist specializing in the treatment of obsessive compulsive and related disorders. Dr. Alosso worked as a counselor at the OCD Institute at McLean Hospital for 8 years and has volunteered with the International OCD Foundation. She received her degree in 211 from the Massachusetts School of Professional Psychology and completed her postdoctoral fellowship at the Klarman Eating Disorders program at McLean Hospital. She is an adjunct faculty member at William James College where she supervises interns at Charles River Community Health in Brighton, MA. Dr. Alosso has a private practice in Arlington Center, MA where she see sees children, adolescents and adults. Former CEOs Name Term Denise Egan Stack LMHC Sept 1995 - Aug Staff Information Full Time Staff Part Time Staff Volunteers Contractors 5 Staff Demographics - Ethnicity African American/Black Asian American/Pacific Islander Caucasian Hispanic/Latino Native American/American Indian Other Staff Demographics - Gender Male Female Unspecified 6
Formal Evaluations CEO Formal Evaluation CEO/Executive Formal Evaluation Frequency Senior Management Formal Evaluation Senior Management Formal Evaluation Frequency nmanagement Formal Evaluation n Management Formal Evaluation Frequency N/A N/A N/A N/A Plans & Policies Organization has a Fundraising Plan? Organization has a Strategic Plan? Does your organization have a Business Continuity of Operations Plan? Management Succession Plan? Organization Policy and Procedures ndiscrimination Policy Whistleblower Policy Document Destruction Policy Directors and Officers Insurance Policy Is your organization licensed by the Government? Under Development Under Development Under Development Under Development 7
Board & Governance Board Chair Board Chair Dr. Jennifer Alosso Company Affiliation OCD Massachusetts Term Sept 215 to Aug 216 Email Jen@DrJenAlosso.com Board Members Name Affiliation Status Denise Egan Stack LMHC OCD Massachusetts Voting Christina Gugino LMHC OCD Massachusetts Voting Amanda Holm The Boston Foundation Voting Carla Kenney LMHC OCD Massachusetts Voting Board Demographics - Ethnicity African American/Black Asian American/Pacific Islander Caucasian 5 Hispanic/Latino Native American/American Indian Other Board Demographics - Gender Male Female Unspecified 5 Board Information Board Term Lengths Number of Full Board Meetings Annually Board Meeting Attendance % Written Board Selection Criteria? Written Conflict of Interest Policy? Percentage Making Monetary Contributions Percentage Making In-Kind Contributions 1 4 8% Under Development Under Development 1% 1% 8
Constituency Includes Client Representation Yes 9
Impact Goals It is estimated that it takes an average of 9 years for individuals suffering from obsessive compulsive disorder (OCD) to be diagnosed and 17 years to receive proper treatment. OCD Massachusetts strives to educate the public about OCD in order to increase access to care and improve the quality of treatment provided in the commonwealth. Increased awareness through our target populations is going to help us achieve these goals: Our main target populations include individuals suffering from OCD, families, and mental health and other professionals. Strategies OCD Massachusetts holds a monthly lecture series that provides free educational talks to the public on a variety of topics related to OCD and OCD treatment. Monthly lectures are offered in Belmont, Worcester and rthampton, MA. Capabilities OCD Massachusetts has established solid relationships with and local organizations and expert speakers to help execute our lecture series. We are able to provide trusted information on the topics most relevant to our lecture attendees. Indicators Quantitative progress toward our main goal is difficult to measure as we do not know how many people that use our services then go on to seek appropriate OCD treatment or help a loved one to do so. We are able to monitor attendance at our three monthly lectures which helps us determine what lecture topics are of highest interest to the local OCD communities. We are also able to monitor the amount of people that sign up for a membership through our parent organization, the International OCD Foundation, which is another great resource for OCD education. Progress OCD Massachusetts is proud of what we have accomplished thus far, however we have not reached all those with OCD in Massachusetts that may benefit from our services. We are hoping to expand our lecture series into more diverse communities to get information and resources to those who do not know about our regular lecture series or are unable to attend. 1
Financials Fiscal Year Fiscal Year Start Jan 1, 215 Fiscal Year End Dec 31, 215 Projected Revenue $3,5. Projected Expenses $3,5. Endowment? Credit Line? Reserve Fund? Months Reserve Fund Covers Detailed Financials Revenue and Expenses Fiscal Year 214 213 212 Total Revenue $5,182 $6,64 $2,5 Total Expenses $5,161 $5,996 $3,69 Revenue Sources Fiscal Year 214 213 212 Foundation and Corporation -- -- -- Contributions Government Contributions $ $ $ Federal -- -- -- State -- -- -- Local -- -- -- Unspecified -- -- -- Individual Contributions $5,182 $5,469 $2,5 Indirect Public Support -- -- -- Earned Revenue -- $1,135 -- Investment Income, Net of Losses -- -- -- Membership Dues -- -- -- Special Events -- -- -- Revenue In-Kind -- -- -- Other -- -- -- 11
Expense Allocation Fiscal Year 214 213 212 Program Expense $4,967 $5,462 $3,324 Administration Expense $194 $534 $366 Fundraising Expense -- -- -- Payments to Affiliates -- -- -- Total Revenue/Total Expenses 1. 1.1.68 Program Expense/Total Expenses 96% 91% 9% Fundraising Expense/Contributed Revenue % % % Assets and Liabilities Fiscal Year 214 213 212 Total Assets $2,379 $2,357 $1,749 Current Assets $2,379 $2,357 $1,749 Long-Term Liabilities -- -- -- Current Liabilities -- -- -- Total Net Assets $2,379 $2,357 $1,749 Short Term Solvency Fiscal Year 214 213 212 Current Ratio: Current Assets/Current Liabilities -- -- -- Long Term Solvency Fiscal Year 214 213 212 Long-Term Liabilities/Total Assets % % % Top Funding Sources Fiscal Year 214 213 212 Top Funding Source & Dollar Amount -- -- -- Second Highest Funding Source & Dollar -- -- -- Amount Third Highest Funding Source & Dollar Amount -- -- -- Capital Campaign Currently in a Capital Campaign? Comments Foundation Staff Comments Financial summary data in charts and graphs are per the organization's IRS Form 99s for fiscal years 213 and 214, and per the nonprofit for fiscal year 212. Created 6.6.218. Copyright 218 The Boston Foundation 12