Claire Severgnini Chief executive - National Osteoporosis Society 22 nd June 2016
Our core values We are caring, innovative, excellent, influential, ethical and passionate in all that we do Our vision is a future without fragility fractures Our mission is to work together for a brighter future for people with or at risk of osteoporosis and fragility fractures across the UK, putting an end to preventable broken bones and helping people to live without pain and disability Our vision Our ultimate ambition Our mission The strategy that will make our vision a reality Our aims are: 1) To prevent future fractures 2) To help and support people with osteoporosis now Our current aims 2
Our Strategic Aims Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately. Aim 2: People are empowered to make choices and manage their condition in ways that best meet their own needs. Aim 3: Primary Prevention of osteoporosis Other aims can be developed as needed Overall mission and vision of the National Osteoporosis Society Aim 4: Cure for osteoporosis ENABLERS 3
Listening to our Beneficiaries 4
Listening to our Beneficiaries Life with Osteoporosis (2014) A landmark study to find out more about the true emotional and physical impact of osteoporosis and fragility fractures on people s lives. A Good Life with Osteoporosis (2015) To help develop new ways for the Charity to help and support people with the osteoporosis (over 3,500 people). 5
What we found Life with Osteoporosis 6
A Good Life with Osteoporosis What areas of information and support would be useful? Top 5 areas 78% 78% 81% 83% 86% Preventing Fractures Understanding the condition Exercise Healthy eating for bones Osteoporosis Medication 7
A Good Life with Osteoporosis Where do people look for information and support? Top 5 sources of information Top 5 sources of support 66% of people want to visit an osteoporosis support group to hear a health professional talking about an osteoporosis related matter. 65% of people want face-to-face contact with a health professional to help with managing their condition 8
Osteoporosis Patient Journey Map 9
Our Strategic Aims Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately. Aim 2: People are empowered to make choices and manage their condition in ways that best meet their own needs. Aim 3: Primary Prevention of osteoporosis Other aims can be developed as needed Overall mission and vision of the National Osteoporosis Society Aim 4: Cure for osteoporosis ENABLERS 10
Aim 1: Every person aged over 50 who breaks a bone is assessed for osteoporosis and managed appropriately 11
A National Approach to FLS FLS Implementation Group UK FLS Clinical Standards FLS Implementation Toolkit FLS Implementation Workshops Fracture Prevention Practitioner (FPP) Training Peer Review Service Delivery Team
How we Help Facilitate stakeholder engagement Help establish patient/care pathway Project manage commissioning/funding: o o o The economic and business case Service specification Resource and capacity planning Work with commissioners to ensure services are sustained.
How we Help Provide input to enable the development of an FLS which meets the UK FLS Clinical Standards Help establish data collection, analysis, evaluation and reporting Identify gaps in service provision, put in place improvement plans and monitor against agreed actions Peer review
Activity to date SDT Activity England NI/IOM Scotland Wales UK Supporting New Service Development Supporting Quality Improvement Early Engagement with additional sites 45 0 2 3 50 50 6 12 10 78 31 3 2 3 39 Totals 126 9 16 16 167 New services commissioned Existing service improved (commissioning) 8 0 0 0 8 1 0 0 0 1 Totals 9 0 0 0 9 15
Area Population Cohort (50+) FLS Benefits Hip fractures prevented* *Over a 5 year period Total benefits (of hip fractures prevented)* Bradford 459,142 129,011 119 1,991,822 Colchester 332,923 134,835 142 2,400,084 East Surrey 177,566 63,474 65 1,154,335 East Sussex 374,801 167,905 188 3,161,972 Epsom 405,456 119,974 115 2,066,895 Rotherham 258,781 96,591 92 1,540,356 Salisbury 202,770 83,701 83 1,412,992 Stoke-on-Trent 214,991 88,334 88 1,466,432 Vale of York 348,363 131,411 128 2,142,848 Total 2,774,793 1,015,236 1020 17,337,736
FLS Plans for 2016 Continue to extend coverage & improve quality of FLS Vertebral fracture identification & management Falls pathway FLS effectiveness study
Aim 2: People are empowered to make choices and manage their condition in ways that best meet their own needs 18
Osteoporosis Patient Journey Map 19
A Good Life with Osteoporosis What areas of information and support would be useful? Top 5 areas 78% 78% 81% 83% 86% Preventing Fractures Understanding the condition Exercise Healthy eating for bones Osteoporosis Medication 20
Emerging Support Model
30 Years Old
1980s 23
1990s 24
2000-2010 25
2016 Fracture Liaison Services 97% of potential Fracture Liaison Services across the UK now working with us Nine new Fracture Liaison Services have been set up supporting over one million people aged 50+ Over five years that means more than 1,000 hip fractures prevented, saving the NHS 17million 26
#LACEUPFORBONES #LACEUPFORBONES
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Claire Severgnini Chief executive - National Osteoporosis Society 22 nd June 2016