Donor Insemination: International Social Science Perspectives

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Donor Insemination: International Social Science Perspectives Donor insemination or DI is the oldest and most widelv ~ractised form of assisted conception. Until now, it has largely been assessed as if an entirely medical concern. This book brings together an international group of social scientists to discuss the social, cultural, political and practical dimensions to DI, relating it to the wider debates about fertility treatment and the place of assisted conception in contemporary society. The contributors consider the experience of DI from the viewpoints of all the various parties involved, including the recipients of the treatment, the sperm providers, the clinicians, the people conceived and policy-makers working in the area. The assumptions informing the world-wide practices around DI and the reactions to it are critically examined, with reference to cross-national perspectives, and to issues such as the language of DI, gender, sexuality, ethnicity and identity. KEN DANIELS is Associate Professor in the Department of Social Work, at the University of Canterbury, Christchurch, New Zealand. He has written widely on the policy issues and psychosocial aspects of assisted conception, and is a member of the New Zealand National Ethics committee on Assisted Human Reproduction. ERICA HAIMES is Senior Lecturer in Sociology in the Department of Social Policy, at the University of Newcastle, in England. She has written extensively on the issues concerning families and identities raised by forms of assisted conception, and is co-author (with Noel Tirnms) of Adoption, identity and social policy...

Donor Insemination International Social Science Perspectives Edited by Ken Daniels and Erica Haimes CAMBRIDGE UNIVERSITY PRESS

CAMBRIDGE UNIVERSITY PRESS Cambridge, New York, Melbourne, Madrid, Cape Town, Singapore, Siio Paulo, Delhi, Tokyo, Mexico City Cambridge University Press The Edinburgh Building, Cambridge C B ~ XRU, UK Published in the United States of America by Cambridge University Press, New York Information on this title: /9780521497831 O Cambridge University Press 1998 This publication is in copyright. Subject to statutory exception and to the provisions of relevant collective licensing agreements, no reproduction of any part may take place without the written permission of Cambridge University Press. First published 1998 A catalogue recordfor this publication is available from the British Library ISBN 978-0-521-49709-1 ISBN 978-0-521-49783-1 Hardback Paperback Cambridge University Press has no responsibility for the persistence or accuracy of UlUs for external or third-party internet websites referred to in this publication, and does not guarantee that any content on such websites is, or will remain, accurate or appropriate. Information regarding prices, travel timetables, and other factual information given in this work is correct at the time of first printing but Cambridge University Press does not guarantee the accuracy of such information thereafter.

KD: To Tricia for her love, unstinting support and many sacrifices EH: To my family, friends and Robin to thank them for all their love and support.

Contents List of Jigures List of tables Notes on contributors Acknowledgements List of abbreviations page viii... Vlll ix xi xii 1 International social science perspectives on donor insemination: an introduction 1 ERICA HAIMES AND KEN DANIELS 2 The users of donor insemination JUDITH N. LASKER 3 Families created through donor insemination ROBERT AND ELIZABETH SNOWDEN 4 The making of 'the DI child': changing representations of people conceived through donor insemination 53 ERICA HAIMES 5 The semen providers KEN DANIELS 6 The medical management of donor insemination 105 SIMONE BATEMAN NOVAES 7 Regulation of donor insemination ROBERT BLANK 8 Donor insemination and 'public opinion' JEANETTE EDWARDS 9 Concluding comments ERICA HAIMES AND KEN DANIELS Index 179

Figures 7.1 Regulatory mechanisms: a continuum 7.2 Progression of processes in private policy 7.3 Public role in making policy page 134 136 138 Tables 5.1 Studies of the motivation of semen providers 7.1 Summary of DI regulations by country page 84 140

Notes on contributors ROBERT H. BLANK is Professor of Political Science at the University of Canterbury, Christchurch, New Zealand. He is author of numerous articles and books on biomedical policy including Rationing medicine (1988), Regulating reproduction (1990), The politics of pregnancy (1994), and Human reproduction, emerging technologies, and conflicting rights (1995). KEN DANIELS is Associate Professor in the Department of Social Work at the University of Canterbury in Christchurch, New Zealand. He has been working in the field of assisted conception and particularly DI for twenty years, and during that time has published over sixty papers. He has been used as a consultant by government or government appointed bodies in the United Kingdom, the United States, Canada, Sweden, Australia and New Zealand. JEANETTE EDWARDS is a lecturer in social anthropology at the University of Keele. She has carried out anthropological research in the north of England in both community and organisational settings. She is co-author of Technologies of procreation: kinship in the age of assisted conception (1993) and is presently completing Born and Bred: Ideas of Relatedness and Relationships in Late-Twentieth-Century England, addressing contemporary understandings of new reproductive technologies, based on fieldwork in the north west of England. ERICA HAIMES is Senior Lecturer in Sociology, in the Department of Social Policy, University of Newcastle upon Tyne, United Kingdom. She has been working in the areas of health, adoption and assisted conception for fifteen years. Her doctoral thesis was entitled 'Family Connections: The Management of Biological Origins in the New Reproductive Technologies'; she is co-author (with Noel Timms) of Adoption, identity and socialpolicy (Gower) and she is currently working on another book provisionally titled "Families and Identities".

x Notes on contributors JUDITH LASKER is NEH Distinguished Professor and Chair of the Department of Sociology and Anthropology at Lehigh University in Bethlehem, Pennsylvania, United States. She received her PhD in sociology from Harvard in 1976. She is co-author with Susan Borg of two books: When pregnancy fails: families coping with miscarriage, ectopic pregnancy, stillbirth, and infant death and In search of parenthood: coping with infertility and high tech conception. Her research and teaching interests focus on women's health, bereavement, infertility and AIDS. SIMONE BATEMAN NOVAES is a sociologist and full-time researcher at the Centre de Recherche Sens, Ethique et SociCtC (CERSES) of the Centre National de la Recherche Scientifique (CNRS) in Paris, France. Her research focuses on ethical questions raised by novel medical practices, particularly in the area of reproduction, as well as on the legal and political aspects of these issues. She is interested in the way social practices are constructed around technical innovations which question our usual conceptions of being and acting human. She has recently published Les passeurs de gametes and has edited a volume Biomedicine et devenir de la personne (1991). ELIZABETH SNOWDEN is a Research Fellow in the Sociology Department, Exeter University. Together with Robert Snowden she is conducting a longterm, prospective, follow-up study of couples who are parents of children conceived by donor insemination. She is a founder-member of the British Infertility Counselling Association and an Honorary Life Member of the Family Planning Association. She has lectured and published widely on the social implications of the new reproductive technologies. ROBERT SNOWDEN is the Professor of Family Studies in the Sociology Department, Exeter University. During the last twenty-five years his research interests have focused exclusively on the topic of reproductive behaviour. The research institute he founded in Exeter University is designated a Collaborating Centre for Research in Human Reproduction by the World Health Organisation. He was a founder-member of the Human Fertilisation and Embryology Authority (1990-1993) and is an Honorary Life Member of the Family Planning Association. In 1994, he was admitted as a Fellow of the Faculty of Family Planning and Reproductive Health Care of the Royal College of Obstetricians and Gynaecologists. Robert and Elizabeth Snowden are among the first to have undertaken research into the social and personal implications of donor insemination.

Acknowledgements We wish to acknowledge the financial support provided by the University of Newcastle, UK. Senior Visiting Fellowship Fund and the Department of Social Policy Research Fund and by the University of Canterbury Research Fund. Our thanks to Marilyn Strathern, Meg Stacey, Robyn Rowland, Rona Achilles and Bob Snowden who have all in different ways contributed to our thinking. A very grateful thank you to Yvette Haimes, Dorothy McLoughlin, Barbara Seaton, Rosalie Kennedy and Maureen Woods for their assistance in preparing the manuscript. A special thanks to Catherine Max and her colleagues for their support and guidance.

List of abbreviations AFS AHR A1 AID AIDS AIH ART BAAF CECOS DI GIFT HFE Act (1990) HFEA HIV ICSI IVF NAC OTA RCNRT RCOG American Fertility Society assisted human reproduction artificial insemination artificial insemination by donor Acquired Immune Deficiency Syndrome artificial insemination by husband assisted reproductive technologies British Agencies for Adoption and Fostering Centre &Etude et Conservation du Sperme (and more recently, Centre &Etude et de Conservation des Oeufs et du Sperme Humaine) donor insemination gamete intra-fallopian transfer Human Fertilisation and Embryology Act, United Kingdom (1 990) Human Fertilisation and Embryology Authority, United Kingdom human immunodeficiency virus intra cytoplasmic sperm injection in vitro fertilization National Association for the Childless, United Kingdom Office of Technology Assessment, United States Congress Canadian Royal Commission on New Reproductive Technologies Royal College of Obstetricians and Gynaecologists, United Kingdom