Randomized Comparison of Parent-Teacher Consultation for Students with Autism

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Randomized Comparison of Parent-Teacher Consultation for Students with Autism Lisa Ruble, Ph.D. University of Kentucky Department of Educational, School, & Counseling Psychology February 2008 National Association of School Psychologists New Orleans, LA

Introduction Autism remains one of the most difficult disorders to understand, diagnose, and treat. Autism results from an alteration of normal brain development. No single cause for autism has been identified to date. A consensus is building that autism results from multiple etiologies. Therefore, any single biologic or pharmacologic therapeutic solution appears distant.

Numbers of children served IDEA has increased by more than 500% in the last decade (GAO, 2005). Average cost expenditure for educating a student with autism is about three times the average cost expenditure for educating a student without a disability.

Statement of the Problem Increased numbers of children seeking services from public-funded agencies. Limited translational research. Move studies from lab/clinic into community Community-based providers with few resources to guide service delivery and scalability.

Teacher Training Outcomes in Autism Collaborative Consultation and Teacher Coaching Intervention National Institutes of Mental Health (MH073071) The project described was supported by Grant Number R34MH073071 from the National Institute of Mental Health. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Mental Health or the National Institutes of Health. Co-Investigators, Dr. John McGrew & Nancy Dalrymple

Why do we need autism-specific specific approaches to build an individual program? The diagnosis does not prescribe a treatment that works the same way for all The diagnosis does not describe specific educational/teaching goals Intervention/teaching methods are not the same as curriculum INDIVIDUALIZATION is KEY

Competence Competence results from the interaction between the person and his / her environment. Competence is when one is able to make use of environmental and personal resources to achieve a desirable outcome. The environment may contribute or hinder competence. Both the person and the environment must be considered for improving outcomes.

An Alternative View of Outcome Ruble & Dalrymple,, 1996 Quality of Life Risk Factors Personal & Environmental Protective Factors Personal & Environmental Competence

Speech and Language Therapy Social Skills Training Occupational Therapy Functional vs Academic vs Vocational Developmental vs Age Appropriate Inclusion Discrete Trial - ABA Incidental Teaching Structured Teaching - TEACCH

Collaborative Model for Promoting Competence and Success (COMPASS) Building environmental supports through understanding how autism affects a specific individual

Other Resources on COMPASS Technical Assistance Manual on Autism for Kentucky Schools, 1995 School-based consultation called COMPASS (Ruble & Dalrymple,, 2002) Family-centered Process focused Outcomes based framework

Design Longitudinal and prospective (school year) Randomized with control group (usual school program) Teachers of students with autism were recruited if more than 1 student, students were randomly selected

Methods 24 teachers, children, parents/caregivers (35 total) Randomized for COMPASS Consultation 3 hour collaborative consultation Parent and teacher 4 teacher coaching sessions (1.5 hours each) Outcomes Parent invited, not required to attend Evaluator is unaware of group assignment Child Achievement of IEP Goal (direct observation)

Child Participants All met criteria for DSM-IV IV-TR of autism Autism Diagnostic Observation Schedule-G Autism Diagnostic Interview-R Childhood Autism Rating Scale

Child Participants Gender 20 males (83%) 4 females (17%) Mean Age Race/Ethnicity 6 yr, 2 months 81% Caucasian 14% African American 5% Biracial Parent Income 39% $25,000 $50,000 44% $51,000 - $100,000

Child Measures Measure Differential Abilities Scale Picture Similarities Oral and Written Language Scales Vineland Adaptive Behavior Scales (teacher report) Behavior Assessment System for Children-2 Externalizing Composite (teacher report) Childhood Autism Rating Scale (severe symptoms) Mean (SD) Tscore=36.0 (19.8) Sscore=46.9 (8.6) Sscore=60.1 (7.5) Tscore=60 (7.6) 39.6 (7.3)

Teacher Participants Years Teaching In general Students with autism Demographics Mean (SD) 11 (SD=8) 7 (SD=7) Urban Rural

Outcomes Child Accomplishment of IEP Goals Teacher Goal Attainment Scaling (Kiresuk( Kiresuk,, Smith, Cardillo,, 1994) Stress Index of Teaching Stress (Part B) (Greene, Abidin,, Kmetz,1997) Parent/Caregiver Stress Parenting Stress Index (Abidin( Abidin,, 1983)

Overview of COMPASS Planning is process-based by helping all members reach consensus through understanding of the child The child s ability to learn is based on environmental factors as well as factors within the child Proactive problem solving that can be done on an ongoing basis is demonstrated and encouraged Research-backed practices for autism are emphasized

COMPASS cont. Teaching plan is specific to autism (includes social, communication, and work or learning skills) Forms used during meeting are specific to autism Teaching plans are based on consensus of priority concerns Teaching strategies are linked to each specific skill

Holistic understanding of how autism affects a specific child Challenges (Risk Factors) Personal Environmental Supports (Protective Factors) Personal Environmental Competence

Research Supported Practices Perry, A., & Condillac,, R. (2003). Evidence-based practices for children and adolescents with autism spectrum disorders: Review of the literature and practice guide. Toronto, ON: Children's Mental Health. Roberts, J.M. (2003). A review of the research to identify the most effective models of best practice in the management of children with autism spectrum disorders.. Sydney: Centre for Developmental Disability Studies.

Examples of RSP Pro-Social and Play Related Interventions Social Stories Peer-Mediated Instruction Social Script Training Language and Communication-Based Interventions Augmentative Communication Picture Exchange Communication System (PECS) Verbal Behavior Approach (VB) Functional Communication Training Intervention for Challenging Behavior Positive Behavioral Supports (Non-Intrusive Methods) General Skill Building Behavioral Teaching (ABA) Environmental Supports/Structure Picture Activity Schedules Expressive Psychotherapies Cognitive Behavior Therapy (CBT)

National Research Council Recommendations for IEPs Social skills Communication Engagement in developmentally appropriate tasks Fine and gross motor skills to be utilized when engaging in age appropriate activities. Cognitive or thinking skills Replacement of problem behavior with appropriate behavior. Work behaviors important for classroom success (following instructions, completing a task)

COMPASS Action Plan for Students with Autism Step 1: Conduct Functional Assessments Step 2: Identify and Discuss Personal / Environmental Challenges and Supports Step 3: Prioritize Teacher and Caregiver Goals Step 4: Write Measurable Objectives COMPASS Step 5: Develop Teaching Plans & Identify Environmental Supports Step 6: Implement Plans Step 7:. Monitor Progress and Make Adjustments COACHING

Step 1: Conduct Functional Assessments Social behaviors / skills Communication Learning / work skills (start a work activity; work until finished; indicate finished to another) Other areas such as fine/gross motor; cognitive; academic; etc

Step 2: Caregivers and School Personnel Identify and Discuss Personal and Environmental Challenges & Supports

PERSONAL SUPPORTS SENSORY SUPPORTS Sound/Auditory Teacher Caregiver Likes music Likes to sing and/or dance Touch/Tactile Teacher Caregiver likes to be touched likes hugs and cuddling when he/she initiates it likes to play in water likes baths or swimming pools seeks out mud, sand, clay to touch prefers certain textures of clothing likes being rolled or sandwiched between blankets/cushions likes rough and tumble play other Movement/Vestibular Teacher Caregiver enjoys rocking, swinging, spinning likes being tossed in the air likes to run likes and needs to move other Teacher LIKES /PREFERENCES/INTERESTS Caregiver

PERSONAL CHALLENGES GENERAL CHALLENGES These skills were marked as very difficult. Personal Management Teacher Caregiver Waiting Finishing a task Being quiet when required Performing basic self care independently Toileting Eating - utensils and a variety of foods Dressing and /or undressing Entertaining self in free time Staying within boundaries Changing activities Comments: Responding to others Listening Accepting no Answering questions Using yes/no appropriately Responding to greeting Accepting help Making a choice Sharing other's enjoyment Giving eye contact appropriately Accepting correction Comments:

Step 3: Prioritize Parent & Teacher Goals Consensus is reached through discussion of pivotal skills needed for future competence Communication (e.g., initiation of communication) Social behaviors (e.g., turntaking) Learning / work skills (e.g( e.g,, working independently)

Caregiver Concerns 1. 1. Teacher Concerns 2. 2. 3. 3. Other Concerns:

Step 4: Write Measurable Objectives for Priority Goals Describe present levels of performance Use formal and informal assessment information Teacher / parent observation Rating scales Standardized tests

Goal Writing and Measurement Criteria for Objectives: Measurable Observable Objective

IEP Goal and Objective Goal: "Student will become a responsible member of the family and community including effectiveness in community service Benchmark: Student will interact with peers in small and large group activities and special area activities."

Step 5: Develop Teaching Plans Identify Environmental Supports necessary for accomplishing specific goal

Environmental

Environmental Supports Name: Teaching plan for Teaching Methods Materials Who/Where/When Data System

Step 6: Monitor Progress Coaching Sessions: Conduct semi-structured structured interview How How often is skill taught Who Who is the primary teacher Are Are data being kept Conduct direct observation of teacher demonstrating skill with child Provide Provide feedback, modeling, problem solving as needed

Step 6: Monitor Progress Data Collection Frequency, duration, intensity, latency recording Goal Attainment Scaling (GAS)

Goal Attainment Scaling GAS Used as broad indicator of level of progress Not to replace weekly data collection methods Steps: 1. Identify present levels of performance (what does the child do now) 2. Identify measurable goal 3. Identify behaviors that indicate progress toward goal 4. Identify behaviors that indicate more than expected level of progress

Example

Step 7: Make Adjustments Data Based Decision Making

Results Factorial Analysis of Variance Independent Variables Time Time (pre and post) Group Group (exp and control) Dependent Variable Child: Child: Gas Score (Total and by learning domain) Teacher: Teacher: Stress Parent: Parent: Stress

Time Group F=34.9*** F=9.0** Time X Group 5.7* *p<.05 **p<.01 ***p<.001

Time Group Time X Group F=18.3*** F=8.0** F=2.7, n.s. *p<.05 **p<.01 ***p<.001

Time Group Time X Group F=16.7** F=1.5, n.s. F=0.3, n.s. *p<.05 **p<.01 ***p<.001

Time Group Time X Group F=.48, n.s. F=2.0, n.s. F=3.3, n.s.

Time Group Time X Group F=.007, n.s. F=.001, n.s. F=2.0, n.s.

Time Group Time X Group F=3.7,n.s. F=6.1* F=.07, n.s. *p<.05 **p<.01 ***p<.001

Conclusion Child Outcomes Overall goal attainment was better in exp group Social and Communication skill goal attainment did not differ as a function of the intervention

Teacher Outcomes Conclusion There was no difference teacher stress Need Need to evaluate further, teachers completed forms when aware of group assignment Need Need to build in supports Parent Outcomes No difference between groups on stress as function of intervention Need Need further study, parents completed forms when aware of group assignment

Conclusion Consultation with teacher is not enough Consultation must include follow-up sessions Consultation must include whole team for generalization, especially parents and speech pathologists Data Collection is a challenge IEP objectives must be measurable Coaching sessions must include data collection training and interpretation for planning Collaborative parent-teacher teacher consultation facilitated achievement of IEP objectives Need more research on ways to impact core symptoms of autism

Questions Does consultation & coaching increase teacher stress why and what to do? Need to build in more supports to teachers

Future Research Consultation research is difficult! Teacher (cognitions and behaviors) Parent Child Other factors (School variables) More research conducted in schools, using real teachers and real situations More studies with training school personnel as consultants More studies with meaningful outcomes Teacher report not adequate need direct observation

Thank you! Parents and teachers, Indiana & Kentucky Children Nancy Dalrymple,, Consultant Dr. John McGrew, Indiana Un. Purdue Un. Dr. Angie Miller, Un. Kentucky Research team Melissa Wheatley Alex Nounopolous April Young