DECEMBER 2012 VOLUME 10 ISSUE 12 www.frontdoorsnews.com Catherine Ivy A Foundation of Devotion SUBSCRIBE TO THE MAGAZINE london flys bentley roadtrip fender
A Path of Philanthrop cover story Tragedy to Ho 36 DECember 2012 www.frontdoorsnews.com
Tragedy has its way of reminding us that no day is ever promised. Oftentimes it changes us forever. For some, it becomes life s beneficence. Ben and Catherine Ivy, two very smart, successful financial planners, were the perfect couple. They were healthy, happy and in love. They recognized life s blessings and wanted to find a way to give back to others. In August 2005, after a hiking trip, the path to philanthrophy became very clear when Ben sought medical care for an unexpected numb thumb. A MRI revealed an aggressive brain tumor called glioblastoma multiforme (GBM). Doctors told Ben he had less than 18 months to live. pe hy It became painfully obvious what they would spend their efforts doing. His quality of life was taken so fast, Catherine recalls. The two began forming the Ben and Catherine Ivy Foundation to fund patient focused research story by Cory Galvan frontdoors DECember 2012 37
Catherine Ivy meets with TGen Scientists Dr. David Craig and Dr. John Carpten in one of TGen s research labs located in Phoenix. We need measurable goals that are realistic and achievable, she says. Science is an art and grey is very uncomfortable. Catherine Ivy 38 DECember 2012 www.frontdoorsnews.com
on gliomas. While the ultimate goal is to cure brain cancer, the immediate focus is to double the life expectancy of patients within the next seven years. It was kind of ironic that Ben was diagnosed with a disease of the brain because that was his gift, she says after describing him as a charismatic and extraordinarily intelligent man. Only four months later Ben was gone. Catherine was left to carry out a difficult mission and a painful loss. Catherine began traveling around the United States to all the major hospitals and the Pacific Northwest to scope out research options. While in Seattle, she met Neurosurgeon Gregory Foltz. The two had a common passion to fuel brain cancer research and treatment. They then formed the Ben and Catherine Ivy Brain Tumor Center at the Swedish Medical Center in Seattle. If a person is diagnosed with a brain tumor in Seattle, they now have so many more options locally. It makes a big difference being close to home, Catherine relates. The purview of the privately funded Ben and Catherine Ivy Foundation supports risky, out-of-the-box research of merit. There is a lot more to learn about this disease, but I feel like the needle is moving, Catherine says. The foundation s research remains focused on areas of genetic screening as well as vaccine related studies. frontdoors DECember 2012 39
They recognized life s blessings and wanted to find a way to give back to others. The Ben and Catherine Ivy Foundation 6710 North Scottsdale Road, Suite 235 Scottsdale, Arizona 85253 Phone 480-659-9621 www.ivyfoundation.org The foundation also works with Translational Genomics Research Institute (TGen), a nonprofit biomedical research institute in Arizona. They are working to understand the genetics of the disease as well as translating those findings into treatment options. TGen s project deals with personalized medicine and the study of genetic makeup to discover why two percent of patients are living longer than others. I am trying to leverage and work with TGen, while trying to involve Barrow and Mayo, Catherine says. There s tremendous opportunity for the state of Arizona and for the patient. 40 DECember 2012 www.frontdoorsnews.com
The brain can be complicated and can have so many more additional challenges than other organs. You can t remove your brain to study it like you can some other organs, Catherine explains. She also understands how to march forward. We need measurable goals that are realistic and achievable. she says. Science is an art and grey is very uncomfortable. The Ben and Catherine Ivy Foundation is now one of the largest privately funded brain cancer research foundations in the country. The foundation works with institutions such as the University of California San Francisco, University of California Los Angeles and Stanford. Stanford s approach to brain tumors uses advanced imaging to flag the tumor, allowing more precise surgery. In the meantime, the Ivy Foundation continues to seek out the finest research and scientists. Most recently, Catherine s travels have been to Europe, to inquire if collaborative research would enhance the results for the person diagnosed with brain cancer. While the Ivy Foundation doesn t accept direct donations like their medical partners, Catherine acknowledges how others can help. I really encourage people to get involved when and if they can, she says. Whether it s a walk or volunteering, it contributes. Cancer affects the world. Our research is about delivering results to the patient. It s about them. Not me or us. We will continue our efforts no matter how long it takes. frontdoors DECember 2012 41