Instrument Review - SF-12 Health Survey (Version 1.0) for use in Australia

Similar documents
T he short form (SF)-36 questionnaire is one of the most

Assessment of the SF-36 version 2 in the United Kingdom

Supplementary Appendix

Manuscript type: Research letter

VALIDITY AND RELIABILITY OF THE MALAY VERSION OF 12-ITEM SHORT FORM HEALTH SURVEY AMONG POSTPARTUM MOTHERS

Final Report. HOS/VA Comparison Project

Measuring health related quality of life in persons with dementia

Patient Outcomes in Pain Management

Validity of the Perceived Health Competence Scale in a UK primary care setting.

Normative data for adults referred for specialist pain management in Australia

For more information: Quality of Life. World Health Organization Definition of Health

Recent findings: Dementia Outcomes Measurement Suite

Ware NIH Lecture Handouts

How Does the SF- 36 Perform in Healthy Populations? A Structured Review of Longitudinal Studies

Heritability of Health-Related Quality of Life: SF-12 Summary Scores in a Population-Based Nationwide Twin Cohort

Evaluation of a Web-Based Skills Intervention for Carers of People with Anorexia Nervosa: A Randomized Controlled Trial

The Chinese University of Hong Kong The Nethersole School of Nursing. CADENZA Training Programme

The EuroQol and Medical Outcome Survey 36-item shortform

Quality of life defined

Facilitating knowledge exchange and transfer: some key issues

Validation of the Russian version of the Quality of Life-Rheumatoid Arthritis Scale (QOL-RA Scale)

A review of the consistency of pamphlets promoting mammographic screening in Australia

Reliability and validity of the International Spinal Cord Injury Basic Pain Data Set items as self-report measures

Each copy of any part of a JSTOR transmission must contain the same copyright notice that appears on the screen or printed page of such transmission.

Two year follow-up of a community gatekeeper suicide prevention program in an Aboriginal community

Study on quality of life of chronic kidney disease stage 5 patients on hemodialysis Gyawali M, Paudel HC, Chhetri PK, Shankar PR, Yadav SK

Magellan Health Services: Using the SF-BH assessment to measure success and prove value

Measurement of health status or health-related quality of

The impact of self-efficacy on asthma management amongst older Australian adults

THE LONG TERM PSYCHOLOGICAL EFFECTS OF DAILY SEDATIVE INTERRUPTION IN CRITICALLY ILL PATIENTS

The Development of the Revised Urinary Incontinence Scale (RUIS) Jan Sansoni, Nick Marosszeky, Emily Sansoni, Graeme Hawthorne.

Initial analysis of newly added data items. Do they provide insights of value?

Calculating clinically significant change: Applications of the Clinical Global Impressions (CGI) Scale to evaluate client outcomes in private practice

Chapter 11: SF-36 Health Status Questionnaire: Health Risk Behaviours, Specific Conditions and Health Service Utilisation

A comparison of treatment options for management of End Stage Kidney Disease in elderly patients: A systematic review protocol

Carol M. Mangione, MD NEI VFQ-25 Scoring Algorithm August 2000

Health professionals' experiences of advance care planning in palliative care service

Prof Marion Eckert Rosemary Bryant AO Research Centre

Changes to the National Diabetes Services Scheme (NDSS)

The Impact of Musculoskeletal Pain on Health-Related Quality of Life in Fort Prajaksilapakom Hospital

Health related quality of life and psychological wellbeing in patients with dilated cardiomyopathy

After Total Hip Arthroplasty Comparison of a Traditional Disease-specific and a Quality-of-life Measurement of Outcome

Diabetes Care Publish Ahead of Print, published online February 25, 2010

The Wellness Assessment: Global Distress and Indicators of Clinical Severity May 2010

Effects of Mode and Order of Administration on Generic Health-Related Quality of Life Scoresvhe_

FUNCTIONING VS. SYMPTOMS

The dual diagnosis capability of residential addiction treatment centres: Priorities and confidence to improve capability following a review process

Initiatives in Australia

Professor Julie BYLES

PHYSICAL FUNCTION A brief guide to the PROMIS Physical Function instruments:

Setting The setting was outpatient clinics. The economic analysis was conducted in Boston, USA.

Is the standard SF-12 Health Survey valid and equivalent for a Chinese population? Citation Quality Of Life Research, 2005, v. 14 n. 2, p.

Agreement between Proxy and Patient Reports of HRQoL using the EQ-5D:

COMPARISON OF QUALITY OF LIFE SCORES IN ADOLESCENTS WITH PRIMARY DYSMENORRHEA

Measuring health status in older patients. The SF-36 in practice

Osteoarthritis (OA), the most common joint

Relationship Between Mental Health and Foot Pain

Diabetes Care Publish Ahead of Print, published online February 25, 2010

Patient Outcomes in Pain Management. Enterprise One Pain Management Service Mid Year Report

Brief workshops to teach drug and alcohol first aid: A pilot evaluation study

Normative data for children and adolescents referred for specialist pain management in Australia

University of Wollongong. Research Online

Chapter 3: GENERIC INSTRUMENTS

The Development of an Orthopedic Waiting List Algorithm for Elective Total Hip and Total Knee Replacement Surgery

Measures of Adult General Functional Status

Health-Related Quality of Life (HRQoL)

Adjusting for mode of administration effect in surveys using mailed questionnaire and telephone interview data

NADAbase Snapshot Report 15/16

PRIME: impact of previous mental health problems on health-related quality of life in women with childbirth trauma

Longitudinal Assessment of Health-Related Quality of Life (HRQL) of Patients With Multiple Sclerosis

The field of quality-of-life (QOL) measurement has a relatively

Two-item PROMIS global physical and mental health scales

The North West Adelaide Health Study

A Microcomputer Program (SF-36.EXE) that Generates SAS Code for Scoring the SF-36 Health Survey

Comparative study of health status in working men and women using Standard Form -36 questionnaire.

Test-Retest Reliability of an Abbreviated Self-Report Overall Health Status Measure

Differences in Severity & Correlates of Depression between Men and Women Living with HIV in Ontario, Canada

Title of slide. Characteristics of clients with a. Click to edit Master text styles Second level. Third level

South Australian Health & Wellbeing Survey

how good is the Instrument? Dr Dean McKenzie

The HeartQol questionnaire. Reliability, validity and responsiveness?

Prepared for Arthritis Australia October 2014

Is delirium being detected in emergency?

Measures of Adult Work Disability The Work Limitations Questionnaire (WLQ) and the Rheumatoid Arthritis Work Instability Scale (RA-WIS)

Patient Assessment Quality of Life

Career Counseling and Services: A Cognitive Information Processing Approach

Importance of access to research information among individuals with spinal cord injury: results of an evidenced-based questionnaire

National Cross Cultural Dementia Network (NCCDN) A Knowledge Network of value

Improving clinicians' attitudes toward providing feedback on routine outcome assessments

A reassessment of factor structure of the Short Form Health Survey (SF-36): A comparative approach

Comparing work productivity in obesity and binge eating

Persistent Pain Management Service eppoc Initial Questionnaire

Reliability of Instruments in a Cooperative, Multisite Study: Employment Intervention Demonstration Program

ORIGINAL INVESTIGATION. Management of Urinary Incontinence in Medicare Managed Care Beneficiaries

THE VETERANS RAND 12 ITEM HEALTH SURVEY (VR-12): WHAT IT IS AND HOW IT IS USED

15 September Dr Andrew Moors Australian Commission on Safety and Quality in Health Care Level 5, 255 Elizabeth Street Sydney NSW 2000

Are current social marketing campaigns getting through to undergraduate university students?

Depression Can it ever be cured?

Are touchscreen computer surveys acceptable to medical oncology patients?

Palliative care phase: inter-rater reliability and acceptability in a national study

Transcription:

University of Wollongong Research Online Australian Health Outcomes Collaboration - AHOC - 2005 - SF-12 Health Survey (Version 1.0) for use in Australia N. Marosszeky University of Wollongong, marossz@uow.edu.au J. Sansoni University of Wollongong Publication Details This review was originally published as Marosszeky, N and Sansoni, J, - SF-12 Health Survey (Version 1.0) for use in Australia,, University of Wollongong, 30 May 2005, 8p. Research Online is the open access institutional repository for the University of Wollongong. For further information contact the UOW Library: research-pubs@uow.edu.au

SF-12 Health Survey (Version 1.0) Title: SF-12 Health Survey (Version 1.0) for use in Australia (also known as the Short-Form 12-Item Health Survey). Abbreviations: Author(s) Name: Author(s) Address: SF-12 John E. Ware, Jr. QualityMetric Incorporated 640 George Washington Highway Lincoln, RI 02865 USA www.qualitymetric.com Supplied by: QualityMetric Incorporated 640 George Washington Highway Lincoln, RI 02865 USA In Australia, SF-12 Health Survey manuals can be obtained from the: Australian Health Outcomes c/- University of Wollongong NSW 2522 Phone: 02 4221-4411 Cost: An annual license fee applies for the use of the SF-12 Health Survey. Survey users are required to register with QualityMetric Incorporated and obtain a quote for the annual license fee that applies to their project. The license charge will depend upon whether users require a commercial or research license. Register online at www.qualitymetric.com. Information on the SF group of instruments can also be found at http://www.sf-36.com/ SF-12 manuals can be purchased in Australia from AHOC by contacting Laura Willmott at willmott@uow.edu.au or by telephone on 02 4221-4411. For technical questions about using the SF-12 1 Health Survey in

Australia (including latest developments and research advice) contact Jan Sansoni at jansan@netspeed.com.au or by telephone on 02 6291-7271 or 02 6205-0869. Training requirements: Purpose: Administration time: Instrument Type: Nil training is required for those professionals with qualifications and experience in psychometrics and statistics. For those professionals without these qualifications basic training is required in survey administration and the characteristics of the SF-12 Health Survey. The AHOC provides training workshops for the SF-12 and other instruments. A shorter version of the SF-36 Health Survey designed to reproduce the Physical Component Summary (PCS) and the Mental Component Summary (MCS) scores. 2 minutes. Self-report Questionnaire. Structure: The SF-12 Health Survey includes 12 questions from the SF-36 Health Survey (Version 1). These include: 2 questions concerning physical functioning; 2 questions on role limitations because of physical health problems; 1 question on bodily pain; 1 question on general health perceptions; 1 question on vitality (energy/fatigue); 1 question on social functioning; 2 questions on role limitations because of emotional problems; and 2 questions on general mental health (psychological distress and psychological well-being). Scoring: Scoring of individual items is identical to the SF-36 Health Survey. Scoring algorithms are then applied to produce the PCS and MCS scores. Developed for: Normative Data: Those who need an even shorter generic measure of perceived health status. The SF-12 Health Survey was developed using normative data for the SF-36 Health Survey in the United States. 1 [See Ware, Kosinski & Keller (1994) 2 and Ware, Kosinski, Bayliss, McHorney, Rogers & Raczek (1995) 3 ] Wilson, Tucker & Chittleborough (2002) 4 and Sanderson & Andrews (2002) 5 have conducted local equivalence studies and found the SF-12 suitable for use in Australia. Population health data using the SF-12 can be found in the 1997 Australian National Survey of Mental Health and Well-Being, the 2000 Mental Health Status of South Australian Population Study, 6 the 2002 Longitudinal Investigation of Depression Outcomes (LIDO) Study 7 and the 2003 Australian Gulf War Veteran s Health Study. 8 2

Clinical Data: A few clinical studies are listed below: Arthritis: Gandhi, Salmon, Zhao, Lambert, Gore & Conrad (2001). 9 Back Pain: Luo, Lynn George, Kakouras, Edwards, Pietrobon, Richardson et al. (2003). 10 Diabetes: Siddique, Ricci, Stewart, Sloan & Farup (2002). 11 Elective Surgery: Derrett, Devlin, Hansen & Herbison (2003). 12 Heart and Stroke Patients: Lim & Fisher (1999). 13 Homeless Persons: Larson (2002). 14 Myocardial Infarction: McBurney, Eagle, Kline-Rogers, Cooper, Mani, Smith et al. (2002). 15 Older Adults in a retirement community: Resnick & Nahm (2001). 16 Retinal Diseases: Globe, Levin, Chang, Mackenzie & Azen (2002). 17 Applications: In choosing between the SF-12 and the SF-36 Health Surveys users should consider the trade-off between test taker burden (ie. number of questions, time to complete) and the precision of scores (ie. how reliable does the obtained score need to be). Ware et al. (1996) 1 reports that there is a 10% loss in the SF-12 s ability to distinguish between different disease groups as compared to the SF-36 and that the SF-12 less accurately reproduces the eight scale profile of the SF-36. Therefore it is recommended that the SF-36 be used for smaller studies (less than n = 500). A recent paper by Rubenach, Shadbolt, McCallum & Nakamura (2002) 18 highlights this important distinction for clinical research studies. Sanderson & Andrews 5,19,20,21 have done considerable work in utilising the SF-12 (MCS) as a disability measure for mental health disorders (especially anxiety and depression). Salyers et al. (2000) 22 have utilised the SF-12 (MCS) for severe mental illness. The SF-12 has been administered using interactive voice recognition technology 23 and in computerised format 24 Telephone vs. mail-out administration has also been compared. 25 An acute (1 week) version of the SF-12 Health Survey is also available. Like the SF-36 Health Survey, the SF-12 Health Survey has been recently updated by QualityMetric Incorporated. The new version is known as the SF-12v2 TM Health Survey (Version 2). However, this update of the SF-12 has yet to be field tested in Australia for equivalence 3

or new norms developed for the Australian Population. See also the on the SF-36 Health Survey. RELIABILITY Studies reported Yes / No References Adequacy Weak/ Adequate/ Comment Internal consistency NA NA NA The important issue here is how well the SF- 12 reproduces the PCS and MCS scores of the SF-36. Test retest Yes Ware et al. (1996) 1 Salyers et al. (2000) 22 Adequate Test-Retest Reliability - PCS = 0.89; MCS = 0.76. Lenert (2000) 24 Resnick & Parker (2001) 26 Inter rater NA NA NA The SF-12 is a selfreport measure. 4

VALIDITY Studies reported Yes / No References Adequacy Weak/ Adequate/ Comment Discriminatory Power Yes Ware et al. (1996) 1 Sugar et al. (1998) 27 Adequate See also the references in the Construct Validity section. Sanderson et al. (2001) 19 Sanderson & Andrews (2002) 20 Correlation with other measures Yes Ware et al. (1996) 1 Johnson & Coons (1998) 28 Lundberg et al. (1999) 29 Burdine et al. (2000) 30 Marcan et al. (2003) 31 Construct Yes Ware et al. (1996) 1 Jenkinson & Layte (1997) 32 Gandek et al. (1998) 33 The SF-12 PCS and MCS scores correlate 0.95 and 0.96 with there SF-36 counterparts. Criterion Yes Ware et al. (1996) 1 Jenkinson & Layte (1997) 32 Gandek et al. (1998) 33 The criterion is how well the SF-12 reproduces the PCS and MCS scores of the SF-36 (see above). 5

RESPONSIVENESS Studies reported Yes / No References Adequacy Weak/ Adequate/ Comment Sensitivity to change Yes Jenkinson et al. (1997) 34 Adequate Sugar et al. (1998) 27 Lenert et al. (2000) 35 Riddle et al. (2001) 36 Luo et al. (2001) 10 Cultural Applicability and Cultural Adaptations: Jenkinson, Chandola, Coulter & Bruster (2001) 37 in the United Kingdom have made a useful contribution in this area. However, in Australia, little research has been reported on the use of SF-12 with people from a non- English speaking background and Aboriginal and Torres Strait Islanders. Gender Appropriateness: Age Appropriateness: Summary: Normative data is available for males and females. 14 years and over. The SF-12 Health Survey is a suitable measure for large group epidemiological studies (greater than n = 500) where information on the SF-36 Health Survey Summary Scores (PCS + MCS) is required. References 1. Ware JE, Jr., Kosinski M, Keller SD. A 12 Item Short Form Health Survey: Construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34:220-233. 2. Ware JE, Jr., Kosinski M, Keller SD. SF-36 Physical and Mental Health Summary Scales: A User's Manual. MA: The Health Institute, New England Medical Center, 1994. 3. Ware JE, Jr., Kosinski M, Bayliss MS, McHorney CA, Rogers WH, Raczek A. Comparison of methods for the scoring and statistical analysis of SF 36 Health Profile and Summary Measures: Summary of results from the Medical Outcomes Study. Med Care 1995; 33:AS264-AS279. 4. Wilson D, Tucker G, Chittleborough C. Rethinking and rescoring the SF-12. Sozial- und Praventivmedizin 2002; 47:172-177. 5. Sanderson K, Andrews G. The SF-12 in the Australian population: cross-validation of item selection. Australian & New Zealand Journal of Public Health 2002; 26:343-345. 6

6. Taylor AW, Wilson DH, Dal Grande E, Ben-Tovim D, Elzinga RH, Goldner RD, et al. Mental health status of the South Australian population. Australian & New Zealand Journal of Public Health 2000; 24:29-34. 7. Herrman H, Patrick DL, Diehr P, Martin ML, Fleck M, Simon GE, et al. Longitudinal investigation of depression outcomes in primary care in six countries: the LIDO study. Functional status, health service use and treatment of people with depressive symptoms. Psychological Medicine 2002; 32:889-902. 8. Sims M, Abramson M, Forbes A, Glass D, Ikin J, Ittak P, et al. Australian Gulf War Veterans' Health Study. Canberra: Department of Veterans Affairs, 2003. 9. Gandhi SK, Salmon JW, Zhao SZ, Lambert BL, Gore PR, Conrad K. Psychometric evaluation of the 12-item short-form survey (SF-12) in osteoarthritis and rheumatoid arthritis clinical trials. Clinical Therapeutics 2001; 23:1080-1098. 10. Luo X, Lynn George M, Kakouras I, Edwards CL, Pietrobon R, Richardson W et al. Reliability, validity and responsiveness of the short form 12-item survey (SF-12) in patients with back pain. Spine 2003; 28:1739-1745. 11. Siddique R, Ricci JA, Stewart WF, Sloan S, Farup CE. Quality of life in a US national sample of adults with diabetes and motility-related upper gastrointestinal symptoms. Digestive Diseases & Sciences 2002; 47:683-689. 12. Derrett S, Devlin N, Hansen P, Herbison P. Prioritizing patients for elective surgery: a prospective study of clinical priority assessment criteria in New Zealand. International Journal of Technology Assessment in Health Care 2003; 19:91-105. 13. Lim LL, Fisher JD. Use of the 12-item short-form (SF-12) Health Survey in an Australian heart and stroke population. Quality of Life Research 1999; 8:1-8. 14. Larson CO. Use of the SF-12 instrument for measuring the health of homeless persons. Health Services Research 2002; 37:733-750. 15. McBurney CR, Eagle KA, Kline-Rogers EM, Cooper JV, Mani OC, Smith DE, et al. Health-related quality of life in patients 7 months after a myocardial infarction: factors affecting the Short Form-12. Pharmacotherapy 2002; 22:1616-1622. 16. Resnick B, Nahm ES. Reliability and validity testing of the revised 12-item Short-Form Health Survey in older adults. Journal of Nursing Management 2001; 9:151-161. 17. Globe DR, Levin S, Chang TS, Mackenzie PJ, Azen S. Validity of the SF-12 quality of life instrument in patients with retinal diseases. Ophthalmology 2002; 109:1793-1798. 18. Rubenach S, Shadbolt B, McCallum J, Nakamura T. Assessing health-related quality of life following myocardial infarction: is the SF-12 useful? Journal of Clinical Epidemiology 2002; 55:306-309. 19. Sanderson K, Andrews G, Jelsma W. Disability measurement in the anxiety disorders: comparison of three brief measures. Journal of Anxiety Disorders 2001; 15:333-344. 20. Sanderson K, Andrews G. Prevalence and severity of mental health related disability and relationship to diagnosis. Psychiatric Services 2002; 53:80-86. 21. Andrews G. A brief integer scorer for the SF-12 validity of the brief scorer in Australian community and clinic settings. Australian & New Zealand Journal of Public Health 2002; 26:508-510. 22. Salyers MP, Bosworth HB, Swanson JW, Lamb-Pagone J, Osher FC. Reliability and validity of the SF-12 health survey among people with severe mental illness. Medical Care 2000; 38:1141-1150. 23. Millard RW, Carver JR. Cross-sectional comparison of live and interactive voice recognition administration of the SF-12 health status survey. American Journal of Managed Care 1999; 5:153-159. 7

24. Lenert LA. The reliability and internal consistency of an internet-capable computer program for measuring utilities. Quality of Life Research 2000; 9:811-817. 25. Jones D, Kazis L, Lee A, Rogers W, Skinner K, Cassar L, et al. Health status assessments using the Veterans SF-12 and SF-36: methods for evaluating outcomes in the Veterans Health Administration. Journal of Ambulatory Care Management 2001; 24:68-86. 26. Resnick B, Parker R. Simplified scoring and psychometrics of the revised 12-item Short-Form Health Survey. Outcomes Management for Nursing Practice 2001; 5:161-166. 27. Sugar CA, Sturm R, Lee TT, Sherbourne CD, Olshen RA, Wells KB et al. Empirically defined health states for depression from the SF-12. Health Services Research 1998; 33:911-928. 28. Johnson JA, Coons SJ. Comparison of the EQ-5D and SF-12 in an adult US sample. Quality of Life Research 1998; 7:155-166. 29. Lundberg L, Johannesson M, Isacson DG, Borgquist L. The relationship between health-state utilities and the SF- 12 in a general population. Medical Decision Making 1999; 19:128-140. 30. Burdine JN, Felix MR, Abel AL, Wiltraut CJ, Musselman YJ. The SF-12 as a population health measure: an exploratory examination of potential for application. Health Services Research 2000; 35:885-904. 31. Macran S, Weatherly H, Kind P. Measuring population health: a comparison of three generic health status measures. Medical Care 2003; 41:218-231. 32. Jenkinson C, Layte R. Development and testing of the UK SF-12 (short form health survey). Journal of Health Services & Research Policy 1997; 2:14-18. 33. Gandek B, Ware JE, Aaronson NK, Apolone G, Bjorner JB, Brazier JE, et al. Cross validation of item selection and scoring for the SF-12 Health Survey in nine countries: results from the IQOLA Project, International Quality of Life Assessment. Journal of Clinical Epidemiology 1998; 51:1171-1180. 34. Jenkinson C, Layte R, Jenkinson D, Lawrence K, Petersen S, Paice C, et al. A shorter form health survey: can the SF-12 replicate results from the SF-36 in longitudinal studies? Journal of Public Health Medicine 1997; 19:179-186. 35. Lenert LA, Sherbourne CD, Sugar C, Wells KB. Estimation of utilities for the effects of depression from the SF- 12. Medical Care 2000; 38:763-770. 36. Riddle DL, Lee KT, Stratford PW. Use of SF-36 and SF-12 health status measures: A quantitative comparison for groups versus individual patients. Medical Care 2001; 39:867-878. 37. Jenkinson C, Chandola T, Coulter A, Bruster S. An assessment of the construct validity of the SF-12 summary scores across ethnic groups. Journal of Public Health Medicine 2001; 23:187-194. Reporter: Nicholas Marosszeky, Research Psychologist marossz@uow.edu.au Date of report: 30 May 2005 With additional comments by Jan Sansoni This review was written as a part of the Continence Outcomes Measurement Suite research project, funded by the Commonwealth Department of Health and Ageing, National Continence Management Strategy. 8