Estimates of Prevalence of Mental Health Conditions among Children and Adolescents in Texas. March 24, 2016

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Estimates of Prevalence of Mental Health Conditions among Children and Adolescents in Texas March 24, 2016

MMHPI Page 2 Estimates of the Prevalence of Mental Health Conditions among Children and Adolescents in Texas Methodology Drawing on the work of Dr. Charles Holzer, a leading psychiatric epidemiologist and Galveston resident, we are able to apply algorithms based on findings from the best national epidemiological studies to Texas population data, in order to estimate the number of children and adolescents who have severe emotional disturbances in a given year. In 2011, data were published from the first ever national epidemiological study of behavioral disorders among adolescents, the National Comorbidity Survey Replication Adolescent Version. We have applied these national level data to Texas, in order to examine the prevalence of specific types of disorders, as well as the severity of mental health conditions among adolescents. 1 Finding Highlights Half of all mental health conditions begin by age 14. In a 12-month period there are more than a half-million children and adolescents with severe emotional disturbances (SED) in Texas. SED includes mental health conditions, such as attention deficit disorders, conduct disorders and depression, along with impaired ability to function at school and at home. There are over 300,000 children/youth with SED living at or below 200% of the federal poverty level. Each year, more than 150,000 adolescents alone (ages 13-17) cope with serious disorders. Among youth with SED, 30,000 are estimated to remain in the school to prison pipeline, if nothing is done to help them. 1 Epidemiological data on diagnoses for younger children are very limited.

MMHPI Page 3 Prevalence of Selected Mental Health Conditions among Children and Adolescents in Texas 2 Age TX 12-month Mental Health Condition Group Prevalence Severe Emotional Disturbance 3 0-17 545,453 Children/Adolescents at/below 200% FPL 0-17 304,429 Serious Disorders Adolescents only 4 13-17 157,126 At-Risk for School to Prison Pipeline 5 0-17 30,000 Schizophrenia Childhood Onset (before age 13) 6 0-12 127 Adolescent Onset (ages 13-17) 7 13-18 4,512 Depression 4 13-17 160,877 Bipolar Disorder 4 13-17 41,200 Post-Traumatic Stress Disorder 4 13-17 76,515 Conduct Disorder 4 13-17 105,944 Substance Use Disorders 4 13-17 162,839 Self-Injury/Harming Behaviors 8 13-17 186,382 2 All prevalence estimates are based on either specific algorithms applied to Texas (Holzer et al., 2015, cited below), or estimates from the research literature. These estimates are applied to population estimates from the American Community Survey, 2013. Unless where otherwise indicated, age of onset estimates come Kessler, R.C. et al. (2005). Lifetime prevalence and age of onset distributions of DSM-IV disorders in the National Comorbidity Survey Replication. Archives of General Psychiatry, 62, 593-768. 3 Holzer, C., Nguyen, H., Holzer, J. (2015). Texas county-level estimates of the prevalence of severe mental health need in 2012. Dallas, TX: Meadows Mental Health Policy Institute. Twenty percent are substance use disorders. 4 Kessler, R.C., et al. (2011). Prevalence, persistence and sociodemographic correlates of DSM-IV disorders in the National Comorbidity Survey Replication Adolescent Supplement. Archives of General Psychiatry, E1-E-9. Kessler, R.C., et al. (2012). Severity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication Adolescent Supplement. Archives of General Psychiatry, 69(4), 381-389. (The estimate for depression includes major depression and dysthymia) 5 Fabelo, T., et al. (2011, July). Breaking school rules: A statewide study of how school discipline relates to students success and juvenile justice involvement. New York: The Council of State Governments Justice Center. 6 Childhood onset schizophrenia has been estimated to have a prevalence of one in 40,000 children under the age of 13. See Gochman, P., Miller, R, & Rapoport, J.L. (2011). Childhood-onset schizophrenia: The challenge of diagnosis. Curr Psychiatry Rep, 13(5), 321-322. 7 Androutsos, C. (2012). Schizophrenia in children and adolescents: relevance and differentiation from adult schizophrenia. Psychiatriki, 23(Supl), 82-93. (Original article in Greek). The estimate is that among adolescents ages 13-18, 0.23% meet criteria for the diagnosis of schizophrenia. Another study from Sweden reported that 0.54% of adolescents were treated for psychotic disorders at least once during the ages of 13-19: Gillberg, C. et al. (2006). Teenage psychoses-epidemiology, classification and reduced optimality in the pre-, per-, and neonatal periods. Journal of Child Psychology and Psychiatry, 27(1), 87-98. 8 Muehlenkamp, J.J., et al. (2012). International prevalence of adolescent non-suicidal self-injury and deliberate self-harm, Child and Adolescent Psychiatry and Mental Health, doi: 10.1186/1753-2000-6-10

MMHPI Page 4 Ages of Onset of Selected Mental Health Conditions 9 Mental Health Condition 50% have onset by age: 25% have onset by age: All Conditions 14 7 Mood Disorders 30 18 Major Depressive Disorder 32 19 Dysthymia (mild/moderate depression) 31 17 Bipolar Disorder 25 17 Schizophrenia 10 22 (no data) Childhood Onset (before age 13) 11 (Childhood) Adolescent Onset (ages 13-17) 12 (Adolescence) Anxiety Disorders (selected conditions) 11 6 Post-Traumatic Stress Disorder 23 15 Separation Anxiety Disorder 7 6 Social Phobia 13 8 Behavioral Disorders (selected conditions) 11 6 Conduct Disorder 13 10 Attention Deficit Hyperactivity Disorder 7 7 Self-Injury/Harm (adolescents only) 13 Adolescence Drug Abuse 19 17 9 Unless where otherwise indicated, age of onset estimates come Kessler, R.C. et al. (2005). Lifetime prevalence and age of onset distributions of DSM-IV disorders in the National Comorbidity Survey Replication. Archives of General Psychiatry, 62, 593-768. 10 Kessler, R.C. et al. (2007). Age of onset of mental disorders: A review of recent literature. Curr Opin Psychiatry, 20(4), 359-364. 11 Childhood onset schizophrenia has been estimated to have a prevalence of one in 40,000 children under the age of 13. See Gochman, P., Miller, R, & Rapoport, J.L. (2011). Childhood-onset schizophrenia: The challenge of diagnosis. Curr Psychiatry Rep, 13(5), 321-322. 12 Androutsos, C. (2012). Schizophrenia in children and adolescents: relevance and differentiation from adult schizophrenia. Psychiatriki, 23(Supl), 82-93. (Original article in Greek). The estimate is that among adolescents ages 13-18, 0.23% meet criteria for the diagnosis of schizophrenia. Another study from Sweden reported that 0.54% of adolescents were treated for psychotic disorders at least once during the ages of 13-19: Gillberg, C. et al. (2006). Teenage psychoses-epidemiology, classification and reduced optimality in the pre-, per-, and neonatal periods. Journal of Child Psychology and Psychiatry, 27(1), 87-98. 13 Muehlenkamp, J.J., et al. (2012). International prevalence of adolescent non-suicidal self-injury and deliberate self-harm, Child and Adolescent Psychiatry and Mental Health, doi: 10.1186/1753-2000-6-10

MMHPI Page 5 Twelve-Month Prevalence and Severity of Selected Mental Health Conditions among Texas Adolescents, Ages 13-17 14 Mental Health Conditions 15 Mild/ All Severity Serious Moderate Levels All Disorders (some not listed below) 16 157,126 677,815 834,941 Depression 57,272 103,605 160,877 Bipolar Disorder 12,566 28,634 41,200 Post-Traumatic Stress Disorder 21,195 55,320 76,515 Conduct Disorder 63,354 42,589 105,944 Substance Use Disorders 47,386 115,453 162,839 Schizophrenia 17 4,512 N/A 4,512 Experience Psychotic Symptoms 18 196,192 196,192 Self-Injury/Harming Behaviors 19 186,382 186,382 14 Most of the data are drawn from the National Comorbidity Survey Replication Adolescent Version, which focuses on ages 13-17. However, we note where data are drawn from other sources. Please note that conditions overlap (are comorbid ). 15 Disorders include all mental health and substance use disorders. All severity estimates ( serious vs. mild and moderate ) are taken from: Kessler, R.C., et al. (2012). Severity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication Adolescent Supplement. Archives of General Psychiatry, 69(4), 381-389. We have not included all diagnoses. Diagnoses can overlap (can be comorbid ). 16 All disorders include some not listed below, but do not include Experience Psychotic Symptoms and Self- Injury/Harming Behaviors which are not disorders. 17 Androutsos, C. (2012). Schizophrenia in children and adolescents: relevance and differentiation from adult schizophrenia. Psychiatriki, 23(Supl), 82-93. (Original article in Greek). The estimate is that among adolescents ages 13-18, 0.23% meet criteria for the diagnosis of schizophrenia. Another study from Sweden reported that 0.54% of adolescents were treated for psychotic disorders (a broader but overlapping set of conditions) at least once during the ages of 13-19: Gillberg, C. et al. (2006). Teenage psychoses-epidemiology, classification and reduced optimality in the pre-, per-, and neonatal periods. Journal of Child Psychology and Psychiatry, 27(1), 87-98. We are considering all schizophrenia cases to be serious. 18 Stevens, J.R. et al. (2014, March). Psychotic disorders in children and adolescents: A primer on contemporary evaluation and management. Prim Care Companion, 16(2), doi: 10.4088/PCC.13f01514 Stevens et al cite studies that find anywhere from 9% to 14% of adolescents indicate they have experienced psychotic symptoms. We conservatively applied the 10% figure to the Texas population of 13 to 17 year olds. Stevens et al. also noted that while psychotic symptoms do not indicate a person meets criteria for a diagnosable psychotic disorder, they are strongly correlated with suicide attempts. 19 Muehlenkamp, J.J., et al. (2012). International prevalence of adolescent non-suicidal self-injury and deliberate self-harm, Child and Adolescent Psychiatry and Mental Health, doi: 10.1186/1753-2000-6-10. While we are defining all self-harming and self-injury behaviors as serious, these behaviors alone do not constitute a disorder, and thus would not be included in the NCSR-A estimate of serious disorders. Note that we used an average 12- month prevalence estimate of 9.5% across the studies reported by Muehlenkamp et al.

MMHPI Page 6 Incidence and Prevalence of Serious Mental Illness and Serious Emotional Disturbances in Three Large Texas Counties 20 Mental Health Condition Age Group Harris Dallas Bexar 12-Month Prevalence Severe Emotional Disturbance (SED) 0-17 92,006 53,482 37,523 Any Serious Disorder 13-17 25,179 13,945 10,744 12-Month Incidence (new cases) First Episode of Psychosis (not a diagnosis) 15-34 678 381 280 20 All estimates are based on the comparable statewide figures provided in previous tables.