The Need to Address Alzheimer s Disease WOMEN IN GOVERNMENT CARROLL RODRIGUEZ ALZHEIMER S ASSOCIATION ST. LOUIS CHAPTER

The Need to Address Alzheimer s Disease WOMEN IN GOVERNMENT CARROLL RODRIGUEZ ALZHEIMER S ASSOCIATION ST. LOUIS CHAPTER

PLAY VIDEO

Alzheimer s Epidemic Over 5 million Americans are living with Alzheimer s Another person is added every 67 seconds 6 th leading cause of death 15 million caregivers provided an estimated 17 billion hours of unpaid care valued at more than $220 billion

Top Ten Causes of Death Percent Change, 2000-2010

Alzheimer s Prevalence and Costs In Millions of People; In Billions of 2014 Dollars

Alzheimer s: The Costly Disease $107B Medicare $142 Billion $35B Medicaid $203 Billion $34B Out of Pocket $27B Other

Costs to Medicaid Average Per Senior Medicaid Payments 2008 (Inflated to 2013 Dollars)

Dual-Eligible Seniors Seniors on Both Medicare and Medicaid 28.7% 10.8%

Alzheimer s and Long-Term Care Costs National estimates for all service users, based on 2012 data Adult Day Care: $72 per day Assisted Living: $43,756 per year Nursing Home: $83,230 (semi-private) to $92,977 (private) per year Home Care: $21 per hour or $168 for an eight hour day 2014 Alzheimer s Disease Facts and Figures

Understanding Dementia

Common Symptoms Healthy vs. Alzheimer s Memory Language Thought Navigation Behavior Personality / mood Planning / organizing

Stages of Alzheimer s Disease Early-Stage Occasional memory lapses Trouble with complex tasks Subdued / withdrawn Independence with self care Mid-Stage Difficulty remembering key pieces of information Assistance with self care Personality / behavior changes More likely to wander Late-Stage Inability to respond to their environment, carry on a conversation and eventually to control movement Assistance needed with all care

ALZHEIMER S POLICY SOLUTIONS: The Changing Landscape at the Federal and State Level

National Alzheimer s Project Act (NAPA) Bipartisan legislation passed unanimously by both houses of Congress and signed into law January 4, 2011 First Alzheimer s specific law in 18 years

Voices from the Front Lines Lack of public awareness & stigma Insufficient research funding Low rates of diagnosis Poor post-diagnostic care Inadequate treatments Unprepared caregivers Ill-equipped communities Mounting costs Alzheimer s From the Front Lines: Challenges a National Alzheimer s Plan Must Address, Alzheimer s Association 2011

NAPA-National Plan Goals Prevent & Effectively Treat AD by 2025 Enhance Care Quality & Efficiency Expand Supports for People with AD and Their Families Enhance Public Awareness and Engagement Improve Data to Track Progress National Plan to Address Alzheimer s Disease

Surveillance andpublic Health As part of Healthy People 2020, fighting Alzheimer s disease is one of the nation s health objectives States are accountable for meeting Healthy People goals Alzheimer s is a priority surveillance is the first step in understanding the disease so we can respond appropriately

2011 BRFSS Cognitive Module (22 States) Percent of Individuals 60+ with Memory Loss Not Speaking to a Health Care Provider 85-90% 80-84% 70-79% Average Across 22 States 80.7% 60-69% Statedid not use module

The Healthy Brain Initiative: Public Health Road Map for State and National Partnerships 2013-2018 Alzheimer s Association and CDC 2 nd in a series of road maps Outlines how states, local public health agencies, partners Promote cognitive functioning and early detection and diagnosis Address cognitive impairments for individuals living in the community Help meet the needs of care partners

Alzheimer s State Plans More than 40 states involved in state plans including recommendations on: Public Awareness Detection and Diagnosis Interventions Services and Quality of Care Training/ Workforce Development Long-Term Care Assisting Caregivers Research Brain Health Data Collection Alzheimer s Association: State Plans 2012

State Alzheimer s Disease Plans Published a State Alzheimer s Plan (31) Puerto Rico Task Force established to develop a State Alzheimer s Plan (12 including DC) Legislation filed (2) No legislation filed or executive branch activity pending (7 including PR)

Community Conversations: Partnerships to Move Alzheimer s Initiatives Forward

Purpose of Community Conversations Public private sector partnerships to improve outcomes for individuals with Alzheimer s disease Promote energetic discussions between community leaders that fosters positive actions and change Awareness Detection Intervention

Community Conversations Geriatric Professionals Advocates Elder Law Insurance Medicare Medicaid Business / Foundations Government Person with Alzheimer s Families / Care Partners Area Agencies on Aging Healthcare Professionals Academia / Research Centers Long Term Care Law Enforcement

Alzheimer s Community Conversation Focus on detection 50% of people with Alzheimer s have not been diagnosed Community organization serves as the lead organizer 3 sessions Lilly providers speakers with expertise Group develops action items and outcomes Detection

Why Early Detection and Diagnosis Diagnosis empowers people with Alzheimer s disease and their families to take action Other benefits of early diagnosis include: Optimize current medical management Relief gained from better understanding of symptoms Maximize decision-making autonomy Access medical & community services Reduce risk of excess disability Plan for the future Improve clinical outcomes Avoid or reduce future costs Detection Alzheimer s Disease International World Alzheimer Report 2011

Community Conversation Outcomes Early detection webinars (3) reached physicians and health care providers across Missouri (QIO) Hospital initiative grant trained clinicians and family caregivers to advance better outcomes (CMS) Caregiver education and training grant including the value of early detection (UMSL and Express Script) Detection Geriatric Education Conference on early detection and diagnosis for health care professionals (St. Louis University) Education of law enforcement and new dementia training requirements through POST (CIT and Public Safety) Education of MFP contractors and other agencies both private and public (DHSS and ADRC)

Call to Action Engage in State Plan implementation Raise Awareness of Alzheimer s disease as an important public health issue that must be addressed Educate constituents about community resources including those provided by the Alzheimer s Association

800.272.3900 alz.org/ lz.org/stl