DAFNE Collaborative Meeting 22 June 2012, Manchester Speakers and Facilitator Biographies Anita Beckwith Lead Diabetes Specialist Dietitian, King s College Hospital Anita Beckwith is the Lead Diabetes Specialist Dietitian and DAFNE Educator at Kings College Hospital, and has a special interest in therapeutic patient education and practitioner development. Within her role as Project Coordinator of the British Dietetic Association DMEG (Diabetes Management and Education Group) Committee she endeavours to develop the Advanced Practitioner role and specialist qualities of a dietitian practising within diabetes, particularly focussing on pre- and post-qualification dietetic training. This has resulted in the development of a Medicines Management module at York University, national undergraduate dietetic workbooks and the current development of a Masters Level course in Advanced Diabetes Dietetic Practice. Anita is also currently studying for her own Masters in Advanced Diabetes Practice at Kings College London. Professor Alan Brennan BSc (London), MSc (London), PhD (Sheffield) I am Professor of Health Economics and Decision Modeling at ScHARR, University of Sheffield, England. I have been developing and applying modeling in support of healthcare decisionmaking nationally and internationally across a large range of diseases, interventions, service planning and policy issues for over 20 years. I studied for BSc Mathematics at Imperial College London and then MSC Operational Research at the London School of Economics before joining the NHS to work in and then lead the Trent Operational Research Unit. Since 1994 I have been leading the modeling team at ScHARR. Dr Pratik Choudhary Senior Lecturer and Consultant, King s College Hospital Dr Pratik Choudhary is a Senior Lecturer and Consultant in Diabetes at King's College London. He completed his thesis on The use of continuous glucose monitoring in the investigation of hypoglycaemia with Prof Simon Heller in Sheffield, and for the past 6 years has been part of the team at Kings. His main clinical interest is in the management of patients with problematic hypoglycaemia, and along with the team at Kings offers a full range of treatments including structured education [DAFNE], technology [insulin pump therapy and continuous glucose monitoring] and transplantation [both islet and pancreas transplantation]. The King s team has over 420 patients on insulin pumps and over 30 patients on continuous glucose monitoring and have performed 8 islet cell transplants. His MD thesis was based on a multi-centre observational study called the UK Hypoglycaemia study, which used CGM to look at rates of hypoglycaemia in different populations with diabetes. He has also been involved in studies of new technology such as Low Glucose Suspend and closed loop systems for diabetes. He is also involved with studies looking at the use of neuroimaging to explore brain responses to hypoglycaemia and studies developing psychological and pharmacological interventions to improve or restore hypoglycaemia awareness. He is involved in studied within the DAFNE portfolio such as REPOSE and DAFNE-HART. DAFNE Collaborative meeting 2012 sponsored by 1 of 5
Debbie Cooke PhD, CPsychol, University College London Debbie Cooke is a Senior Research Fellow and Health Psychologist based at University College London (UCL). She has been working with the UK National Institute for Health Research (NIHR) DAFNE Study Group since 2008. She was responsible for the day-to-day management of a Psychosocial Study to examine what factors influenced whether DAFNE graduates quality of life and glycaemic control improved or not after they had finished the course. More recently, she has been working on a study to develop a questionnaire tool that could be used in research and clinical practice, to measure type 1 diabetes-specific self-care behaviours (e.g. insulin dose adjustment and carbohydrate counting). This work is funded by the NIHR Research for Patient Benefit programme Katy Davenport DSN, Addenbrooke s Hospital, Cambridge Katy qualified from Barts in Oct 94 and went onto work on St Pauls Acute Renal Unit at the Middlesex Hospital. Whilst there I did a degree in Physiology and then moved over to Diabetes in Jan 2001, initially in research but then as a Diabetes Specialist Nurse between Barts and the Homerton. I moved to Cambridge as Lead Nurse for Diabetes at Addenbrooke s in June 2005 and subsequently trained in DAFNE and pumps. I continue to work at Addenbrooke s and continue to be involved with DAFNE, pumps (and pumps in pregnancy). Dr Jackie Elliott Clinical Lecturer in Diabetes, University of Sheffield Presently I m employed as a Clinical Lecturer in Diabetes at the University of Sheffield. I graduated from Medical School in 2002 as a mature student, having first gained a PhD in basic sciences, and experience of teaching Chemistry. I currently work with Prof Heller in the field of complex interventions, whilst also supporting University undergraduate and postgraduate teaching, and completing my specialist clinical training. I m particularly interested in trying to improve the self-management skills of patients, and to explore the role of technology in patients with Type 1 diabetes. I m especially involved in the hypoglycaemia unawareness and adolescent clinics which we are in the process of re-designing locally. My main role is as lead investigator in the DAFNE 5 day vs 5 week RCT, whilst also supporting the other themes in the DAFNE NIHR research grant, such as the pump trial (REPOSE), the hypoglycaemia awareness restoration trial (DAFNE-HART) and development of the multi-centre DAFNE database. Professor Simon Heller University of Sheffield and Sheffield Teaching Hospitals Simon Heller is Professor of Clinical Diabetes at the University of Sheffield and Director of Research and Development and Honorary Consultant Physician at Sheffield Teaching Hospitals Foundation Trust, UK. He received his clinical diabetes training at Queen s Medical Centre, Nottingham and his research training at the University of Nottingham and Washington University, St Louis, USA. His current research interests include the physiological responses to hypoglycaemia and hypoglycaemia unawareness, pathophysiological mechanisms of sudden death in Type 1 diabetes and developing interventions to encourage more effective diabetes self-management. He was a co-investigator, member of the Management Committee and Chair DAFNE Collaborative meeting 2012 sponsored by 2 of 5
of the Glucose control group in the ADVANCE study. He is Chair of the DAFNE research group and Chief Investigator of the DAFNE NIHR programme grant which is developing a DAFNE research database, exploring the psychosocial determinants of success and failure of the DAFNE course and attempting to both improve the course and deliver it in different ways. Dr David Hopkins King s College Hospital, London David Hopkins is a Consultant Diabetologist and Honorary Senior Lecturer at King s College Hospital, London. He trained in Diabetes in Sheffield, Liverpool and London and held his first consultant post in Central Middlesex Hospital before moving to King s College Hospital in 2004. He has a longstanding academic interest in the management of hypoglycaemia and in structured patient education, having worked as a lecturer in Professor Amiel s research group at King s in the 1990s. He has been involved with DAFNE since 2001 when Central Middlesex Hospital became one of the first roll-out DAFNE centres. More recently, he has contributed to the development and use of the DAFNE database and in collaboration with Ian Lawrence and the DAFNE database group has completed an audit of the biomedical and psychological outcomes of DAFNE. An abstract based on the results of this audit was short-listed for the Diabetes Education award and was presented in Glasgow in March 2008. Further data from the audit will be presented at the Collaborative meeting in Manchester. Julia Lawton Qualitative Researcher, University of Edinburgh Dr Julia Lawton is an experienced qualitative researcher who has a background and training in social anthropology, medical sociology and public health. She is based in the Centre for Population Health Sciences at Edinburgh University where she leads a program of qualitative research concerned with the understandings, experiences and views of patients who have type 1 and type 2 diabetes and their health care providers. Her related research interests include: overweight/obesity, diet, physical activity, medication adherence, risk perceptions and risk management; and, clinical trial participation. Carol McMaster RGN BSc, Glasgow Trained and worked as RGN in Glasgow progressing to ward manager in Acute Medicine. Has been a DSN in the Victoria Infirmary since 2002 and been a DAFNE educator since 2009. Peter Mansell, Nottingham to follow Val Naylor Dietitian, Sheffield Teaching Hospitals I qualified as Dietitian in 1980, from Surrey University and gained general experience in dietetics in Nottingham before moving to Sheffield where I worked first in Renal Dietetics, then in Primary care. I returned to Secondary care in 2000 when I took up the post of Specialist Diabetes Dietitian. I was trained as a DAFNE educator at that time. I soon trained as a DEP trainer and have enjoyed delivering the DEP on many occasions. From April 2009 I will be working in primary delivering a specialist dietetic service in the community. DAFNE Collaborative meeting 2012 sponsored by 3 of 5
Dr Katherine Price Consultant Paediatrician, Sheffield Children s NHS Foundation Trust, Sheffield S10 2TH. kjprice@sch.nhs.uk. I graduated from University of Sheffield, undertook paediatric training in Exeter, Cambridge and South Africa interspersed with return visits to Sheffield, first as a registrar and finally as a consultant. My interest in diabetes started in Exeter where in addition to clinical work on the wards, in diabetes clinics and camps etc, I did research in the 1980 s into managing prescribed carbohydrate diets and also into blood vessel function in children and adolescents. I work as a general paediatrician with an interest in diabetes in the paediatric clinic in Sheffield which has approximately 190 patients less than 16 yrs. I also work closely with the adult team in the joint transition clinics for 16-20 year olds. Since 2001 I have been the lead for the KICk-OFF research study which has developed a new diabetes education course for 11-16 year olds with Type 1 Diabetes. We are currently evaluating this in a randomised trial. I am also involved with other diabetes research projects and am a member of a national paediatric diabetes education working party which is trying to improve the level of education across the UK by supporting staff training and development. Liesl Richardson, DSN, Norwich and Norfolk to follow Helen Rogers Nurse Consultant, King s College Hospital Helen Rogers is a Nurse Consultant in Diabetes currently working at King's College Hospital NHS Foundation Trust in this position for the last 4 years and before this in a Diabetes Specialist Nurse post for 10 years. During this time she has completed an MSc degree in Nursing Studies at King s College London. She is still an active researcher and currently continuing research in the area of hypoglycaemia unawareness. Helen has been involved in the DAFNE (Dose Adjustment For Normal Eating) since its inception in the UK and has been a member of the Educator s committee and Executive committee. She has managed the DAFNE Hub & Spoke project at Kings; to assist 3 District General Hospitals in the outer London area to provide a DAFNE service. Other areas of interest are; pregnancy and diabetes, new innovations in diabetes therapy and the safe and satisfying repatriation of people with Type 2 diabetes from secondary to primary care. Helen was one of the key team members involved with initiating the KCH CSII service which has since grown exponentially year on year. We now have just under 300 people using CSII. Carolin Taylor RGN. DipN, Sheffield Teaching Hospitals Carolin has been a Diabetes Specialist Nurse since 1988 and has been facilitating DAFNE courses since the feasibility trial in 2000. She contributed to the development of the DAFNE Train the Trainers programme that was first run in 2001 and further developed into the DAFNE Educator Programme (DEP) and DAFNE Doctor Programmes (DDP) which she has facilitated every year since 2002. In 2009 she was elected to Chair of the Educator Group and Vice-Chair of the Executive Board and as Lead Educator in Sheffield ran the NIHR-funded pilot of the 5x1 programme and RCT of the pump curriculum which is now being implemented in the HTAfunded REPOSE study. In addition, she is a Peer Reviewer, Trainer and Auditor. DAFNE Collaborative meeting 2012 sponsored by 4 of 5
Candice Ward Principal Diabetes Dietitian, Cambridgeshire I am the Principal Diabetes Dietitian working within the Nutrition and Dietetics Department and the Institute of Metabolic Sciences Wolfson Diabetes and Endocrinology Clinic (IMS-WDEC). I have a particular clinical interest in type 1 diabetes, particularly in intensified management including structured education, use of insulin pumps and glucose-sensing, and in hypoglycaemia. I am the lead educator for the Dose Adjustment for Normal Eating - DAFNE (education package for people with Type 1 diabetes) and the Insulin Pump Service for the IMS- WDEC and Trust. I sit on the national DAFNE executive. I am a national DAFNE trainer, peer reviewer and external quality auditor. I chair the regional DAFNE network as well as the NHS Cambridgeshire PCT diabetes education working group. DAFNE Collaborative meeting 2012 sponsored by 5 of 5