Minnesota HIV Strategy Advisory Board Meeting Minutes, July 24, 2017 CLARE HOUSING, 9:30 A.M. - 12:00 P.M. Present Co-Chairs: Chuck Peterson Members: Mary Johnson (phone) Roger Ernst (phone) Reneka Evans Richard Oni Peter Famanda Meghan Rothenberger Matt Toburen Keith Horvath Jessica Thao Saehee Lee Government Staff: Krissie Guerard Colleen Bjerke Guests: John Mehring Absent Chryssie Jones Jonathan Hanft Brooke Stelzer Kyle Dulgar Cheri Booth Antony Stately Jasmine Rice Bielca Guevara Sharon Day Roxanne Anderson Mary St. Marie Ejay Jack Mady Ekue-Hettah MN HIV Strategy Staff Dr. Alvine Laure Ekame 1
MSHAB MEETING MINUTES 07/24/2017 Welcome and Introductions Chuck called the meeting to order at 9:30 a.m. MHSAB members and guests introduced themselves. Review of Agenda and Minutes MHSAB members reviewed 07/24/17 agenda and 06/26/17 minutes. There were no changes to agenda and minutes. Focus Group Calendar Update The updated focus group calendar was shared with the group. Report from Initial Focus Groups Fifteen focus groups have been completed from 5/15/17 to 7/24/17. The focus groups have included approximately 70 participants from varying age groups, races, ethnicities and geographic locations. Also included in the focus groups are healthcare professionals; defined as case managers, substance use treatment providers, social workers and nurse practitioners. There are 6 scheduled focus groups with healthcare professionals, and 3 have already occurred. The use of the Map of Field Services Epidemiologists is ensuring that diverse groups of people are included in the focus groups, and the goal is to cover all eight regions represented on the map. Topics recurring in the focus groups thus far are: 1. The need for mental health services for persons living with HIV/AIDS; especially in Greater MN and that are culturally sensitive. In addition, there are needs for immediate access to mental health services. Discussions about mental health services need to be provided as a standard part of care, not as additional care. 2. The need for more HIV education for other healthcare professionals (other than infectious diseases providers). 3. The need for more educational campaigns about HIV in an effort to raise public awareness. Overall, rich insightful information has been collected from the focus groups that have occurred. Dr. Alvine Laure Ekame expressed that she would like to convene more focus groups with people at high risk of HIV, and the Native American population. 2
MSHAB MEETING MINUTES 07/24/2017 Matt Toburen volunteered to assist in organizing a focus group with current injection-drug users through the Syringe Exchange Program at Minnesota AIDS Project. As more focus groups are being scheduled, the advisory board members would like to focus on gathering members from at-risk populations and healthcare professionals to get their perspectives. To include the transgender community in the focus groups, it was reported that the community is not interested in sitting in the same room with each other to share their experiences, and would rather participate in one-on-one interviews in a private setting. In addition, the community would like increase the incentive to participate by increasing the dollar amount offered on the gift cards. Note taking is permitted within this group. Incentives have been a huge barrier. Usually incentives are $30.00-$50.00, plus food and transportation (University of Minnesota Twin Cities). Dr. Alvine Laure Ekame will report back to Reneka and Meghan if the incentive amounts can be increased. There is a need to connect with Native Americans to include them in the focus groups, and Dr. Alvine Laure will connect with Sharon to write a letter to reach out to that community. The group reflected on their experiences in being a part of and/or carrying out a focus group. The combination of participants writing and speaking has been successful in the past. In rural MN, many of the participants drove at least 2 hours to arrive to the focus group. Some individuals in greater MN only have one doctor they can connect with for care, which is fine if they have a good relationship with their doctor, but if they do not then that could negatively influence their care. In Duluth, Three participants in Duluth Focus group for consumer spoke about giving up seeking romantic relationship, which was a very emotional topic for them. Focus groups with HIV providers in greater MN have occurred in both Duluth and Moorhead, but it has proved very challenging to convene meetings with providers. The suggestion was made to include primary care providers in the community who do not provide HIV services in the focus groups as well. Residents in greater MN report that primary care providers are often uncomfortable working with patients with HIV. There was a case where the provider double-gloved before caring for person living with HIV. There is a lot stigma in greater MN towards persons living with HIV. There is also a stigma surrounding the disease investigation process, with participants stating it can take years to recover from the traumatic process. 3
MSHAB MEETING MINUTES 07/24/2017 Dr. Alvine Laure Ekame will communicate with Sarah Rybicki, the Program Director of Minnesota Midwest AIDS Training + Education Center (MATEC), to seek help in connecting with primary care providers in greater MN. Status of Project There was discussion on whether or not to draft tactics for each goal before or after completion of focus groups. Influencing factors included current timeline to when the board will submit the Comprehensive Statewide Plan to End HIV to the legislators and bias that might be present when drafting tactics before completion of focus groups. The group agreed to wait on drafting tactics until September 2017. Review 3 rd Draft of Vision/Goals/Strategies The board collectively reviewed the narrative under each goal. The following are the changes that the MHSAB members agreed on: Goal 1: (First sentence) delete rate (Second sentence) delete despite this number of new HIV infections, Discussion on the best terminology to refer to the Affordable Care Act. Suggestions to add an appendix list to define terminologies to the audience. Add is to Pre-exposure Prophylaxis and Postexposure Prophylaxis. Goal 2: (First sentence) the following crossed out words certain urban neighborhoods, and portions of Greater Minnesota. Goal 3: (Third sentence) add in the community in which they live following (person-centered care) Goal 4: (Second sentence) delete public health (Third sentence) Chuck agreed to edit owned by the community phrase. Delete er ending on stronger. Keep Tribal nations to grassroots community organizations (.) (Fourth sentence) replace ways with methods 4
Goal 5: (First sentence) delete the that MSHAB MEETING MINUTES 07/24/2017 (Second sentence) delete meeting the basic living needs such as Plan for Fall Town Hall Meeting The goal of the Fall Town Hall Meeting is to share with the public the goals, strategies and findings from the focus groups to receive feedback. We need to complete an outline proposal for Fall Town Hall Meeting by August 28, 2017. Location and Time: How: Who is it that we desperately want to attend? If we focus on the audience, we can use that to plan the content for the town hall to achieve maximum participation from the targeted audience. It would be nice to find out the names of the legislators supporting the bill to host a town hall in their districts. Location accessibility to off-street parking and public transportation routes. Find a venue with great in-person accessibility and with WebEx access DHS and MDH will collaborate to facilitate Cisco WebEx. Alternatively, have the town hall on Facebook live which allow different members of the community aware of the Statewide Plan to End HIV and allows them to share the recorded feed. MDH communication department will access the best avenue to have the town hall accessible via social media and/or the web. Suggestion to use YouTube to provide information, educate and introduce 90-90-90 and other topics that might be unfamiliar to the public prior to the town hall meeting. Presentations need to be clear and easy to understand, as well as allow opportunity to hear from the audience. Announcements: Dr. Keith Henry and John Mehring have been working together to bring Dr. Paul Volberding to the University of Minnesota for a Distinguished Alumni Award on Oct. 12. Dr. Volberding is a hematologist, raised on a farm in Minnesota, who is best known for his pioneering work in treating persons with HIV. He is widely considered one of the world's leading AIDS experts. Currently he is the Professor and Vice chair, Department of Medicine; and Co-director, Center for AIDS Research; University of California San Francisco The advisory board encouraged Dr. Alvine Laure Ekame to connect with Dr. Keith Henry for an opportunity to invite Dr. Volberding to attend a meeting of the MNHSAB. 5
Future Meetings: 1. See meeting calendar MSHAB MEETING MINUTES 07/24/2017 2. Location: Clare Housing 929 Central Avenue NE, Minneapolis, MN 55413 3. Agenda: a. Tactics under each goal. b. Outline proposal for the Town Hall Meeting tentatively to occur prior to the next advisor board meeting Adjourn The meeting adjourned at 12:00 p.m. Minutes written by EM Reviewed by ALE and NLJ Minnesota Department of Health 651-201-5414 www.health.state.mn.us 10/11/2017 To obtain this information in a different format, call: 651-201-5414. Printed on recycled paper. 6