Update on the Scottish Health Survey Health Survey Users Group June 2016
Agenda Background Where have we come from and where are we now? Content and Data Consultation INTAKE24 What are the new questions? Dissemination and data linkage Key questions How to access What is it? Where are we now? Learnings/Future Where are we going? 1
Background
What is the history? Basic Methodology Now includes children aged 2-15 and those aged 65-74 Continuous survey Sample from PAF 4,000 adults, 1,800 children Biological samples from 1,000 1995 2003 2008 2009 2010 2011 20122013 2014 2015 2016 1998 Scottish Office launch the Scottish Health Survey (SHeS) covering 16-64 yearolds Now includes 0 1 year olds and those aged 75 and over ECG readings to monitor electrical activity of the heart Health Board boosts added Interviewers begin collecting blood pressure, urine and saliva samples on the survey 3 2015 = Year SHeS took place
Where are we at present? Development Fieldwork Report and Data 2013 2014 2015 2016 2017 SHeS 2014 SHeS 2015 Report due: 20/9/16 SHeS 2016 SHeS 2017 4
Content and Data
What is new on the questionnaire? 2015 Cosmetic Procedures Treatments ever had (inc. laser eye surgery, cosmetic dental etc) Electronic Cigarettes 2016 Wording changed to e-cigarettes/vaping devices Regular usage or used once/twice Frequency of usage Whether started using tobacco cigarettes or e-cigs first Length of time using e-cigs 6
How can I see results? Core Dissemination Main Report Publicity via TV, Press, Internet Additional Dissemination Summary Report 7
How has data been used? Issues Nurse Health Prevalence of overweight and obesity among nurses in Scotland Kyle RG, Neall RA, Atherton IM, International Journal of Nursing Studies Multi-morbidity Complications following incident stroke resulting in readmissions Ponomarev D, Miller C, Govan L, Haig G, Wu O, Langhorne P, Journal of Stroke Mental Health & Cancer Psychological distress, optimism and general health in breast cancer survivors Leung, J, Atherton I, Kyle RG, Hubbard G, McLaughlin D, Supportive Care in Cancer 8
What linked data is there? What Linked Data is Available? Consent currently from around 85% of participants We ask consent from all participants (adults and children) for linkage to NHS patient records: In-patient and out-patient visits to hospital, length of stay, waiting time etc Specific medical conditions, e.g. cancer, heart disease, diabetes How to Access? Registration with practitioner, date and cause of death Contact Information Services Division (part of NHS Services Scotland) 9
Consultation Questionnaire Review
Consultation What is being reviewed? Parameters Q re length User Needs Structure Need to reduce length of questionnaire possibly by: Trimming modules Remove blocks of questions not widely used Need to consider new user requirements, e.g. questions, topics, modes More modular structure? Overall and health board sample size important Time Series Value of certain time series being maintained? 11 Breadth Whether questions included every year Importance of linking info to other topics in survey
What does the consultation cover? CORE QUESTIONS Why important to keep/amend (or add) Whether question(s) have been tested Geographic level required Whether need to link to other topics Whether used previously or will use Whether information available elsewhere Impact on work if data not collected Opening : July Closing : Late August 12
How can I access the consultation? 1 On-line at: http://register.scotland.gov.uk/subscribe/step1 2 Complete via Word version and follow instructions to e-mail or post to Scottish Government Registering and completing the consultation on-line is the preferred option. There is also a new e-mail update system for consultations from the Scottish Government available at http://register.scotland.gov.uk/subscribe/step1. This allows stakeholder individuals and organisations to register and receive e-mails containing details of all new consultations. This is designed to allow stakeholders to keep up to date with all SG consultation and, therefore, be alerted at the earliest opportunity to those of most interest. We encourage you to register. 13
INTAKE24
What is it? Online 24-hour dietary recall system Developed by Newcastle University 15
What does INTAKE24 look like? Demo available at: https://intake24.co.uk/ 16
What is it? Online 24-hour dietary recall system Developed by Newcastle University 17 Why? How? More convenient Consistent coding Reduced cost Accessed via Internet in respondent s own time Allows meals/snacks to be included and details recorded Over 2,400 photos of more than 100 foods (portion estimates) Online database of over 2,300 foods Recipe maker Sandwich builder
Where are we now? Stage One: Field Test Stage Two: Possible Pilot on SHeS Stage One: Field Test Sample of 1,000 previous SHeS participants (11+) Phoned and asked to trial on four days Stage Two: Possible Pilot Incorporated onto mainstage SHeS Asked to trial on two days Phone option for those without Internet Updated food database Possible feedback on nutrient intake to participants Completion rates lower than hoped for (partially due to recruitment/instruction methods) Positive feedback from those who did participate Energy levels similar to those in NDNS Results analysed in-depth before any decision on future steps or possible incorporation into studies (esp. response rate for total and sub-groups) 18
Where are we now? Stage One: Field Test Stage Two: Possible Pilot on SHeS Stage One: Field Test Sample of 1,000 previous SHeS participants (11+) Phoned and asked to trial on four days Stage Two: Possible Pilot Incorporated onto mainstage SHeS Asked to trial on two days Phone option for those without Internet Updated food database Possible feedback on nutrient intake to participants Completion rates lower than hoped for (partially due to recruitment/instruction methods) Positive feedback from those who did participate Energy levels similar to those in NDNS Results analysed in-depth before any decision on future steps or possible incorporation into studies (esp. response rate for total and sub-groups) 19
SHeS Learnings and the Future
What does the future bring? Fieldwork Context remains challenging Need to be proactive in examining changes Study Design Can we incorporate new technologies (e.g. diet tools, wearables)? Comparability across other UK studies How to disseminate learning across studies Dissemination Need to meet needs of variety of audiences How do we talk to the non-academic public? 21
What are the key questions to answer? Question One What methodological learnings have you had from your (or other) studies that could be relevant for the Scottish Health Survey (please note the name of the studies)? Question Two What could the Scottish Health Survey be thinking about introducing or changing in the long-term? What new advances or developments might be relevant for health surveys in the next few years? 22
Thank you If you want further information or would like to contact us Diarmid Campbell-Jack, Research Director, ScotCen, 0131 240 0215 Email: Diarmid.Campbell-Jack@scotcen.org.uk Stephen Hinchliffe, Senior Researcher, ScotCen, 0131 240 0214 Email: Stephen.Hinchliffe@scotcen.org.uk Julie Landsberg, Project Manager, Scottish Government Email: Julie.Landsberg@scotland.gsi.gov.uk Visit us online, www.scottishhealthsurvey.org