AUTHORS: BETH PHILLIPS 1, MAY SUDHINARASET 1,2, FNU KAJAL 3, SHREYA SINGHAL 4, DOMINIC MONTAGU 1, AARTI KUMAR 4 MARCH 17, 2018

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ARE GOVERNMENT AND RESEARCH DATA COMPARABLE? ASSESSING GOVERNMENT AND RESEARCHER-COLLECTED DATA FROM HIGH VOLUME DELIVERY FACILITIES IN UTTAR PRADESH, INDIA AUTHORS: BETH PHILLIPS 1, MAY SUDHINARASET 1,2, FNU KAJAL 3, SHREYA SINGHAL 4, DOMINIC MONTAGU 1, AARTI KUMAR 4 MARCH 17, 2018 1 UNIVERSITY OF CALIFORNIA SAN FRANCISCO; 1 UNIVERSITY OF CALIFORNIA LOS ANGELES; 3 NATIONAL HEALTH MISSION, LUCKNOW, INDIA; 4 COMMUNITY EMPOWERMENT LAB, LUCKNOW, INDIA 1

PRESENTATION OUTLINE Introduction Site selection Methods Analysis Results Conclusion 2

INTRODUCTION TO STUDY Strengthening People-Centered Accessibility Respect Quality Quality Plus or Q+ is part of the larger SPARQ study on person-centered care in family planning, abortion, and maternal health. Q+ focus: What drives clinical quality and person centered care quality in public maternity centers in Uttar Pradesh. 3

UP AND DELIVERY CARE UTTAR PRADESH, UP 204.2 million people 1 Rapid increase in facility deliveries: 21% in 2006 68% in 2016 2 2 nd highest maternal mortality rate in India: 285 women die for every 100,000 live births 3 High levels of reported mistreatment: 20% to 57% of women reported mistreatment during childbirth 4-10 4

Q+ STUDY INTRODUCTION PRESENTATION FOCUS: Comparing government reported and researcher reported data High volume facilities (>200 deliveries/month) = 208 facilities Self reported service readiness data 11 SPA analysis 12 5

SITE SELECTION 4 10 12 14 PHC: Primary health center CHC: Community Health Center CHC-FRU: First Referral Unit DWH: District Women's Hospital 6

Q+ METHODS METHODS (August-November 2017) a. Re-administered Q+ facility surveys at all 40 facilities b. Surveyed 2,018 women who recently delivered c. Surveyed 250 health providers d. Interviewed 50 health providers Mixed method data analysis and dissemination underway

RESULTS 8

COMPARING CLINICAL QUALITY: ANALYSIS Delivery loads Essential Medicines C-sections Vaccines Maternal health data Female sterilizations Beds in PNC ward IUD insertions EmOC availability Infrastructure Electricity Drinking water Staff Clinical Non Clinical Location of facility Type of facility 9

NHM AND Q+: OVERALL RESULTS Maternal health and family planning outcomes** NHM Mean/% Q+ Mean / % Difference P-value (t-test) Monthly Deliveries (over 3 months) 324.52 301.09 23.43 0.055 C-sections (over 3 months) 178.49 26.79 151.7 0.000 Assisted deliveries (with forceps or vacuum), over 3 months 5.45 7.65-2.2 0.432 EmOC score (0-5) 3.63 3.63 0 1 IUD/PPUID insertions (over 3 months) 286.42 268.23 18.19 0.8617 Female Sterilization Clients (over 3 months) 287.32 42.35 244.97 0.0147 Supplies Basic medical equipment (0-8) 7.88 7.93-0.05 0.324 Essential Drugs for mothers and infants (0-25) 19.18 12.88 6.3 0.000 Vaccines (0-6) 4.68 5.53-0.85 0.021 Infrastructure Beds in Post Natal Ward 47.26 22.3 24.96 0.000 Estimated minutes to reach drinking water 3.65 2.48 1.17 0.25 Staffing Loads Clinical Staff 25.25 17.1 8.15 0.022 Non Clinical Staff 7.18 6.33 0.85 0.312 **Reporting period: NHM: Nov 2016-Feb 2017; Q+ : May-July 2017; ^N designates the number of facilities with data 10

DELIVERY LOAD: CONSISTENT REPORTING R2=0.85 11

CONFIRMING CORRELATION IUD insertions IUD insertions R2= 0.0220 R2= 0.4882 12

AND CONFIRMING POOR CORRELATION Female Sterilization Female Sterilization R2= 0.0370 R2= 0.2382 13

NHM AND Q+: OVERALL RESULTS Maternal health and family planning outcomes** NHM Mean/% Q+ Mean / % Difference P-value (t-test) Monthly Deliveries (over 3 months) 324.52 301.09 23.43 0.055 C-sections (over 3 months) 178.49 26.79 151.7 0.000 Assisted deliveries (with forceps or vacuum), over 3 months 5.45 7.65-2.2 0.432 EmOC score (0-5) 3.63 3.63 0 1 IUD/PPUID insertions (over 3 months) 286.42 268.23 18.19 0.8617 Female Sterilization Clients (over 3 months) 287.32 42.35 244.97 0.0147 Supplies Basic medical equipment (0-8) 7.88 7.93-0.05 0.324 Essential Drugs for mothers and infants (0-25) 19.18 12.88 6.3 0.000 Vaccines (0-6) 4.68 5.53-0.85 0.021 Infrastructure Beds in Post Natal Ward 47.26 22.3 24.96 0.000 Estimated minutes to reach drinking water 3.65 2.48 1.17 0.25 Staffing Loads Clinical Staff 25.25 17.1 8.15 0.022 Non Clinical Staff 7.18 6.33 0.85 0.312 **Reporting period: NHM: Nov 2016-Feb 2017; Q+ : May-July 2017; ^N designates the number of facilities with data 14

BY LEVEL OF CARE 500 400 300 200 100 0 District Women's Hospital (n=14) C-sections Female Sterilization Clients Clinical Staff 250 200 150 100 50 0 First Referral Unit-CHC (n=12) C-sections Female Sterilization Clients Clinical Staff 200 150 100 Community Health Center (n=10) 250 200 150 100 Primary Health Center (n=4) 50 50 0 C-sections Female Sterilization Clients Clinical Staff 0 C-sections Female Sterilization Clients Clinical Staff 15

INCENTIVES AND HEALTH SYSTEMS: CHANGING COLORS TO SURVIVE A chameleon changes its color for survival and matches with background but its form and function does not change. Similarly, health systems in LMICs change their color under pressure but [their] original function does not change." --Government of India, NHM officer 16

THANK YOU 17

REFERENCES 1. Office of Registrar General and Census Commissioner, India. India Census. Ministry of Home Affairs, Government of India. http://censusindia.gov.in. Accessed on March 12, 2018. 2. National Family Health Survey - 4 201 5-16 Uttar Pradesh Fact sheet [Internet]. [cited 2018 Mar 2]. Available from: http://rchiips.org/nfhs/pdf/nfhs4/up_factsheet.pdf 3. CDC Global Health - Maternal and Child Health. https://www.cdc.gov/globalhealth/mch/ (accessed Nov 17, 2017). 4. Sharma G, Powell-Jackson T, Haldar K, Bradley J, Filippi V. Quality of routine essential care during childbirth: clinical observations of uncomplicated births in Uttar Pradesh, India. Bull World Health Organ. 2017;95:419 29. 5. Chattopadhyay S, Mishra A, Jacob S. Safe, yet violent? Women s experiences with obstetric violence during hospital births in rural Northeast India. Cult Health Sex. 2017;0:1 15. 6. Sudhinaraset M, Treleaven E, Melo J, Singh K, Diamond-Smith N. Women s status and experiences of mistreatment during childbirth in Uttar Pradesh: a mixed methods study using cultural health capital theory. BMC Pregnancy Childbirth. 2016;16:332 7. Raj A, Dey A, Boyce S, Seth A, Bora S, Chandurkar D, et al. Associations Between Mistreatment by a Provider during Childbirth and Maternal Health Complications in Uttar Pradesh, India. Matern Child Health J. 2017;1 13. 8. Dey A, Shakya HB, Chandurkar D, Kumar S, Das AK, Anthony J, et al. Discordance in self-report and observation data on mistreatment of women by providers during childbirth in Uttar Pradesh, India. Reprod Health [Internet]. 2017 [cited 2018 Jan 8];14. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/pmc5688759/ 9. Diamond-Smith N, Sudhinaraset M, Melo J, Murthy N. The relationship between women s experiences of mistreatment at facilities during childbirth, types of support received and person providing the support in Lucknow, India. Midwifery. 2016;40:114 23. 10. Diamond-Smith N, Treleaven E, Murthy N, Sudhinaraset M. Women s empowerment and experiences of mistreatment during childbirth in facilities in Lucknow, India: results from a cross-sectional study. BMC Pregnancy Childbirth. 2017;17:335. 11. Health Statistics and Information Systems (2015). Service Availability and Readiness Assessment (SARA): an annual monitoring system for service delivery Implementation guide, Version 2.2. Service readiness indicator list. Available at http://www.who.int/healthinfo/systems/sara_implementation_guide/en/. Accessed on March 12, 2018. 12. Nesbitt RC, Lohela TJ, Manu A, Vesel L, Okyere E, Edmond K, et al. Quality along the continuum: a health facility assessment of intrapartum and postnatal care in Ghana. PLoS One. 2013;8(11):e81089. 13. Freedman, L. 2001. Integrating HIV and Maternal Health Services: Will Organizational Culture Clash Sow the Seeds of a New and Improved Implementation Practice? JAIDS: August 1st, 2011 - Volume 57 - Issue - p S80-S82. doi: 10.1097/QAI.0b013e31821dba2d IMAGES: 1. Map1 https://en.wikipedia.org/wiki/uttar_pradesh 2. Map2 https://www.mapsofindia.com/maps/uttarpradesh/proposed-new-states.html 3. Map3 http://www.maphill.com/india/uttar-pradesh/simple-maps/blank-map/cropped-outside/ 4. Chameleon1 https://www.teepublic.com/t-shirt/67230-chameleon-fantasy-rainbow-colors 5. Chameleon2 http://sites.jmu.edu/bio103shook/bbq-3b-why-do-chameleons-change-colors-is-it-an-evolutionary-adaptation-that-is-just-wrong/ 6. Chameleon3 https://en.wikipedia.org/wiki/uttar_pradesh 7. Data collector images: Taken by Beth Phillips 8. Logos: downloaded from partner websites 18