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IAN Stats Home New Advanced Stats Advanced Stats Help Contact us IAN Community IAN Research Advanced StateStats Choose state to compare: Kentucky to nationwide US Update Page Use extra caution when drawing conclusions from information with fewer than 30 responses in a category. Find out why here. Distribution of Autism Spectrum Disorders among IAN children with ASD, by first diagnosis First diagnosis US % US responses KY % KY responses Autism 40 3912 54 64 PDD-NOS 31 3086 22 26 Asperger 15 1464 11 13 Other 15 1436 13 15 Total 100 % 9898 100 % 118 Distribution of Autism Spectrum Disorders among IAN children with ASD, by current diagnosis Current diagnosis US % US responses KY % KY responses Autism 46 4598 57 67 PDD-NOS 22 2148 11 13 Asperger 19 1843 20 24 Other 13 1262 12 14 No ASD 0 47 Total 100 % 9898 100 % 118 Distribution of Autism Spectrum Disorders among IAN children with ASD, by first diagnosis and age category First Diagnosis US % 0-3 KY % 0-3 US % 4-6 KY % 4-6 US % 7-12 KY % 7-12 US % 13-18 KY % 13-18 Autism 48 66 30 42 13 18 14 0 PDD-NOS 32 19 34 31 22 18 21 25 Asperger 3 0 25 15 57 55 55 75 Other 17 14 12 12 8 9 10 0 Total % 100 % 100 % 100 % 100 % 100 % 100 % 100 % 100 % Responses 6525 77 2089 26 1172 11 112 4 Distribution of Autism Spectrum Disorders among IAN children with ASD, by first diagnosis and Gender First Diagnosis US % Male US % Female KY % Male KY % Female Autism 39 40 58 37 PDD-NOS 31 31 21 26

Asperger 15 13 11 11 Other 14 15 10 26 Total % 100 % 100 % 100 % 100 % Responses 8170 1728 99 19 Distribution of Autism Spectrum Disorders among IAN children with ASD, by current diagnosis and Gender Current Diagnosis US % Male US % Female KY % Male KY % Female Autism 46 47 62 32 PDD-NOS 21 23 10 16 Asperger 19 16 19 26 Other 13 14 9 26 No ASD 0 1 0 0 Total % 100 % 100 % 100 % 100 % Responses 8170 1728 99 19 Age at first ASD diagnosis of IAN children with ASD over time, by year of diagnosis and first diagnosis Year of first diagnosis First diagnosis US Median Age () US responses KY Median Age () KY responses 1992 Autism 1.9 15 1.9 1 1994 Autism 2.8 46 3.5 1 1995 Autism 2.7 50 3.3 3 1995 Other 2.9 20 3.0 1 1996 Autism 2.8 70 2.2 2 1996 PDD-NOS 2.8 61 3.8 2 1997 Other 2.8 25 1.3 1 1998 PDD-NOS 2.9 86 2.9 1 1999 Autism 2.8 110 2.2 3 1999 PDD-NOS 3.2 113 2.1 1 1999 Asperger 5.6 42 6.7 2 2000 Autism 2.7 157 1.8 5 2000 PDD-NOS 2.9 135 3.4 1 2001 Autism 2.7 155 2.4 1 2001 PDD-NOS 3.0 174 3.9 1 2001 Asperger 6.8 57 4.4 1 2001 Other 2.3 46 2.2 1 2002 Autism 2.6 215 1.8 2 2002 PDD-NOS 3.0 196 4.1 2 2002 Asperger 6.4 91 7.2 1 2003 Autism 2.7 296 3.0 5 2003 PDD-NOS 2.8 274 4.9 3 2003 Asperger 6.8 96 9.8 1 2004 Autism 2.8 375 2.7 7 2004 PDD-NOS 2.9 316 1.6 3 2004 Asperger 6.9 123 7.5 1 2005 Autism 2.8 494 3.3 10 2005 PDD-NOS 3.1 361 5.3 1 2005 Asperger 7.4 157 9.2 2 2005 Other 3.0 161 4.3 6 2006 Autism 2.8 568 4.0 5 2006 PDD-NOS 3.1 407 2.6 3

2006 Asperger 7.0 230 13.6 1 2006 Other 2.9 218 4.0 1 2007 Autism 2.9 461 2.6 5 2007 PDD-NOS 3.3 354 6.4 1 2007 Asperger 7.0 216 12.2 2 2007 Other 3.0 203 5.3 2 2008 Autism 3.1 284 2.3 5 2008 PDD-NOS 3.5 184 2.4 3 2008 Asperger 7.9 133 9.7 2 2009 Autism 2.9 190 2.6 6 2009 PDD-NOS 3.6 115 6.3 3 2009 Other 2.7 66 1.7 1 2010 PDD-NOS 4.6 84 10.0 1 2010 Other 3.6 53 3.9 1 2011 Autism 2.8 62 3.5 3 2012 Other 2.8 14 2.4 1 This table only shows US data where the selected state data has responses. Median age at first ASD diagnosis of IAN children with ASD, by year of birth and diagnosis (US v KY) NOTE: This information should be interpreted carefully. The odds of getting a diagnosis increase with age, and thus younger children (born after 2000, or under 8) have not had as long a time to receive a diagnosis as an older child. Year of Birth First Diagnosis US median age in US responses KY median age in KY responses 1990 Autism 3.0 32 3.5 2 1990 Asperger 11.2 29 17.4 1 1991 Autism 3.0 63 3.5 1 1991 PDD-NOS 4.6 45 15.2 1 1991 Asperger 10.4 42 8.0 1 1992 Autism 3.2 78 3.2 2 1992 PDD-NOS 4.4 64 4.4 1 1992 Other 3.0 29 3.0 1 1993 Autism 3.4 70 2.8 1 1993 PDD-NOS 4.0 87 3.2 1 1993 Asperger 9.4 84 13.6 3 1994 Autism 3.2 95 5.8 2 1994 Asperger 8.7 93 5.4 1 1995 PDD-NOS 4.0 120 2.9 1 1995 Asperger 8.8 99 8.7 2 1995 Other 3.7 44 1.3 1 1996 Autism 3.0 108 2.4 2 1996 Asperger 8.7 116 7.5 1 1997 Autism 3.1 146 2.4 2 1997 PDD-NOS 3.7 171 3.4 3 1997 Asperger 8.3 133 6.2 2 1998 Autism 3.0 181 1.8 5 1998 PDD-NOS 3.5 207 4.5 4 1999 Autism 3.0 222 4.3 5 1999 Other 3.2 97 5.3 3 2000 Autism 3.1 301 4.3 7 2000 PDD-NOS 3.5 256 5.3 3 2000 Asperger 6.5 122 7.0 1

2000 Other 3.2 122 5.6 1 2001 Autism 3.0 373 0.8 1 2001 PDD-NOS 3.0 296 6.4 3 2001 Other 3.2 114 4.3 2 2002 Autism 2.9 463 2.9 14 2002 PDD-NOS 3.1 372 1.6 1 2002 Other 3.1 156 3.6 2 2003 Autism 2.7 517 3.9 2 2003 PDD-NOS 2.8 313 3.4 2 2003 Asperger 4.3 69 5.1 1 2004 Autism 2.6 426 3.0 4 2004 PDD-NOS 2.5 268 2.3 2 2004 Other 2.7 180 2.2 2 2005 Autism 2.4 290 1.9 1 2005 PDD-NOS 2.5 166 2.7 2 2006 Autism 2.5 194 2.4 7 2006 PDD-NOS 2.2 101 2.3 2 2006 Other 2.2 74 3.9 1 2007 Autism 2.4 115 2.6 5 2008 Autism 2.3 68 3.0 1 2008 Other 2.0 31 1.7 1 2010 Other 1.7 4 2.4 1 This table only shows US data where the selected state data has responses. Median age (unadjusted) at first ASD diagnosis of IAN children with ASD by diagnosis, US v KY Diagnosis US median age in US responses KY median age in KY responses Autism 2.8 3912 2.8 64 PDD-NOS 3.1 3086 3.3 26 Asperger 7.0 1464 8.0 13 Other 2.9 1436 3.2 15 Gender distribution among IAN children with ASD (US v KY)

Gender US % US responses KY % KY responses Male 83 8170 84 99 Female 17 1728 16 19 Gender distribution among IAN children with ASD (US v KY), by first diagnosis Gender US % KY % US % KY % US % PDD- KY % PDD- US % KY % US KY Autism Autism Asperger Asperger NOS NOS Other Other responses responses Male 39 58 15 11 31 21 14 10 8170 99 Female 40 37 13 11 31 26 15 26 1728 19 Distribution of person/team giving first ASD diagnosis among IAN children with ASD (US v KY) (Who) Diagnosed By US % US responses KY % KY responses Specialist 64 6317 44 52 Team of health professionals 14 1366 40 47 Team of professionals in school system 11 1049 6 7 Other/Null 5 500 1 1 Pediatrician/FP/Primary care provider 5 503 7 8 Speech/Language Pathologist 2 163 3 3 US Distribution of person/team giving first ASD diagnosis among IAN children with ASD (US v KY), by Year of Diagnosis US % Team of US % Team of US % Year of US % US % health professionals in school Pediatrician/FP/Primary Diagnosis Specialist Other/Null professionals system care provider US % Speech/Language Pathologist US % Total Total responses for year 1991 78 0 0 11 0 11 100 9 1992 69 13 9 3 6 0 100 32 1993 64 20 7 0 2 7 100 44 1994 61 14 10 5 7 3 100 87 1995 60 17 6 5 8 3 100 118 1996 57 22 8 3 8 2 100 173 1997 64 15 10 2 5 5 100 200 1998 62 19 8 2 5 4 100 220 1999 63 15 11 3 6 2 100 293 2000 62 14 10 6 7 2 100 391 2001 63 15 9 4 6 3 100 432 2002 61 13 12 6 5 3 100 593 2003 62 13 13 6 4 2 100 763 2004 63 14 12 4 5 2 100 940 2005 66 15 10 4 4 1 100 1173 2006 66 12 11 5 5 1 100 1423 2007 67 11 11 5 5 1 100 1234 2008 60 14 12 6 6 2 100 726 2009 64 12 11 8 4 1 100 473 2010 64 18 8 5 4 0 100 364 2011 66 15 8 3 6 1 100 142 2012 63 19 7 7 3 0 100 67 2013 100 0 0 0 0 0 100 1 Total responses 6317 1366 1049 500 503 163 9898 KY Distribution of person/team giving first ASD diagnosis among IAN children with ASD (US v KY), by Year of Diagnosis KY % Team of KY % Team of KY KY % Total

Year of KY % Diagnosis Specialist health professionals professionals in school system KY % %Pediatrician/FP/Primary Speech/Language KY % Other/Null care provider Pathologist Total responses for year 1991 0 0 0 0 0 0 100 0 1992 100 0 0 0 0 0 100 1 1993 0 0 0 0 0 0 100 0 1994 0 100 0 0 0 0 100 1 1995 0 75 0 0 25 0 100 4 1996 0 75 25 0 0 0 100 4 1997 0 100 0 0 0 0 100 1 1998 0 100 0 0 0 0 100 1 1999 33 50 0 0 17 0 100 6 2000 17 83 0 0 0 0 100 6 2001 25 50 25 0 0 0 100 4 2002 40 40 0 0 20 0 100 5 2003 89 11 0 0 0 0 100 9 2004 18 45 9 0 27 0 100 11 2005 47 32 5 5 5 5 100 19 2006 60 20 10 0 0 10 100 10 2007 40 50 10 0 0 0 100 10 2008 20 60 10 0 0 10 100 10 2009 100 0 0 0 0 0 100 10 2010 50 0 0 0 50 0 100 2 2011 67 33 0 0 0 0 100 3 2012 100 0 0 0 0 0 100 1 2013 0 0 0 0 0 0 100 0 Total responses 52 47 7 1 8 3 118 Percentage of IAN children with ASD reporting an addtional diagnosis (US v KY) NOTE: participants may report more than one additional (comorbid) diagnosis. Diagnosis US % US: Number Affected KY % KY: Number Affected Motor Delay 46 4556 53 63 ADHD 30 2961 35 41 Anxiety Disorder 20 1972 19 23 Mental Retardation 9 894 9 11 Depression 8 767 7 8 Seizure Disorder/Epilepsy 7 672 7 8 Bipolar Disorder 4 388 5 6 Cerebral Palsy 1 148 2 2

Mean age in months at first concern (US v KY) by first diagnosis First diagnosis US mean age in months US responses KY mean age in months KY responses Autism 17.3 3912 15.4 64 PDD-NOS 18.9 3086 20.9 26 Asperger 31.1 1464 29.4 13 Other 18.0 1436 16.7 15 Mean age in months at first concern (US v KY) by year of first diagnosis Year of first diagnosis US mean age in months US responses KY mean age in months KY responses 1991 14.4 9 1992 14.2 32 5.0 1 1993 14.9 44 1994 15.5 87 3.0 1 1995 17.8 118 25.5 4 1996 17.9 173 23.3 4 1997 18.0 200 12.0 1 1998 19.3 220 17.0 1 1999 19.1 293 13.8 6 2000 19.8 391 10.8 6 2001 18.9 432 17.8 4 2002 21.2 593 24.6 5 2003 19.0 763 22.3 9 2004 19.4 940 21.6 11 2005 19.8 1173 13.8 19 2006 20.4 1423 17.9 10 2007 19.8 1234 18.5 10 2008 22.0 726 21.2 10 2009 21.3 473 15.5 10 2010 21.3 364 42.0 2 2011 21.7 142 18.0 3 2012 19.5 67 18.0 1

2013 16.0 1 Lag Time, mean delay in months by diagnosis First diagnosis US mean delay in months US responses KY mean delay in months KY responses Autism 22.0 3912 23.6 64 PDD-NOS 27.5 3086 30.7 26 Asperger 57.5 1464 79.5 13 Other 25.3 1436 26.0 15 Lag Time, mean delay in months by year of first diagnosis Year of first diagnosis US mean delay in months US responses KY mean delay in months KY responses 1991 6.6 9 1992 12.5 32 18.0 1 1993 13.9 44 1994 18.3 87 39.0 1 1995 21.0 118 24.7 4 1996 18.9 173 18.7 4 1997 21.6 200 4.0 1 1998 21.9 220 18.0 1 1999 26.4 293 30.3 6 2000 23.7 391 16.3 6 2001 27.2 432 20.8 4 2002 26.2 593 20.6 5 2003 27.3 763 26.6 9 2004 28.1 940 22.8 11 2005 29.3 1173 43.9 19 2006 29.8 1423 53.1 10 2007 32.1 1234 45.0 10 2008 35.7 726 26.3 10 2009 36.4 473 30.1 10 2010 41.6 364 41.5 2

2011 35.0 142 22.0 3 2012 36.7 67 10.0 1 2013 26.0 1 All Diagnoses Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Treatment US % US number reporting KY % KY number reporting Speech and Language Therapy 61 4951 71 67 Occupational Therapy 49 3963 61 58 Medications 42 3401 1 1 Medications 42 3401 48 46 Applied behavior analysis (ABA) 25 2061 20 19 Social Skills Group 15 1258 8 8 Physical Therapy 12 1012 14 13 Picture Exchange Communication System (PECS) 12 973 12 11 Visual Schedules 12 945 12 11 Sensory Integration Therapy 12 936 18 17 All-Purpose Multivitamin Supplement 11 913 12 11 Total respondents 8136 95 All Diagnoses: KY Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Treatments US % US number reporting KY % KY number reporting Speech and Language Therapy 61 4951 71 67 Occupational Therapy 49 3963 61 58 medications 0 1 48 46 Medications 42 3401 48 46 Applied behavior analysis (ABA) 25 2061 20 19 Sensory Integration Therapy 12 936 18 17 Physical Therapy 12 1012 14 13 All-Purpose Multivitamin Supplement 11 913 12 11 Picture Exchange Communication System (PECS) 12 973 12 11 Prayer 6 525 12 11 Social Stories 11 876 12 11 Total respondents 8136 95 Autism Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Top Ten Treatments: Autism US % US number reporting KY % KY number reporting Speech and Language Therapy 69 2590 78 42 Occupational Therapy 55 2068 67 36 Medications 37 1383 2 1 Medications 37 1383 37 20 Applied behavior analysis (ABA) 33 1231 24 13 Picture Exchange Communication System (PECS) 17 655 19 10

Physical Therapy 15 547 17 9 Visual Schedules 13 498 17 9 Sensory Integration Therapy 13 485 24 13 All-Purpose Multivitamin Supplement 12 438 9 5 Total respondents 3760 54 PDD-NOS Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Top Ten Treatments: PDD-NOS US % US number reporting KY % KY number reporting Speech and Language Therapy 65 1204 55 6 Occupational Therapy 50 934 45 5 Medications 41 766 27 3 Applied behavior analysis (ABA) 25 468 27 3 Social Skills Group 18 342 9 1 Physical Therapy 14 262 0 0 Social Stories 13 234 9 1 Sensory Integration Therapy 12 223 9 1 Visual Schedules 11 209 0 0 All-Purpose Multivitamin Supplement 10 195 9 1 Total respondents 1866 11 Asperger Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Top Ten Treatments: Asperger US % US number reporting KY % KY number reporting Medications 61 876 83 15 Speech and Language Therapy 32 457 56 10 Occupational Therapy 29 420 56 10 Social Skills Group 26 377 17 3 Psychotherapy / Counseling (Talk Therapy) 15 210 0 0 Social Stories 12 177 11 2 Melatonin 11 160 11 2 All-Purpose Multivitamin Supplement 11 151 22 4 Behavioral Therapy (unspecified) 8 116 0 0 Visual Schedules 8 115 11 2 Total respondents 1438 18 Other ASD Top 10 Treatments: Rank by Percentage of Respondents Reporting Use (US v KY) Top Ten Treatments: Other ASD US % US number reporting KY % KY number reporting Speech and Language Therapy 66 690 75 9 Occupational Therapy 51 532 58 7 Medications 35 369 67 8 Applied behavior analysis (ABA) 26 274 17 2 Picture Exchange Communication System (PECS) 13 138 8 1 Physical Therapy 12 128 0 0 All-Purpose Multivitamin Supplement 12 122 8 1 Sensory Integration Therapy 12 121 17 2 Visual Schedules 12 121 0 0 Melatonin 11 119 8 1 Total respondents 1043 12

Average annual out-of-pocket cost (US $) per treatment among Top Ten Treatments, US v KY Treatments US avg cost, US $ US responses KY avg cost, US $ KY responses Speech and Language Therapy $880 4951 $360 67 Occupational Therapy $707 3963 $866 58 Medications $354 3401 1 Medications $354 3401 $164 46 Applied behavior analysis (ABA) $5374 2061 $3670 19 Social Skills Group $1006 1258 $2160 8 Physical Therapy $432 1012 $131 13 Picture Exchange Communication System (PECS) $246 973 $623 11 Visual Schedules $112 945 $200 11 Sensory Integration Therapy $1241 936 $1050 17 All-Purpose Multivitamin Supplement $243 913 $86 11 Retrieved 2 Jun 2014 Data current as of 21 Jan 2013 07:20:00