Assessment of Dementia-Friendly Communities

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Assessment of Dementia-Friendly Communities How to assess and promote dementia-friendliness in each community 11.00 12.30, Saturday 29 April 2017 Room D, Kyoto International Conference Center, Kyoto, Japan 32nd International Conference of Alzheimer s Disease International Dementia Friendly Japan Initiative DFJI The Japan Chapter of the World Young Leaders in Dementia WYLD-J Alzheimer s Association Japan (AAJ)

Moderator: Miharu Nakanishi (Tokyo Metropolitan Institute of Medical Science/DFJI/WYLD-J, Japan) Introduction Yoshiyuki Kawano (University of Tsukuba/DFJI/WYLD-J, Japan) Opening remarks Yumiko Kaneko (AAJ-Niigata Branch, Japan) Global Ageing and Dementia Ryoma Kayano (WHO Centre for Health Development, Japan) Case study (Japan-1) Development of indicators of dementia-friendliness of communities Toshiyuki Ojima (Hamamatsu University School of Medicine, Japan) Case study (Japan-2) A manual for assessment and reactions to be a dementia-friendly community Yoshiyuki Kawano (University of Tsukuba/DFJI/WYLD-J, Japan) Case study (Japan-3) Action and assessment to realize a dementia-friendly community in Kyoto and Uji Kazuyuki Hirao (Kyoto Bunkyo University/AAJ/DFJI/WYLD-J, Japan) Case study (global case-1) and comments Promotion of dementia-friendliness in communities ~ Examples from WYLD Network and Canada s National Dementia Strategy Progress ~ Kristine Newman (Ryerson University/WYLD, Canada) Case study (global case-2) and comments Building Dementia Friendly Communities Jeremy Hughes (UK Alzheimer s Society, UK) Panel discussion Moderator: Yoshiyuki Kawano (University of Tsukuba/DFJI/WYLD-J, Japan) Closing remarks Miharu Nakanishi (Tokyo Metropolitan Institute of Medical Science/DFJI/WYLD-J, Japan)

Objectives of the workshop Creating a dementia friendly community can be realized and promoted when multisectoral collaboration and effort exist among all community members with diverse backgrounds. This workshop is aimed to understand how to assess and promote dementia friendliness in a community in order to create and accelerate such ideal collaboration. (1) Reporters from various groups which have been working on the development of assessment indicators share their experience and thoughts. (2) The reporters will exchange views based on the topics provided in the 1st part and help the participants understand the key points of the challenge in the creation and promotion of dementia friendliness in a community and enrich their understanding of and approach to the dementia friendliness. The participants will learn a comprehensive perspective on the methodology of the assessment of dementia friendly communities and understand the necessity of potential and sustainable next steps to steadily move forward on the creation and promotion of dementia friendliness. Chair Yoshiyuki Kawano Yoshiyuki Kawano, Ph.D. is a clinical psychologist and an Assistant Professor in Diversity Division, Center for Diversity and Accessibility, Career Development, University of Tsukuba. He received Master (2005) at Tokyo Gakugei University, Doctor (2012) of Disability Sciences at University of Tsukuba, and has been engaging in research of care for people living with dementia and their carers. His current research fields include assessment of cognitive impairment, behavioral and psychological symptoms of dementia, promoting diversity and social inclusion for people living with dementia, and assessment of dementia-friendly community in Japan. He is a member of Dementia Friendly Japan Initiative (DFJI) and World Young Leaders in Dementia (WYLD). Speaker Yumiko Kaneko President, Niigata Branch, Alzheimer s Association Japan ADI 2017 Local Organizing Committee I started to care my father in law 25 years ago, at that time, I had flustered and cried the whole time, because I did not understand dementia. I found there were many carers in the same situation. We established a branch in our prefecture, Niigata. Since then, for 21 years, we have shared experiences and feelings with many family caregiver and person with dementia. In addition, my husband suffered brain infarction in 2006, and I took my parents under my care in 2011. Since then, I have been taking care of my husband and parents. Now, I am taking care of my loved ones to relax myself as possible as I can. My motto is Be tender to others, and to be tenderer for myself Sometimes I learned that we could laugh away the tough experience to change our point of view. How life is luxuriance and very pleasant!

Ryoma Kayano Ryoma Kayano M.D. Technical Officer, WHO Centre for Health Development Dr. Kayano is a professional staff of WHO Centre for Health Development and works for different policy researches on UHC (Universal Health Coverage), Innovation and Ageing, especially in terms of dementia as his background is psychiatry. Currently he is coordinating a policy research project on dementia early detection and intervention in Kobe City. He also works for disaster mental health as a focal point of health emergency at the centre. In 2011, after Great East Japan Earthquake, he was dispatched to the disaster area as a member of Tokyo Metropolitan Mental Health Relief Team. He graduated from Nagasaki University School of Medicine and worked for international NGO activities while he was a student. Toshiyuki Ojima Toshiyuki Ojima, M.D., Ph.D. is a Professor of Department of Community Health and Preventive Medicine, Hamamatsu University School of Medicine. He graduated from Jichi Medical University (1987) and received Ph.D. (1995) at the same university. After carrier as a physician, a director of Shitara Public Health Center, Aichi Prefecture, and a faculty of the university, he was appointed to the present position (2006). His current research fields are public health and epidemiology, including care prevention, healthy life expectancy, maternal and child health, and disaster preparedness. He is a principal investigator of the research on developing Age-Friendly Cities to prevent and mitigate care load for dementia funded by the Ministry of Health, Labour and Welfare, Japan. Kazuyuki Hirao Kazuyuki Hirao is a psychiatrist and clinical psychologist. After graduating from Kyoto University in 1999, he worked as a resident at Kobe City Medical Center General Hospital. He became a psychiatrist at Kyoto University Hospital in 2001 and worked at Kyoto Prefectural Rakunan Hospital in Uji from 2002 to 2004, where he met Dr Toshio Mori, a leading psychiatrist in the field of dementia in Kyoto and Uji. He engaged in research of social cognition in schizophrenia using MRI at Graduate School of Medicine, Kyoto University from 2004 to 2008, and got a PhD in 2008. He worked as a researcher at Institute of Psychiatry, King's College London from 2008 to 2010. He had been an associate professor at Kyoto Bunkyo University since 2010 and now is a professor at Kyoto Bunkyo University. He has been exploring collaboration between neuroscience and psychotherapy, and is now interested in subjective experiences and way of living of people with dementia, engaging in Uji Dementia Action Alliance project. Kristine Newman Kristine Newman is an Assistant Professor at Ryerson University in the Faculty of Community Services, Daphne Cockwell School of Nursing in Toronto, Ontario, Canada. Dr. Newman s program of research includes Knowledge Brokering, Youth relationships with persons with Dementia, and Gerontechnology. She is a founding member of the World Young Leaders in Dementia (WYLD) and sat on WYLD Steering Group Committee until January 2017. She is presently an Adviser to the WYLD Steering Group Committee. Profile: http://www.ryerson.ca/nursing/faculty/bios/newman/

Jeremy Hughes Jeremy Hughes joined Alzheimer s Society in November 2010. He is leading the charity in its five year transformational strategy New Deal on Dementia 2017-22. Jeremy co-chairs the Dementia Friendly Communities Champions Group with top broadcaster Angela Rippon for the UK Prime Minister. Jeremy was previously Chief Executive of Breakthrough Breast Cancer where he was instrumental in providing visionary leadership, galvanising the charity's research platform and its authority on campaigning and policy. Before that Jeremy was Head of External Affairs at the International Federation of Red Cross and Red Crescent Societies. His career in health and social care charities includes leadership posts at the British Red Cross, Leonard Cheshire, Muscular Dystrophy and NCH Action for Children. Jeremy was the chair of National Voices 2009-14. He is currently the Co-chair of the UK Dementia Action Alliance and chair of the Global Alzheimers and Dementias Action Alliance. He is also a member of the World Dementia Council. Jeremy was awarded the CBE, for services to older people, in the Queen's Birthday Honours 2015. Miharu Nakanishi Miharu Nakanishi, Ph.D. is a Chief Researcher in the Tokyo Metropolitan Institute of Medical Science, and Team Leader of Mental Health and Nursing Research Team, Mental Health Promotion Project. She received her bachelors (2000), Master (2002), and Doctor (2005) of Health Science degree at the University of Tokyo. She is a registered nurse working in the area of dementia care research, and a member of World Young Leaders in Dementia (WYLDs). The ongoing study has generated various findings of palliative and end-of-life care for dementia.

Main Contributors of the workshop Yoshiyuki Kawano 1,2,4, Makoto Okada 1,5, Miharu Nakanishi 1,2,6, Naoko Hara 2,3,7, Takehito Tokuda 1,2,8, Masahiko Shoji 1,9, Takaaki Kawakami 1,10 1 Dementia Friendly Japan Initiative (DFJI) 2 The Japan Chapter of the World Young Leaders in Dementia (WYLD-J) 3 Alzheimer s Association Japan (AAJ) 4 University of Tsukuba 5 Fujitsu Laboratories Ltd. 6 Tokyo Metropolitan Institute of Medical Science 7 Niigata College of Nursing 8 Not-for-profit Organisation Dementia Friendship Club 9 International University of Japan 10 Maruho Co., Ltd. Collaborators of the planning of the workshop Chiho Oshima (Saitama Prefectural University/WYLD-J) Jang Minyoung (Meiji Gakuin University/DFJI) Katsuaki Tanaka (KOKUYO Co.,Ltd/DFJI) Mitsunobu R Kano (Okayama University/Science Council of Japan/the Globle Young Academy/WYLD-J) Miyae Yamakawa (OSAKA University/DFJI/WYLD-J) Naomi Arakawa (Not-for-profit Organisation Musubi/DFJI) Noriyo Washizu (Alzheimer s Association Japan) Tomoki Kaneko (Keio University/DFJI) This workshop was supported by JSPS KAKENHI Grant Number JP16K17255.