Community Engagement to Address Health Disparities

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Community Engagement to Address Health Disparities Health Disparities Service-Learning Collaborative Meeting April 11, 2007, Toronto, ON Canada Elmer R. Freeman, Executive Director Center for Community Health Education Research and Service

Racial and Ethnic Health Disparities: Schools of Public Health Respond as Engaged Institutions Kellogg 75 th Anniversary

Kellogg/CCPH Engaged Institutions Initiative University of Arizona University of Arkansas Boston University University of Florida University of Hawaii Morgan State University University of Nebraska University of Oregon University of North Carolina San Jose State University University of South Carolina Virginia Commonwealth University

Racial/Ethnic Health Disparities: A Social Justice and Human Rights Issue Of all forms of inequality, injustice in health care is the most shocking and inhumane. Rev. Martin Luther King, Jr. Second National Convention of the Medical Committee for Human Rights Chicago, March 25, 1966

The Un Populations Underserved Undeserved Uninsured Underinsured Underprivileged Underrepresented Underclass

Vulnerable Populations: What You Need to Remember In health care, vulnerability indicates the likelihood of poor health, illness, or disability. Vulnerability is complex. Vulnerable status in health care is the result of multiple factors and characteristics. Some are modifiable, but most are not. Predisposing (race, ethnicity, geography) Enabling (socioeconomic status, individual assets) Need (health status, quality of life)

Vulnerable Populations PREDISPOSING FACTORS Racial and ethnic minorities Women & children Geographic location: rural areas ENABLING FACTORS Mental health concerns/issues Homelessness Uninsured and the poor NEED CHARACTERISTICS Chronic illness Disability HIV/AIDS

UNEQUAL TREATMENT CONFRONTING RACIAL AND ETHNIC DISPARITIES IN HEALTH CARE INSTITUTE OF MEDICINE, 2002 Racial/ethnic disparities exist in health care, resulting in worse outcomes among minority groups, and occur independently of insurance status, socioeconomic status, or patient preferences and treatment refusals. Racial/ethnic disparities in health care are part of a larger pattern of racial and ethnic bias in society.

BIAS PRODUCING FACTORS RACE ETHNICITY CLASS CULTURE AGE DISABILITY SEXUAL PREFERENCE GEOGRAPHY Smedley BD, Stith AY, Nelson AR, eds. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, D.C., National Academy Press, 2002.

Death rates* for selected causes of death, by race or ethnicity, U.S. 2002 200 180 160 140 120 100 80 60 40 20 0 CVD Stroke Diabetes Liver Lung cancer Colorectal cancer Pneumonia, flu White African American Hispanic American Indian Asian Source: National Ctr for Health Statistics. * Age-adjusted rates per 100,000, adjusted to 1940 population.

Infant Mortality in U.S. per 1000 live births, 2003 (CDC) Infant (< 12 months) Neonatal (< 28 days) Post-neonatal (28 days 11 months) All mothers 7.0 4.7 2.3 African- American 13.8 9.3 4.5 Hispanic 5.6 3.8 1.8 White 5.9 3.9 1.9 Asian of Pacific Islander American Indian or Alaska Native 4.8 3.4 1.4 8.6 4.6 4.0

Boston Health Disparities Data Black Bostonians, as a group have worse health than all other residents on a broad range of indicators, such as hypertension, heart disease, diabetes and cancer mortality. Latino Bostonians, as a group have worse health than White residents on certain health indicators, such as asthma hospitalization and mortality, HIV and diabetes. Black adult residents are 2½ times more likely as White residents to have diabetes. Black adults are more likely than any other group to have asthma. Incidence of HIV/AIDS is higher for Blacks than Whites among both men and women; for women the rate is more than 10 times as high. Boston Public Health Commission - Disparities Project Data Report http://www.bphc.org/director/pdfs/datareport/datareport-chap1.pdf

Fundamental Causes Social/Institutional/Environmental Conditions Behavioral and Biological Risk Factors Health Outcomes This notion of fundamental causes comes from the work of Link & Phelan, in Social Conditions as Fundamental Causes of Disease, and is similar to John McKinlay s upstream-downstream causes in A Case for Refocusing Upstream: The Political Economy of Sickness and Norman Anderson s higher Levels of Analysis in Health Science: A Framework for Integrating Sociobehavioral and Biomedical Research.

Social/Institutional/Environmental Conditions Immigration & Acculturation Socio-economic Status Neighborhood Environment (Place Matters) Occupational Exposures Access to Health Care Quality of Health Care

Behavioral and Biological Risk Factors Biological Aspects of Race/Ethnicity Genetic Attributes and Gene Expression Sedentary Lifestyle Rates of Cigarette Smoking Nutrition Choices and Options Alcohol and Drug Consumption Risk Taking Behaviors

What is race? Racial/ethnic categories. 99.9% of genes are shared by everyone. Significantly more variation between individuals than between groups. Racial/ethnic differences have been found on blood pressure, heart rate, glucose/insulin, and drug reactions.

There Is Unprecedented Interest in Health Disparities Institute of Medicine Reports Department of Health and Human Services Priorities Centers for Disease Control and Prevention Healthy People 2010 National Institutes of Health Strategic Plan National Center on Minority Health and Health Disparities State Legislature Massachusetts Commission BPHC Mayor s Blueprint to Eliminate Disparities

Race, Racism and Health Race is a social construct capturing the social classification of people in a race conscious society, not a biological phenomena that reflects innate differences. Disparity is the condition or act of being unequal as in age, rank, or degree; difference. Health disparity is a difference in health among segments of the population that occur by gender, race, ethnicity, education, income, disability, geography or sexual orientation. Race associated differences in health outcomes may in fact be due to the impacts of racism on people s lives.

Racism/Discrimination: A Key Driver of Health Disparities? Socio- Economic Status Racism Can Adversely Affect: Institutional Institutional Stressor Institutional Immigration/ Selection Biology/ Physiology Institutional Stressor/ Institutional Stressor/ Institutional Institutional Occupational Risk Health Care Neighborhood Mental Health/Emotional Well-being/Health Behavior Social Relationships

Looking for Causes in all the WRONG PLACES There s an old joke about a man who late one night dropped his keys in the middle of a dark parking lot. He moves some distance over to the side of the lot and begins a fruitless search for them under a bright light. When asked why he was not looking where he actually dropped them, he replied, because this is where the light is. Network, New England Research Institutes, Summer, 2002

Strategies to ELIMINATE Disparities in Health and Health Care Educate Legislate Investigate Motivate Invigorate Negotiate Agitate Translate Evaluate

Contact Information: Elmer R. Freeman, MSW Executive Director Center for Community Health Education Research and Service 716 Columbus Avenue, Suite 398 Boston, MA 02120 Tel: 617-373-5179 Fax: 617-373-8797 E-mail: e.freeman@neu.edu