VOICES OF THE HIDDEN

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1 VOICES OF THE HIDDEN I M P L E M E N TAT I O N O F T H E P E O P L E L I V I N G W I T H H I V S T I G M A I N D E X I N TA I WA N Yi-Chi Chiu 1, 2, Ting-Shu Wu 1, Yuan-Ti Lee 3, 4, Ning-Chi Wang 5, Wing-Wai Wong 6, Chun-Eng Liu 7, Chia-Wen Li 8, Jien-Wei Liu 9, Huang-Shen Lin 10, Yu-Hsiang Hsiao 1,2, Yi-Hui Lin 2, Nan-Yu Chen 1 1 Division of Infectious Diseases, Department of Internal Medicine, Chang Gung Memorial Hospital Linkou Branch, Chang Gung University College of Medicine, Taoyuan, Taiwan, 2 Persons with HIV/AIDS Rights Advocacy Association of Taiwan, 3 School of Medicine, Chung Shan Medical University, Taichung, Taiwan, 4 Department of Internal Medicine, Chung Shan Medical University Hospital, Taichung, Taiwan, 5 Department of Internal Medicine, Tri-Service General Hospital and National Defense Medical Center, Taipei, Taiwan, 6 Taipei Veterans General Hospital, Taipei, Taiwan, 7 Department of Internal Medicine, Changhua Christian Hospital, Changhua, Taiwan, 8 Department of Internal Medicine, National Cheng Kung University Hospital, Tainan, 9 Department of Internal Medicine, Chang Gung Memorial Hospital Kaohsiung Branch, Taiwan, 10 Department of Internal Medicine, Chang Gung Memorial Hospital Chiayi Branch, Taiwan

2 Background Implementation of People Living with HIV Stigma Index in Taiwan Major barrier in ending the global HIV epidemic. Deter high risk populations to access equitable medical and psychosocial support. Estimate the HIV stigma in Taiwan by measuring the discrimination encountered by people living with HIV in the society.

3 Method Implementation of People Living with HIV Stigma Index in Taiwan April 2017 to December 2017, a nationwide survey enrolling 842 ( 3% total HIV positive population) The People Living with HIV Stigma Index questionnaire GNP+ (The Global Network of People Living with HIV) UNAIDS (The Joint United Nations Programme on HIV/AIDS) ICW (The International Community of Women Living with HIV/AIDS) 1 to 1 interviews using semi-structured questionnaire.

4 Result - Demographic Characteristics Physiologic gender distribution: 96.6% male and 3.1% female Major key population: Men who have sex with men (MSM) About 65% of participants were younger than 40 yearold 47% of participants had been living with HIV for less than 5 years.

5 Result - Multiple Stigma Most stigmatized because of people s misunderstanding about HIV transmission and fear of getting infected. Stigma toward sexual orientation, intravenous drug usage was also found in interviews.

6 Result - Multiple Stigma Compare to medical professionals such as healthcare worker or social workers, participants were less willing to disclose their HIV status to family members.

7 Result - Disclosure and Discrimination The difference of status disclosure among different groups of people surrounding PLHIV may be related to the extent of discrimination perceived from these people.

8 Result - Disclosure and Discrimination Comparison of discrimination faced by participants between self-disclosure and disclosure without consent. Discriminatory reactions after self-disclosure Discriminatory reactions after disclosure without consent P-value Adult family 12.8% 36.3% p< Partner 9.4% 36.8% p< Friends 5.2% 32.1% p< The occurrence of discriminatory reactions was more frequent when participant s HIV status was disclosed without his/her consent. Status disclosure without consent plays a critical role in the formation of HIV stigma/discrimination against PLHIV.

9 Thank You For Listening

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