Parents Worry. If we could do it over again. Preventing Bullying: A Novel Approach. Does anyone else see? 4/10/2014

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A personal & professional perspective Emily Iland, M.

Self- Awareness 2. Cluing-In the Peer group 3.

about ASD, more and sooner for Tom s sake for all of

1 A personal & professional perspective Emily Iland, M.A. Does anyone else see? 1. Self- Awareness 2. Cluing-In the Peer group 3. A place to belong Many adults with disabilities wish they knew sooner. If we could do it over again We would have talked about ASD, more and sooner for Tom s sake for all of our sakes Parents Worry Do I want others to know that my child is different? If people know my child is different they will make fun of him or her. What about labeling? What about my child s self-esteem? 1

Is something wrong with me? I could not accept my autism until I knew that my parents had.

Narrate Your Story To Promote Self-Acceptance Plant the Seeds to Explain your Child s

Explain to people of all ability levels You may hear your words spoken by the person

you are talking about It will make sense because you have been preparing The child/adult

2 Is something wrong with me? I could not accept my autism until I knew that my parents had. Self-Acceptance It is OK to be different! Acceptance & Self-Esteem Dis-empower Bullies! Narrate Your Story To Promote Self-Acceptance Plant the Seeds to Explain your Child s Disability Every day, use words that help the person understand and accept himself. Explain to people of all ability levels You may hear your words spoken by the person himself Someday you can name the diagnosis By then the child/adult will understand what you are talking about It will make sense because you have been preparing The child/adult may be greatly relieved to find out he is not the only one, and his pattern of differences has a name. 2

Tom s Tips for Telling 1. Wait for a calm time 2. Build him up 3.

Some famous people have disabilities 9. It is not his fault 10.

Everything will turn out fine When to tell the person?

or worried Choose your words wisely: Use Person-First Language Don t equate a person and their

com To prepare for change or big events Resources for those with ASD Freaks, Geeks and Asperger

3 Tom s Tips for Telling 1. Wait for a calm time 2. Build him up 3. Talk about what is hard and easy 4. Tell him this fits a pattern 5. Tell him the pattern has a name 6. Ask if he wants to know what it is called Tom s Tips for Telling 7. He is not the only one 8. Some famous people have disabilities 9. It is not his fault 10. Many things and people can help, and already are helping 11. Everything will turn out fine When to tell the person? A very individual decision After you have laid a foundation When they seem self-aware, interested or worried Choose your words wisely: Use Person-First Language Don t equate a person and their condition. We don t call people cancers. Don t call them autistics! To prepare for change or big events Resources for those with ASD Freaks, Geeks and Asperger Syndrome by Luke Jackson, Tony Attwood This is Asperger s Syndrome by Elisa Gagnon. Asperger's: What Does It Mean to Me? By Catherine Faherty, Gary B. Mesibov Little Rainman: Autism Through the Eyes of a Child by Karen Simmons. Straight Talk About Autism. Video from the Attainment Company 1. Self- Awareness 2. Cluing-In the Peer group 3. A place to belong 3

parent) Beware of the Information Gap Empower Others to Be Supportive, Caring & Helpful Knowledge Feeling ACTION Resources for Siblings Autism Through a Sister s Eyes by Eve B.

4 Inclusion is Cluing-In the Peer Group SIBLINGS! Are affected on a daily basis by having a brother or sister with ASD Need to understand to be accepting, dispel confused ideas Need to have their own needs met and still be children (not be a 3 rd parent) Beware of the Information Gap Empower Others to Be Supportive, Caring & Helpful Knowledge Feeling ACTION Resources for Siblings Autism Through a Sister s Eyes by Eve B. Band and others My Brother Kevin Has Autism by Richard W. Carlson, Jr. I Love My Brother: A Preschooler s View of Living with A Brother Who Has Autism by Connor Sullivan and others. Teach Your Kids About Autism by Carl Tuscon, brother of a person with autism Classmates! Affiliation Dis-empowers Bullies If peers affiliate, accept and protect their classmate with a disability and make them part of the group, the bullies lose their power Peers cannot do this without information! 4

Have you heard of Integrated Play Groups?

A Child s Perspective by Rosina Schnurr and others Ian s Walk: A Story

Book About Autism For Children by Charles A. Amenta III.

org Grades 2-5 and Grades 6-8 1. Self- Awareness 2.

A place to belong Asperger s and Girls Girl to Girl: Advice on

5 Have you heard of Integrated Play Groups? Peer Mediated Instruction Intervention PMII? Free training module at Resources for Peers Asperger s Huh? A Child s Perspective by Rosina Schnurr and others Ian s Walk: A Story About Autism by Laurie Lears, Karen Ritz Russell is Extra Special: A Book About Autism For Children by Charles A. Amenta III. Magination Books My friend with Autism by Beverly Bishop Grades 2-5 and Grades Self- Awareness 2. Cluing-In the Peer group 3. A place to belong Asperger s and Girls Girl to Girl: Advice on Friendship, Bullying and Fitting In by Lisa Iland In Their Element You may not get along with everyone, but there are other people like you somewhere that you will get along with. I was lucky enough to find them in choir and theatre. It s people that are like me. Rachel 5

6 Finding the Niche We have the power! More Tools from Emily Thank you! Emily Iland, M.A. 6

Autism, my sibling, and me

ORGANIZATION FOR AUTISM RESEARCH Autism, my sibling, and me Brothers and sisters come in all shapes and sizes. They have a lot in common, and they can be really different from each other. Some kids even