Autism Spectrum Disorders

Transcription

1 GOAL: Improve the Well-Being of People Affected by Autism Spectrum Disorders Kraig Robson, MBA from Claudia Hilton, OTR, PhD, MBA, FAOTA 2018 IsoDynamic, Inc. All rights reserved 2016 Cartoon Solutions for licensed characters.

2 Custom Health Care Technology 20+ Yrs. Web Applications Warfarindosing.org Mexican Health and Aging Study KSADS elearning (w/ Ken Kobak PhD) Hamilton Depression Rating Scale Cognitive Behavior Therapy Autism

3 Agend a1. Loneliness 2. Approach a) Story b) Gaming c) Peer Mediated 3. Elements 4. Testing 5. Next Steps

4 Most people on the spectrum do not have a friend.

5 Loneliness Friendships are crucial to psychological development across the lifespan 1 Good friendship quality promotes cognitive, social, and emotional development 2 Individuals with ASD are motivated to participate in social interactions, but often lack the skills and opportunity to do so 3 Poor-quality social relationships increase the risk of loneliness and anxiety 4 Loneliness is strongly associated with anxiety and other types of mental distress 5

6 ASD Scope CDC est. 1.68% (1 in 59) Million in US 69% Without intellectual disability 65-80% Unemployment $1.4 Million Avg. Lifetime Cost

7 What can we do?

8 Introducing Target: People affected by Autism Spectrum Disorders who are looking for new approaches to improve their lives Market: The Affinity is the social skills intervention Point of Difference: That plays like a game where players learn from each other during an epic life quest to make a real world friend.

9 Game Trailer

10 Agend a1. Loneliness 2. Approach a) Story b) Gaming c) Peer Mediated 3. Elements 4. Testing 5. Next Steps

11 Story Gaming Peer Mediated

12 Hero s Journey Classic storyline used throughout history.

13 Kraygon Earth

14 Comic Book 6 Chapters

15 Story Gaming Peer Mediated

16 Games Urgent Optimism 7 Social Fabric Blissful Productivity Epic Meaning

17 Life Hack Hangin Out (Act I) Party (Act II) Recess/Lunch (Act III) Progression of Risk

18 Blended Learning Blended: Online + In-Person 8 Lower perceived workload Stronger perceived learning support Teacher as mentor 9 Social engagement amongst players

19 Step by Step

20 Feedback Systems

21 Well-Being Affinity Shake (Touch) 10 Dancing/Music Gratitude & Kindness

22 Achievements, Certificate

23 Animation

24 Story Gaming Peer Mediated

25 Current Model Adults teach kids.

26 Our Model We are all potential teachers as well as learners. 11

27 Constructionism We learn by creating and expressing for others. 12

28 Empathy Understanding others transforms me.

29 Peer Mediated Interventions Improvements in social network inclusion 13 Highly effective for children with ASD 14 Novel approach using Wiki contributions and point values assigned by community of players

30 Inclusion Nothing about us without us. 15 Moodle Collect, codify, and share the wisdom of players during their epic life quest to make a real-world friend.

31 Agend a1. Loneliness 2. Approach a) Story b) Gaming c) Peer Mediated 3. Elements 4. Testing 5. Next Steps

32 Sequence 1. Intro 2. Social Rules 3. Conversations 4. Finding Allies 5. Hangin Out Online 6. Hangin Out Face-to- Face 7. The Affinity Shake 8. Crossing the Threshold

33 1. Intro Beta Tester s Dylan McFluster

34 2. Social Rules The Social Rules

35 3. Conversations Conversations

36 4. Finding Allies Common Interests Cool Zone SPIT Fit

37 Super Powers Fantastic drummer Super smelling power Pattern recognition Could be very influential by making allies/friends Potential Insecurities Trouble connecting with other kids at school Reading Recognizing emotional states in others Bullies/trolls Aliens Threats

38 4. Finding Allies The Cool Zone

39 5. Hangin Out Online Friend Dynamics Elevator Speech Hangin Out Online

40 6. Hangin Out Face-to-Face Elevator Speech Hangin Out Face-to-Face

41 7. The Affinity Shake

42 8. Crossing The Threshold Friend Dynamics

43 Agend a1. Loneliness 2. Approach a) Story b) Gaming c) Peer Mediated 3. Elements 4. Testing 5. Next Steps

44 Testing Process Test 1 - SLU Test 2 - LALEC

45 Lean Methodology16

46 Lean Canvas

47 Test 1 St. Louis U 75 minutes in Computer Lab N = 13 ASD: 7 Gifted/Talented: 1 OT Students: 4 Measure Engagement Efficacy Usability

48 Test 1 St. Louis U

49 Test 1 St. Louis U

50 Test 1 Findings Strong engagement Strong perceived efficacy SUS: Usability improvements

51 Test 2 Living and Learning 60 minutes in Social Environment N = 10 All ASD Measure: Satisfaction with Life

52 Test 2 Living and Learning

53 Test 2 Living and Learning

54 Test 2 Living and Learning 7 Players < 1 Hour 3 Players > 1 Hour

55 LALEC Summary Engagement Issue SUS: Usability improvements Position as Course vs. Game

56 Agend a1. Loneliness 2. Approach a) Story b) Gaming c) Peer Mediated 3. Elements 4. Testing 5. Next Steps

57 Next Steps Test as Course vs. Game Work with Teacher/OT/Therapist/SLP + Player Group Improve Evidence Based GOAL: Friendships + Well-being

58 Thank You!! Kraig Robson Claudia Hilton, OTR, PhD, MBA, FAOTA

59 References 1. Bauminger N, Kasari C. Loneliness and friendship in high-functioning children with autism. Child Development. 2000;71: Berndt TJ. Friends' influence on students' adjustment to school. Educational Psychologist. 1999;34: Beutel ME, Klein EM, Brahler E, et al. Loneliness in the general population: prevalence, determinants and relations to mental health. BMC Psychiatry. 2017;17: Locke J, Ishijima EH, Kasari C, et al. Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs. 2010; 10: Whitehouse AJO, Durkin K, Jaquet E, et al. Friendship, loneliness and depression in adolescents with Asperger's Syndrome. Journal of Adolescence. 2009;32: CDC MMWR Surveillance Summary, 4/27/ Jane McGonigal, Reality is Broken, Lin, Online vs. Blended Learning, Jose Bowen, Teaching Naked, Martin Seligman, PERMA theory of Well-Being Peter L. Berger and Thomas Luckman, The Social Construction of Reality, Bass & Mulick, Social play skill enhancement of children with autism using peers and siblings as therapists, Chan et al., Origins in Central European political traditions, James Charlton "Nothing About Us Without Us 16. Eric Ries, The Lean Startup, 2012