Kim Burns & Henry Brodaty

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1 Kim Burns & Henry Brodaty New resources to support the management of behavioural & psychological symptoms of dementia Dementia Collaborative Research Centre Centre for Healthy Brain Ageing University of New South Wales (UNSW Australia)

2 BPSD are common Ubiquitous, >90% of people with dementia during course YET we are not good at managing BPSD

3 Australian Govt funded DBMAS Dementia Behaviour Management Advisory Services Provide assistance to those caring for persons with BPSD in Residential care Community care Acute care

4 BPSD Guide 2012 Behaviour Management A Guide to Good Practice Managing Behavioural & Psychological Symptoms of Dementia

5 BPSD Guide Funded by the Australian Government Initially developed to provide guidance to DBMAS clinicians Provides practical strategies to be combined with clinical expertise Hard copy (limited) & PDF versions Demand exceeded expectations

6 Approach to developing BPSD Guide Systematic literature review Intervention studies rated for quality of the evidence Expert Working Group, including DBMAS clinicians Consultation with clinical experts throughout Australia

7 Project expanded To include additional considerations for managing BPSD in Aboriginal & Torres Strait Islander peoples + Culturally & Linguistically Diverse communities

8 BPSD Guide modules: A - W Behaviour management process General BPSD Aggression Agitation Anxiety Apathy Depression Disinhibited behaviours Nocturnal disruption Psychotic symptoms Vocally disruptive behaviours Wandering

9 Module format Key messages ½ page dot points 2 page summary Description of behaviour, case vignette Potential causes Differential Dx Measuring the behaviour Prevalence Effects on person with dementia & others

10 Module format cont. Results from literature search Management strategies Quality of supporting evidence for interventions: Psychosocial & environmental interventions Biological interventions Limitations of evidence Conclusions Appendices on line

11 Implementation - 10 in-service packages For skilled clinicians to deliver in their workplace

12 Each BPSD package: PowerPoint presentation with facilitators notes Lesson plan Pre & post knowledge test RN/ allied health Direct care staff Evaluation CPD certificate

13 Summary version of BPSD Guide A Clinician s Field Guide to Good Practice Managing Behavioural & Psychological Symptoms of Dementia Hard copy & PDF versions

14 Adapted summary version family carers A Guide for Family Carers Dealing with Behaviours in People with Dementia Hard copy & PDF versions

15 The BPSD Guide App for clinicians

16 Purpose of BPSD Guide App Support clinicians in the field Ready access to concise, evidence based information Prompts to guide practice Free download - itunes or Google play Search BPSD Guide

17 Straightforward format Search by presenting symptom OR select from submenu

18 For family & direct care staff Care4Dementia App Dementia behaviours carer support

19 Aboriginal specific resource Set of 11 BPSD posters for remote Aboriginal communities Joint project with Northern Territory (NT) DBMAS For Aboriginal health workers to leave in remote communities Posters support set of 6 short BPSD videos developed by DBMAS NT

20

21 Evaluation of Clinicians App Evaluate effectiveness of App to support clinicians Examined clinicians experience of using the App usefulness accessibility usability Qualitative analysis - Australia wide Quantitative analysis worldwide e.g. users professional background care settings most accessed BPSD, etc

22 Worldwide uptake of the App

23 Care settings

24 Reinforce clinical knowledge Capacity building & education Qualitative Clinicians use of the App easy access to a point of Case management reference Validate clinicians advice

25 Accessibility & mobility Alternative to the large BPSD Guide Clinical scenarios Search function Clear evidence for interventions Useful aspects of the App Simple format & portability Similar structure to BPSD Guide book

26 Lack of access to workplace devices Limited experience with technology Evidence does not always support advice Barriers to using the App Amount of content not comprehensive enough Not for use in front of person with dementia

27 Future directions Translated versions of the Guide for Family Carers for CALD communities Additional considerations for managing BPSD in LGBTI people Updated version of the BPSD Guide Evaluation of a KT project using telecommunication techniques Ongoing training & dissemination of resources

28 Thank you PDF versions of resources available via our Resource Page on DCRC website or

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