1) On a scale of 1 10, how would you rate your pain Most of the time, 0 being pain free and 10 being most severe?

Transcription

1 Patient Survey Results 1) On a scale of 1 10, how would you rate your pain Most of the time, 0 being pain free and 10 being most severe? Mild (Annoying but little interference with daily Life Moderate (Significant Interferes with daily life Significant (Disruptive to Daily Life. ) Extreme (disabling) No % 0.4% 14.2% 8.9% 10.2% 24.4% 10.2% 8.0% 16.0% 4.9% 0.0 Weighted Average: 5 2) On a scale of 0 5, how would you rate the impact your chronic pain has had on: 40.00% 35.00% 30.00% 25.00% 20.00% 15.00% 10.00% 5.00% 0.00% Your day to day activities Your mobility Your ability ability to drive Your relationships Your ability to work in your chosen profession Your ability to live independently Your overall sense of wellbeing NO IMPACT I HAVE HAD TO MAKE CHANGES BUT STILL MANAGEABLE SOME IMPACT MODERATE IMPACT SIGNIFICANT IMPACT DISABLING

2 Patient Survey Results 3) On a scale of 0 5, how well does your current treatment regimen manage your chronic pain? Current treatment is ineffective Current treatment regime completely manages pain % 16.7% 28.6% 33.0% 10.1% 1.8% Weighted Average: 2.2 4) What are you currently doing to help treat your chronic pain? (Please check all that apply) NEVER TRIED Have Tried NOT EFFECTIVE SOMEWHAT EFFECTIVE VERY EFFECTIVE WAS ONCE EFFECTIVE, BUT NO LONGER HELPS Over the counter pain medicines (Acetaminiphen, 11.9% 88.1% 55.1% 27.5% 2.3% 3.2% Capsaicin cream 44.4% 55.6% 38.5% 15.1% 1.0% 1.0% Lidocaine 39.1% 60.9% 30.2% 25.7% 5.0% 0.0% Other nonprescription topical medications (creams, gels, lotions, patches) 25.7% 74.3% 43.2% 28.6% 1.5% 1.0% Pregabalin (Lyrica) 39.8% 60.2% 31.1% 18.5% 8.3% 2.4% Duloxetine (Cymbalta) 52.8% 47.2% 28.6% 15.1% 2.0% 1.5% Duloxetine 65.3% 34.7% 17.4% 13.8% 2.6% 1.0% Venlafaxine 89.1% 10.9% 8.3% 2.1% 0.5% 0.0% Amitriptline 63.1% 36.9% 21.7% 10.1% 2.5% 2.5% Mexiletine 94.2% 5.8% 4.8% 0.0% 0.5% 0.5% Nortriptyline (Pamelor) 75.4% 24.6% 17.1% 5.0% 1.0% 1.5% Gabapentin (Neurontin) 16.4% 83.6% 33.8% 33.3% 12.3% 4.1% Carbamazepine 90.2% 9.8% 8.3% 1.0% 0.5% 0.0% Tramadol 61.4% 38.6% 15.4% 14.4% 5.9% 3.0% Medical cannibas 70.6% 29.4% 11.3% 9.8% 7.8% 0.5% Accupuncture 48.0% 52.0% 39.2% 9.3% 2.5% 1.0% Biofeedback 79.6% 20.4% 14.4% 5.0% 0.5% 0.5% Meditation 51.5% 48.5% 23.0% 22.5% 2.5% 0.5% Massage 41.2% 58.8% 27.9% 25.5% 5.4% 0.0% Wearable Devices 70.2% 29.9% 18.4% 9.5% 2.0% 0.0% TENS Unit 47.5% 52.5% 32.8% 15.2% 2.5% 2.0% Physical Therapy 34.9% 65.2% 34.9% 23.2% 6.1% 1.0% Supplements 25.9% 74.1% 47.8% 20.9% 4.0% 1.5% Diet and Exercise 7.1% 92.9% 35.1% 43.6% 13.3% 1.0%

3 Patient Survey Results 5) My treatment has changed over time because... (Please check all that apply) My prescribed medication wasn t working as well I was experiencing side effects from my prescription medication My physician/healthcare provider recommended a change It was harder to refill my prescription medication I preferred treatments that were not medication based My treatment regime became too costly I found better alternatives My treatment has not changed 0.0% 5.0% 10.0%15.0%20.0%25.0%30.0%35.0%40.0%45.0% Medication not covered by medicare Addicted to painkillers, had to stop narcotics Seizures/Side effects Exercise, lifestyle, diet helped enough to lower pain to livable standards Nothing has really helped CBD helped, opioid did not Difficultly in getting prescription pain medications Alternative treatments helped 6) What factors do you take into account when making decisions about selecting a course of treatment? (Please check all that apply) Internet research or recommendations Recommendations from family and friends Recommendations from other healthcare providers Recommendations from my healthcare providers Insurance coverage Safety Proven results Side effects 0.00% 10.00%20.00%30.00%40.00%50.00%60.00%70.00%80.00%90.00% Spouse Medical bulletins Experimentation: will try what works! Literature, reading What works for one does not work for all

4 Patient Survey Results 7) What are the most significant downsides to your current treatments, and how do they affect your daily life? (Please check all that apply) Time consuming Doesn't reduce my pain sufficiently Affects my sleep Makes it harder to live a full life Makes me tired Side Effects I am quite satisfied with my current treatment 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% 80.0% Responses Timing of medication so often during the day Medication is addictive Medication wasn t helpful Meds cause other symptoms/problems Tolerance build up over time 8) What challenges or barriers to accessing or using medical treatments for chronic pain have you or do you encounter? (Please check all that apply) My own physical limitations Doctors familiar with my condition or my treatments Treatments are not available where I live Insurance does not cover my treatments Changing legislation concerning the medical treatment Ease of obtaining prescriptions 0.0% 5.0% 10.0% 15.0% 20.0% 25.0% 30.0% Still looking for treatments with better efficacy Alternative treatments not covered by insurance, Medicare

5 Patient Survey Results 9) What specific things would you look for in an ideal treatment for your chronic pain? (Please check all that apply) Covered by insurance Proven results Ease of obtaining the treatment Ability to continue to live a normal life No side effects Effectiveness Affordability 0.0% 20.0% 40.0% 60.0% 80.0% 100.0% 120.0% All of the above! Change in federal restriction of availability of medical marijuana as a therapy for chronic pain 10) What concerns, if any, do you have about your current treatment? (Please check all that apply) Long term impacts Effectiveness Change in regulation regarding the treatment Insurance coverage Ease of getting prescriptions Ability to take the medication long term Side Effects I have no specific concerns 0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0% Concern that the pain will get worse Unpredictable results of medication Alternative treatments: massage acupuncture help but hard to find and not covered by insurance Concern that the medication will be less effective against the pain Dosages keep increasing for similar pain relief Fear of losing mobility Effects on the brain and other side effects of long term medications Options for treatments not sufficient and not safe enough