THE DEAF NEST PROJECT. Empowering, Enabling and Supporting.

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Dwayne McKenzie
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1 THE DEAF NEST PROJECT Empowering, Enabling and Supporting.

2 AIMS OF THE SESSION

3 :03 am Baby Luis 3450g Homebirth

4 days old Infection Hospital Poorly

5 Luis 3 years old Loving Happy Cheeky

7 A woman s relationship with her maternity providers is vitally important. Not only are these encounters the vehicle for essential lifesaving health services, but women s experiences with caregivers can empower and comfort or inflict lasting damage and emotional trauma. Either way, women s memories of their childbearing experiences stay with them for a lifetime and are often shared with other women, contributing to a climate of confidence or doubt around childbirth. White Ribbon Alliance, Respectful Maternity care, 2011

8 HOW ABOUT THE Paulina Ewa Sporek

9 HOW ABOUT THE Paulina Ewa Sporek

10 @ Paulina Ewa Sporek

11 @ Paulina Ewa Sporek

12 Paulina Ewa Sporek

13 @ Paulina Ewa Sporek

14 SICK OF Paulina Ewa Sporek

15 NO SIGN OF Paulina Ewa Sporek

16 DEAF NEST TRIP

17 Paulina Ewa Sporek Paulina Ewa Sporek 2014

18 Walk a mile in my shoes

19 Hi my name is Laura

20 Both of my parents are hearing All my family is, in fact I don t know anyone who is deaf

21 I have married hearing man

22 deafness=disability

Since finding out I am expecting a baby, I have come across so many more barriers Is stressful knowing that there is no additional services put in place for us

23 Since finding out I am expecting a baby, I have come across so many more barriers Is stressful knowing that there is no additional services put in place for us deaf parents to be I do feel frustrated that deaf parents are not given accessible information I have missed an appointment due to not hearing my name being called out

24 I am deaf parent and I do feel frustrated that deaf parents are not given accessible information I would like to think that I have a support network around me available like hearing people have

25 Hi my name is Kate I was born Deaf My mother is Deaf and my father is hearing I have married Deaf man

26 deafness=cultural identity

27 I am Deaf parent and I have suffered postnatal depression, felt isolated and have been left frightened by limited information, no communication provision and a general lack of understanding about the culture of Deaf people.

28 FACTOR Paulina Ewa Sporek 2014

29 KEY Paulina Ewa Sporek 2014

30 IN PRACTICE: Paulina Ewa Sporek 2014

31 6 CS:APPROACH FOR DEAF PARENTS

32 ACHIEVING MY Paulina Ewa Sporek 2014

33 THE DEAF NEST CONFERENCE

34 PROVIDING CARE 75% of delegates felt not confident about providing care to deaf or hard of hearing women. 87.5% of delegates felt confident about providing care to deaf or hard of hearing women.

35 INTERPRETERS 25% felt confident to work with BSL interpreter. 60% felt confident to work with BSL interpreter.

36 D OR d? Prior the conference 21% of delegates knew the difference between deaf spelled with capital D and lower case d. After the conference 74% of delegates knew the difference between deaf spelled with capital D and lower case d.

37 @ Paulina Ewa Sporek 2014 ASSESSING NEEDS 75% of delegates couldn t assess deaf woman s needs prior the conference. 84% of delegates felt confident to assess deaf woman s needs after the conference.

38 CHALLENGES 54% of delegates wasn t aware of the challenges deaf and hard of hearing parents face. 98% of delegates are now aware of the challenges deaf and hard of hearing parents face.

39 SHARING SUCCESS The Royal College of Midwives, the Slimming Award for Public Health The Cavell Nurses Trust The British Journal of Midwifery Award The Iolanthe Midwifery Trust, the Ann Stewart Award The Enei, the Community Impact Award

40 SHARING GOOD PRACTICE Lancashire teaching hospitals NHS foundation trust

41 BSL VIDEOS

42 WHAT HAPPENED BETWEEN 2016 & 2018?

43 HOW CAN YOU HELP?

44 A YEAR OF GOOD DEEDS

45 YOUR FIRST GOOD DEED Valentine s Day Deed Give a card to someone who doesn t expect it

46 THANK YOU

47 REFERENCES Action on Hearing Loss (2011). Facts and figures on deafness and tinnitus. London: The Royal National Institute for Deaf People. Bahan, B., Hoffmeister, R. & Lane, H. (1996). A journey into the deaf-world. United States of America: DawnsSignPress. Berg, M. (2005). A Midwifery Model of Care for Childbearing Women at High Risk: Genuine Caring in Caring for the Genuine. Journal of Perinatal Education, 14(1), Bramwell, R., Harrington, F., & Harris, J. (2000). Deafness-disability or linguistic minority? British Journal of Midwifery, 8(4), Brown, J. (2003). Good practice... Disability, Pregnancy & Parenthood International, 42, 8-9. Centre for Maternal and Child Enquiries (CMACE). (2011). Saving mother s lives: reviewing maternal deaths to make motherhood safer The Eighth Report on Confidential Enquiries into Maternal Deaths in the United Kingdom.British Journal of Obstetrics & Gynaecology, 118(S1),

48 REFERENCES Deaf Parenting UK, (2007). Deaf Parenting UK Annual Report London: DPUK. Devlin, G. (1992). Breaking the sound barriers. Nurs Times, 88(46), Disability Discrimination Act, (1995). London: HMSO. Fusick, L. (2008). Serving Clients with Hearing Loss: Best Practices in Mental Health Counseling. Journal of Counseling & Development, 86, Great Britain Parliament, (2010). Equality Act 2010: Elizabeth II. Chapter 15. London: The Stationery Office. Iqbal, S. (2004). Pregnancy and birth a guide for deaf women. London: RND in association with the National Childbirth Trust. Jackson, M. (2011). Deafness and antenatal care: Understanding issues with access, British Journal of Midwifery, 19 (5),

49 REFERENCES Kelsall, J., King, D., & O Grady, D. (1992). Maternity Care for the deaf. Scotland: Scottish Workshop Publications. Kochln, S., & Rogln, C. (2000). Quantifying the obvious: the impact of hearing instruments on quality of life. The Hearing Review. Lynn, B. (2208). Campaign for normal birth. Disability, Pregnancy & Parenthood International, 64. Marks, D. (1999). Disability. Controversial Debated and Psychosocial Perspectives. London: Biddles Ltd. Martin, J., & Williams, J. (2006). Good practice...midwives insights revisited, Disability, Pregnancy & Parenthood International, 53, McAleer, M. (2006). Communicating effectively with deaf patients. Nursing Standards, 20 (19),

50 REFERENCES McKay-Moffat, S. (2007). Midwives skills, knowledge and attitudes: how they can affect maternity services. In S. McKay-Moffat (Ed.), Disability in Pregnancy and Childbearing (pp ). London: Chrchill Livingstone. McKay-Moffat, S., & Rotheram, J. (2007). Maternity services and women s experiences. In S. McKay-Moffat (Ed.), Disability in Pregnancy and Childbearing (pp ). London: Chrchill Livingstone. Munoz-Baell, I.B., & Ruiz, M.T. (2000). Empowering the deaf. Let the deaf be deaf. Journal of Epidemiology and Community Health, 54(1), NHS Commissioning Board website, (2012). Nursing, Midwifery and Care-givers. Retrieved from nurse- strat.pdf/ Nursing and Midwifery Council, (2012). Midwives Rules and Standards. NMC, London. Nursing and Midwifery Council, (2008). Codes and Conduct for Nurses and Midwives. NMC, London.

51 REFERENCES Oliver, M. (2004). If I had a hammer: the social model in action. In C. Barnes, S. French, J. Swain & C. Thomas (Eds), Disabling Barriers- Enabling Environments (pp.7-12). London: Sage. Oliver, M. (2009).Understanding Disability From Theory To Practice. London: Palgrave Macmillan. Oliver, M., & Sapley, B. (1999). Social Work with Disabled People. London: Macmillan. O Luanaigh, P., & Carlson, C. (2005). Midwifery and public health. London: Chrchill- Livingstone. Price, C. (2012). Challenges of providing continuity of care to a deaf couple. Essentially MIDIRS, 5 (3), pp Rogers, J. (2006). The Disabled Woman s Guide to Pregnancy and Birth. New York: Demos Medical Publishing.

52 REFERENCES Rotheram, J. (2007). Resources... Disability, Pregnancy & Parenthood International, 58. Royal National Institute for Deaf People, (2004). A simple cure. RNID, London, Royal College of Nursing, (2007). Pregnancy and disability. RCN guidance for midwives and nurses. RCN, London. Scullion, P. (1999). Challenging discrimination against disabled patients, Nursing Standards, 13(18), Shleld, B. (2006). Evaluation of the social and economic costs of hearing impairment. A report for Hear. AISBL, Belgium. Sign Health, (2008). Why do you keep missing me? A report into Deaf people s access to primary health care. Beaconsfield: Sign Health. Skelton, T., & Valentine, G. (2003). It feels like being Deaf is normal : an exploration into the complexities of defining D/deafness and young D/deaf people s identities. The Canadian Geographer, 47(4),

53 REFERENCES The Royal National Institute for Deaf People, (2011). Hearing Matters- Action on hearing loss. The Royal National Institute for Deaf People, London. Thomas, C. (1999). Female Forms: Experiencing and understanding disability. Buckingham: Open University Press. Wates, M. (2005). Good practice... Choice, equity and accessibility, Disability, Pregnancy & Parenthood International, 48, Young, I.M. (1990). Justice and the politics of difference. Princeton: Princenton University Press.

deaf nest PROJECT by Paulina Ewa Sporek Improving childbirth and pregnancy experience for a deaf couple.

April 2013 deaf nest PROJECT by Paulina Ewa Sporek P R O P O S A L Improving childbirth and pregnancy experience for a deaf couple. Empowering, Enabling and Supporting. With Support of: TABLE OF CONTENTS